iiinova — where your digital self keeps evolving

Dysautonomia Support Network @dyssupport.bsky.social · 10/01/2026

Heading to college with dysautonomia? Watch DSN's DyscEd Q&A video, download the free handbook & join College Connections support group for students navigating dysautonomia. Video: youtu.pulse.ly/s5gxntoc26 #Dysautonomia #POTS #College

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Dysautonomia Support Network @dyssupport.bsky.social · 09/01/2026

Newly diagnosed with dysautonomia? DSN's Getting Started guide is your roadmap - learn about forms, find providers, discover management techniques & connect with community. dysautonomiasupport.pulse.ly/zhuobg… #Dysautonomia #POTS

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Dysautonomia Support Network @dyssupport.bsky.social · 08/01/2026

Dysautonomia affects the autonomic nervous system, which controls automatic body functions. It impacts 70 million people worldwide. While there's no cure, symptoms can be managed effectively. Learn more: dysautonomiasupport.pulse.ly/h63gfy… #Dysautonomia #POTS

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Dysautonomia Support Network @dyssupport.bsky.social · 08/01/2026

Need a dysautonomia-knowledgeable doctor? DSN's free patient-recommended Provider Directory helps you find experienced healthcare professionals near you. dysautonomiasupport.pulse.ly/aeyx4a… #Dysautonomia #POTS #ChronicIllness

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Dysautonomia Support Network @dyssupport.bsky.social · 06/01/2026

Connect with others who understand. DSN offers 2 Global Communities—Facebook & Inspire—for peer support. 🌍 dysautonomiasupport.pulse.ly/s3npyj… #Dysautonomia #POTS #ChronicIllness

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Dysautonomia Support Network @dyssupport.bsky.social · 04/01/2026

Living with dysautonomia? You're not alone. DSN offers medically-reviewed info, safe online communities, monthly Virtual Support Groups & downloadable resources. Everything you need in one place: dysautonomiasupport.pulse.ly/133epg… #Dysautonomia #POTS #ChronicIllness #Support

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Dysautonomia Support Network @dyssupport.bsky.social · 03/01/2026

AAG: rare dysautonomia w/ autonomic failure. Symptoms: orthostatic hypotension, dry eyes/mouth, gastroparesis, bladder issues. Treatment: plasma exchange, IVIG, immunosuppressants. dysautonomiasupport.pulse.ly/1scjnz… #Dysautonomia #AAG

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Dysautonomia Support Network @dyssupport.bsky.social · 02/01/2026

The Dysautonomia Workbook: A Guide to Empowered Living is now available!!! Get practical tools and strategies for living with dysautonomia. See details and order info:https://dysautonomiasupport.pulse.ly/35bcqluith #dysautonomia #chronicillnesssupport #potssyndrome #longcovid #symptommanagement

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Dysautonomia Support Network @dyssupport.bsky.social · 01/01/2026

Happy New Year from all of us at DSN! 🎊 As we step into 2026, we want you to know: you are not alone in this journey. 🩵 Wishing you all a year filled with compassion, strength, and bright days ahead.

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Dysautonomia Support Network @dyssupport.bsky.social · 31/12/2025

As we look forward to another new year, what are your hopes and plans for 2026? Share your thoughts and let's start weaving a network of support for each other's New Year's dreams! #NewYear #dysautonomia #chronicillnesssupport #potssyndrome #longcovid #2026

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Dysautonomia Support Network @dyssupport.bsky.social · 31/12/2025

What is Orthostatic Hypotension? OH is a drop in blood pressure when changing position, causing dizziness, lightheadedness, and sometimes fainting. Learn more: dysautonomiasupport.pulse.ly/yw04vr… #Dysautonomia #OH #ChronicIllness

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Dysautonomia Support Network @dyssupport.bsky.social · 30/12/2025

From "Ask the Expert: How to Use OT to Manage Dysautonomia" with Dr. Joanna Behm. Full video: youtu.pulse.ly/b7oe89kpqo Workbook: dysautonomiasupport.pulse.ly/6xt8oq… #Dysautonomia #POTS #OT

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Dysautonomia Support Network @dyssupport.bsky.social · 28/12/2025

Managing fatigue in school? These modifications help students with dysautonomia: elevator pass, extra books at home, brain breaks, virtual attendance & adjusted schedules. Full guide: dysautonomiasupport.pulse.ly/os8s3h… #Dysautonomia #POTS

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Dysautonomia Support Network @dyssupport.bsky.social · 27/12/2025

You asked about heat intolerance! Try cooling vests, ice packs, portable fans & lukewarm showers. This season's temp shifts are challenging! dysautonomiasupport.pulse.ly/fp4eea… #Dysautonomia #POTS #ChronicIllness

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Dysautonomia Support Network @dyssupport.bsky.social · 26/12/2025

Need to explain POTS? Download our free handout! 📋 Easy info on Postural Orthostatic Tachycardia Syndrome for family, friends & doctors. Other dysautonomia handouts available too! dysautonomiasupport.pulse.ly/lfq4yv… #POTS #Dysautonomia

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Dysautonomia Support Network @dyssupport.bsky.social · 25/12/2025

Today, we're wishing you moments of peace: peace with where you are right now. Peace that recognizes your reality without diminishing your hope. Peace that holds both acceptance and action. You are more than your symptoms, more than your diagnoses. May you feel that truth today. 💙

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Dysautonomia Support Network @dyssupport.bsky.social · 24/12/2025

It's tiiiiiiimeeee! 🎉 The Dysautonomia Workbook pre-orders have shipped & copies are available now! dysautonomiasupport.pulse.ly/x7zten… #Dysautonomia #POTS #ChronicIllness

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Dysautonomia Support Network @dyssupport.bsky.social · 23/12/2025

The DSN Creatives Club is a place for members to explore and develop interests and talents with others who understand the challenges of pursuing your passion and goals with a chronic condition. Join: facebook.pulse.ly/dqmngmwv4h #dysautonomia #creativeexpression

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Dysautonomia Support Network @dyssupport.bsky.social · 21/12/2025

Cold intolerance with dysautonomia? Try layers, heated blankets, hand warmers & warm soaks. Avoid quick temp shifts! dysautonomiasupport.pulse.ly/z83fdi… #Dysautonomia #POTS #ChronicIllness

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Dysautonomia Support Network @dyssupport.bsky.social · 20/12/2025

Energy conservation helps manage dysautonomia fatigue through planning, prioritizing, pacing & positioning. Sit when possible, take breaks early & organize efficiently. dysautonomiasupport.pulse.ly/kvscy7… #Dysautonomia #POTS

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Dysautonomia Support Network @dyssupport.bsky.social · 20/12/2025

Assistive tech isn't just for chores—it's for joy. Scrolling rings, adaptive athletic equipment, ergonomic tools for art/music/gardening. Search: assistive tools + your symptoms + what you love. You deserve to enjoy life. 🩵 #AssistiveTechnology #Disability #ChronicIllness

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Dysautonomia Support Network @dyssupport.bsky.social · 18/12/2025

MCAS commonly co-exists with dysautonomia. Mast cells inappropriately release inflammatory chemicals causing multi-system symptoms. Treatment includes trigger avoidance & medications. Learn more: dysautonomiasupport.pulse.ly/iexvyl… #MCAS #Dysautonomia #POTS

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Dysautonomia Support Network @dyssupport.bsky.social · 17/12/2025

What's the best or most thoughtful gift you've ever received as a person managing chronic illness - or as a caregiver for a person with chronic illness? What's on your wishlist this year? Tell us what would make your holidays brighter!

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Dysautonomia Support Network @dyssupport.bsky.social · 17/12/2025

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Dysautonomia Support Network @dyssupport.bsky.social · 17/12/2025

Free IST handout available! Learn about symptoms, diagnosis & treatment for Inappropriate Sinus Tachycardia. Perfect for patients & caregivers. 📋💙 dysautonomiasupport.pulse.ly/858oww… #Dysautonomia #IST #ChronicIllness

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Dysautonomia Support Network @dyssupport.bsky.social · 16/12/2025

You don't have to navigate dysautonomia alone. 🩵 DSN's regional online communities offer peer-to-peer support in a welcoming and private environment. Find your region: dysautonomiasupport.pulse.ly/f6qzdn… #dysautonomia #support #community #chronicillness #peerSupport

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Dysautonomia Support Network @dyssupport.bsky.social · 14/12/2025

Vasovagal Syncope (VVS) is a form of dysautonomia where the nervous system suddenly fails to maintain blood vessel tone, causing fainting. Triggered by standing, stress, or pain. Learn more: dysautonomiasupport.pulse.ly/6q3twd… #Dysautonomia #VVS

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Dysautonomia Support Network @dyssupport.bsky.social · 13/12/2025

Newly diagnosed with dysautonomia? DSN's Getting Started guide helps you go from surviving to thriving with provider directories, management resources & supportive communities. dysautonomiasupport.pulse.ly/u5cni7… #Dysautonomia #POTS

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Dysautonomia Support Network @dyssupport.bsky.social · 13/12/2025

The holidays are hectic for everyone. Add dysautonomia to the list and it's a recipe for exhaustion. Fortunately, Physical Therapist Kristine Trimble, PT, DPT has tips for managing the holidays with dysautonomia: youtu.pulse.ly/hrkhl8iw9y #chronicillnesslife #potssyndrome #dysautonomia

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Dysautonomia Support Network @dyssupport.bsky.social · 12/12/2025

COOLING AID DISCOUNT ALERT! Nano-Ice has a special offer for followers of Dysautonomia Support Network. Use code HJ9CCKNC99G8 to get $20 off your purchase at nano-ice.pulse.ly/f190vnwryy #dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids

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Dysautonomia Support Network @dyssupport.bsky.social · 10/12/2025

Free resources for students managing dysautonomia! DSN offers handouts, videos, & peer support for K-12 through college. dysautonomiasupport.pulse.ly/qteowj… #Dysautonomia #ChronicIllness #StudentSupport

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Dysautonomia Support Network @dyssupport.bsky.social · 09/12/2025

Looking for dysautonomia-knowledgeable providers? Check out this patient-recommended healthcare directory - searchable by region & free to access! 🩵 dysautonomiasupport.pulse.ly/inqeqx… #Dysautonomia #POTS #ChronicIllness #ChronicIllnessSupport

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Dysautonomia Support Network @dyssupport.bsky.social · 09/12/2025

Dr. Melissa Geraghty breaks down medical gaslighting in chronic illness—what it is, how to spot it, and how to advocate for yourself. She's both a psychologist & dysautonomia patient herself. Watch: youtu.pulse.ly/qxrzpcspdz

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Dysautonomia Support Network @dyssupport.bsky.social · 07/12/2025

Educational resource on medications commonly prescribed for dysautonomia. Learn about treatment options to discuss with your provider. Not medical advice! dysautonomiasupport.pulse.ly/zzueid… #Dysautonomia #POTS #PatientEducation

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Dysautonomia Support Network @dyssupport.bsky.social · 06/12/2025

Asked our community: What are your best tips for getting through the holidays with chronic illness? The answers: Rest before events. Set boundaries. Your well-being > obligation. Have emergency protocols. Sit with the kids (they don't watch your plate). Real advice from real experience. 🩵

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Dysautonomia Support Network @dyssupport.bsky.social · 05/12/2025

Dysautonomia Support Network's Caregivers Community provides resources and fosters a supportive environment for those caring for loved ones with dysautonomia and its related conditions. Join: facebook.pulse.ly/lemfz4tzaa #dysautonomia #chronicillnesssupport #caregiving #caregiversupport

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Dysautonomia Support Network @dyssupport.bsky.social · 05/12/2025

Hydration is key for dysautonomia management. Many with autonomic dysfunction have reduced fluid volume. Experts recommend half your fluids include electrolytes. Learn more: dysautonomiasupport.pulse.ly/xtnwqt… #Dysautonomia #POTS #ChronicIllness #Hydration

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Dysautonomia Support Network @dyssupport.bsky.social · 03/12/2025

Dec 3 is Intl Day of Persons with Disabilities. DSN offers resources for work/school accommodations, assistive devices & symptom management. #Dysautonomia #InvisibleDisability #IDPD dysautonomiasupport.pulse.ly/iav38d…

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Dysautonomia Support Network @dyssupport.bsky.social · 02/12/2025

This Giving Tuesday, support the DSN community by supporting DSN! If our resources and community have helped your dysautonomia journey, consider donating to keep them accessible for everyone: dysautonomiasupport.pulse.ly/mvurbs… How has DSN impacted you? 🩵 #GivingTuesday #Dysautonomia

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Dysautonomia Support Network @dyssupport.bsky.social · 01/12/2025

ADHD + dysautonomia connections: New research links ADHD, POTS & MCAS through chronic inflammation. Via ADDitude Magazine: additudemag.pulse.ly/tpv5zvnmrx #ADHD #POTS #MCAS

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Dysautonomia Support Network @dyssupport.bsky.social · 01/12/2025

Sleep struggles with dysautonomia? You're not alone. Better sleep hygiene can help decrease symptoms—try consistent schedules, cool dark rooms & bed elevation. dysautonomiasupport.pulse.ly/c79xdm… #Dysautonomia #POTS #ChronicIllness

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Dysautonomia Support Network @dyssupport.bsky.social · 30/11/2025

Our Ask the Expert session with Dr. Joanna Behm is now on YouTube! Practical OT strategies for managing dysautonomia & chronic conditions. Watch: youtu.pulse.ly/zrhi3sdjmc #Dysautonomia #POTS #ChronicIllness #OccupationalTherapy

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Dysautonomia Support Network @dyssupport.bsky.social · 29/11/2025

November and December can be hectic for a lot of us, and when you're also managing dysautonomia, burnout is a real concern. What are your strategies for getting through busy times without overdoing it? #dysautonomia #chronicillnesssupport #winterholidays #collectivewisdom #spooniesupport

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Dysautonomia Support Network @dyssupport.bsky.social · 27/11/2025

Today, we are grateful to be part of a community where people share their personal stories, celebrate each other's wins, and mourn each others losses. Thank you to all who take part in the DSN community. Wishing everyone a safe and happy Thanksgiving 🩵

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Dysautonomia Support Network @dyssupport.bsky.social · 27/11/2025

If you're heading to a Thanksgiving gathering where you're likely to get a lot of "advice" on your chronic illness, don't forget that DSN is open for venting! Share your holiday stories with us. And may all your Thanksgiving dinner companions be supportive and sympathetic! #spoonie #potsie

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Dysautonomia Support Network @dyssupport.bsky.social · 25/11/2025

COOLING AID DISCOUNT ALERT! Nano-Ice has a special offer for followers of Dysautonomia Support Network. Use code HJ9CCKNC99G8 to get $20 off your purchase at nano-ice.pulse.ly/1lzl8rigne #dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids

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Dysautonomia Support Network @dyssupport.bsky.social · 24/11/2025

Exercise helps manage dysautonomia symptoms. Start recumbent (rowing, bikes, swimming), combine aerobic + strength training. Go at your pace. Talk to your provider first. 🩵 dysautonomiasupport.pulse.ly/jtvg4u… #Dysautonomia #POTS

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Dysautonomia Support Network @dyssupport.bsky.social · 23/11/2025

“What I want is so simple I almost can't say it: elementary kindness.” ― Barbara Kingsolver, Animal Dreams Luckily, we see kindness every day in our DSN communities. Thank you to everyone who connects with DSN to offer a kind word. 🩵 #chronicillnesssupport #kindnessmatters

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