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Don Daniel Ocay

@dondanielocay.bsky.social

Pediatric pain researcher @ Boston Children’s Hospital • PhD McGill University • Opinions are my own • 🇵🇭 🇨🇦 🏳️‍🌈

Don Daniel Ocay @dondanielocay.bsky.social · 17/12/2025

Published in #mdpichildren via @mdpiopenaccess.bsky.social: we identified the top 10 patient-oriented priorities for #youth with #erythromelalgia With our team’s multicenter registry (PED-EMERGE), we plan to address these priorities FREE to read/download: www.mdpi.com/3571466

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Don Daniel Ocay @dondanielocay.bsky.social · 30/09/2025

Our study investigating a HOME-BASED sensory testing tool-kit in youth undergoing surgery with regional anesthesia is now published in RAPM! See our summary below⬇️ FREE: rapm.bmj.com/content/earl...

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Don Daniel Ocay @dondanielocay.bsky.social · 14/08/2025

Snijders Blok-Campeau syndrome (SNIBCPS) is a rare condition that affects brain development, communication, & movement. Decreased pain sensitivity has been reported, but are anecdotal. So how do people with SNIBCPS feel & experience pain?⬇️ Free access: https//www.frontie...

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Don Daniel Ocay @dondanielocay.bsky.social · 02/05/2025

A vibrant workshop on advocacy at #USASP2025 Advocacy is a extension of research 🤝 If we don’t shape our message, someone else might - and not always accurately @usasp.bsky.social

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Don Daniel Ocay @dondanielocay.bsky.social · 02/05/2025

Wonderful session on how to engage PWLE in pain research at #USASP2025 Getting advice from researchers on barriers, and PWLE on best practices @usasp.bsky.social

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Don Daniel Ocay @dondanielocay.bsky.social · 01/05/2025

Day 2 #USASP2025 plenary speaker is Dr. @luanacolloca.bsky.social She highlights the positive effects of virtual reality on pain management @usasp.bsky.social

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Don Daniel Ocay @dondanielocay.bsky.social · 01/05/2025

Day 2 of #USASP2025 begins with the Gold-Haythornthwaite Lifetime Achievement Award recipient Dr. Clifford Woolf (@bostonchildrens.bsky.social, @harvardmed.bsky.social) @usasp.bsky.social

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Don Daniel Ocay @dondanielocay.bsky.social · 30/04/2025

Dr. Beth Darnall gives the 1st plenary talk at #USASP2025 The biggest problem in pain care is ACCESS. We need to move from patients accommodating our institutional systems to patient-centered care @usasp.bsky.social

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Don Daniel Ocay @dondanielocay.bsky.social · 30/04/2025

Day 1 of #USASP2025 is kicked off with Cameron Young sharing his lived experience growing up with chronic pain @usasp.bsky.social

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Don Daniel Ocay @dondanielocay.bsky.social · 27/01/2025

Hot off the press of Pediatric Research: We mapped the existing literature on #youth with #erythromelalgia Our team is developing a multicenter PEDiatric ErythroMElalgia Registry Gathering multidisciplinary Experts (PED-EMERGE) FREE to read/download: rdcu.be/d7HbX

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Don Daniel Ocay @dondanielocay.bsky.social · 03/01/2025

Published in the January 2025 Issue of PAIN: We developed a mobile sensory testing tool-kit that is cost-effective for repeated measures across time, easy to use, & able to assess changes in sensory and pain processing. FREE: journals.lww.com/pain/fulltex...

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