iiinova — where your digital self keeps evolving

diabetesdatarights.bsky.social @diabetesdatarights.bsky.social · 04/09/2026

Over the past year, we’ve held roundtables online and in Orlando, Madrid, Portlaoise, San Diego, and Amsterdam. Each one shaped the Diabetes Data Rights Charter in a different way.

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diabetesdatarights.bsky.social @diabetesdatarights.bsky.social · 01/09/2026

We're delighted to share that our website is now live, and the text of the Diabetes Data Rights Charter is currently being finalised. Thank you to everyone who has contributed to this work so far. We look forward to sharing the final Charter in the coming months! 🌐 www.diabetesdatarights.com

diabetesdatarights.com

Diabetes Data Rights | Empower Your Data Control Today

Learn about the Diabetes Data Rights Charter, empowering people with diabetes to have control over their data through principles and industry engagement.

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diabetesdatarights.bsky.social @diabetesdatarights.bsky.social · 11/05/2026

The #diabetesdatarights Charter was initiated in response to a clear and growing need: ensuring that people with #diabetes retain meaningful access to, and control over, their own #healthdata. This work is grounded in community priorities and emerging global digital‑rights standards.

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diabetesdatarights.bsky.social @diabetesdatarights.bsky.social · 13/04/2026

Our purpose: articulate principles that help people with #diabetes worldwide exercise safe, secure control over their diabetes data in ways that reflect their needs and values. #diabetescommunity #diabetesdatarights

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diabetesdatarights.bsky.social @diabetesdatarights.bsky.social · 10/04/2026

In Feb 2023, leaders from the #WeAreNotWaiting community asked a simple question: what’s next? The answer became clear — we need a Diabetes Data Rights Charter. A community‑built framework to protect access, control, and dignity in diabetes data. #diabetesdatarights #diabetes

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diabetesdatarights.bsky.social @diabetesdatarights.bsky.social · 10/01/2025

Shane O'Donnell's article on Zócalo underscores the vital need for data control and access for those with type 1 diabetes. Sharing his personal story, he highlights how limited access to essential health data impacts care and outcomes: www.zocalopublicsquare.org/diabetes-dat...

zocalopublicsquare.org

My Diabetes Data Is a Matter of Life and Death | Essay

Technology Has Revolutionized My Care, But the Medical Industry Has a Stranglehold on My Health Information

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