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Dementia Who!

@dementiawho.bsky.social
334 followers 513 following 304 posts

🔸 Alzheimer's caregiver 🔸 Unpaidcarer 🔸 Blogger: DementiaWho.com 🔸 Caring for mum with Alzheimer's 10yrs 💜

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Dementia Who! @dementiawho.bsky.social · 24/02/2026
Day 7 Ramadan: Feeling wonderful today, happy and revitalised, sun has been out all day, not sure if its that or not, but hadn't realised how down in the dumps i'd actually been feeling. Deep breaths, face to the sun, lovely! Hope you've had the sun and a lovely day too!
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Nicolle Mitchell @massagefordementia.co.uk · 24/01/2026
Sticks to Light Your Fire! Pop on over to see my new blog, a warm reflection on becoming a dementia informed practitioner: massagefordementia.co.uk/sticks-to-li... #massage #dementia #massagefordementia #dementiainformed #blog #blogpost #DementiaAwareness #cpd #massagetraining #training
massagefordementia.co.uk
Sticks to Light Your Fire - Massage for Dementia
Cat and dog curl up in front of the home-fire safe and sound
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Nicolle Mitchell @massagefordementia.co.uk · 24/01/2026
Carers experiencing grief Something here may resonate with you #carers #grief #rebuilding
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Dementia Who! @dementiawho.bsky.social · 23/01/2026
Hi, I’m Kat, It’s the anniversary of my mum’s death this week & I've made quite a terrifying step of sharing my first YouTube video about starting again 1 year later I'd appreciate you taking a look. Promise kept, finally #grief #caregiving fyi @massagefordementia.co.uk youtu.be/CBF_LtS6e5k?...
youtu.be
Starting Again | One Year Later
YouTube video by Khadra Awomer
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Ian Kremer @wolverinebear.bsky.social · 02/01/2026
24 Eye-Opening Truths About Being a Dementia Caregiver dementiawho.com/24-eye-openi... by @dementiawho.bsky.social #Alzheimers #dementia #caregiving
dementiawho.com
24 Eye-Opening Truths About Being a Dementia Caregiver - DementiaWho!
Sometimes dementia caregivers need others to understand how important we really are to our loved ones, to families and to society. Please have a read of 24
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Dementia Who! @dementiawho.bsky.social · 07/12/2025
This week is #NationalGriefAwarenessWeek. I’ve been thinking about how difficult it’s going to be to carry grief across Christmas & New Year celebrations. I've written about things that could help as mum started to decline in Xmas & I lost her in the New Year dementiawho.com/coping-with-...
dementiawho.com
Coping with Grief This Christmas - Small Things That Make A Difference - DementiaWho!
Coping with grief this Christmas can feel isolating. These simple, grounded ideas can help you get through the season at your own pace, whether your loss is new or years old.
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Dementia Who! @dementiawho.bsky.social · 06/12/2025
There are days when “I’m okay” is the only answer I can give. Talking about grief can open up more than people expect. They don’t see the holding back, the editing, the effort to stay composed. This is what grief actually looks like. #NationalGriefAwarenessWeek #griefjourney
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Dementia Who! @dementiawho.bsky.social · 03/12/2025
It’s #NationalGriefAwarenessWeek , so I wanted to talk about the parts of grief that rarely get mentioned, especially after caring for a loved one with dementia. The reality is you cope with the support you have, or you reach a point where you need more help.
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Dementia Who! @dementiawho.bsky.social · 29/11/2025
Gwent Carer's Hub are offering their annual carer activity packs, they have limited availability so its on a first come first serve basis. We got one last year full of art supplies, but I don't know what's in this years. Well worth trying to get one!
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We Care Campaign @wecarecampaign.bsky.social · 25/11/2025
Carers shouldn't need courage to claim Carer's Allowance. If today's review resolves this, it's a win thanks to carers and investigative journalism.
gov.uk
Independent Review of Carer’s Allowance Overpayments
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We Care Campaign @wecarecampaign.bsky.social · 25/11/2025
@patrickjbutler.bsky.social and @joshhalliday.bsky.social article on Carer’s Allowance overpayments and hundreds of thousands of carers cases to be reassessed. The Sayce review out later today. There’s also a quote from us. Read about it here www.theguardian.com/society/2025...
theguardian.com
DWP to reassess hundreds of thousands of cases in carer’s allowance scandal
Damning official review finds many unpaid carers left with huge debt because of government failure
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Dementia Who! @dementiawho.bsky.social · 24/11/2025
Just watched Chris Hemsworth: A Road to Remember, documentary about taking his dad, who’s living with Alzheimer’s, on a road trip. It shows how reminiscence therapy &social connection can be very powerful emotional tools, read my review Watch it on Disney+ dementiawho.com/chris-hemswo...
dementiawho.com
Review: Chris Hemsworth: A Road to Remember - How Connection Reaches Beyond Memory - DementiaWho!
A caregiver’s review of Chris Hemsworth: A Road to Remember. How reminiscence therapy, social connection and memory shape this powerful documentary.
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Nicolle Mitchell @massagefordementia.co.uk · 19/11/2025
'"I think it's super important to acknowledge that instinct of wanting to protect our loved ones," she says. "But what do we lose … when we focus solely on one type of safety, without acknowledging the richness that can come from a life that allows for some freedom and flexibility and autonomy?"'
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Nicolle Mitchell @massagefordementia.co.uk · 18/11/2025
Carers should be better paid, trained ongoing, helping step outside of embedded cultures This can create safety challenge practice improve services/standards It's a multiskilled difficult job & so rewarding if you're also paid well, respected & that includes high standards of progressive training
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Dementia Who! @dementiawho.bsky.social · 19/11/2025
Alzheimer's and dementia mortality at highest level since 2000 www.bbc.com/news/article...
bbc.com
Alzheimer's and dementia mortality at highest level since 2000
The number of deaths from Alzheimer's disease and other forms of dementia has reached its highest level since records began in 2000, new figures show.
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Dementia Who! @dementiawho.bsky.social · 18/11/2025
Yes, No, Maybe... Where Do You Stand On The Top 12 Arguments In Adult Social Care? | The King's Fund www.kingsfund.org.uk/insight-and-...
kingsfund.org.uk
Yes, no, maybe... where do you stand on the top 12 arguments in adult social care? | The King's Fund
As the Casey Commission investigates the future of adult social care, Simon Bottery explores 12 key questions it will need to answer
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Dementia Who! @dementiawho.bsky.social · 18/11/2025
Dementia care without locked doors? Inclusion is becoming more common : Shots - Health News : NPR www.npr.org/sections/sho...
npr.org
Dementia housing without locked wards? It's a small but growing movement
Some senior living communities are caring for people with dementia alongside other residents, not segregated behind locked doors.
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Dementia Who! @dementiawho.bsky.social · 18/11/2025
“I want people to see me, not my dementia” www.stir.ac.uk/news/2025/no...
stir.ac.uk
“I want people to see me, not my dementia”
Award-winning Joan, 75, is using her Alzheimer’s diagnosis for the good – including delivering university lectures.
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Dementia Who! @dementiawho.bsky.social · 18/11/2025
“Every day is different”: Pauline Quirke’s son shares moving dementia update ahead of “emotional” challenge www.goodhousekeeping.com/uk/lifestyle...
goodhousekeeping.com
“Every day is different”: Pauline Quirke’s son shares moving dementia update ahead of “emotional” challenge
'My mum has always been my best friend, and dementia hasn’t changed that'
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Beth Britton MBE 💚 @bethyb1886.bsky.social · 16/11/2025
On my way to Manchester! If you're attending #UKDC2025 I'll be there running Comms for @dementiacommunity.bsky.social, the organisers of UK Dementia Congress. Do come and say hello! Looking forward to seeing lots of colleagues and friends 😊
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Dementia Who! @dementiawho.bsky.social · 17/11/2025
Memory Matters Weekly is out. This week: • A THC–CBD dementia trial showing measurable cognitive improvement • A Mayo Clinic tool predicting Alzheimer’s risk years before symptoms • New data showing lower-income and minority groups face more Alzheimer’s risk factors Read here:
buff.ly
Memory Matters Weekly #10 - DementiaWho!
This week’s dementia research includes a THC–CBD trial showing cognitive improvement, a Mayo Clinic risk-prediction tool, and new findings on neighbourhood disadvantage.
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Dementia Who! @dementiawho.bsky.social · 12/11/2025
Beyond excited to listen to this, check out the podcast below!
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We Care Campaign @wecarecampaign.bsky.social · 12/11/2025
🎙️ Season two first episode...we're speaking to Sir Ed Davey! MP for Kingston and Surbiton, leader of @libdems.org.uk , a carer and author of a book ‘Why I care: And why care matters’ @eddavey.libdems.org.uk speaks to Care Fully Considered 🎙️ Listen here player.captivate.fm/episode/0e2c... 1/2
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Dementia Who! @dementiawho.bsky.social · 10/11/2025
New issue of Memory Matters Weekly is out. 💡 Walking 3000- 5,000 steps a day linked to slower Alzheimer’s decline 🧠 A discovery that could explain why loved ones are forgotten 👩🏽⚕️ The NHS’s new dementia research nurses Three stories linking science, care, and hope:
buff.ly
Memory Matters Weekly #9 - DementiaWho!
This week’s dementia research highlights walking and brain health, new insight into memory loss, and the NHS launch of Dementia Research Nurses.
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Dementia Who! @dementiawho.bsky.social · 09/11/2025
I used to think helping meant doing everything. Now I know it also means knowing when to stop. “Safety without smothering” is a balance every caregiver faces, keeping a loved one with #dementia, safe without taking away who they are. New Blog : buff.ly/szgSF9R #Dementia #Caregivers #Independence
buff.ly
Safety Without Smothering: Learning When to Step Back in Dementia Care - DementiaWho!
Discover how to keep your loved one safe without taking over. Learning when to step back in dementia care is one step to support independence with gentle awareness.
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Dementia Who! @dementiawho.bsky.social · 07/11/2025
Show 1451: Rethinking Dementia: Is What We Believed about Alzheimer’s Wrong? | The People's Pharmacy "Instead of focusing only on amyloid plaque in the brain, should we be rethinking dementia? Multiple interventions could protect cognition" www.peoplespharmacy.com/articles/sho...
peoplespharmacy.com
Show 1451: Rethinking Dementia: Is What We Believed about Alzheimer’s Wrong?
Instead of focusing only on amyloid plaque in the brain, should we be rethinking dementia? Multiple interventions could protect cognition.
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Dementia Who! @dementiawho.bsky.social · 07/11/2025
Care home launches dementia-friendly disco for residents www.exmouthjournal.co.uk/news/2560242...
exmouthjournal.co.uk
Care home launches dementia-friendly disco for residents
Staff and residents at Raleigh Manor Care Home in Exmouth put on their dancing shoes on Wednesday, October 29, for the first Dementia Disco.
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Dementia Who! @dementiawho.bsky.social · 07/11/2025
How to keep dementia from robbing your loved ones of their sense of personhood – tips for caregivers theconversation.com/how-to-keep-...
theconversation.com
How to keep dementia from robbing your loved ones of their sense of personhood – tips for caregivers
Treating people with dementia as full, thriving human beings requires awareness of stigma and simple communication strategies.
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Dementia Who! @dementiawho.bsky.social · 07/11/2025
Dedicated national network of Dementia Research Nurses launches "will get nurses on the ground recruiting people from as many different communities and backgrounds as they can into clinical trials, providing support throughout their research journey" www.ucl.ac.uk/news/2025/no...
ucl.ac.uk
Dedicated national network of Dementia Research Nurses launches
The UK Dementia Trials Network, led by a UCL professor of neurology, is establishing a dedicated nationwide network of Dementia Research Nurses.
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Dementia Who! @dementiawho.bsky.social · 06/11/2025
‘Severance’ Actor John Turturro Opens Up About His Caregiving Journey www.aarp.org/caregiving/b...
aarp.org
‘Severance’ Actor John Turturro Opens Up About His Caregiving Journey
He reflects on supporting his brother through mental illness and giving grace to caregivers
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Dementia Who! @dementiawho.bsky.social · 06/11/2025
What I Wish I’d Done Differently as a Caregiver www.aarp.org/caregiving/b...
aarp.org
What I Wish I’d Done Differently as a Caregiver
AARP’s family and caregiving expert reflects on a traumatic time of caring for her sister and parents and ultimately losing her mom
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Dementia Who! @dementiawho.bsky.social · 06/11/2025
Most willing to accept caregiving robots as solution to long-term care challenge www.ucd.ie/newsandopini...
ucd.ie
Most willing to accept caregiving robots as solution to long-term care challenge
Posted 5 November, 2025
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Dementia Who! @dementiawho.bsky.social · 05/11/2025
Dealing with dementia: ‘I’m not a wife anymore, I’m a carer. That’s sad, but once Thomas is happy, that’s all I care about’ www.independent.ie/life/health-...
independent.ie
Dealing with dementia: ‘I’m not a wife anymore, I’m a carer. That’s sad, but once Thomas is happy, that’s all I care about’
You are wearing dark sunglasses, but rather than music, there’s a cacophonous audio mashup of the television, the radio and amplified household sounds ringing in your ears. Meanwhile the place is a…
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Dementia Who! @dementiawho.bsky.social · 05/11/2025
Teesside photographers share archive to help dementia patients www.bbc.com/news/article...
bbc.com
Teesside photographers share archive to help dementia patients
The pictures help trigger memories and conversations at the University Hospital of North Tees.
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Dementia Who! @dementiawho.bsky.social · 03/11/2025
This Alzheimer’s pill story made me angry 52% slower decline, bullshit, caregivers deserve honesty, not marketing spin This week’s Memory Matters Weekly also looks at: 🎵 Music & dementia risk 🧠 Why men’s brains shrink faster with age #Dementia #caregivers Read it here →https://buff.ly/0tCAdao
buff.ly
Memory Matters Weekly #8 - DementiaWho!
This week in dementia research: hype around a new Alzheimer’s pill, music linked to lower dementia risk, and why men’s brains shrink faster all in Memory Matters Weekly #8
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Dementia Who! @dementiawho.bsky.social · 27/10/2025
Memory Matters Weekly #7 is out! 🧠 Brain waste-clearance & dementia 🕒 Disrupted circadian rhythms in Alzheimer’s 🤝 Predicting caregiver distress Read more 👇 dementiawho.com/memory-matte...
dementiawho.com
Memory Matters Weekly #7 - DementiaWho!
New dementia research highlights brain waste clearance, disrupted sleep rhythms, and early stress detection for caregivers.
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Dementia Who! @dementiawho.bsky.social · 20/10/2025
Memory Matters Weekly #6 is out! What stood out in dementia research this week: •Referral gaps to allied health for dementia care •linking smoking cessation to slower cognitive decline •Why genes matter in Alzheimer’s risk for African Americans Read it here:
buff.ly
Memory Matters Weekly #6 - DementiaWho!
New dementia research highlights care gaps in allied health referrals, shows how quitting smoking in midlife may lower dementia risk, and uncovers key genetic clues in African American communities.
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Dementia Who! @dementiawho.bsky.social · 19/10/2025
New Blog Post How To Reduce Fall Risks At Home For Dementia Caregivers
buff.ly
How To Reduce Fall Risks At Home For Dementia Caregivers - DementiaWho!
Practical ways to reduce fall risks at home for dementia caregivers, from lighting and layout to footwear, mobility aids, and daily routines.
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Dementia Who! @dementiawho.bsky.social · 16/10/2025
Five benefits of getting a diagnosis for dementia – what are they? - Alzheimer's Research UK www.alzheimersresearchuk.org/news/five-be...
alzheimersresearchuk.org
Five benefits of getting a diagnosis for dementia – what are they? - Alzheimer's Research UK
Shockingly, 1 in 3 people living with dementia don’t have a diagnosis. But an early dementia diagnosis can help people understand their condition, access treatments and get support. And diagnosis…
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Dementia Who! @dementiawho.bsky.social · 16/10/2025
More people sought to open up homes for dementia Lovely idea by Filo project to encourage new experiences & friendships for loved ones with dementia www.bbc.com/news/article...
bbc.com
Home-based dementia day care service seeks hosts
The Filo Project needs more paid hosts who take people with a dementia into their own homes.
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Nicolle Mitchell @massagefordementia.co.uk · 15/10/2025
I'm utterly ashamed people fear for their safety on such a wide scale @ashleydaltonmp.bsky.social successive governments & the usual media suspects continue to fuel this divide It's an enmeshed mess! When we stand by fueling any inequality in the end it hurts all communities #SafePlaceForAll
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Dementia Who! @dementiawho.bsky.social · 15/10/2025
Early menopause associated with increased risk of dementia medicalxpress.com/news/2025-10...
medicalxpress.com
Early menopause associated with increased risk of dementia
A new international study led by University of Galway has found that entering menopause at an earlier age is associated with an increased risk of dementia.
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Dementia Who! @dementiawho.bsky.social · 13/10/2025
This week’s Memory Matters Weekly is live. Three dementia research stories that stood out: • Creative experiences may delay brain aging • Nanotech reversed Alzheimer’s in mice • A new trial centring dignity in advance care planning Read full issue: dementiawho.com/memory-matte...
dementiawho.com
Memory Matters Weekly #5 - DementiaWho!
Memory Matters Weekly #5 - Creative experiences may help delay brain ageing, new nanotech shows promise for reversing Alzheimer’s in mice, and a dementia care trial aims to make advance care planning ...
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Dementia Who! @dementiawho.bsky.social · 14/10/2025
Another lost soul, gutted to read that D'Angelo has died, I loved his music, anytime you wanted to feel that mellow groove, he was there, many a time I listened to him after a break up. I still have this album on cd from almost 20 yrs. it always make me feel good, RIP youtu.be/H_WzjiTzZBA?...
youtu.be
D'Angelo - Brown Sugar
YouTube video by DAngeloVEVO
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Nicolle Mitchell @massagefordementia.co.uk · 13/10/2025
Kat is so right Grief has a sneaky way of turning up just when you think you've dealt with it How do you fill that space when your loved one who filled up your days & nights so completely has gone? This is an honestly raw blog & beautiful for it #dementia #carers #blog
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Dementia Who! @dementiawho.bsky.social · 14/10/2025
Faster MRI scans could help end dementia diagnosis ‘postcode lottery’ www.independent.co.uk/news/health/...
independent.co.uk
Faster MRI scans could help end dementia diagnosis ‘postcode lottery’
There are currently estimated to be 982,000 people with dementia in the UK, but more than a third of people with the condition do not have a diagnosis
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Dementia Who! @dementiawho.bsky.social · 14/10/2025
Dementia risk for people who quit smoking in middle age ‘same as someone who never smoked’ www.theguardian.com/society/2025...?
theguardian.com
Dementia risk for people who quit smoking in middle age ‘same as someone who never smoked’
Research finds kicking the habit halves rate of decline in verbal fluency and slows memory loss by 20%
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Dementia Who! @dementiawho.bsky.social · 14/10/2025
‘Frightened to get out of their cars’: Britain’s toxic race debates threaten overseas care workers Horrendous! www.theguardian.com/society/2025...
theguardian.com
‘Frightened to get out of their cars’: Britain’s toxic race debates threaten overseas care workers
Staff are being advised to travel in mixed groups and carry panic alarms as incidents of intimidation spread
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Dementia Who! @dementiawho.bsky.social · 13/10/2025
This week’s Memory Matters Weekly is live. Three dementia research stories that stood out: • Creative experiences may delay brain aging • Nanotech reversed Alzheimer’s in mice • A new trial centring dignity in advance care planning Read full issue: dementiawho.com/memory-matte...
dementiawho.com
Memory Matters Weekly #5 - DementiaWho!
Memory Matters Weekly #5 - Creative experiences may help delay brain ageing, new nanotech shows promise for reversing Alzheimer’s in mice, and a dementia care trial aims to make advance care planning ...
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Dementia Who! @dementiawho.bsky.social · 12/10/2025
Diane Keaton, Oscar-winning star of Annie Hall and The Godfather, dies aged 79 She was brilliant and funny. I loved watching in all her movies, so many to choose from, but one I go back to again, again for that crying scene is Something's Gotta Give RIP www.theguardian.com/film/2025/oc...
theguardian.com
Diane Keaton, Oscar-winning star of Annie Hall and The Godfather, dies aged 79
The legendary actor best known for her many collaborations with Woody Allen, as well as films including Reds, The First Wives Club and Book Club, has died
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