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Delyth Owen

@delytheluned.bsky.social
183 followers 145 following 31 posts

Student nurse. Functional Neurological Disorder advocate.

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Delyth Owen @delytheluned.bsky.social · 27/02/2026
6 months ago I joined a cohort I’d previously given a lecture to! Not just any lecture, but a deeply personal story of how FND almost took my life. All my deepest darkest secrets, like how at my lowest I was in a homeless hostel. Now I sit amongst them a learner again myself. (1)
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Delyth Owen @delytheluned.bsky.social · 23/02/2025
Next Tuesday I will be sharing my story with a group of GP registrars as part of their training. It feels like the culmination of all my advocacy work so far. To be in a room with the people who can REALLY make a difference to the lives of pt with FND. Instilling compassion and reducing stigma #fnd
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Delyth Owen @delytheluned.bsky.social · 17/02/2025
Apparently even the Egyptians had knowledge of functional illness!! Does anybody have more info about this??
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Delyth Owen @delytheluned.bsky.social · 20/01/2025
One thing that keeps popping up in all these damning reports about NHS (ockenden etc) is a lack of compassion. Could we conclude that this is someone connected to a rise in far right views??! The effect of reform, trumpism, musk?! #nhs #trump #musk #compassionfatigue
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Delyth Owen @delytheluned.bsky.social · 06/01/2025
I like the idea of reframing shame, taking hold of it and making something useful. All the healthcare professionals who tried to shame the FND out of me - I guess they were trying to do the same in their own way. If we can make her embarrassed maybe she’ll stop? So maybe intentions were good?
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Royal College of Emergency Medicine @rcem.ac.uk · 16/12/2024
We have made it clear that the NHS temporary escalation spaces (TES) guide is "normalisation of what is an unacceptable and dangerous situation". RCEM Position Statement: tinyurl.com/rcemTES RCEM News: tinyurl.com/rcemNews1612
Ian Higginson, RCEM's Vice President, posts: "Called out NHSE’s narrative that it’s possible to provide safe care in corridors. Used strong language putting our statement together, reflecting RCEM members’ and colleagues’ strength of feeling on this matter. Degree to which corridor care is normalised is dumbfounding." There is an image of an Independent website news story with the headline: 'Top A&E doctors criticise ‘dangerous’ suggestion that corridor care can be delivered safely'.
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Delyth Owen @delytheluned.bsky.social · 16/12/2024
Do you want your therapist to share details about themselves? I’ve just had a profound realisation that I love the fact I know nothing about my current therapist. I feel this is the best therapeutic relationship for me right now. Any thoughts?
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Delyth Owen @delytheluned.bsky.social · 16/12/2024
A dentist, a GP, a therapist, Avocados, Bertolli olive oil and pine nuts #daydreaming
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Delyth Owen @delytheluned.bsky.social · 15/12/2024
Following a successful lecture in September, I have been asked to come back and speak about FND, my experience, lack of treatment pathways + how I recovered. Consequently every nurse graduating from @bangoruniversity.bsky.social from now on will have a basic understanding/ compassion for #FND 🙏
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Dr Leo Russell @leoistdp.bsky.social · 15/12/2024
I've put together a starter pack for the FND science community. Please repost to share the link and do let me know of folks I've missed so I can add them to the group. Thanks everyone 🙏 🧵 1/
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Shaelynn Raleigh @shaesprojects.bsky.social · 06/12/2024
Hello! I’m Shae and I’m a digital artist who only uses the oil paint brush. I have a print shop and might get into charms and other stuff. I’m a visually impaired FND advocate and my main career is as a paralegal.
Aurora over the oceanPegasus at sunsetHusky in the snowA close up painting of Colorful tulips
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Delyth Owen @delytheluned.bsky.social · 12/12/2024
I’m currently unpacking my medical trauma with a new therapist. Biggest theme - I blamed myself for the mistreatment I suffered. I was self-stigmatising. I believed I was faking, an attention seeker, not trying hard enough to stop my non-epileptic seizures. Why do we do this? Blame ourselves?
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Delyth Owen @delytheluned.bsky.social · 07/12/2024
During my dx of FND I was shamed, dismissed and told “this is something that happens to women sometimes, now you know it isn’t real it will likely stop”. The medical trauma this induced forced me into the shadows, vowing I’d never bother a dr about my seizures again.
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Jon Stone @jonstoneneuro.bsky.social · 05/12/2024
"Iatrogenic harm in FND" – new review article @brain1878 very much the work of Caoimhe McLoughlin – a short thread. academic.oup.com/brain/advanc... 1/
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Reposted by Delyth Owen
Dr Leo Russell @leoistdp.bsky.social · 05/12/2024
I've put together a starter pack for the FND science community. Please repost to share the link and do let me know of any folks I've missed so I can add them to the group.
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Delyth Owen @delytheluned.bsky.social · 06/12/2024
Great thread to read if you want a quick overview of FND. Perfectly summarised.
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