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DCAction

@dcaction.bsky.social

11 followers 6 following 17 posts

UK Charity number 1167150 Supporting people living with Telomere Biology Disorders

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DCAction @dcaction.bsky.social · 30/10/2025

The RareCare survey is also open to Healthcare Professionals working in Rare Diseases

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DCAction @dcaction.bsky.social · 21/08/2025

At the Manchester Rare Conditions Centre, in partnership with the NIHR Manchester Biomedical Research Centre, we believe that people with lived experience of rare conditions are essential partners in everything we do

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DCAction @dcaction.bsky.social · 23/03/2025

She made it!!! www.justgiving.com/page/jane-pa...

A picture of Jane and friends arriving in Santiago de Compostela

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DCAction @dcaction.bsky.social · 01/12/2024

Lots of Telomere talk at BTS 2024 @btsrespiratory.bsky.social A little aide memoire here

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