iiinova — where your digital self keeps evolving

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 9h

We’re funding early career researcher James Charlick to study how the CF protein works at a microscopic level. Understanding tiny details about faults in this protein can help researchers design more effective medicines for CF and make them available to a wider group. ➡️ ow.ly/tAaQ50ZUT52

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 01/10/2026

Over the past two years, the Translational Innovation Hub Network for CF Lung Health and Infection has brought together researchers, clinicians, people with #cysticfibrosis and partners across the UK and beyond to make real progress against CF lung infections. ➡️ www.cysticfibrosis.org.uk/network

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 28/09/2026

A new study is looking at an alternative pancreatic enzyme replacement therapy. ANG003 is a new enzyme therapy being studied that is made using highly purified enzymes produced by microorganisms. ➡️ ow.ly/QZRv50ZQ31w

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 25/09/2026

To mark Organ Donation week, we’re pleased to share the UK CFMA and ALTP care recommendations for people with cystic fibrosis following a lung transplant, developed with involvement from people with CF who have had a transplant. ➡️ ow.ly/L0ti50ZRol6

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 23/09/2026

Since launching our Clinical Trials Accelerator Platform, we’ve now supported more than 10,000 screenings onto a CF study. With more people being screened, we’ve been able to support a huge range of research to take place in the UK. Click the link to find out more. ➡️ ow.ly/FB6F50ZQ2uN

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 17/09/2026

Thank you to all those researchers, doctors, statisticians and members of the CF community who have helped us ensure that our research studies are of the highest standard. Thank you all so much for helping us on our way towards achieving a life without limits for everyone with #cysticfibrosis

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LifeArc @lifearc.bsky.social · 16/09/2026

Why choose a career in cystic fibrosis research? 4 researchers from across the CF Lung Health Network share what motivates them and the difference they hope to make for people living with CF. #CysticFibrosis #ResearchCareer

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Luke Allsopp @lukeallsopp.bsky.social · 10/09/2026

Discussing my passion and career in #STEM + #infection in the #ScientistsMakingaDifference book. I work on the bacterium #pseudomonas that’s particularly common in people with #CF #Youngscientists @cysticfibrosis.org.uk @lifearc.bsky.social @imperialnhli.bsky.social @imperialcollegeldn.bsky.social

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 09/09/2026

Darren Sills, a CF dietitian and researcher, is leading the GRAMPUS-CF study, part of a wider, Trust-funded research programme of the same name. Find out more about the GRAMPUS-CF study on our Trials Tracker. ➡️ ow.ly/m6ow50ZKEOZ

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 02/09/2026

We are working in partnership with #RNID, to ensure that people with serious infections – including those living with #cysticfibrosis – can receive life-saving treatment without losing their hearing. ➡️https://ow.ly/wA3R50ZI9Jl #ResearchWednesday

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 26/08/2026

For this week's #ResearchWednesday, we're going inside the lab with Dr Amy Downes and Dr Idan Bokobza, who work in our MATRIARCH_CF Strategic Research Centre (SRC). ➡️https://ow.ly/r3sR50ZFuYT #CysticFibrosis #ReproductiveHealth #RoyalBrompton #ImperialCollegeLondon #CFTrust

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 19/08/2026

Anti-inflammatory treatments are an important part of managing lung health in people with CF – but we need better and more specific anti-inflammatory treatments. We’re funding a new Strategic Research Centre at the University of Glasgow to address this. ➡️ ow.ly/SE5X50ZALP2

Quote from Professor Robert Gray that says "“The DEFINE-CF SRC will highlight potential ways to develop new treatments for inflammation in CF. It brings together an international grouping of experts in CF and lung inflammation to address this challenge, and we are incredibly grateful to Cystic Fibrosis Trust and the CF community for supporting us in this work.”

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 05/08/2026

We’re proud to share that last month we passed the AMRC Expert Review Audit. Meeting AMRC's six principles of expert review confirms that we use robust and rigorous research funding processes; helping us to fund the best research and improve lives for everyone with CF. ➡️ ow.ly/JEEX50Zwt38

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 23/07/2026

Rob entered the raffle last year because his three-year-old granddaughter, Sienna, lives with cystic fibrosis. He wanted to help fund the research and support that’s transforming the lives of families like his. Buy your ticket today! ➡️ cysticfibrosis.org.uk/summerraffle #cysticfibrosis #cftrust

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 22/07/2026

We have developed a new research funding partnership with Guts Charity UK to boost pancreatitis research that benefits people with #cysticfibrosis with #pancreatitis. ➡️ ow.ly/Bj9l50Zq4yn

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 15/07/2026

We take a look at several clinical studies currently underway hoping to improve how we detect and treat infections – and how you could get involved. This includes the Precision P3 study – looking at new ways to test for lung infections without using sputum samples. ➡️ ow.ly/NvH950Znbsl

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 08/07/2026

Last week concluded the last of our recent visits to the four Innovation Hubs that make up our CF Lung Health Network, co-funded by the Trust and LifeArc. Swipe for a recap of the four programmes and click the link to find out more. ow.ly/qPMi50Zl7B4 #cysticfibrosis

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 06/07/2026

On today's episode of our podcast #CForYourself, we're talking all about managing finances and CF. Our host Lucy is joined by Rachel, who shares some practical ways to reduce household bills, top tips for budgeting, and what can help you navigate money-stress. ➡️ ow.ly/oquM50ZkAHa

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 01/07/2026

We visited researchers from the Precision-CF team – part of our Translational Innovation Hub Network for CF Lung Health and Infection funded by the Trust and LifeArc. Visit our website to find out more. ➡️ ow.ly/L1nX50Zja84 #cysticfibrosis #cftrust #researchwednesday

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 29/06/2026

Today, the Government announced that health assessments for disability and sickness benefits will be audio recorded as standard to improve transparency in the benefit system. Click the link to read the full statement. ➡️ ow.ly/xI1T50ZijSX #cysticfibrosis #DisabilityBenefits #cftrust #PIP

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 27/06/2026

Today is #WorldMicrobiomeDay! We spoke to early career researchers Heritage and Lillie to find out more about the LUNG microbiome and why they’re studying it to improve treatments for CF lung infections. ➡️ ow.ly/nBox50ZhuyN #PrecisionCF LifeArc #cysticfibrosis #cftrust

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 26/06/2026

We’re recruiting for a Head of Registry Operations. We're looking for someone to lead the operations of the UK CF Registry, driving the quality, integrity and impact of world-leading #cysticfibrosis data. 🗓️ Closes 11.59pm on Monday 20 July. ➡️ ow.ly/1iVx50YEQuo

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 24/06/2026

At the beginning of June, around 2,000 people working in CF gathered at the European CF Conference to hear updates, exchange ideas and make new partnerships. Read our blog of some of our highlights from the meeting. ➡️ ow.ly/XMpZ50Zg9Vw #ResearchWednesday #cysticfibrosis #cftrust #ECFS

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 24/06/2026

An new study linking UK CF Registry data with a cancer registry for the first time will help determine the best approaches to cancer screening, testing, and treatment for people with cystic fibrosis. ➡️ ow.ly/E7te50ZfNoz #cysticfibrosis #cftrust #CancerResearch #CancerScreening

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 23/06/2026

Join us for the next CF LIVE about cystic fibrosis in South Asian communities, where Dr Maya Desai will explore “Is CF different in South Asian families?” 🗓️ Wednesday 15 July, 7.00 pm. ow.ly/NyfY50ZfycF #cysticfibrosis #cftrust #OurStoriesMatter #UnityinDiversity #SouthAsianHeritageMonth

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 18/06/2026

We’re proud to be one of 89 charities awarded a share of NIHR's £37m investment, supporting 800+ early-career researchers. This will help our researchers at a crucial stage of their careers, empowering them to drive future breakthroughs that save and improve lives. ➡️ ow.ly/jH1350ZccCN

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 17/06/2026

From supporting the CF researchers of the future, to funding research that can make a difference for everyone with CF, find out how we are making progress thanks to your donations. ➡️https://ow.ly/WpK350ZbPI5 #ResearchWednesday #CFtrust #cysticfibrosis

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Reposted by Cystic Fibrosis Trust

Trailfinder CF Innovation Hub @cf-trailfinder.bsky.social · 12/06/2026

Trailfinder CF Hub members wearing yellow in support of the annual Cystic Fibrosis Trust annual event. @cysticfibrosis.org.uk @lifearc.bsky.social @alderheycharity.org

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Charlie Merriman (Chazingdra) @chazingdra.bsky.social · 12/06/2026

💛 HAPPY WEAR YELLOW DAY! 💛 Wear some yellow today and post with #CFweek, it would mean the world :) Our fundraiser - THANK YOU for your support! tilt.fyi/vJQhbflJpe www.cysticfibrosis.org.uk WONDER DRUG: A Comedy about Cystic Fibrosis: youtu.be/RtgnO2cvvFE?... @cysticfibrosis.org.uk 💛

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 12/06/2026

Thank you for supporting Wear Yellow Day! 💛

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Rebecca Wallis D @rebeccawallis.bsky.social · 12/06/2026

Today is #CFWeek and the Whelan lab are in yellow for #WearYellowDay to raise awareness and funds for the life-limiting genetic condition Cystic Fibrosis (CF). CF is without a cure and dominates thousands of lives everyday. Explore @cysticfibrosis.org.uk's great resources to learn more 💛🧬

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CannedWolfMeat @cannedwolfmeat.standingintheodds.com · 11/06/2026

BIG shoutout to the @cysticfibrosis.org.uk for sending me some cool gear for #CFWeek!

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Association of Medical Research Charities @amrc-uk.bsky.social · 08/06/2026

We’re proud to see the NIHR invest £37m across 89 medical research charities, supporting more than 800 early-career researchers. This investment recognises the vital role charities play in igniting research careers, building capacity and sustaining the talent pipeline. Read more: bit.ly/4aft801

A young researcher wearing a white lab coat and blue gloves looks through a microscope in a laboratory, with sample tubes visible in the foreground. On the right, a blue panel reads “Supporting the next generation of researchers” and highlights three statistics: £37 million NIHR funding, 89 charities, and more than 800 early career researchers, accompanied by icons of coins, a hand holding a heart, and a group of researchers.

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Rebecca Wallis D @rebeccawallis.bsky.social · 05/06/2026

Enjoyed presenting a poster for my PhD project at #ECFS in Lisbon today! Will be around for the rest of today and tomorrow for any further discussions :) @pulse-cf.bsky.social @cysticfibrosis.org.uk @lifearc.bsky.social

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University of Glasgow School of Infection & Immunity @uofgsii.bsky.social · 05/06/2026

🆕 | Co-deputy Head of @uofgsii.bsky.social Professor Robert Gray will share in £1.3m of investment from @cysticfibrosis.org.uk. His £800k DEFINE-CF project will use cutting-edge spatial mapping technology to better understand lung inflammation in cystic fibrosis and drive future treatment. 🧵 1/2

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 03/06/2026

It’s a big week for CF researchers, doctors and CF teams around Europe this week, as the #ECFS conference is taking place! It’s a time to discuss the latest advances in CF research, meet colleagues to set up new studies together and ensure that we’re supporting everyone with CF across Europe.

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 01/06/2026

Highly effective modulator therapies have transformed life for many people with CF. But they don't work for everyone. That’s why finding new treatments that work for everyone with cystic fibrosis is vital and remains one of our top research priorities. ➡️ ow.ly/L1o450Z67Se

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 21/05/2026

In the latest episode of our CForYourself podcast, we're talking all about CF diabetes. Our host Lucy chats to Joseph about his experience of managing the condition day to day, and to Professor Vicky Salem about her research into a potential new way to treat CF diabetes. ➡️ ow.ly/yTBo50Z2Kc3

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 21/05/2026

We’re announcing over £1.3 million investment in cutting edge research into CF. 📣 Three research awards have been made to scientists based at Glasgow, Leicester, and Bristol Universities, each addressing the research priorities of people with CF in different ways. ➡️ ow.ly/5p3o50Z2zBn

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Cystic Fibrosis Trust invests over £1.3m towards achieving our research goals

Today we've announcing over £1.3 million investment in cutting edge research into cystic fibrosis.

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 15/05/2026

Last week, the Association of the British Pharmaceutical Industry (ABPI) published a new report about medicine shortages in the UK. The report explains why shortages happen, how supply chains can be made stronger, and how patients can be better protected #cysticfibrosis ➡️ ow.ly/1E0750Z0519

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 13/05/2026

Tilly and Joseph, who both live with CF diabetes, spoke to Dr Ildem Akerman and Prof Victoria Salem about their Trust-funded research project investigating a novel type of treatment for CF diabetes. ➡️ www.cysticfibrosis.org.uk/news/putt…

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 11/05/2026

Join us for a free webinar on 21 May to hear from Dr Robert Sandler, Jocelyn Choyce and Bill Morgan, about key recommendations for CF care from Robert’s PhD research, and tips on how to implement these in practice. Find out more and register ➡️ ow.ly/26oA50YRbry

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 06/05/2026

Visit our LinkedIn page to find out more about the new regulations. (end 4/4)

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 06/05/2026

We champion involving people with CF in study design. Our Involvement Group is made up of more than 300 people who share their knowledge of CF to make sure studies are designed and run with people with CF in mind. (2/4)

cysticfibrosis.org.uk

Community involvement in trials

Find out how you can share your knowledge and experience of CF to help shape future clinical trials.

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 06/05/2026

Last week, the biggest changes to how clinical studies are regulated in more than 20 years came into effect. The new regulations are designed to make study set-up quicker and ensure people’s lived experience plays a bigger role in shaping research. (continued 1/4) #cysticfibrosis #cftrust

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 04/05/2026

We’ve worked with our partners in the CF AMR Syndicate to create a virtual biobank of infection-causing bugs, to speed up the development of new treatments for cystic fibrosis. Read more on our blog. ow.ly/N63650YRBpj

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 01/05/2026

We visited the Heart and Lung Research Institute in Cambridge, to meet researchers who are part of our Translational Innovation Hub Network for CF Lung Health and Infection funded by the Trust and LifeArc. Find out more about the Flare-CF Innovation Hub on our website. ➡️ ow.ly/vlmb50YTabj

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 29/04/2026

This week, we’re sharing stories from our 2026 Research Impact Report. Through our amazing Involvement Group, we worked with the CF community to shape Dr Charlotte Boughton’s study investigating a new way to manage CF diabetes. ➡️ ow.ly/k3Mn50YRATk #CysticFibrosis #CFTrust #Diabetes

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Cystic Fibrosis Trust @cysticfibrosis.org.uk · 28/04/2026

How should CF services evolve in the modulator era? 🤔 We are excited to invite you to our next lunchtime Share and Learn webinar for CF professionals on 21 May. Join peers from across the UK for a free online session on rethinking CF care. Find out more and register ➡️ ow.ly/eJ3850YRbrx

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