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CVSA UK

@cvsuk.bsky.social

10 followers 1 following 9 posts

The UK Charity for Cyclical Vomiting Syndrome Supporting users, research, and awareness www.cvsa.org.uk

Posts Replies Media

CVSA UK @cvsuk.bsky.social · 29/11/2025

A tragedy involving a CVS sufferer www.independent.co.uk/news/uk/home...

independent.co.uk

Five-year-old girl died just four days after routine tonsil surgery

Amber Milnes was described by her parents as their ‘magical little princess’

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CVSA UK @cvsuk.bsky.social · 29/11/2025

A Tragedy involving a CVS sufferer www.bbc.com/news/article...

bbc.com

Girl died from rare complication after tonsil operation - inquest

Amber Milnes died from "a rare complication" after a routine operation, the coroner finds.

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CVSA UK @cvsuk.bsky.social · 02/05/2025

Paediatric Guidelines for CVS Published. www.cvsaonline.org/pediatric-gu...

cvsaonline.org

Pediatric Guidelines Update Project

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CVSA UK @cvsuk.bsky.social · 28/04/2025

Please nominate us and help us help sufferers of CVS. #charity #health #cyclicalvomiting #cvs health.movementforgood.com#nominateACha...

health.movementforgood.com

Nominate a charity - Movement for Good

Nominate a charity for a Movement for Good award now.

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CVSA UK @cvsuk.bsky.social · 18/04/2025

Survey If you haven't completed it, there is still time, please help us help you. The second stage, interviews now has enough participants but we still need replies to the survey itself.

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CVSA UK @cvsuk.bsky.social · 16/04/2025

Charles April is Autism Awareness Month, and Month of the Military Child, it is meaningful to celebrate this incredible milestone 9yr old Charles has been awarded a 100% attendance certificate at school.

Image of Charles and description of CVS affecting health and school attendance, now vastly improved through effective treatment

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CVSA UK @cvsuk.bsky.social · 09/04/2025

Did You Know? CVS can cause 24 hours of severe vomiting, continuous nausea, and lethargy. At its most intense (every 5 minutes), it is the most severe form of vomiting suffered by humans. 51% of sufferers require IV hydration 38 times more likely than someone with gastroenteritis. – Dr. Sonny Chong

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CVSA UK @cvsuk.bsky.social · 05/04/2025

Stronger After years of battling CVS, Cece hit a breaking point. The constant pain, setbacks, and lost time had taken a toll—not just on her body, but on her mind. Cece shared her story and you can read more about it in our newsletter! Join CVSA UK and get the full newsletter!

Image of Cece with medal for swimming lake Windermere with caption I deserve to be well.

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CVSA UK @cvsuk.bsky.social · 05/04/2025

CVS Survey ✔️ 15-minute online survey 🎁 Entry into a £50 prize draw for participation 📞 Optional follow up interview Closes: 26th May Help shape CVS research! Take part here: ⬇️ 🔗 qualtrics.kcl.ac.uk/jfe/form/SV_...

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