iiinova — where your digital self keeps evolving

Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 12h

Many things have regressed, what would you say has improved? Wastewater was removed and is definitely good news. Sorry to hear about the diabetes. How frustrating! Which type? Type 2 is potentially reversible - if you are lucky.

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 20h

This article is quoting UKHSA sources: ukhsa-dashboard.data.gov.uk/respiratory-... ukhsa-dashboard.data.gov.uk www.gov.uk/government/c... ukhsa.blog.gov.uk/2025/09/25

ukhsa-dashboard.data.gov.uk

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 05/10/2026

Surprising message of the day! Eliminating infectious children from the classroom helps the individual child to recover, and it protects everyone else from infections. Well done this preschool! 👏👏👏

Burgoyne Heights Preschool.

10h.

Follow

...

X

Good morning

Due to the ongoing flu like symptoms going through the school we cannot rule out Covid even though tests may come back negative. There is a new variant going around the UK and the symptoms include:

High Temperature

Cough

Runny Nose

Body Aches

Headache

Loss of taste and smell

We have had so many poorly children and staff with these symptoms and we don't want it spread. Please keep your child at home if they present with any of these symptoms and do not bring them back until they are better.

Staff will be checking temperatures and if they think your child has any of these symptom's they will be sending your child home to recover.

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 05/10/2026

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 02/10/2026

This is a significant step. Homeless people are made Clinically Vulnerable due to their circumstances and should have always qualified for these vaccines. www.england.nhs.uk/2026/10/nhs-...

People experiencing homelessness can now get free flu and pneumococcal vaccinations as part of a new NHS programme.

Vaccines will be offered through outreach teams, hostels, pop-up clinics and mobile vans.

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 30/09/2026

💉Reminder: The NHS Autumn Flu and Covid vaccination programme starts tomorrow for eligible groups. Roll up your sleeves 💪

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 25/09/2026

We have to support the desire. They did co-sponsor the event at the UN.

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 24/09/2026

Why should we clean the air in schools? - Reduces pollutants which cause asthma, multiple cancers, and dementia. - More resilient to airborne disease and pandemics We need health-based standards for air quality in schools. Fund ventilation filtration and maintenance. #HIAS2026

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 24/09/2026

💨Healthy Indoor Air in Schools France : 3 Priorities 1. We must make indoor air quality a fully integrated component of public health and prevention policies, particularly in schools and facilities serving the most vulnerable populations.

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 24/09/2026

Credit to @barrygardiner.bsky.social MP for raising air quality in schools at the UN today. @london.gov.uk 's work is a welcome first step. But *all* children deserve clean air. 1/2

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 24/09/2026

Around 30,000 people have shortened lives due to air pollution - and that is not including the impact of airborne infections The time to act is now. The science is clear. The costs of improving indoor air quality will be rapidly repaid. We *must*] improve indoor air quality. 2/2

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 24/09/2026

Credit to @barrygardiner.bsky.social MP for raising air quality in schools at the UN today. @london.gov.uk 's work is a welcome first step. But *all* children deserve clean air. 1/2

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 24/09/2026

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 24/09/2026

3. We must turn our commitment into concrete cooperation supporting countries and ensuring. We must be able to ensure environments that protect health, as indoor air must not be a privilege, it must become the norm and this is the challenge that we must take together.

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 24/09/2026

2. We must strengthen our ability to joint define the quality levels we expect from our indoor environments, as well as the means to measure and achieve them based on science, data, and the sharing of best practices.

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 24/09/2026

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 23/09/2026

“Complacency leaves the world vulnerable.” An epidemic or pandemic doesn’t emerge fully formed. Prevention starts long before an outbreak becomes a crisis. Complacency leaves vulnerable people exposed - which is why preparedness must begin now, not after the next next crisis.

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 21/09/2026

We are talking at cross purposes about two different types of equipment. Fume cupboards in science labs vs Class II biological safety cabinets. Really sorry to hear about the impact on your health, that sounds absolutely awful! Thankfully, room air filters are much simpler.

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 21/09/2026

Depending on room volume / occupancy, the filters need to be changed every 6-12mnths. Hoods are not the same thing (they are a containment device for fumes / pathogens and vent outside). The financial argument is that they save more money than they cost, by reducing all-cause sickness by 20%.

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 20/09/2026

Six months on, why hasn't there been action on clean air in healthcare? The Inquiry said air filtration should be prioritised across the UK. But it has slipped through the cracks of the government’s response. What happened - and what can YOU do? 👇

clinicallyvulnerable.org

The Inquiry called for clean air in healthcare. Six months on, where is it?

Opinion | 20th September 2026By Lara Wong, Founder and CEO, Clinically Vulnerable FamiliesChapter one of the Module 3 report, paragraph 1.105. Baroness Hallett writes that new hospitals should be desi...

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 20/09/2026

Yes, but it was M8 (which even the Inquiry hasn’t responded to yet). Without CVF, air quality wouldn’t have been considered at the Inquiry in relation to schools. We repeatedly requested experts, then brought other participants on board. Prof Cath Noakes was eventually questioned.

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 20/09/2026

clinicallyvulnerable.org

The Inquiry called for clean air in healthcare. Six months on, where is it?

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 16/09/2026

😷 How did a medical mask go from public health protection to public order issue? One designation this summer covered 10 council wards for short march. The restriction applied to people who were not involved or near it. My piece for @netpol.org: netpol.org/2026/09/15/w...

netpol.org

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Netpol @netpol.org · 16/09/2026

Lots of people still need to wear a mask in 2026. Lara Wong, of Clinically Vulnerable Families, writes for Netpol on why new police powers to create mask-free zones at protests (and arrest everyone for wearing one) is a public health issue, not just a public order one netpol.org/2026/09/15/w...

Campaigners from the Clinically Vulnerable Families, all wearing a face mask, with a purple and blue banner that says "we demand the right to breathe safe air"

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 16/09/2026

Thank you! 💕 It really is so important, and we need as many responses as possible. Covid is a pandemic virus, we cannot close our eyes to it.

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lizziec.bsky.social @lizziec.bsky.social · 16/09/2026

Thanks for sharing, I’m going to comment. It’s dispiriting that all they can do around this serious issue is try and pretend it does not exist.

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 16/09/2026

netpol.org

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 15/09/2026

🚨If you have a moment, respond to this consultation on reducing NHS Covid data. www.england.nhs.uk/long-read/st... We have added some thoughts which might be helpful... 1/🧵

england.nhs.uk

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 15/09/2026

Patient groups like Clinically Vulnerable Families should be consulted (!!!). No doubt there are more... but that should keep you going! 💪 7/

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 15/09/2026

Many of them will be disabled within the meaning of the Equality Act, so their needs must be considered under the Equality Duty. Do they have any evidence due regard was given? They should publish their equality analysis. 6/

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 15/09/2026

Clinically Vulnerable people use this data to make decisions. It feeds into their own choices about risk. Having no data is not the same as having no risk! 5/

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 15/09/2026

Endemic doesn't mean harmless - risks still apply to Clinically Vulnerable people. A winter only publication misses summer waves. Hospital data is now one of the few remaining signals, which makes it more important, not less. 4/

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 15/09/2026

Page views undercount real use. Downloads, API or CSV use, journalists, academics and organisations passing the data on all fall outside of their web views. Low views are a weak basis for stopping a series. 3/

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 15/09/2026

A few pointers: Their own figures show it gets well above average views, so "reduced interest" is incorrect. Its usage table shows 1225 average monthly views, against a catalogue average of 725. It is one of the most used outputs in the consultation, not a low-interest one. 2/

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 15/09/2026

🚨If you have a moment, respond to this consultation on reducing NHS Covid data. www.england.nhs.uk/long-read/st... We have added some thoughts which might be helpful... 1/🧵

england.nhs.uk

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 15/09/2026

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 15/09/2026

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 14/09/2026

🤣 Perhaps it is the next money-saving scheme?!

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 14/09/2026

Wow - that's impressive! Although it also does depend on how long the test takes them to run too. Hopefully your GP contacts you as swiftly! 🤞

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 14/09/2026

Glad you were successful. At least the old methods still work!

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 13/09/2026

If you’re Clinically Vulnerable, do you know your risk of sepsis and would you recognise the signs? Today is #WorldSepsisDay 💔We remember Liz Hipkiss, a beloved CVF member who lost her life to sepsis, Dec 21. We need CV people and their families to know when to seek help. 1/

WORLD SEPSIS DAY INFOGRAPHICS

What Is Sepsis?

Sepsis arises when the body's response to an infection injures its own tissues and organs. It may lead to shock, multi-organ failure, and death - especially if not recognized early and treated promptly.

Awareness saves lives.

Learn about sepsis at worldsepsisday.org

Learn more:

worldsepsisday.org

globalsepsisalliance.org

stop sepsis save lives

September World

13 Sepsis

2026 Day

Global Sepsis Alliance

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 13/09/2026

You really have a lovely pharmacist! It sounds like he offers invaluable support.

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 13/09/2026

That sounds ridiculous! Hopefully you will have better news tomorrow. 🤞🤞

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 13/09/2026

* If you think it could be sepsis, seek urgent medical help * Knowing your risk could help you recognise sepsis sooner. Recognising it sooner can save lives. We need better awareness, prevention, early recognition, diagnosis and treatment. #WorldSepsisDay #InvestInSepsis

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 13/09/2026

KNOW YOUR RISK The NHS recognises that some people are at greater risk of sepsis, including people who are Clinically Vulnerable. Old / young Immunocompromised Long-term and multiple conditions Recent surgery Catheters and lines Skin damage Multiple antibiotic use 3/ More:

Summary of sepsis risk factors

Age-related considerations:

babies under 1, particularly if they're born prematurely or their mother had an infection while pregnant

women who have just given birth, had a miscarriage or had an abortion

those who are 75 or over

Clinical history (acute and long-term):

people with clinical features such as:

frailty

multimorbidity or poorly controlled long-term conditions such as diabetes

impaired immune function because of illness, including cancer or heart failure, or immunosuppression due to medical treatment

surgery or invasive procedures in the past 6 weeks

indwelling urinary catheters or other invasive lines

repeated antibiotic use

breach of skin integrity

People at high risk of health inequalities:

people from an ethnic minority background

people who need an interpreter

people with a learning disability and autistic people

people with severe mental illness

people with cognitive impairment

people with drug or alcohol dependency

people experiencing homelessness

people living in more deprived areas

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 13/09/2026

🚨 SYMPTOMS OF SEPSIS It can develop quickly: • S lurred /confused speech • E xtreme shivering /muscle pain • P assing little /no urine • S evere breathlessness • I t feels like you will die • S kin: pale, mottled, blue grey • Very high /low temp • Rapid heartbeat 2/

WORLD SEPSIS DAY INFOGRAPHICS

These Symptoms Might Indicate Sepsis

Slurred Speech or Confusion

Extreme Shivering or Muscle Pain/Fever

Passing No Urine All Day

Severe Breathlessness

It Feels Like You're Going to Die

Skin Mottled or Discolored

Experiencing any of these symptoms? Contact your local hospital or physician immediately.

Learn more:

worldsepsisday.org

globalsepsisalliance.org

stop sepsis save lives

September World 13 Sepsis

2026 Day

Global Sepsis Alliance

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