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Cure MAPT FTD @curemaptftd.bsky.social · 10/10/2026

Cure MAPT FTD at the ISFTD Conference in Philadelphia, PA. Thank you Quinn Halva with #FTDregistry #endFTDregistry for speaking with us today!

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Cure MAPT FTD @curemaptftd.bsky.social · 10/10/2026

Cure MAPT FTD is pleased to attend this year's ISFTD Conference in Philadelphia, PA. We are here to listen, learn and share. Thank you to Jill Zbikowski for sharing with us! @jillybnx #ftdawareness #isftd

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Cure MAPT FTD @curemaptftd.bsky.social · 01/10/2026

Since actor Bruce Willis's diagnosis of frontotemporal dementia (FTD) in 2023, his wife Emma Heming Willis has been a fierce advocate for greater FTD awareness. This awareness starts with frontline workers. #SpotlightFTD #EndFTD #FrontotemporalDementia #HealthcareWorkers

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Cure MAPT FTD @curemaptftd.bsky.social · 21/09/2026

On World Alzheimer's Day and every day, remember those suffering from the disease, and also their loved ones who suffer, too. We frontotemporal dementia (FTD) families stand in solidarity, hoping for a cure for both Alzheimer's and FTD. #FrontotemporalDementia #WorldAlzheimersDay

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Cure MAPT FTD @curemaptftd.bsky.social · 15/09/2026

Frontotemporal dementia (FTD) is the most common form of dementia for people under 60. It is a group of brain disorders that progressively affect behavior, personality, language, and/or movement. Recognize the symptoms of FTD. Change a family's future. #FrontotemporalDementia #HealthcareWorkers

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Cure MAPT FTD @curemaptftd.bsky.social · 08/09/2026

FTD is often misdiagnosed because its symptoms differ from other types of dementias. Learn more about FTD in this Washington Post article: ow.ly/6gAR50ZKZar #FrontotemporalDementia #HealthcareWorkers

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Cure MAPT FTD @curemaptftd.bsky.social · 04/09/2026

September is Healthy Aging Month, World Alzheimer's Month, and the start to a season of change. This fall, take the time to learn about rare diseases like frontotemporal dementia (FTD). Recognize the symptoms of FTD. Change a family's future. #FrontotemporalDementia #HealthcareWorkers

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Cure MAPT FTD @curemaptftd.bsky.social · 27/08/2026

There are many subtypes of FTD with varying symptoms. By knowing the red flags, you can speed up the diagnostic process of a patient who otherwise may be misdiagnosed. Ask yourself these questions. Recognize the symptoms of FTD. Change a family's future. #FrontotemporalDementia #HealthcareWorkers

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Cure MAPT FTD @curemaptftd.bsky.social · 18/08/2026

Frontotemporal dementia, or #FTD, can be difficult to recognize—especially when uncharacteristic changes appear in a patient's social interactions, language, and/or physical movements. Recognize the symptoms of FTD. Change a family's future. #FrontotemporalDementia #HealthcareWorkers

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Cure MAPT FTD @curemaptftd.bsky.social · 02/07/2026

In the following weeks and months, thanks to a grant from the Kissick Family Foundation, we will be explaining what FTD is; its symptoms; and what frontline healthcare workers, especially those in Georgia and Florida, can do once they are confronted with a set of confusing symptoms. #ftd #fl #ga

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Cure MAPT FTD @curemaptftd.bsky.social · 03/12/2025

Double Your Impact This Giving Tuesday 💙 Every dollar given will be MATCHED 1:1 up to $15k - helping us reach our $50,000 goal to fuel hope for families facing genetic FTD. www.zeffy.com/en-US/donati...

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Cure MAPT FTD @curemaptftd.bsky.social · 28/11/2025

We have an exciting announcement! 📣 Cure MAPT FTD merch is finally live!All proceeds will benefit our cause. Whether you're a caregiver, researcher, or passionate advocate, we've got you covered. What other empowering phrases would you like to see in our store? www.bonfire.com/store/cure-m...

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Cure MAPT FTD @curemaptftd.bsky.social · 20/11/2025

Back by popular demand, we’re having another social hour this month! All families and community members are invited 🍁 Register here: us06web.zoom.us/meeting/regi...

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Cure MAPT FTD @curemaptftd.bsky.social · 26/10/2025

Our first Family Social Hour is today at 8PM! Join us to meet other #MAPTFTD families ❤️ #cureMAPTFTD #FTD us06web.zoom.us/meeting/regi...

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Cure MAPT FTD @curemaptftd.bsky.social · 25/09/2025

MAPT FTD is inherited in an autosomal dominant pattern, meaning if one parent has a MAPT gene, each child has a 50% chance of inheriting it. Almost everyone with the gene will develop symptoms (full penetrance), usually between ages 40-60. In rare cases, onset can be later or never happen at all

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Cure MAPT FTD @curemaptftd.bsky.social · 23/09/2025

FTD Genes cause different symptoms: MAPT → Changes personality first. Loss of social skills, repetitive behaviors. GRN → Often causes depression/anxiety first, plus movement problems. May affect speech. C9orf72 → Often overlaps with ALS, causing apathy and memory impairment.

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Cure MAPT FTD @curemaptftd.bsky.social · 10/06/2025

Anyone with dementia, cancer or any serious disease in their family should be very concerned about the proposed 40% budget cuts at NIH. Standing with our renowned scientists by signing their petition. #NIH #dementiaresearch #cancerresearch #maptftd www.standupforscience.net/bethesda-dec...

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Cure MAPT FTD @curemaptftd.bsky.social · 03/06/2025

Join us this Friday for a Friday Families meeting! All MAPT FTD families & individuals are welcome. Our esteemed speaker Dr. Nupur Ghoshal, MD PhD will be discussing the Tau protein & how it relates to FTD. Time: 2:30 EST / 11:30 PST RSVP here: addcal.io/e/8dvuabbn7why

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Cure MAPT FTD @curemaptftd.bsky.social · 30/04/2025

We are so excited for this year's AFTD Education conference! Come meet us in person, this Thursday and Friday. We have a table! See you all there ❤️ @theaftd.bsky.social #curemaptftd #maptftd #ftd

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Cure MAPT FTD @curemaptftd.bsky.social · 18/04/2025

This week, Cure MAPT FTD member Linde Jacobs was featured on the podcast "What's Health Got to Do with It?", sharing her experience with FTD. Listen to the podcast here: news.wjct.org/show/whats-h... Available now on all podcast streaming platforms! #curemaptftd #maptftd #npr #nprpodcast #ftd

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Cure MAPT FTD @curemaptftd.bsky.social · 25/12/2024

Front page on @nytimes.com on Christmas Day❤️ Fighting for all those afflicted with FTD and hoping for a world with more understanding, grace and patience towards those who seem “different”. #endftd

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