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Coalition to Cure CHD2 @curechd2.bsky.social · 26/06/2025

🎉Coalition to Cure CHD2 has granted €100,000 to @naelnadifkasri-lab.bsky.social to advance personalized medicine for CHD2-related disorders. He & Dr. Elly Lewerissa will explore a novel approach using antisense oligonucleotides to ⬆️CHD2 protein expression. More: www.curechd2.org/p/2025grant-KasriLab

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Coalition to Cure CHD2 @curechd2.bsky.social · 18/06/2025

Huge thanks to all the incredible researchers & clinicians who participated in our CHD2 Research Strategies & Innovation Workshop last weekend! We're inspired by your commitment/collaboration & excited for future breakthroughs to advance our understand 🔜treatments of CHD2-related disorders #CureCHD2

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Coalition to Cure CHD2 @curechd2.bsky.social · 09/05/2025

📢Exciting Opportunity to Participate in CHD2 Drug Study📢 Acetazolamide vs Other New Anti-Seizure Medication Study in CHD2 CCC wants to better understand the promising effects of acetazolamide on CHD2 patients identified in the small study by Dr. Gia Melikishvili in 2024. surveymonkey.com/r/S8KC9PD

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Coalition to Cure CHD2 @curechd2.bsky.social · 14/03/2025

Our CHD2 Winter News 2025 is out today, just under the wire before spring. If you missed it in your email, you can see it here: tinyurl.com/CHD2-Winter-... Sign up for our newsletter at www.curechd2.org/signup-newsl...

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Coalition to Cure CHD2 @curechd2.bsky.social · 28/01/2025

CHD2 Awareness Day is coming up on Feb 2nd! Visit here to donate or create a fundraiser of your own: coalitiontocurechd2-bloom.kindful.com/chd2-awarene... Our fundraisers are off to a great start, but we need your help to reach our goal of $150,000 by February 28 (Rare Disease Day). Please join us!

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Coalition to Cure CHD2 @curechd2.bsky.social · 22/11/2024

CCC is heading to the American Epilepsy Society Annual Meeting in Los Angeles from December 6-9, 2024. Please stop by our booth to say hi!

3 women standing behind table with flyers and banners for Coalition to Cure CHD2

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Coalition to Cure CHD2 @curechd2.bsky.social · 20/11/2024

secure.qgiv.com/for/helpusbr... As we approach the end of another year, we want to extend our heartfelt gratitude for the community's support of the Coalition to Cure CHD2 (CCC). Please consider making a year-end donation today. No amount is too small, and every dollar counts.

Help Us Bring Hope - images of 13 children of various ages with CHD2-related disorders

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