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Crohn's and Colitis Australia

@crohnsandcolitisau.bsky.social
250 followers 2 following 52 posts

Empowering people to live fearlessly while we help search for a cure of Crohn’s and colitis.

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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 16/04/2025
We encourage you to read our rural and remote support resource in the link below. crohnsandcolitis.org.au/living-with-...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 09/04/2025
We need you to get active this election! If you're keen to help, take a look at our advocacy resources and get in touch with your local candidates. crohnsandcolitis.org.au/advocacy/adv...
crohnsandcolitis.org.au
State of the Nation Advocacy – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 08/04/2025
Take a look at our new tutorial to help effectively use and fill out an IBD Management Plan. Use the link below to learn more and download an IBD Management Plan: crohnsandcolitis.org.au/advocacy/our...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 26/03/2025
"To anyone struggling with Crohn’s or any chronic illness—don’t suffer in silence. Speak up. The people who love and support you will listen. You are not alone." Thank you Hamish for sharing your story with us! crohnsandcolitis.org.au/stories/the-...
crohnsandcolitis.org.au
"The people who love and support you will listen" - Hamish's story – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 24/03/2025
There is a lack of mental health, nutrition and nursing support on the average IBD patient team, with 16% having access to a psychologist, 32% having access to an IBD nurse and 31% having access to a dietitian. Read our IBD State of the Nation report: crohnsandcolitis.org.au/advocacy/our...
crohnsandcolitis.org.au
IBD State of the Nation – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 20/03/2025
CCA's Management Plans are a tool that can be used to help improve communication between people living with IBD and their healthcare professional team by storing important information in one document for shared accessibility. Click the link to learn more: crohnsandcolitis.org.au/advocacy/our...
crohnsandcolitis.org.au
Crohn's disease and ulcerative colitis Management Plans – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 17/03/2025
Awareness Month is just around the corner. On May 19, sites will be lighting up across country in recognition of the over 180,000 Australians living with IBD. Help us add more sites to the list: email events@crohnsandcolitis.org.au. crohnsandcolitis.org.au/how-to-help/...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 16/03/2025
People with inflammatory bowel disease are more likely to experience significant mental health problems, such as depression and anxiety. Learn more on mental health and IBD through the following link: crohnsandcolitis.org.au/living-with-... IBD Nurseline: crohnsandcolitis.org.au/support/nurs...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 13/03/2025
This experience has made me more empathetic and appreciative of the small joys in life."" This March, Baylee is walking 100km with her friends and family to raise awareness for Inflammatory Bowel Disease! You can read her story, and support her here: crohnsandcolitis.org.au/stories/i-ho...
crohnsandcolitis.org.au
"I hope to inspire others to find their own strength in adversity" - Baylee's story – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 13/03/2025
Have you used a Crohn's Disease or colitis management plan? Let us know at communications@crohnsandcolitis.org.au crohnsandcolitis.org.au/advocacy/our...
crohnsandcolitis.org.au
Crohn's disease and ulcerative colitis Management Plans – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 11/03/2025
CCA is excited to invite young people and their families to a Youth Fun Day in Western Australia! Date: May 4, 2025 Time: 10am-2pm Location: 100 Kirby Road, Bullsbrook, WA, 6084 Special guest: West Coast Eagles superstar Jake Waterman! Register here: crohnsandcolitis.org.au/youth-fun-ev...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 10/03/2025
One of CCA's key proposals is better access to multi-disciplinary care. Research shows this could increase a person’s likelihood of working by 26% but achieving this requires urgent investment at federal and state levels. Full State of the nation report: crohnsandcolitis.org.au/advocacy/our...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 04/03/2025
We're gathering community feedback on the design and implementation of DNA testing legislation to share with the government. Today is the deadline for submissions. E: support@crohnsandcolitis.org.au: crohnsandcolitis.org.au/a-total-ban-...
crohnsandcolitis.org.au
Public consultation: DNA testing legislation – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 04/03/2025
The State of the Nation report found that on average a person living with IBD spends about $5,900 each year managing their disease, or about 10% of the average Australian household's disposable income. Read the full IBD State of the Nation report here: crohnsandcolitis.org.au/advocacy/our...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 02/03/2025
"If I could go back, I would change this part of my story; people cannot help or understand you if you don’t tell them what’s happening." Thank you very much Diya for sharing your story with us! You can read her story in the link below. crohnsandcolitis.org.au/stories/i-wi...
crohnsandcolitis.org.au
"I will always advocate for the safety and protection of us all" - Diya's story – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 27/02/2025
Today is World Rare Diseases Day. On this day, we are raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. You can learn more here: www.rarediseaseday.org
rarediseaseday.org
Rare Disease Day 2025 – Raising awareness for people living with rare diseases and their families worldwide.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 26/02/2025
Thank you to everyone who contributed to the public consultation into use of Faecal Calprotectin tests. The recommendation will need to be approved by the Minister for Health and Aged Care before listing on the MBS which is anticipated for later this year. www.gesa.org.au/public/13/fi...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 25/02/2025
What is a biologic medicine and how does it work? You can read our full Biologics for IBD resource in the link below. crohnsandcolitis.org.au/living-with-...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 20/02/2025
We're gathering community feedback on the design and implementation of DNA testing legislation to share with the government. You can submit your comment via the link below. Deadline for submissions: March 5 crohnsandcolitis.org.au/a-total-ban-...
crohnsandcolitis.org.au
Public consultation: DNA testing legislation – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 18/02/2025
"Running has become more than just a sport for me; it’s a form of therapy, a way to reclaim control over my body after years of feeling helpless." We want to thank Owen for sharing his story with us! crohnsandcolitis.org.au/stories/test...
crohnsandcolitis.org.au
Testing my limits and inspiring others" Owen's story – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 18/02/2025
"Few expected Cody Ramsey to play rugby league again after he was diagnosed with ulcerative colitis in late 2022. History was against him. [This] weekend, he appeared in his first game of rugby league since September 3, 2022 www.smh.com.au/sport/nrl/co...
smh.com.au
Cody Ramsey spent seven months in hospital and lost 28kg. 896 days later, he’s back
Doctors told him his rugby league career was over but the returning Dragons fullback proved them wrong.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 13/02/2025
"Australians living with IBD are calling for more support and research amid warnings the [condition] is costing the economy  $7.8 billion a year. [It] is the only illness where there's been no funding for patient support over the past 10 years." www.abc.net.au/news/2025-02...
abc.net.au
IBD is invisible, chronic, often stigmatised — and rates are growing
Severe abdominal pains, unpredictable bowel movements and fatigue are some of the serious symptoms 180,000 Australians live with every day and new research shows the often stigmatising condition is co...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 12/02/2025
"About 180,000 Australians live with this painful, lifelong condition involving inflammation of the gastrointestinal tract. But as cases grow globally, Australia leads the pack." Read The Australian's coverage of CCA's State of the Nation report: www.theaustralian.com.au/health/this-...
theaustralian.com.au
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 11/02/2025
CCA is pleased to announce the publication of the State of the Nation in Inflammatory Bowel Disease (IBD) in Australia report. The report provides updated data and crucial insights to improve outcomes for the nearly 180,000 Australians living with IBD. crohnsandcolitis.org.au/advocacy/our...
crohnsandcolitis.org.au
IBD State of the Nation – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 10/02/2025
How long did it take for you to find the right gastroenterologist and/or IBD care team? Are you still searching? Let us know in the comments. You can book an appointment with our IBD Nurseline and Helpline to receive information, advice and guidance. crohnsandcolitis.org.au/.../ibd-tele...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 06/02/2025
People with IBD lead full and satisfying lives, complete with family, career and leisure-time activities. It’s not uncommon for people with IBD to place a high priority on work performance as they are motivated to not let their condition impact them crohnsandcolitis.org.au/working-with...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 05/02/2025
World IBD Day is coming up on May 19! On this day, sites will illuminate in purple to solidarity for everyone living with IBD Know a site in your local area that lights up? Let us know at events@crohnsandcolitis.org.au! Learn more about Awareness Month here: crohnsandcolitis.org.au/how-to-help/...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 04/02/2025
"I just hope someone reads this and understands that there is light at the end of the tunnel. It doesn’t have to be over." We want to thank Trent for sharing his story with us - which you can read here: crohnsandcolitis.org.au/stories/some...
crohnsandcolitis.org.au
"Some would say I’m unlucky to have gotten sick; I say I’m lucky I lived." - Trent's story – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 03/02/2025
Today is World Cancer Day. On this day, we encourage people with IBD to stay up to date with your cancer screening tests. You can book an appointment with our IBD Nurseline to discuss this. Ask your Gastroenterologist or GP what tests are relevant for you crohnsandcolitis.org.au/support/ibd-...
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Reposted by Crohn's and Colitis Australia
Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 17/11/2024
The Crohn's and Colitis IBD Nurseline can provide personalised information, advice and guidance for people living with Crohn’s disease or ulcerative colitis. The IBD Nurseline nurse has specific training in IBD. Book a FREE appointment today! crohnsandcolitis.org.au/support/ibd-...
crohnsandcolitis.org.au
Telephone helplines – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 30/01/2025
"Getting a full readout of tumor DNA means we can see a much bigger picture of how someone's cancer started and how it is likely to change. With this research, we can focus resources on treating people with IBD who are at really high risk" www.bbc.com/news/article...
bbc.com
Bowel cancer prediction test for IBD patients 90% accurate
Scientists hope it could become a blood test to help spot those most at risk.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 30/01/2025
For everyone who donated to our Kids Appeal - we want to extend our enormous thanks! If you haven't done so already, there's still time. Your generosity ensures that families will have the same opportunity to feel supported and to access the help they need. crohnsandcolitis.org.au/how-to-help/...
crohnsandcolitis.org.au
Supporting Kids Appeal – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 28/01/2025
A Crohn’s & Colitis Australia membership allows you to stay up-to-date with the latest news and research, add your voice to improve treatment and find a cure, and learn how to manage your IBD crohnsandcolitis.org.au/how-to-help/...
crohnsandcolitis.org.au
Membership – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 23/01/2025
“I hope that by sharing my story, I can encourage others to be more open about their struggles." Read Katie's story, and share your own story in the links below crohnsandcolitis.org.au/stories/look... crohnsandcolitis.org.au/share-your-s...
crohnsandcolitis.org.au
“Looking at the bigger picture is vital” – Katie’s story – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 16/01/2025
"I like being the underdog. I get excited when people say, ‘you can’t do this.’ It’s like f***ing watch me. Who better than me to be the first to do it. I see Tahlia and Mia, and I’m good to go." Read Cody Ramsey's story here: crohnsandcolitis.org.au/stories/i-wa...
crohnsandcolitis.org.au
"I want to be someone who talks about it" - Cody Ramsey's story – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 14/01/2025
We are continuing to work on our IBD employee guide and would love your feedback! If you would like to participate in improving our employee resource, please get in touch with us as soon as possible at gutsmart@crohnsandcolitis.org.au crohnsandcolitis.org.au/living-with-...
crohnsandcolitis.org.au
Working with IBD - A guide for employees – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Reposted by Crohn's and Colitis Australia
Sarah Martin @aspaceofonesown.bsky.social · 12/01/2025
I’m raising money for @crohnsandcolitisau.bsky.social by doing 31 minutes of exercise every day for 31 days! 💜 Thank you so much to those who have donated 🧡 Here’s the link to donate if you would like to! 💜 socialsync.app/fundraiser/c...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 09/01/2025
"The average time it takes to be diagnosed with IBD is about five years. I was diagnosed sooner but I had been sick to the point where I was being tube-fed. I want to show that there's hope even when you feel there’s no way out." Read Erin's story here! crohnsandcolitis.org.au/stories/you-...
crohnsandcolitis.org.au
"You deserve to be heard" - Erin's story – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 07/01/2025
Want to stay informed and up to date? Kickstart the new year by becoming a CCA member! Enjoy a heap of benefits including CCA's Inside Insight magazine, fortnightly e-news, a Can't Wait Card and more! What are you waiting for? crohnsandcolitis.org.au/.../membersh...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 15/12/2024
A collage of some of the wonderful photos taken during our Kids' Fun Days and Camp Fearless events this year! Support more youth events for kids and teens living with IBD here: lnkd.in/gexUdjyR
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 11/12/2024
Become a CCA Member! Why join: ✅ Stay informed with regular newsletters. ✅ Access relevant tools and resources to help manage your IBD. ✅ Connect with a strong, supportive community. Join today! crohnsandcolitis.org.au/how-to-help/...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 08/12/2024
CCA CEO Leanne Raven contributed to the Abbvie workplace report. She said Crohn’s & Colitis Australia encourages people to make their own assessment on whether they want to disclose their condition to their employer and if they feel safe to disclose to their employer. abbvie.com.au/content/dam/...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 03/12/2024
By completing a GutSmart course, you will increase your knowledge and awareness of IBD and learn how to best support your patients. This increases your confidence in treating Crohn’s and colitis patients while also ensuring that you can provide tailored nutrition care. Learn more: gutsmart.com.au
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 01/12/2024
"Scientists at Örebro University have identified specific protein patterns in blood that can predict inflammatory bowel disease (IBD) up to 16 years before diagnosis. In particular, Crohn’s disease can be detected with very high accuracy." www.oru.se/english/news...
oru.se
New research: IBD can be detected up to 16 years before onset - Örebro University
Scientists at Örebro University have identified specific protein patterns in blood that can predict inflammatory bowel disease (IBD) up to 16 years before
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 26/11/2024
As a member of CCA you are part of a caring community and have access to exclusive benefits. What are you waiting for? Become a CCA member today! crohnsandcolitis.org.au/how-to-help/...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 26/11/2024
Today, Crohn’s and Colitis Australia (CCA), alongside almost 20 other leading consumer health organisations, proudly joins the newly formed Coalition for Preventative Health Funding. The Coalition is calling on the federal government to commit to greater investment in preventive health efforts.
crohnsandcolitis.org.au
Crohn's and Colitis Australia Joins Coalition to Advocate for Increased Funding for Preventive Health – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 21/11/2024
This holiday season, help young people like Mac living with IBD find connection, fun, and support. Your donation will fund Kids Fun Days, youth camps, and vital teen support groups. DONATE TODAY crohnsandcolitis.org.au/how-to-help/...
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 17/11/2024
“When we say that Xavier has IBD, people say he’s too young, but he’s not.” Your donation will fund: youth events for kids aged 12-17, Kids Fun Days and events for teenagers. DONATE TODAY crohnsandcolitis.org.au/how-to-help/...
crohnsandcolitis.org.au
Supporting Kids Appeal – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 17/11/2024
The Crohn's and Colitis IBD Nurseline can provide personalised information, advice and guidance for people living with Crohn’s disease or ulcerative colitis. The IBD Nurseline nurse has specific training in IBD. Book a FREE appointment today! crohnsandcolitis.org.au/support/ibd-...
crohnsandcolitis.org.au
Telephone helplines – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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Crohn's and Colitis Australia @crohnsandcolitisau.bsky.social · 17/11/2024
For almost 40 years, Crohn's and Colitis Australia has been empowering Australians living with IBD. Visit our website to view our free resources and support services. crohnsandcolitis.org.au
crohnsandcolitis.org.au
Empowering people living with Crohn's disease and ulcerative colitis – Crohn’s & Colitis Australia (CCA)
For more than 30 years, Crohn’s & Colitis Australia has been empowering the more than 100,000 Australian's living with Crohn’s disease or IBD.
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