iiinova — where your digital self keeps evolving

CP-Life Research Centre @cplifecentre.bsky.social · 03/09/2026

Save the date and REGISTER now for the next CP-Life Research Seminar ONLINE Thursday 24 September, 10-11 am REGISTER AT: tinyurl.com/2aeadp3z

Promotional poster for a CP-Life Research Centre online research seminar titled “Changing the Narrative, Changing the System: Advocacy and Policy Across the Lifespan for People with Cerebral Palsy.” The seminar takes place on Thursday 24 September, 10:00-11:00 AM, features speakers Dr Gemma Cook and Amy Hogan, and includes a QR code and registration link.

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CP-Life Research Centre @cplifecentre.bsky.social · 11/08/2026

📢 New publication exploring mental health among children with cerebral palsy in Ireland. The findings highlight the need for targeted supports to improve mental wellbeing and outcomes for young people with CP. 🧠💚 Read: doi.org/10.1186/s128... #CerebralPalsy #MentalHealth #ChildHealth #Research

doi.org

Client Challenge

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Reposted by CP-Life Research Centre

FutureNeuro Centre @futureneuro.bsky.social · 05/08/2026

🧠 Discover what makes your brain incredible! This August, families can explore memory, movement and brain health with Your Incredible Brain, an interactive science show inspired by FutureNeuro’s #MyMovingBrain programme. 🔗 futureneurocentre.ie/from-my-movi... @researchireland.ie @rcsi.bsky.social

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CP-Life Research Centre @cplifecentre.bsky.social · 05/08/2026

The CP-Life Resources Hub brings together webinars, research summaries, videos, podcasts, reports, newsletters, and practical supports for people with cerebral palsy, families, and professionals. 🔗 cpresearchireland.eu/resources/ @rcsi.bsky.social #CerebralPalsy #Research #KnowledgeTranslation

cpresearchireland.eu

Resources

We strive to effectively translate research into practice. We achieve this through collaboration with national and international partners including people with cerebral palsy,...

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CP-Life Research Centre @cplifecentre.bsky.social · 15/07/2026

Check out our latest CP-Life Newsletter at: cpresearchireland.eu/wp-content/u... #CerebralPalsy #Research #CP-LIFE @rcsi-physio.bsky.social @rcsi.bsky.social

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CP-Life Research Centre @cplifecentre.bsky.social · 14/07/2026

Every child and young person's experience after a childhood brain tumour is unique. By sharing your story, you can help us better understand life after treatment and improve rehabilitation and support. Watch Hannah share her lived experience vimeo.com/1209522282 See brainrestorechildhoodyouth.eu

brainrestorechildhoodyouth.eu

Home

Brain-Restore Childhood & Youth is a research project funded by the Health Research Board, focused on supporting children and young people recovering from...

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CP-Life Research Centre @cplifecentre.bsky.social · 24/03/2026

A brain tumour diagnosis in childhood is a cataclysmic event. In this excellent Irish Independent article, Hannah O'Brien Mooney speaks impactfully about how it affected her life and the supports she wishes she'd had. tinyurl.com/y8ez592t #investinrehabilitation @rcsi.bsky.social

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CP-Life Research Centre @cplifecentre.bsky.social · 09/03/2026

Jennifer Fortune, Karen Brady, Colm Daly PhD and Chloe Forte were proud to showcase some of the latest work from CP Life Research Centre at the recent RCSI Annual Research Day. Read more at: lnkd.in/ecpR7B7t @rcsi.bsky.social @rcsi-physio.bsky.social #cerebralpalsy #research #RCSIResearchDay

Karen Brady from CP Life Research Centre presenting a poster at the Annual RCSI Research Day in March 2026

Dr Jenny Fortune from CP Life Research Centre presenting a poster at the Annual RCSI Research Day in March 2026

Dr Chloe Forte from CP Life Research Centre presenting a poster at the Annual RCSI Research Day in March 2026

Dr Colm Daly from CP Life Research Centre presenting a poster at the Annual RCSI Research Day in March 2026

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CP-Life Research Centre @cplifecentre.bsky.social · 06/01/2026

Thank you and goodbye to Shona McGuinness who has played such a valuable role on our team. We truly appreciate your contribution and we wish you every success in future. We’re also delighted to welcome Chloe Forte and we look forward to working together. @rcsi.bsky.social @rcsi-physio.bsky.social

Group of 7 women standing outside a cafe, smiling and posing for a photograph.

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CP-Life Research Centre @cplifecentre.bsky.social · 08/12/2025

There is still time to join. There are a few spaces remaining. Recruitment closes in just 3 weeks. @rcsi-physio.bsky.social @rcsi.bsky.social #cerebralpalsy #exercise #physicalactivity #research #community

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CP-Life Research Centre @cplifecentre.bsky.social · 03/12/2025

On International Day of Persons with Disabilities 2025, “Fostering disability-inclusive societies,” see reflections "From Passenger to Pilot", exploring support pathways for young people with cerebral palsy transitioning to adulthood. vimeo.com/1138030622 #IDPD2025 #Inclusion #IAACD #cerebralpalsy

vimeo.com

From Passenger to Pilot: Navigating Pathways of Support in the Journey to Adulthood

“From Passenger to Pilot: Navigating Pathways of Support in the Journey to Adulthood” was part of the IAACD Global Listening & Sharing Series. Hosted…

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CP-Life Research Centre @cplifecentre.bsky.social · 11/11/2025

Join CP-EXCEL ONLINE Watch the video below to hear directly from two participants as they share their experiences and insights from taking part tinyurl.com/3r69vr8n Learn more: tinyurl.com/5ynt9cm9 or email manikandanmanjula@rcsi.com #cerebralpalsy #exercise #physicalactvity #research #community

tinyurl.com

CP-Excel study

👉 For more information visit. https://bit.ly/cpexcelonline

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CP-Life Research Centre @cplifecentre.bsky.social · 29/10/2025

The BRAIN-RESTORE Childhood and Youth study is now Recruiting! Were you (or your child) diagnosed with a brain tumour during childhood or adolescence? Scan QR code to learn more/express interest #ChildhoodBrainTumour #Rehabilitation #PPI #Research #YoungSurvivors #RCSI #BrainHealth #PatientVoice

Poster titled “Brain-Restore Childhood and Youth: Enhancing Survivorship Through Rehabilitation for Children, Adolescents and Young Adults After Childhood Brain Tumours.” Includes sections:

About childhood brain tumours: Lists facts about prevalence, long-term effects, rehabilitation needs, and challenges.
Why are we doing this study? Explains goals: understanding rehabilitation needs, conducting interviews, measuring cognitive function, and co-designing solutions.
Features QR code for more information and logos for Brain Restore Childhood and Youth, RCSI, and HRB.

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CP-Life Research Centre @cplifecentre.bsky.social · 14/10/2025

We’re pleased to share the September 2025 edition of our CP-Life Research Centre newsletter, including updates on new projects, research findings and events: tinyurl.com/2kpckwn3 @rcsi-physio.bsky.social @rcsi.bsky.social #cerebralpalsy #mentalhealth #healthcaretransition

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CP-Life Research Centre @cplifecentre.bsky.social · 06/10/2025

💚 Today is World Cerebral Palsy Day 💚 This year’s theme, #UniqueandUnited, reminds us that every voice and story adds strength to our community. Let’s celebrate the resilience and achievements of the CP community. #WorldCerebralPalsyDay #CPLife #InclusionMatters #CerebralPalsyAwareness #PPI #RCSI

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CP-Life Research Centre @cplifecentre.bsky.social · 15/09/2025

Dr Jennifer Fortune presented at the recent “Le Chéile: Supporting young people and families during transition from paediatric to adult services” conference, and spoke about the Ignition Study and our work on co-designing better transition supports for young people with cerebral palsy.

Photograph of 7 people from the Le Chéile conference: Supporting Young People and Families during Transition from Paediatric to Adult Services. Includes Dr Jennifer Fortune who was a speaker at the conference.

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CP-Life Research Centre @cplifecentre.bsky.social · 05/09/2025

INVITATION Connect2Participate —research study focused on collaborative practices to support physical activity for young people with physical disability. Expression of interest form: forms.office.com/e/MW7CKXjCpa Email karenbrady23@rcsi.com #Connect2Participate #FitSkills #PhysicalActivity

CP-Life flyer for Focus Group Recruitment. Are you interested in shaping collaborative practices to support physical activity for young people with disability? One online 60-75min Group Discussion. CALLING PROFESSIONALS IN DISABILITY AND PHYSICAL ACTIVITY SECTORS. Clinicians and Therapy Assistants; Managers and Team Leads; Exercise Professionals. www.cp-lifecentre.ie karenbrady23@rcsi.com cplifecentre@rcsi.com Also displays a QR code for registration. Flyer includes logos of CP-Life Research Centre, Connect2Participate, RCSI, Cerebral Palsy Foundation and SPHeRE Phd Programme.

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CP-Life Research Centre @cplifecentre.bsky.social · 27/08/2025

Sign up now for our free online exercise class designed for adults with cerebral palsy. Participants are enjoying the sessions and sharing positive feedback. Take this opportunity to get active in a supportive and welcoming community. #cerebralpalsy #exercise #CPEXCEL @rcsi-physio.bsky.social

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CP-Life Research Centre @cplifecentre.bsky.social · 20/08/2025

💫We’re hiring a Research Assistant to support the development and implementation of Ireland’s National Cerebral Palsy Registry.💫 Information and job spec here 👇 tinyurl.com/7n95u597 Closing Date: 5th September 2025 #researchassistant #jobopportunity @rcsi.bsky.social @rcsi-physio.bsky.social

Graphic from CP-Life Research Centre with the words "WE ARE HIRING" and "RESEARCH ASSISTANT"

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CP-Life Research Centre @cplifecentre.bsky.social · 30/06/2025

Congratulations Dr Manjula Manikandan and Dr Jennifer Ryan and Relate-CP team on receiving the Clinical Research Award at EACD/IAACD Heidelberg 2025 for their work exploring the prevalence of mental health difficulties and mental disorders among children with cerebral palsy. #cerebralplasy #research

Photo of EACD & IAACD Certificate of Award. Nestlé HealthScience. Clinical Research Award - 1st place. "The prevalence of mental health difficulties and mental disorders among children with cerebral palsy" was awarded the Nestlé Health Science Research Award at the EACD/IAACD Heidelberg 2025 congress.

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CP-Life Research Centre @cplifecentre.bsky.social · 23/06/2025

Some key findings from the RELATE-CP survey • Higher risk of mental health difficulties for females • Additional risk factors: intellectual disabilities, poor sleep quality, bullying, difficulty making friends, and poor family functioning Infographic tinyurl.com/Relate-CP @rcsi-physio.bsky.social

tinyurl.com

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CP-Life Research Centre @cplifecentre.bsky.social · 23/06/2025

Some key findings from the RELATE-CP survey • 48% reported being bullied at least once in the past year. • Regular physical activity (4-6 days/week) is linked to a lower risk of mental disorders See Infographic at: tinyurl.com/Relate-CP @rcsi-physio.bsky.social #cerebralpalsy #physicalactivity

tinyurl.com

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CP-Life Research Centre @cplifecentre.bsky.social · 23/06/2025

Some key findings from the RELATE-CP survey • 29% of children with CP experience high levels of mental health difficulties • Anxiety disorder is the most common mental health condition among young people with CP See Infographic at tinyurl.com/2t2m3btj #cerebralpalsy @rcsi-physio.bsky.social

tinyurl.com

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CP-Life Research Centre @cplifecentre.bsky.social · 18/06/2025

Welcome to our 2025 @rcsi.bsky.social Research Summer School students Aodhan Kelly (physiotherapy) and Feby Saji (medicine). Working with us for 8 weeks we will support them to develop research skills in scientific writing, presentations, data collections and analysis. #mentor #student #research

Photos of Aodhan Kelly and Feby Saji, research summer school students at RCSI CP-Life Research Centre.

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CP-Life Research Centre @cplifecentre.bsky.social · 18/06/2025

Delighted to welcome Dr Georgia McKenzie , Centre of Research Excellence: CP-Achieve to @rcsi.bsky.social Georgia is visiting Dublin ahead of attending the EACD/ IAACD Heidelberg. We look forward to future collaboration and learning. #research #cerebralpalsy #disability #collaborate

Photo taken on steps at the old main entrance to RCSI Dublin. Group from CP-Life Research Centre with visitor Dr Georgia McKenzie.

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CP-Life Research Centre @cplifecentre.bsky.social · 28/05/2025

Read our latest Newsletter at tinyurl.com/CP-Life-News... Register for our upcoming ONLINE research seminar at tinyurl.com/CP-LifeResea... "Evidence to Practice: Benefits, Partnerships and Strategies for Physical Activity" 3pm on Wednesday 4th June. @rcsi.bsky.social @rcsi-physio.bsky.social

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CP-Life Research Centre @cplifecentre.bsky.social · 27/05/2025

Join us online next week, Wed 4th June, for our research seminar, Evidence to Practice: Benefits, Partnerships and Strategies for Physical Activity for People with Disabilities - see below to register. @rcsi-physio.bsky.social @rcsi.bsky.social #disability #cerebralpalsy #physicalactivity

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CP-Life Research Centre @cplifecentre.bsky.social · 14/05/2025

We're delighted to share the wonderful infographic created by Robyn Deasy vimeo.com/1084205747 at our Move-Connect-Thrive World Café event on 14 April 2025 @rcsi-physio.bsky.social @rcsi.bsky.social @futureneuro.bsky.social #cerebralpalsy #sportforall #physicalactivity #community #participation

Colourful infographic created by Robyn Deasy showing the work carried out at CP-Life Research Centre 'Move-Connect-Thrive' World Café on 14th April 2025

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CP-Life Research Centre @cplifecentre.bsky.social · 06/05/2025

Join us ONLINE for our next research seminar, Evidence to Practice: Benefits, Partnerships and Strategies for Physical Activity, at 3pm on Wednesday 4th June. To register, click tinyurl.com/5pmfk29k or scan below.

Flyer for CP-Life Research Seminar Series showing photos and names of the speakers(Dr Ailish Malone, Dr Manjula Manikandan Dr Karen McConnell and Karen Brady), the date and time of the event (3pm on 4th June), and the title of the event, Evidence to Practice: Benefits, Partnerships and Strategies for Physical Activity for People with Disabilities

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CP-Life Research Centre @cplifecentre.bsky.social · 30/04/2025

Check out our Move-Connect-Thrive: World Café on Physical Activity Participation by Young People with Physical Disability cpresearchireland.eu?page_id=2137 @rcsi-physio.bsky.social @researchireland.bsky.social #cerebralpalsy #SportForAll #PPI #MoveConnectThrive #DisabilityInclusion

Group photo of participants at the CP-Life Move-Connect-Thrive event held on 14 April 2025.

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CP-Life Research Centre @cplifecentre.bsky.social · 08/04/2025

Throwback Tuesday - looking back at our very successful YOUTH EXPERIENCE MATTERS World Café event last year vimeo.com/935382119?sh... @cerebralpalsy @disability @rcsi.bsky.social

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CP-Life Research Centre @cplifecentre.bsky.social · 27/03/2025

Today we share with you our cross-sectional study related to the use of health services and unmet needs among adults with cerebral palsy in Ireland You can read the full paper here: tinyurl.com/3834urwd #cerebralpalsy #cerebralpalsyawareness #research #disability

Infographic title: Use of health services and unmet needs among adults with cerebral palsy in Ireland. AIM: To describe use of health services, unmet needs relating to health services, and identify factors associated with service use among adults with cerebral palsy (CP) in Ireland. Infographic lists the Method, Results and Interpretation of data.

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CP-Life Research Centre @cplifecentre.bsky.social · 26/03/2025

In our 2024 Delphi study, we identified the top 10 physical activity priorities for young people with physical disability including young people with cerebral palsy. Full paper at tinyurl.com/bdfwzssr Watch World Café tinyurl.com/mvj4hjwa #cerebralpalsyawareness #disability #research #cerebralpalsy

Booklet cover. Text reads, YOUTH EXPERIENCE MATTERS Top 10 Physical Activity Priorities of Teenagers with physical disability. Empowering teenagers with physical disabilities to create their future physical activity participation. Graphic shows various young people representing different activities, on and beside the word EQUAL. Logos of sponsors at the bottom of the page.

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CP-Life Research Centre @cplifecentre.bsky.social · 25/03/2025

On Cerebral Palsy Awareness Day we share with you our systematic review and meta-analysis which focused on the prevalence and incidence of chronic conditions among adults with cerebral palsy. Read the full paper here tinyurl.com/mwrdj6pt #cerebralpalsy #cerebralpalsyawareness #research #disability

PREVALENCE AND INCIDENCE OF CHRONIC CONDITIONS AMONG ADULTS WITH CEREBRAL PALSY. A systematic review and meta-analysis.
PURPOSE OF STUDY:
To assess the prevalence and incidence of chronic conditions
among adults with cerebral palsy (CP) and compare them to the
prevalence and incidence among adults without CP.
METHOD
We searched MEDLINE and Embase
For Studies Reporting The Prevalence Or Incidence Of One Or More
Chronic Conditions Among Adults With Cp
Two Independent Reviewers Screened Titles, Abstracts, And Full-Text Articles
Two Independent Reviewers Extracted Data Relating To Prevalence
And Incidence And Appraised Study Quality
We Performed Random-effects Meta-analyses To Pool Prevalence And Incidence
RESULTS:
We identified 69 studies
65 reported the prevalence of 53 conditions
13 reported the incidence of 21 conditions
20% OF ADULTS HAD THE FOLLOWING CONDITIONS:

(21%) Depression
(23%) Mood Affective Disorders
(26%) Hypertension
(32%) Urinary Incontinence
(46%) Scoliosis
(21%) Anxiety
(24%) Asthma
(28%) Epilepsy
(38%) Malnutrition

CONCLUSION
Adults with CP were more likely to have type 2 diabetes, anxiety, bipolar disorder, depression, schizophrenia, hypertension,
ischaemic heart disease, stroke, cerebrovascular disease,
asthma, liver disease, osteoarthritis, osteoporosis, under-
weight, and chronic kidney disease than adults without CP.

These data from 18 countries, which provide an international perspective, may be used to promote awareness, identify targets for intervention, and inform the development of appropriate supports for adults with CP.

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CP-Life Research Centre @cplifecentre.bsky.social · 24/03/2025

To celebrate Cerebral Palsy Awareness Day on March 25th, we present a cross-sectional study on the transition to adult services experienced by young people with cerebral palsy. Full paper at tinyurl.com/38r44k4p #cerebralpalsy #cerebralpalsyawareness #research #disability

Colourful infographic with title "Transition to adult services experienced by young people with Cerebral Palsy". AIM To assess if young people with cerebral palsy (CP) experienced and health professionals provided practices that may improve transition from child to adult health services. METHODS Seventy-five young people and 108 health professionals completed a questionnaire describing the experience or provision of key transition practices. INTERPRETATION - Many young people with CP do not receive supports that may improve the experience of transition. - Supports to improve transition may be inconsistently provided within and between organisations. - This study highlights areas for improvement when providing transition care to young people with CP.
Infographic shows boxes with statistics as follows:
A named worker to help with the transition process: Young person 36%, Health professionals 35%. Appropriate parental involvement: Young person 90%, Health professionals 66%. Information about transition: Young person 24%, Health professionals 69%. Promotion of health self-efficacy: Young person 37%, Health professionals 73%. Self-management support: Young person 36%, Health professionals 73%. Meet the adult team: Young person 16%, Health professionals 30%. Senior manager with responsibility for transition: Health professionals 20%. Formal life skills training: Young person 16%, Health professionals 36%.

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Reposted by CP-Life Research Centre

RCSI University of Medicine and Health Sciences @rcsi.bsky.social · 19/03/2025

Researchers at @rcsipophealth.bsky.social have been awarded €496k in funding from @epaireland.bsky.social to investigate the effects of air pollution on public health in Ireland. The study will be led by Professor Debbi Stanistreet. Read more here➡ rcsi.com/dublin/news-...

A photo showing traffic on a busy road with lots of smoke in the air coming from the cars.

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CP-Life Research Centre @cplifecentre.bsky.social · 19/03/2025

We’re excited to attend #mymovingbrain event this Saturday. Visit our engagement stand, find out what we're doing to support physical activity for people with disabilities and how to get involved. #futureNeuro #cerebralpalsy #community #neurologicalconditions #physicalactivity #research #engagement

Flyer for My Moving Brain event on 22nd March 2025. "Join us to hear from inspiring speakers, try inclusive sports & get hands-on with fun science activities at our Community Connect event in Cork! Flyer lists the speakers and details the programme for the day. QR code included for registration. Event to be held in the Mayfield Sports Complex, Cork. Logos of sponsors are displayed.

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CP-Life Research Centre @cplifecentre.bsky.social · 04/03/2025

Calling on adults with cerebral palsy or parents of adults with cerebral palsy to join our PPI Panel - we welcome your ideas cpresearchireland.eu/public-invol... #cerebralpalsy #PPI #CPLifePPI @rcsi.bsky.social @rcsi-physio.bsky.social @rcsipophealth.bsky.social

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CP-Life Research Centre @cplifecentre.bsky.social · 04/03/2025

Calling on young people to help guide our research - join our Public Involvement Panel - we welcome your ideas. cpresearchireland.eu/public-invol... #cerebralpalsy #RCSI #PPI @rcsi-physio.bsky.social @rcsi.bsky.social @rcsipophealth.bsky.social

Poster for CP-Life Research Centre inviting young people to join our Public Involvement Panel to help make a difference in research for children and young people with cerebral palsy. Text reads: "Young people improving research. Do you want to make a difference in research for children and young people with cerebral palsy? Why? Tell us your ideas and offer advice to help make our research better. Who? Young people with cerebral palsy aged 6-17 years and their brothers and sisters who want to help guide our research. How? Join our Public Involvement Panel and let us know how we can improve research for young people like you. No experience needed, just your ideas. Just scan the QR code or visit www.cp-lifecentre.ie to get started!" Poster shows graphic of light bulb and speech bubbles coming from graphics of young people.

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Reposted by CP-Life Research Centre

FutureNeuro Centre @futureneuro.bsky.social · 26/02/2025

Curious about our next #MyMovingBrain event in Cork on March 22? Get a glimpse of the energy, insights & connections from our first event! 🎥👇 📍 Watch here: youtu.be/KN-w6k_XdTI?... 🎟️ Register for Cork: www.eventbrite.ie/e/my-moving-...

youtu.be

My Moving Brain Community Connect Event Dublin

YouTube video by FutureNeuro Centre

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Reposted by CP-Life Research Centre

RCSI University of Medicine and Health Sciences @rcsi.bsky.social · 28/02/2025

The next @futureneuro.bsky.social My Moving Brain event takes place on 22 March at the Mayfield Sports Complex, Cork. Learn more about brain health and sports inclusion and connect with others during hands-on science activities. Register here ➡️ www.eventbrite.ie/e/my-moving-... #MyMovingBrain

My Moving Brain event flyer for Cork, 22nd March 2025, from 1:30-5:00 pm at Mayfield Sports Complex. The flyer features a vibrant design with text highlighting event details, speakers, and activities. It includes headshots or names of guest speakers such as Dr Daniel Costello, Michael McKillop MBE, Bernie Hart, Ian O’Brien, Stephanie Mac Sweeney, and Eoghan Kenny TD. The event focuses on brain health and inclusion in sports, featuring talks on epilepsy, Parkinson’s, and sports accessibility. It promotes a family-friendly environment with inclusive sports and science activities. A QR code is included for registration.

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RCSI School of Population Health @rcsipophealth.bsky.social · 04/03/2025

‘Collaboration is key. We cannot have impact on these complex problems that we address in population health and health services research if we do not have true collaboration,’ said Dr Barbara Clyne speaking at the @sphereprogramme.bsky.social Annual Conference.

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SPHeRE PhD Programme @sphereprogramme.bsky.social · 04/03/2025

The SPHeRE Network 11th Annual Conference starts at 9 am today. We are eager to meet each and every one of you. www.sphereprogramme.ie/2025-annual-...

sphereprogramme.ie

2025 Annual Conference | The SPHeRE Programme | Structured Population and Health-services Research Education

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