Sickle Cell Disease Coalition @conquerscd.bsky.social · 15/09/2026Can you believe it’s been over a week since the 2026 SCDC Summit? If you couldn’t stay for the full event, no worries! Summit content is still available to rewatch. Please also take a few seconds to fill out our survey here: ow.ly/eNPN50ZNzPQ 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 03/09/2026Today is the day! The 2026 Sickle Cell Disease Coalition Annual Summit is live starting at 10:00 AM ET. Need help navigating the Summit links? Remember, you can check back on the agenda homepage in Whova, or email coordinator@scdcoalition.org. We’re excited to see you there! 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 02/09/2026T-1 DAY! The 2026 Sickle Cell Disease Coalition Annual Summit is almost here. Have you registered yet? Don’t miss your chance to be part of this important gathering. Register here: ow.ly/y0lj50ZIs4W less 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 28/08/2026We’re less than 1 week away from the 2026 SCDC Annual Summit! Have you registered yet? You don’t want to miss this year’s virtual Summit on Sept. 3, 2026, 10 AM-4 PM ET. Theme: Every Life Stage, Every Voice, Every Opportunity Register: ow.ly/rBys50ZFqJ8 #SCDC #SickleCellDisease 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 27/08/2026September is National Sickle Cell Awareness Month, and we want to hear from you! How are you recognizing the month? Whether you’re hosting an event, sharing resources, launching a campaign, or uplifting patient voices: drop your plans in the comments or email us at coordinator@scdcoalition.org. 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 26/08/2026Don’t forget: the next SCDC Update comes out this Friday! Have news, events, resources, opportunities, or announcements you’d like us to amplify? It’s not too late. Send updates to coordinator@scdcoalition.org. #SCDC #SCDCPartner #SickleCellDisease 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 17/08/2026August is National MedicAlert Awareness Month. SCDAA and MedicAlert provide patient-specific care plans for sickle cell pain crises. Learn more: ow.ly/7Zil50Zz8cc #MedicAlertAwarenessMonth #SickleCellDisease #SCD 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 13/08/2026Calling all digital comms, marketing & public health promotion pros! ASH is hiring a Social Media Communications Consultant to support the Sickle Cell Disease Coalition with content, engagement, graphics & SCD resource promotion. See the RFA below for details. Apply by Aug. 28: scd@hematology.org 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 20/07/2026It’s almost that time! The July 2026 SCDC Update Newsletter is in the works. Do you have upcoming events, resources, announcements, or news to share? The SCDC is here to amplify the work you’re doing. Send us what you’re working on by Friday, July 24, and we’ll include it in the next update! 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 23/06/2026Later this week, NHLBI and SCDAA host Research That Heals: a free hybrid forum to improve SCD care and quality of life. 📅 June 25-26 See you there! #ResearchThatHeals #sicklecell #SickleCellDisease #NHLBI #SCDAA #scdc #scdcpartner #SCD 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 01/06/2026The Sickle Cell Disease Coalition (SCDC) is grateful to all the partners and members who joined the SCD Unified Action Forum. SCDC member Andres Vasconez Samaniego, MD, FAAP, shared a reflection on his experience. #SickleCell #SCD #UnifiedAction 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 28/05/2026The Sickle Cell Disease Coalition seeks ideas for our Peer Learning Exchanges! Take a look at past topics and imagine what you could share. Email coordinator@scdcoalition.org with your ideas. #SickleCell #SCD #PeerLearning 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 22/05/2026Flash Friday shares what's new, needed, and next in the sickle cell community. SCDC members, send your items to coordinator@scdcoalition.org by May 25. #SickleCell #SCDC #FlashFriday 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 20/05/2026Today is Clinical Trials Day—honoring patients, investigators, and teams advancing care. ASH supports every trial stage, from design to training. Discover resources and fuel your next breakthrough here: ow.ly/fRy350Z2rcy #ClinicalTrialsDay #Hematology #ClinicalResearch 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 20/05/2026Help us amplify what’s happening across the sickle cell community. The SCDC Update lands in inboxes on the last Friday of the month! We’re looking for news, events, opportunities, and tools to share with our network. Send submissions by May 22 to coordinator@scdcoalition.org 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 19/05/2026Stigma grows silently for those with SCD. This Mental Health Awareness Month, join SCDAA P.O.W.E.R. ECHO on May 28 to explore mental health in SCD care. Register: ow.ly/AbgP50Z1Sfl #MentalHealthAwarenessMonth #SickleCell #SCD #MentalHealth 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 12/05/2026This #NationalNursesWeek, SCDC celebrates #ThePowerOfNurses in sickle cell disease. On May 20, join the IASCNAPA “Advancing Nursing Excellence in SCD” Congress to deepen knowledge in global wellness, holistic care & shared wisdom. Register: ow.ly/Vqs950YYt5u ow.lyAdvancing Nursing Excellence in Sickle Cell Disease 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 05/05/2026Join HHS Office of Minority Health for Part 1 of a two-part roundtable on key elements, challenges, and best practices in comprehensive SCD care (including nutrition). 📅 May 14 | 2–3:30 PM ET 🔗 Register here: ow.ly/FsZj50YVb32 #SCD #HHS 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 01/05/2026“Save the date!” We’d love to… but first, we need the dates. We’re building the SCDC spring and summer calendar. Got events, advocacy actions, webinars, or deadlines for the sickle cell community? Email coordinator@scdcoalition.org so we can spread the word. 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 28/04/2026April is Medicaid Awareness Month. Medicaid is a lifeline for many people with sickle cell disease, but gaps and barriers remain. Urge your members of Congress to cosponsor the Sickle Cell Disease Comprehensive Care Act: ow.ly/F95s50YN8WG 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 22/04/2026Flash Friday is coming up, and we want to feature your work! Our members-only SCDC newsletter drops the first Friday of each month—share your news, events, and resources by April 24 to be included. Send submissions to coordinator@scdcoalition.org 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 21/04/2026Registration is still open for the ASH SCD Away Elective Rotation! This 1-month experience gives heme/onc fellows hands-on training in caring for people living with sickle cell disease. Apply by May 1, 2026: ow.ly/C8xc50YN89Q #SickleCellDisease #MedEd #HemeOnc #ASH 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 19/04/2026Can AI be trusted for sickle cell disease education? 🤖🩸 Join our Peer Learning Exchange on April 21, 2026 at 10:00 a.m. ET to explore SickleCellPedia as a real-world AI case study. Register: ow.ly/TgQW50YLnLS #SickleCellDisease #AIinHealthcare #SCDCPartner 010
Sickle Cell Disease Coalition @conquerscd.bsky.social · 17/04/2026We’re already in month four, which means you know what’s coming: the SCDC Update hits inboxes the last Friday of the month. Got news, events, opportunities, or resources for the sickle cell community? Send your submissions by April 20 to be included. Email: coordinator@scdcoalition.org 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 14/04/2026Thank you for joining us at the SCD Unified Action Forum! 🎉 If you attended, please take a few minutes to complete our post-event survey. Your feedback will help us improve future convenings for the sickle cell community. Take the survey here: ow.ly/PXA150YJ6EF #SCDUnifiedActionForum #SCD ow.lySCD Unified Action ForumSCD Unified Action Forum 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 01/04/2026We’re a week away from the SC3 Leadership Summit and SCD Unified Action Forum in Atlanta — and we’re coming from Washington, DC! ✈️ We’re excited to join such a diverse group of stakeholders to advance unified action for people living with SCD. Where are you traveling from? ⬇️ 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 25/03/2026Flash Friday submissions are open! ⚡️ Looking for new items to feature in our members-only April Flash Friday newsletter. Have news, events, resources, or opportunities to share? Send them in by April 1 (no April Fools joke 😉). Submit to: coordinator@scdcoalition.org 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 23/03/2026Planning an event for the sickle cell community? Let’s amplify it. 🔊 Hosting a workshop, webinar, summit, training, or community gathering? We can feature it on the SCDC events calendar to help you reach more stakeholders. Send event details to: coordinator@scdcoalition.org 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 20/03/2026Now accepting submissions for the March SCDC Update! Have news, events, opportunities, or resources the sickle cell community should know about? Share them so we can help amplify your work in our next newsletter. Send your items or questions to coordinator@scdcoalition.org. #SickleCell #SCD 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 17/03/2026We’re excited to kick off the SCDC Research & Innovation Subcommittee tomorrow, March 18. We’ll be shaping a new series that will feature priority topics in sickle cell disease research and spotlight the experts driving this work. Want to be part of it? Apply here: ow.ly/KYHk50Ys1Nr 002
Sickle Cell Disease Coalition @conquerscd.bsky.social · 16/03/2026Headed to Atlanta for the SCD Unified Action Forum (April 11–12)? This is your sign to lock in your travel. Book your flight & hotel by March 24 to secure your spot and make the most of the Forum. Let’s move sickle cell care, research & advocacy forward—together. #SickleCell #SCD #SCDCPartner 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 13/03/2026We can’t believe Sick Cells Sickle Cell Disease Policy Forum is just a couple of days away! Make sure you’re registered and ready to learn, engage, and advocate. Bring your voice and your commitment to advancing better policies for people living with SCD — See you there! #SCDCPartner #PolicyForum 022
Sickle Cell Disease Coalition @conquerscd.bsky.social · 11/03/2026It's Patient Safety Awareness Week – for the sickle cell community, safety means survival. Use ASH SCD guidelines for safer care: ow.ly/QeSt50Ys15u #SCDC #ASH #Guidelines #PatientSafety 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 10/03/2026We’re excited to co-host the SCD Unified Action Forum with Sickle Cell Consortium, April 11–12, 2026, in Atlanta, GA. We’re bringing together SCDC & SC3 members to advance unified action in SCD. SCDC members can also attend the SC3 Leadership Summit at no additional cost. #SCDCPartner #SCD 010
Sickle Cell Disease Coalition @conquerscd.bsky.social · 05/03/2026📬 Have you signed up for the SCDC Update? It’s a great way to stay up to date on the latest sickle cell disease opportunities, resources, and events, and to easily share them with colleagues and others in your network. Join the mailing list today: ow.ly/XHO650YcoLl 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 03/03/2026🚨 Our first U.S. Pathways to Care meeting is on March 6! Join U.S. based stakeholders to address barriers and develop practical, community-informed solutions for equitable, high-quality sickle cell care. Apply to join the subcommittee: ow.ly/Wsyf50YcoGq 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 26/02/2026Reminder: 📣 Join us for #PeerLearningExchange #4 on the sickle cell disease policy landscape in 2026. Hear from Maia Laing, Chief Policy Officer at @SickCells on the latest regulatory, funding & access trends shaping care and research in the U.S. 🔗 ow.ly/9IUm50Yhl5G 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 23/02/2026❤️ February is American Heart Month! People living with sickle cell disease (SCD) face unique heart health risks. Learn practical tips to support cardiovascular health here: ow.ly/NeSp50Ycomr #AmericanHeartMonth #SickleCellDisease #HeartHealth #PatientAdvocacy 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 20/02/2026📢 Flash Friday #3 is coming in March! We’re looking for community news, events, and resources related to sickle cell disease to feature in our next Flash Friday. 🗓️ Submit by Feb 26 📩 Questions? Email coordinator@scdcoalition.org Help us keep the SCD community informed and connected. 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 19/02/2026The SCDC is excited to join community members and advocates at the 2026 #SCDPolicyForum, hosted by Sick Cells and the Sickle Cell Consortium 🗓️ March 17–18, 2026 | Virtual Register: ow.ly/wRb150YcnP7 #SickleCellDisease #Advocacy #SickleCellAwareness 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 18/02/2026📣 Join us for #PeerLearningExchange #4 on the sickle cell disease policy landscape in 2026. Hear from Maia Laing, Chief Policy Officer at Sick Cells on the latest regulatory, funding & access trends shaping care and research in the U.S. 🔗 ow.ly/zvUb50YhkTq 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 17/02/2026🧬 The FDA is hosting a virtual Rare Disease Day 2026 public meeting on Feb 23. The SCDC will be attending—will you? Let us know how you or your organization are engaging during #RareDiseaseDay or #RareDiseaseWeek. 🔗 Learn more: ow.ly/TNY550YcnmZ 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 16/02/2026📢 Don’t miss our third Peer Learning Exchange: “From Commitment to Change—Effective Advocacy Through Coalitions & Government Engagement.” Hear Mario Ottiglio, MA, share actionable tips on coalition advocacy and policy engagement. 📅 Tomorrow, Feb 17 🔗 Register: ow.ly/NsPc50Ycnff 010
Sickle Cell Disease Coalition @conquerscd.bsky.social · 13/02/2026🩸 Today is World Anemia Day 2026! Many confuse sickle cell anemia (HbSS) with sickle cell disease (SCD). Quick tip: HbSS is the most common & severe form of SCD. Learn more here: ow.ly/Sxmi50YcmLF 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 11/02/2026👥 Our first SCDC-wide meeting of 2026 is Feb 25! We’ll share highlights from the ASH Annual Meeting and research submissions. Members, we hope to see you there! Not a member? Apply here 👉 : ow.ly/PzMu50Ycmog #SickleCellDisease #ResearchCommunity #SCDC #ASHAnnualMeeting 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 09/02/2026📣 Peer Learning Exchange | Feb 17: Join us for 'From Commitment to Change: Effective Advocacy Through Coalitions' with Mario Ottiglio, MA. 🔗 Register: ow.ly/mi9n50YbVz3 #PeerLearningExchange #GlobalHealth #Advocacy #CoalitionBuilding #SickleCellDisease 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 05/02/2026📣 Peer Learning Exchange | Feb 17: Join us for 'From Commitment to Change: Effective Advocacy Through Coalitions' with Mario Ottiglio, MA. 🔗 Register: ow.ly/5wc650Y6Bu5 #PeerLearningExchange #GlobalHealth #Advocacy #CoalitionBuilding #SickleCellDisease 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 27/01/2026Have an event? Let’s amplify it! Submit your workshops, summits, trainings, or other opportunities to the SCDC calendar and reach more of our community. We’ll help spread the word! 📧 Send details: coordinator@scdcoalition.org #SickleCellDisease #HealthAwareness #Collaboration #AmplifySCDC 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 23/01/2026Today is Maternal Health Awareness Day! ACOG's theme "Holding Ground on Maternal Health" highlights our commitment to preventing maternal deaths. Check out WHO's first global guideline for SCD pregnancy care: ow.ly/7zl850XYhfe #MaternalHealth #SCD 000
Sickle Cell Disease Coalition @conquerscd.bsky.social · 21/01/2026January is National Blood Donor Month! Check out this PSA by our former Co-Chairs, Mapillar and Jeff. 000
