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Compassion & Choices

@compandchoices.bsky.social
275 followers 50 following 246 posts

Improving care, expanding options, and empowering everyone to chart their end-of-life journey since 1980 compassionandchoices.org

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Compassion & Choices @compandchoices.bsky.social · 30/09/2026
“Relationships don’t need to be reciprocal for feelings to be real,” Verhulst says. “Loss brings up a lot for all of us no matter what form it takes, whether it’s shock, disbelief, or confrontation with our own mortality.” Read more: ow.ly/bFfg50ZPPrg
time.com
Dolly Parton, Gloria Steinem, and Why Grieving a Celebrity Feels So Personal
Research has found grieving together is more beneficial than doing so without help, writes Lisa McCarty.
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Compassion & Choices @compandchoices.bsky.social · 29/09/2026
This year has been a defining year for end-of-life care policy. In addition to state-focused legislative work, we’re looking strategically at where we can have the greatest impact. Learn more about where we're headed: ow.ly/94ST50ZPBEF #EndOfLifeCare #MedicalAidInDying
compassionandchoices.org
Elections and the Future of End-of-Life Care – Compassion & Choices
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Compassion & Choices @compandchoices.bsky.social · 28/09/2026
The Compassionate Care Act aims to empower more Americans to have important conversations about their end-of-life care so their wishes are known and more likely to be honored. Hear directly from our CEO about why we're endorsing the Act: ow.ly/AKGc50ZPBH4 #EndOfLifeCare #AdvanceDirective
compassionandchoices.org
A note from the CEO: Why Compassion & Choices is endorsing the Compassionate Care Act – Compassion & Choices
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Compassion & Choices @compandchoices.bsky.social · 24/09/2026
Take Me Out Feet First is now free to watch on YouTube! Developed in partnership with Compassion & Choices, the documentary series tells the stories of terminally ill advocates who worked to advance medical aid in dying in their home states. Watch Season 1 now: ow.ly/jI1x50ZLx5C
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Compassion & Choices @compandchoices.bsky.social · 23/09/2026
Deb Robertson is a Compassion & Choices advocate and storyteller who has been at the forefront of the end-of-life choice movement. Illinois' newly enacted law is nicknamed "Deb's Law" to honor her advocacy work. Read more: ow.ly/jW9550ZQGSe #DebsLaw #MedicalAidInDying #EndOfLifeChoice
ow.ly
She lived to see ‘Deb’s law’ take effect. Now she can choose how she dies
Deb Robertson has become a leading advocate for end-of-life options in Illinois. After being diagnosed with a rare cancer, she pushed for a law allowing terminally ill patients to use lethal prescriptions to end their lives.
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Compassion & Choices @compandchoices.bsky.social · 23/09/2026
A new editorial looks at the relationship between psychological resilience and suffering near the end of life. The authors argue for whole-person support that recognizes what each person is experiencing and helps address the sources of their suffering. Read it here: ow.ly/imZr50ZNOVQ
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Compassion & Choices @compandchoices.bsky.social · 22/09/2026
Bernadette Nunley, Compassion & Choices' chief legal advocacy officer, was recently featured on the Life is Legal podcast, hosted by Brooke Hardie. Listen to their conversation about medical aid in dying: ow.ly/RfmE50ZMFAv #MedicalAidInDying #EndOfLifeChoice
ow.ly
Medical Aid In Dying Is Legal | Ep 30
Listen to Life Is Legal on RedCircle
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Compassion & Choices @compandchoices.bsky.social · 21/09/2026
"My recommendation is to talk about these issues early on in life, maybe starting when you become an adult. Start to think about your mortality, and visualize how you would want things to go for you when you get into that stage of life-the end stage. Communicate honestly." ow.ly/eqFV50ZNOYX
ow.ly
What We Get Wrong About Death, According To End-Of-Life Workers
Palliative care and hospice professionals discuss what the process is like — and their insights may challenge what you think about dying.
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Compassion & Choices @compandchoices.bsky.social · 18/09/2026
“Legislation like this tells us that we are looking more closely at whether the care being delivered is actually the care the patient wanted. That is important for both access and quality." Learn more about the bill: ow.ly/T7E750ZIeKL
hospicenews.com
California’s Advance Care Planning Bill Moves Forward
An advance care planning bill introduced in California has recently passed in the state Senate. Gov. Gavin Newsom (D) is now considering
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Compassion & Choices @compandchoices.bsky.social · 17/09/2026
The main concern about patient underreporting when it comes to dementia is that it can mean clinicians "miss the window in which they can still act on the diagnosis," Chen said. Read more: ow.ly/qrU650ZJiYB Explore our dementia tool: compassionandchoices.org/dementia-values-tool/
newsweek.com
Many older Americans may have dementia diagnoses without knowing
Researchers found 67 percent of Americans underreported having a dementia diagnosis, over double the rate for other conditions.
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Reposted by Compassion & Choices
kschorsch.bsky.social @kschorsch.bsky.social · 17/09/2026
Illinois residents who are terminally ill can now end their lives with medication. Here's how the law works + why hospice providers are frustrated with the Pritzker administration: tinyurl.com/v3u85du9 @wbez.org @chicago.suntimes.com @aadm.org @compandchoices.bsky.social
tinyurl.com
Illinois residents who are terminally ill can now end their lives. Here’s how it works.
The medical aid in dying law is facing court challenges but the law still stands.
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Compassion & Choices @compandchoices.bsky.social · 16/09/2026
Alzheimer’s disease is the most common form of dementia. For many years, researchers believed that its main cause was a buildup of toxic proteins. But recent findings suggest that the problem may have another origin, specifically in the bloodstream. Explore those findings: ow.ly/52Rk50ZKCti
theconversation.com
Inside the brain: Rethinking the mechanisms of Alzheimer’s disease
Our understanding of the causes of Alzheimer’s disease is evolving. Recent discoveries have revealed the important role of the cerebral vascular system.
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Compassion & Choices @compandchoices.bsky.social · 15/09/2026
“A lot of people seem to have this idea that talking about death is going to bring it on faster. That’s a big misconception that I see a lot, is that I’m morbid for wanting to talk about death and dying and grief, and it’s simply not true.” Learn more about Bryn Schraven: ow.ly/c7vO50ZIN9l
wisconsinwatch.org
Oshkosh death companion helps LGBTQ+ community navigate death, grief
Bryn Schraven aims to help others through the experience of loss and to change the conversation around death through their business, Silver Glass Deathcare.
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Compassion & Choices @compandchoices.bsky.social · 14/09/2026
“The Hippocratic oath says do no harm,” Dr. Shapiro said. “And I don’t think we’re harming anyone by doing this. I think we’re actually being compassionate and relieving suffering.” Read more about Quiĕtus: ow.ly/OEiE50ZLbIm #MedicalAidInDying #EndOfLifeChoice #CompassionateCare
nytimes.com
The Start-Up That Helps People Die
Medical aid in dying is now legal in New York. A team of clinical professionals decided to create a practice to help their clients die on their own terms.
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Compassion & Choices @compandchoices.bsky.social · 14/09/2026
With Deb's Law now in effect in Illinois, we want to be sure you're informed about how to access medical aid in dying across the Midwestern state. Check out our free, downloadable resource about the Illinois End-of-Life Options Act: ow.ly/fFiX50ZLfRb #MedicalAidInDying #EndOfLifeChoice
compassionandchoices.org
An Introduction to Medical Aid in Dying – Illinois – Compassion & Choices
Medical aid in dying is the practice in which a terminally ill, mentally capable adult patient voluntarily requests and receives a prescription medication from their physician that they can self-administer to die peacefully on their own terms. Medical aid in dying is authorized in 14 jurisdictions w…
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Compassion & Choices @compandchoices.bsky.social · 12/09/2026
Today Illinois’ End-of-Life Options for Terminally Ill Patients Act -- known as "Deb's Law" -- takes effect, authorizing medical aid in dying in the midwestern state. Thank you to each person who advocated, spoke up, and shared their stories. We would not be here without you!
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Compassion & Choices @compandchoices.bsky.social · 11/09/2026
Tomorrow, September 12, Illinois’ Deb’s Law takes effect despite multiple legal challenges, giving eligible adults with a terminal illness the option of medical aid in dying. Learn more about the challenges here: ow.ly/JT7050ZMM0B #MedicalAidInDying #EndOfLifeChoice #DebsLaw
compassionandchoices.org
New Illinois Legal Challenges and Updates – Compassion & Choices
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Compassion & Choices @compandchoices.bsky.social · 10/09/2026
"People who have thought carefully about their own dying tend to be more present with the living. They are more honest, more tender, less willing to waste the time they have on avoidance or pretense. Death literacy, it seems, makes people more loving toward each other." ow.ly/qfF950ZFa9l
styleweekly.com
Death literacy
When a community stops avoiding death and starts talking about it, everything changes.
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Compassion & Choices @compandchoices.bsky.social · 09/09/2026
“Comprehensive understanding, such as believing that palliative care supports families and alleviates suffering, was associated with preferences for home or hospice care." Read more: www.mcknightshomecare.com/news/with-knowledge-of-palliative-care-people-likely-to-choose-end-of-life-care-at-home
mcknightshomecare.com
With knowledge of palliative care, people likely to choose end-of-life care at home
People with a comprehensive understanding of palliative care overwhelmingly prefer end-of-life care at home or in hospice care over a hospital or institutional setting, according to a new study published in the Journal of Palliative Care and Social Practice.
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Compassion & Choices @compandchoices.bsky.social · 08/09/2026
"Regard­less of where one stands on med­ical aid in dying, there is broad agree­ment within the med­ical pro­fes­sion on one point: every patient facing a ter­minal ill­ness deserves access to out­stand­ing end-of-life care." ow.ly/QpRL50ZEQW2 #MedicalAidInDying #EndOfLifeChoice
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Compassion & Choices @compandchoices.bsky.social · 04/09/2026
“We as a society are obsessed with youth. It stems from us losing touch with being OK with talking about death and grief. Be brave enough to ask yourself some of those questions: What are my wishes when I die?” Learn more about how to "do the hard thing": ow.ly/ZZOF50ZFa78
fearlessbr.com
Doing the hard thing: How to navigate death, dying and grief - Fearless
Kerri Hays We will do many hard things throughout our lives. Some of these are things we choose to do, like run a marathon or tackle a big work project.  Others are things that life Read more…
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Compassion & Choices @compandchoices.bsky.social · 03/09/2026
"People often assume that having this option means someone wants to use it right away. That isn’t true. I have a full life. I still find joy every day. I’m not focused on dying." Read more from Dr. Jeremy Boal, a Compassion & Choices advocate: ow.ly/4LsL50ZER0k #MedicalAidInDying
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Compassion & Choices @compandchoices.bsky.social · 02/09/2026
For over a decade, Compassion & Choices African American Leadership Council member Shawn Perry has used his radio show and podcast to tackle many topics important to older adults, including end-of-life care and planning. Learn more about Shawn, and listen to his show: ow.ly/CkAs50ZG2h3
compassionandchoices.org
Meet the broadcaster helping older adults talk openly about end-of-life care – Compassion & Choices
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Compassion & Choices @compandchoices.bsky.social · 01/09/2026
“When we use the word #hospice, people think final weeks, they think morphine drips, they think death. Immediate death.” Hospice nurse practitioner Nicole Golding says that’s not always the reality. Meet Golding's patients who are defying expectations: ow.ly/WTZS50ZGw5c
usatoday.com
They went home to die. How hospice gave them time to live
For many who go home in hospice care to die, death is neither immediate nor quick. Some, like President Jimmy Carter, live quality years in home care
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Compassion & Choices @compandchoices.bsky.social · 27/08/2026
"There's a lot for Blair to consider before she dies, and [her death doula] said she's there to help with that." Find out why Jeanine Blair decided to hire a death doula: www.texarkanagazette.com/news/2026/aug/15/planning-for-the-end-why-one-dallas-woman-hired-a #DeathDoula #EndOfLifeDoula
texarkanagazette.com
Planning for the end: Why one Dallas woman hired a death doula | Texarkana Gazette
DALLAS -- Jeanine Blair opened the door for her death doula on a cloudless Friday morning in July. They greeted each other like old friends.
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Compassion & Choices @compandchoices.bsky.social · 26/08/2026
Newman stressed the importance of #PalliativeCare due to what she believes to be the increasing failure of the healthcare system to be patient centered. Read more: www.dallasexaminer.com/health/the-importance-of-palliative-care-for-adults-with-serious-health-illnesses-and-their-caregivers-557cd76d
dallasexaminer.com
The importance of palliative care for adults with serious he...
Palliative care can begin with a serious illness diagnosis, easing symptoms while supporting patients and caregivers. Experts say earlier access can improve qua...
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Compassion & Choices @compandchoices.bsky.social · 24/08/2026
Brittany Maynard (1984-2014) was a terminally ill 29-year-old woman who fought for medical aid-in-dying legislation for California after moving to Oregon to access the option. Her husband Dan recently wrote about his experience: katiecouric.com/news/politics-and-policy/brittany-maynard-death
katiecouric.com
The Promise I'm Keeping For My Late Wife
My wife had to move states to die on her own terms. I’m fighting to make sure others don’t have to.
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Compassion & Choices @compandchoices.bsky.social · 21/08/2026
At its core, person-centered care means meeting people exactly where they are. In end-of-life work, this includes recognizing that each person’s story is shaped by: identity, relationships, and cultural and societal experiences. Learn more about inclusive end-of-life care: ow.ly/NkvO50ZxpqL
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Compassion & Choices @compandchoices.bsky.social · 18/08/2026
Don’t overlook a healthcare power of attorney (aka healthcare surrogate or healthcare proxy), which is someone who can make medical decisions if your parent can’t. An advance directive specifies what sort of end-of-life care they want. Explore more suggestions: ow.ly/t1j750ZyTwt
ow.ly
3 big questions to ask your aging parents
Start those essential conversations with your parents at 75 about finances, care, and end-of-life wishes. Planning now can make all the difference later. (AP Photo)
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Compassion & Choices @compandchoices.bsky.social · 17/08/2026
The Centers for Medicare & Medicaid Services (CMS) recently finalized adoption of the Advance Care Planning electronic Clinical Quality Measure (eCQM), which goes beyond asking the question, “Do you have an Advance Directive?” Read more: ow.ly/Syw350ZyTAx #Medicare #Medicaid
medlearn.com
When Advance Care Planning Becomes a Hospital Quality Measure – MedLearn Publishing
The Centers for Medicare & Medicaid Services (CMS) finalized adoption of the Advance Care Planning electronic Clinical Quality Measure (eCQM) as a new self-selected electronic quality measure in the FY 2027 finalized Inpatient Prospective Payment System (IPPS) ruling. This additional quality metric is expected to start voluntarily CY 2028 and will be mandatory in calendar […]
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Compassion & Choices @compandchoices.bsky.social · 12/08/2026
"Medical aid in dying is not about choosing death over life. It is about choosing how to live the final chapter of life when death is already approaching and medicine can no longer change the outcome." Read more: ctmirror.org/2026/07/29/ct-can-no-longer-delay-compassion-at-the-end-of-life
ctmirror.org
Opinion: CT must no longer delay compassion at the end of life
The role of government should not be to prescribe one universally acceptable way to die.
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Compassion & Choices @compandchoices.bsky.social · 12/08/2026
Last week NY's Medical Aid in Dying Act took effect. Passing a law is a milestone. But making the law work for patients is our mission — and there’s more to be done on this front. Learn how we're investing in the people who will make access real: ow.ly/4ryf50ZtMNZ #MedicalAidInDying
compassionandchoices.org
It takes more than a law to change how we die – Compassion & Choices
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Compassion & Choices @compandchoices.bsky.social · 11/08/2026
“If I were dying, I would like to have access to anything and everything that could make me suffer less. Doesn’t that sound humane? It’s that simple. But choice has to exist within a system that truly supports patients. Otherwise it’s not really a free choice.” Read more: ow.ly/OFBo50Zx8WJ
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Compassion & Choices @compandchoices.bsky.social · 10/08/2026
In On Our Own Terms from Live from Stage 4, Compassion & Choices' Elizabeth Armijo discusses the road to expanding access to #MedicalAidInDying, the legislative landscape, and how C&C supports people in every state through education about end-of-life options. Listen now: ow.ly/LsOg50Zx060
livefromstage4.org
On Our Own Terms: A Conversation About Medical Aid in Dying, Dignity, and the Choices We're Afraid to Make — Live From Stage 4
On August 5th, 2025, New York State became one of only a handful of states in the country where medical aid in dying is now legal. For our community — people living with metastatic breast cancer — this is not an abstract policy debate. It's a deeply personal question about how we want to live, an
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Compassion & Choices @compandchoices.bsky.social · 07/08/2026
"We need to normalise talking about dying — in our workplaces, around our kitchen tables and in care home corridors. Explore how modeling courage, compassion, and collaboration can improve the palliative care experience: ow.ly/G18250Zt7yI #PalliativeCare #EndOfLifeCarePlanning
ehospice.com
Leading with Courage at the End of Life
Dr Ros Taylor MBE explores the courage, compassion and collaboration needed to lead meaningful palliative and end of life care.  Leadership in palliativ
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Compassion & Choices @compandchoices.bsky.social · 06/08/2026
"There are a lot of people, a lot of organizations who are really trying to make sure that this is one of many options that exist for people who are facing end-of-life decisions,” Kevin Díaz, CEO of Compassion & Choices said. Learn more about Compassion & Choices' goals: ow.ly/SiYn50Zx0ow
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Compassion & Choices @compandchoices.bsky.social · 06/08/2026
"Even if you already have an advance directive, adding a POLST can make your wishes clearer. Without one, first responders are generally required to attempt resuscitation and transport you to a hospital." ow.ly/sz7150ZsgHZ
reviewjournal.com
Could your end-of-life medical wishes be ignored?
Living wills aren’t always followed in practice, most often because the document isn’t available when it’s needed or never reaches the right people in time.
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Compassion & Choices @compandchoices.bsky.social · 05/08/2026
Today, #MedicalAidInDying goes into effect in New York, a historic milestone for compassionate, patient-directed care. This achievement is the result of years of dedication, advocacy, and perseverance from advocates, volunteers, partners, and staff who worked tirelessly to make this moment possible.
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Compassion & Choices @compandchoices.bsky.social · 04/08/2026
In this interview, Ashley Johnson recounts how her journey to becoming an end-of-life doula began with her grandmother. As her health declined, she shared her end-of life wishes, from whether or not she wanted a feeding tube to who she wanted to pray for her. ow.ly/26h150ZtMvP
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Compassion & Choices @compandchoices.bsky.social · 03/08/2026
“We deserve to be seen. Death isn’t just a medical or a legal event. It’s cultural, spiritual or familial. It’s human. The way someone wants to be cared for at the end of life is deeply connected to who they are, where they come from and what they believe in.” Read more: ow.ly/K5lc50ZtA1o
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Compassion & Choices @compandchoices.bsky.social · 31/07/2026
"You can also ask about medical wishes: What kind of care do you want if things change? Who should make decisions? What matters most — being at home instead of hospitalization? ... By opening the door, you make space for the other important topics, too." Read more: ow.ly/WpRu50ZoSil
ow.ly
My Husband Is Dying. How Do I Talk to Him About It?
Our Ask the Therapist columnist, Lori Gottlieb, advises a reader who fears discussing end-of-life affairs will make her husband think she wants him gone.
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Compassion & Choices @compandchoices.bsky.social · 30/07/2026
Every year, Medicare updates the rules that govern hospice care: how it’s paid for, what it covers, and how quality is measured. Read what’s in the latest proposed rule, how we responded, and why it matters to you: ow.ly/HpIH50ZqSCU #Medicare #HospiceCare
compassionandchoices.org
Why Compassion & Choices weighed in on Medicare’s new hospice rule – Compassion & Choices
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Compassion & Choices @compandchoices.bsky.social · 28/07/2026
“I think having the conversation in a communal way is so powerful because—in many ways—our culture has really made end-of-life planning really solitary and isolated," says Regis. Read why "death is having a moment": ow.ly/KK3T50Zq6pz #EndOfLifeCare #EndOfLifeCarePlanning
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Compassion & Choices @compandchoices.bsky.social · 27/07/2026
New York’s Medical Aid in Dying Act takes effect August 5. Two lawsuits in federal court are seeking to block that from happening. Listen (and read) as Compassion & Choices' Veronica Darling responds to questions about medical aid in dying and the lawsuits: ow.ly/KfZL50ZtxE9
ow.ly
Right to die law poised to launch in NY, despite lawsuits
WXXI Morning Edition host Mikhaela Singleton and Capitol Bureau reporter Samuel King catch up on the latest developments in the state’s Medical Aid in Dying legislation.
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Compassion & Choices @compandchoices.bsky.social · 27/07/2026
The movement to make medical aid in dying part of the gold standard of fully-informed, patient-directed end-of-life care is growing stronger every year, and 2026 has been no exception. Here’s a state-by-state look at where things stand on our most active campaigns: ow.ly/Fho850ZqSFW
compassionandchoices.org
2026 Legislative Session Recap: Medical Aid in Dying Across the States – Compassion & Choices
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Compassion & Choices @compandchoices.bsky.social · 24/07/2026
In honor of this year's #ADA anniversary, we're sharing a conversation with Dr. Seth Morgan who reflects on the groundbreaking law, his own multiple sclerosis diagnosis, and access to end-of-life options. Read his remarks: ow.ly/PCyw50ZnMEp #AmericansWithDisabilitiesAct #EndOfLifeChoice
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Compassion & Choices @compandchoices.bsky.social · 23/07/2026
"I, and others like me, would take great comfort in knowing that, should things take a turn for the worse, there would be a legal and effective way to end our suffering." Read more from Dr. David Clive: ow.ly/ecRt50ZkANR #MedicalAidInDying #EndOfLifeCare #EndOfLifeChoice
ow.ly
Opinion/Guest column: Time now to pass bill on medical aid in dying - AOL
We know opponents' arguments to be false based on data from the 14 states plus Washington, D.C., where medical aid in dying is legal.
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Compassion & Choices @compandchoices.bsky.social · 22/07/2026
"The system rewards aggressive treatment, and often, nurses and physicians are not comfortable with the 'grayness' introduced into the hospital by patients who are dying. But those patients are not going to stop coming, since each of us will eventually die." Read more: ow.ly/OhCc50ZohJv
cancernursingtoday.com
A Primer on Palliative Care | Cancer Nursing Today
Theresa Brown, RN, PhD, outlines what oncology nurses should know about palliative care, and helping patients navigate medical, social, financial, and technological barriers.
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Compassion & Choices @compandchoices.bsky.social · 21/07/2026
The agency emphasized that palliative care under the home health benefit would be separate from hospice care and could support patients earlier in the course of serious illness. Learn more about the proposed benefit: ow.ly/IoXo50ZkBUo #PalliativeCare #HomeHealth #Hospice
ow.ly
[Updated] CMS Proposes Community-Based Palliative Care Benefit
The U.S Centers for Medicare & Medicaid Services (CMS) has proposed coverage of community-based palliative care through the Medicare home health
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Compassion & Choices @compandchoices.bsky.social · 20/07/2026
About 36% of adults have an #advancedirective on file, according to the National Institutes of Health. But among unhoused people, that number is less than 10%. Learn more about how L.A.’s unhoused population is accessing advance care planning: ow.ly/vR3K50ZohEZ #EndOfLifeCarePlanning
uclahealth.org
Personal experience fuels Jeannie Meyer’s commitment to helping the homeless die with dignity
Personal experience fuels nurse Jeannie Meyer’s commitment to helping the homeless die with dignity by providing them access to advance healthcare directives.
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