iiinova — where your digital self keeps evolving

Stacey Tinianov, MPH @coffeemommy.bsky.social · 12/03/2026

Sending you good energy for "unremarkable" scans 💗 #scanxiety is real and I hope you are able to find some fabulous distractions this weekend!

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 12/03/2026

Missed actual sunrise but caught the pre-party!

Walton lighthouse in morning twilight. Dark jetty, pinky-orange layer of pre-dawn over the water with a little sliver of moon visible

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 07/03/2026

I am not ignoring this reality. I am simply choosing to save all my shouts of "WTAF" for when I head to the ocean for a cleansing breath. Here's the moment, sans audio

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 22/02/2026

Sending you much love and good energy 💗

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 11/01/2026

Embracing the energizing and restorative powers of nature this evening

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 30/12/2025

Taking a deep breath, maybe two, before we turn the page on 2025

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 18/12/2025

"Down by 400, 500, even 600 percent." I didn't watch but from what I've read it feels like I'm not going to be getting the prescription "rebate" I was hoping for back in August 🙃

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 11/12/2025

Mid-week into hot-off-the-press research results at the annual @sabcs.bsky.social Grateful to be sharing space and hugs with fellow advocates and colleagues 💗 #SABCS25

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 08/12/2025

Thrilled to be part of this #SABCS25 Special Session looking at lifestyle factors including alcohol consumption & obesity along w/ genetic factors to provide more insight & guidance on relevance to cancer risk & outcomes Join us tomorrow, 12/9 at 11amCT to discuss! @drkristyabrown.bsky.social

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 19/10/2025

The words I needed to hear this week 💗

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 01/10/2025

Oh Aoife, I feel this. My first go round with menopause-like symptoms (medically induced for cancer treatment) felt so much easier than this official ridiculousness. Sleep is elusive, if at all Frozen shoulder (x2) Random pains and itchiness Cholesterol & inflammation markers raging... Gah 😑

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 30/09/2025

We specialize in bringing patient voices to research; we're awesome at connecting dots btwn research & clinical care; we excel at amplifying voices & pushing for equitable access to quality care; we're all about quality-of-life. And yes, we suck at selfies! 💗 @jillfeldman4.bsky.social #ASTRO25

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 29/09/2025

Many butts in seats for "When the Physician Becomes the Patient" by Dr. Bobby Mukkamala, AMA president who was diagnosed with a large temporal lobe tumor in 2024. #ASTRO25

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 29/09/2025

pharmacologic, non-pharmacologic, and behavioral interventions for physical or mental disease or disorder, prophylaxis, diagnosis, therapy or treatment, drug and pharmaceutical development and testing." Essentially most of the things that study health & wellness for individuals & public health 😑

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 29/09/2025

epidemiological and medical behavioral studies, outcomes research (interventions, treatment, or therapies), health services research, 2/3

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 29/09/2025

Indeed but the "narrow window" is, in large part, a minor issue compared to what is now ineligble for NSF grant funding: "Ineligible areas of graduate study include public health, global health, clinical practice, clinical psychology, counseling, social work, patient-oriented research, 1/?

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 29/09/2025

Adore you, friend 💗 Thank you for sneaking some coffee time with me at #ASTRO25

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 28/09/2025

Well, literally just passed Spiderman walking down 3rd Street toward Howard so, yep, everyone should get some SF flavor! #ASTRO25

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 28/09/2025

Interesting to see audience answers to "What's the biggest barrier you face in addressing health disparities at work?" #ASTRO25 #CanSky Curious what others, not in the room, believe are the barriers

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 28/09/2025

In #ASTRO25 session, hearing the phrase, "we need to navigate people" in a session. Finding this phrasing paternalistic. Many individuals want the tools (info & access) to navigate their own experience. Dont tell us what to do, give us our options and risk/benefit profile. #CanSky

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 28/09/2025

Particularly interesting point in light of the profound SE/challenges many individuals face with endocrine therapy. Discussant cautions, "more long term follow-up needed" #ASTRO25 #CanSky #OncoSky #breastcancer

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 28/09/2025

Kicking off Day 2 (or official Day 1) of #ASTRO25 w/ "Breast Science" session. AKA a session highlighting significant breast-related presentations that will be shared at the @astro-org.bsky.social meeting Theme seems to be "right-sizing" treatments (although presenter still using term de-escalation)

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 28/09/2025

Is he presenting? Happy to be a hype machine for his research! #ASTRO25

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 28/09/2025

Forgot to take pics during the economics preso and now learning about Extranodal Marginal Zone Lymphoma and associated conditions Again, learning all kinds of new things here that I did NOT expect to learn at a Radiation Oncology meeting! #ASTRO25

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 27/09/2025

And, while I didn't expect a liquid biopsy presentation in a radiology meeting, I'm totally here for it! #ASTRO25

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 27/09/2025

First up on Day 1 Randomized control trial (RCT) for prophylactic rads for ASYMPTOMATIC bone mets showed some interesting results. Will now be moving to Phase 3 study and power for OS benefit analysis #ASTRO25

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 27/09/2025

Looking forward to learning "all the things" at my first @astro-org.bsky.social annual meeting. Started off on the right note when the woman at registration said, "Thank you for your advocacy. Go patient advocates!" and literally punched the air! 🥹 #ASTRO25

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 10/09/2025

Never selfish to need a hug 💗 You deserve hugs

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 08/09/2025

Looking forward to this conversation on Thursday. Ultimately, we want to strengthen the role of advocates in the oncology space — ensuring that individuals' lived experiences and professional expertise can help shape the future of research and healthcare. #CanSky #OncSky

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 08/09/2025

For those individuals who somehow remain confused or offended by the term "white privilege" - THIS ⬇️ If someone "looks Latino" the government can detain them. White people don't have to worry about that and THAT lack of concern is a "privilege" in this country today.

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 01/09/2025

For those dealing with the treatment-induced, menopause-y side effects of treatment for HR+ breast cancer like hot flashes and REALLY crappy sleep, this is a very interesting (and hopeful!) study #CanSky #MakeCancerLessShitty #QoL

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 27/08/2025

Sending good scan energy from the other side of the country!

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 27/08/2025

Sending you some love, Cheryl. "Well-tolerated" as defined by the research & clinical community, does NOT mean that it is either managable or tolerable in our day to day lives. I had a helluva time on Tamoxifen - thank you for speaking up so others know that they're not alone #MakeCancerLessShitty

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 21/08/2025

Still orienting myself on this platform after 15 yrs on the other one. Looking for my fellow cancer patient advocates / research advocates located in the San Francisco Bay area - who else has made the jump? #bcsm #crcsm #gyncsm #lcsm #cancer #CanSky #OncoSky #OncSky #WhatAreTheCorrectHashtagsNow

Cute little stuffed teddy bear holding a post-it note sized piece of paper with "where are you now?" written on it

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 16/08/2025

Thank you for sharing but can't acces through the "advanced media subscription" link - do you have the whole article?

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 15/08/2025

Clearing my mind and, if anyone asks why I'm not at my desk, I'm saying, "Sid told me to do it!" #CanSky

Stacey's bicycle (and helmet) hanging out at Steamer Lane

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 06/08/2025

"Not the kind of hope that pretends everything’s fine, but a hope that’s laced with determination and innovation through action" ~ Dr. @fumikochino.bsky.social on moving forward in cancer (in life!) under today's reality Advocates are used to swimming upstream; so are our healthcare teams #CanSky

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 05/08/2025

Fuck cancer Fuck treatment toxicities Missing friends Mourning an imminent loss Angry as hell Yelling into the digital void and searching for peace and acceptance through art and nature 💔 #CanSky #MakeCancerLessShitty

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 04/08/2025

Wow! "Down by 1200% Down by 1500%" I'm so damn excited to start getting paid to fill my prescriptions. 😑 #CanSky #MathMatters

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 02/08/2025

Quick visit to Colorado! Watching my 55-year old husband's wide-eyed excitement as we pulled up and hearing him giggle like a 5-year old all evening long was absolutely worth the online reservation hassle AND the price tag Thanks @casabonitadenver.com for a successful trip down memory lane!

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 29/07/2025

A pleasure and an honor to join @fumikochino.bsky.social & Dr. Ethan Ludmir in this @ascocancer.bsky.social conversation on incomplete reporting and toxicity- minimizing language in oncology! 💗

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 29/07/2025

Whether you're a Coach Prime fan or not, super hard not to be a fan of the human in this moment. Cancer sucks & those who openly share their realities not only break down social stigma but also help others feel less alone 💗 All the best to Deion Sanders (and #SkoBuffs) #CanSky #MakeCancerLessShitty

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 03/07/2025

Bringing this one back out and putting it on repeat because, while nature soothes me, I realistically can't stand next to the ocean every waking minute TY Avett Brothers for the anthem 💗 m.youtube.com/watch?v=zz0J...

m.youtube.com

The Avett Brothers - Ain’t No Man (Official Video)

YouTube video by theavettbrothersVEVO

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 03/07/2025

Pretty much sums it up but will add that it feels like there will also be an inordinate amount of suffering that will take place prior to said dying

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Stacey Tinianov, MPH @coffeemommy.bsky.social · 02/07/2025

Gorgeous! Pacifica? Waving to you from a bit further south 💗

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