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Joseph P. Hillenburg

@cobaltjacket.com
183 followers 173 following 1.8K posts

Transplant dad, #AvGeek, and IT professional at @WiTronix. Strategy Advisor at @transplantfamilies.com & pediatric transplantation advocate. Opinions are my own.

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Joseph P. Hillenburg @cobaltjacket.com · 10/09/2026
I thought it was excellent to see direct patient communications regarding a critical diagnostic test.
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Joseph P. Hillenburg @cobaltjacket.com · 23/07/2026
"At the start of last year, Bekker and her colleagues were ready to put that strategy to the test. The clinical trial for their new mRNA-based HIV vaccine was just on the verge of enrolling its first participants. But the project depended on the same backing that had sustained HIV vaccine research for decades: US government funding. Washington had long supplied roughly 90 percent of the world’s investment in the field. Then President Donald Trump returned to office."
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Joseph P. Hillenburg @cobaltjacket.com · 13/07/2026
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Joseph P. Hillenburg @cobaltjacket.com · 24/06/2026
. @amjtransplant.bsky.social mousepad swag I picked up at #ATC2026. Very nice design by @llewellynrose.bsky.social.
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Joseph P. Hillenburg @cobaltjacket.com · 05/06/2026
Yikes. I know many families start saving for college when their kids are born - but now Fidelity suggests opening retirement accounts for them - so money they can't use for almost seven decades.
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Joseph P. Hillenburg @cobaltjacket.com · 01/06/2026
Machine Learning (via @xkcd.com): xkcd.com/1838/
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Joseph P. Hillenburg @cobaltjacket.com · 26/05/2026
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Joseph P. Hillenburg @cobaltjacket.com · 21/05/2026
'Tis I, getting weird looks because I'm carrying around a book with a swastika on the cover.
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Joseph P. Hillenburg @cobaltjacket.com · 15/05/2026
Aviation and healthcare IT intersection at Dassault with a digital twin model. #AvGeek #HealthIT
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Joseph P. Hillenburg @cobaltjacket.com · 15/05/2026
Tom Clancy called out this vulnerability (in fictional works) in the 1980s.
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Joseph P. Hillenburg @cobaltjacket.com · 11/05/2026
I am working on an issue with a major US telco and they are unresponsive - so I am obviously frustrated. Oddly, my case updates wind up being converted to ALL CAPS for some reason, and no, I am not entering them that way. It does make me seem angry, but also comes off like a certain world leader.
WHY IS THIS TICKET IN "DEFERRED" / "PENDING CUSTOMER INFORMATION" STATUS? I TAKE ISSUE WITH THAT CHARACTERIZATION AS THE ISSUE IS IMPROPER PROVISIONING BY [REDACTED].
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Joseph P. Hillenburg @cobaltjacket.com · 01/05/2026
Thanks, that helps.
“How to Buy the Best Strawberries?
The absolute best way to guarantee you get sweeter strawberries is to move to California, not too far from the coast, where the growing conditions for strawberries are among the best on the planet. If you already happen to live somewhere strawberries grow year-round, you can go to a local farm and buy fresh strawberries there.”

(Source: SeriousEats)
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Joseph P. Hillenburg @cobaltjacket.com · 22/04/2026
Credit: Mike Lukovich, Atlanta Journal-Constitution.
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Joseph P. Hillenburg @cobaltjacket.com · 21/04/2026
Disappointment. That's what I see when I browse to this web page. This is the page where Health Resources and Services Administration (HRSA), a branch of HHS, traditionally solicits public input for improvements to the U.S. Organ Procurement and Transportation network (OPTN.) 1/3
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Joseph P. Hillenburg @cobaltjacket.com · 21/04/2026
If it's any relief, there have been some pretty nutty administrations throughout history. Witness one of Kaiser Wilhelm II's generals. (From "Dreadnought," by Robert K. Massie)
Count Hülsen-Haeseler appeared in pink ballet skirts with a rose wreath and began to dance to the music.” General Count Hülsen-Haeseler, a friend of the Kaiser’s since boyhood, and Chief of the Military Cabinet, had performed in this manner before. “It is an unusual experience to see a Chief of the Military Cabinet capering about in the costume of a lady of the ballet,” said a new member of the Kaiser’s suite. Exhausted by his pirouettes, the Count stopped, bowed—and then sagged to the floor. The Castle was in pandemonium: a doctor worked over the stricken dancer; Princess von Fürstenberg sat in a chair and wept; the Kaiser paced frantically up and down. After an hour and a half, the Count was pronounced dead of heart failure. Rigor mortis had set in and only with great difficulty was the General’s body stripped of its tutu and dressed in proper military uniform.
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Joseph P. Hillenburg @cobaltjacket.com · 19/04/2026
Kedgeree is just Scottish Biryani. Change my mind.
Kedgeree (credit: Jamie Orlando Smith/National Geographic)Egg biryani from Bawarchi Biryani
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Joseph P. Hillenburg @cobaltjacket.com · 17/04/2026
Screw OpenAI for this, on multiple levels. Naming this travesty after Franklin?
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Joseph P. Hillenburg @cobaltjacket.com · 16/04/2026
I'm not sure about the wording here.
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Joseph P. Hillenburg @cobaltjacket.com · 16/04/2026
I'm not sharing this page directly so as to not bump their metrics. This post is an example of how to use factual numbers to twist the story, by leaving out key details.
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Joseph P. Hillenburg @cobaltjacket.com · 15/04/2026
I tried to file my return two or three times, and each time, it was rejected due to PIN issues. I confirmed the PIN with my records, and then I found this by logging into the IRS website. No email notice from the IRS or my tax software vendor.
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Joseph P. Hillenburg @cobaltjacket.com · 14/04/2026
A proven EBV+ PTLD treatment exists. Europe has it. U.S. families don't. No FDA-approved treatment. No time to wait. Sign the petition 👉 change.org/EBVPTLDCantWait #EBVPTLDCantWait #PTLD #RareDisease
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Joseph P. Hillenburg @cobaltjacket.com · 13/04/2026
I just want to point out the name of the new Hungarian Prime Minister. It's like electing a leader named "Joe American" or "Jacques Canadien."
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Joseph P. Hillenburg @cobaltjacket.com · 10/04/2026
Hitler wanted to build a similar arch in Berlin as part of his campaign to remake Berlin into Welthauptstadt Germania. This is what it would have looked like. (Credit: J.M. Charbin) The name is even the same.
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Joseph P. Hillenburg @cobaltjacket.com · 10/04/2026
Hard pass.
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Joseph P. Hillenburg @cobaltjacket.com · 10/04/2026
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Joseph P. Hillenburg @cobaltjacket.com · 07/04/2026
Thanks, insurance.
WHY THIS REQUEST WAS NOT APPROVED

From the Medical Director:

We were told that you had a n organ transplant (Heart). Your doctor asked for a test ([REDACTED] Heart) that looks for genetic material from the donated organ (donor-derived cell-free DNA). A test is needed when there is enough proof from research to show that the results will impact patient care and health outcomes. At this time, there is not enough proof that this test will impact your care o r health outcomes. This test does not have clinical utility. As a result, this test is not medically necessary. 

We used Carelon Medical Benefits Management Clinical Guideline titled Genetic Testing for Inherited Conditions to make this decision. You may view this guideline at www.carelon.com/mbm-guidelines-genetictesting.`
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Joseph P. Hillenburg @cobaltjacket.com · 05/04/2026
Apparently this is what passes for an Easter address:
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Joseph P. Hillenburg @cobaltjacket.com · 05/04/2026
"Let them eat cake" vibes.
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Joseph P. Hillenburg @cobaltjacket.com · 01/04/2026
Idle question: Why does Burger King offer an Impossible Whopper with bacon?
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Joseph P. Hillenburg @cobaltjacket.com · 22/03/2026
Reminds me of this quote from James Glieck's book about Richard Feynman. The quote is Glieck, not Feynman. @starstryder.space
It had already occurred to psychologists that children are innate scientists, probing, puttering, experimenting with the possible and impossible in a confused local universe. Children and scientists share an outlook on life. If I do this, what will happen? is both the motto of the child at play and the defining refrain of the physical scientist. Every child is observer, analyst, and taxonomist, building a mental life through a sequence of intellectual revolutions, constructing theories and promptly shedding them when they no longer fit. The unfamiliar and the strange—these are the domain of all children and scientists.
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Joseph P. Hillenburg @cobaltjacket.com · 11/03/2026
Health Insurers Vow—Again—to Fix Prior Authorization Process - TIME: apple.news/Ae4U-RTYiQn6... Pessimist: If you offer fewer services, then fewer will required prior auth.
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Joseph P. Hillenburg @cobaltjacket.com · 11/03/2026
Credit: Unknown.
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Joseph P. Hillenburg @cobaltjacket.com · 11/03/2026
Just a tidbit from history on how the Six Day War (1967) was forced to end. Source: Aid, Matthew M.. The Secret Sentry: The Untold History of the National Security Agency (p. 139).
In the days after the attack on the Liberty, the Israeli military captured the Golan Heights and threatened to extend its advance toward the Syrian capital of Damascus. But the Russians were not about to let Syria be humiliated in the same way as its Egyptian ally. At eight forty-eight a.m. on Saturday, June 10, the Washington-Moscow Hot Line teletype machine in the White House Situation Room printed out a message from Soviet premier Aleksey Kosygin for President Johnson, one of the most ominous ever transmitted via this communications link. It read, in part, “A very crucial moment has now arrived which forces us, if military actions are not stopped in the next few hours, to adopt an independent decision. We are ready to do this. However, these actions may bring us into a clash, which will lead to a grave catastrophe . . . We propose to warn Israel that, if this is not fulfilled, necessary actions will be taken, including military.” In other words, if the Israeli military’s advance on Damascus was not stopped immediately, the Soviets would intervene militarily. Kosygin’s threat set off alarm bells all over Washington. CIA director Richard Helms, who was in the Cabinet Room at the White House when Kosygin’s message was delivered, recalled, “The atmosphere was tense. The conversation was conducted in the lowest voices I have ever heard.” The entire U.S. intelligence community was immediately placed on alert, with NSA’s director of operations, Oliver Kirby, declaring a SIGINT Readiness Bravo Crayon alert for all Soviet communications targets.
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Joseph P. Hillenburg @cobaltjacket.com · 08/03/2026
www.thelancet.com/journals/lan...
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Joseph P. Hillenburg @cobaltjacket.com · 26/02/2026
@nytpitchbot.bsky.social
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Joseph P. Hillenburg @cobaltjacket.com · 26/02/2026
Speed test using Amazon in-flight internet access on @americanair.bsky.social. #AvGeek #PaxEx
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Joseph P. Hillenburg @cobaltjacket.com · 22/02/2026
Reminds me of this.
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Joseph P. Hillenburg @cobaltjacket.com · 18/02/2026
Thanks for reminding us, MyChart. Sure wish we could correct this one.
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Joseph P. Hillenburg @cobaltjacket.com · 17/02/2026
Kiddo got back from a school trip (to DC) at 1 AM this morning, but unfortunately we had to be in the city at 7 for Cardiology, ID, and Nephrology clinics. He is still in good spirits, despite all that.
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Joseph P. Hillenburg @cobaltjacket.com · 12/02/2026
Goals. (If you know, you know.) #Andor
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Joseph P. Hillenburg @cobaltjacket.com · 11/02/2026
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Joseph P. Hillenburg @cobaltjacket.com · 06/02/2026
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Joseph P. Hillenburg @cobaltjacket.com · 05/02/2026
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Joseph P. Hillenburg @cobaltjacket.com · 03/02/2026
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Joseph P. Hillenburg @cobaltjacket.com · 02/02/2026
Chicagoland ID/allergy folks: @rubinallergy.bsky.social is doing a book signing in Naperville on February 24. Details at the link below. www.eventcombo.com/e/author-eve...
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Joseph P. Hillenburg @cobaltjacket.com · 31/01/2026
I saw Eyes Wide Shut in the theatre with friends, and amongst our group, there was a feeling of incredulousness that it was unrealistic. Little did we know at the time.
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Joseph P. Hillenburg @cobaltjacket.com · 27/01/2026
How Fox News framed the murder leading to Bovino’s ousting: 'accidental weapon discharge'
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Joseph P. Hillenburg @cobaltjacket.com · 13/01/2026
The irony is rich. apple.news/ASLiXo3r2S0y...
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Joseph P. Hillenburg @cobaltjacket.com · 05/01/2026
As always, we celebrated transplant Kiddo's 14th Heartiversary (a day early this year.) We forgot to take a picture of the cake until after it had been cut.
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Joseph P. Hillenburg @cobaltjacket.com · 26/12/2025
I'm not going to say it's great, but have you seen the MAD Magazine spoof? dn720702.ca.archive.org/0/items/mad_...
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