iiinova — where your digital self keeps evolving

Cicely Mathews @cicely-mathews.bsky.social · 13/10/2026

woohoo to the port coming out!! I’ve had mine 14 years 🫶 so happy to hear yours can be gone! Totally relate to medical fatigue, it can really be draining 😔

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Cicely Mathews @cicely-mathews.bsky.social · 12/06/2026

currently in a similar pickle. Keeping some sick leave back in case i need surgery but also on 6 hours of IVs a day long term. It’s tough trying to balance and plan :(

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Cicely Mathews @cicely-mathews.bsky.social · 05/05/2026

Ups and downs since i last posted on here. I got my work into CHI and received an honourable mention award! 🥳Wasn’t able to go due to still being on treatment…been told to buckle in for at least 18 more months of IV antibiotics🙃…got a puppy! And the PhD continues through it all 😴

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Cicely Mathews @cicely-mathews.bsky.social · 18/12/2025

Month 5 of IV antibiotics out of 6 (maybe?). Goalposts keep moving and i’m not sure if I will end these IVs in Jan or whether we continue longer… just want concrete answers. Taking time off in Jan to focus on health as if this is my last month of IVs I want to try my best to make it count!

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Cicely Mathews @cicely-mathews.bsky.social · 24/09/2025

2025 has been a lot and i’m pretty much just trying to survive 🙃

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Cicely Mathews @cicely-mathews.bsky.social · 24/09/2025

Hello everyone, it’s been a while. Finished treatment end of April. Got engaged in June 🥳 and then…found out my cavity in my lung has become the same size as before treatment so back on 12 weeks of IVs (at least), was in a car accident.. waiting for a scan on halloween to discuss treatment further

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Cicely Mathews @cicely-mathews.bsky.social · 01/08/2025

haven’t been on here in forever, i’m sorry to hear what you’re been going through! But woohoo to halfway! 🥳 I can absolutely relate as you have to just get it done no matter how horrible it all gets. Thinking of you 💛

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Cicely Mathews @cicely-mathews.bsky.social · 03/03/2025

i’ve got some embroidery and a punch needle rug and some needle felt….raided hobbycraft before christmas 😂

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Cicely Mathews @cicely-mathews.bsky.social · 20/02/2025

thank you Hanna (sorry only just seen this) - getting discharged tomorrow to complete the rest of the course at home - lots of crafting imminent 🪡

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Cicely Mathews @cicely-mathews.bsky.social · 20/01/2025

if you have followed me for my CF - hi 👋🏼. I have NTM as some of you may know and am about to try an eradication attempt yet again for 12 weeks 😬 i’m hopeful but trying to remain realistic that i’ll get better but probably won’t get rid of it completely. #CF #cysticfibrosis #NTM

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Cicely Mathews @cicely-mathews.bsky.social · 20/01/2025

I know most of you are unaware of my CF and have followed me for my research but from next week i shall be embarking on 12 weeks of intravenous antibiotics and then a surgery on my lungs in order to help my health. My research is paused until May - I’ll be excited to get back to it! #cysticfibrosis

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Cicely Mathews @cicely-mathews.bsky.social · 14/12/2024

have you read None of this is true by Lisa Jewell? That’s a book i was hooked from beginning to end

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Cicely Mathews @cicely-mathews.bsky.social · 20/11/2024

Hi all! For those who don’t know me, I’m a digital health and care CDT student at the university of bristol looking at sexual reproductive health in cystic fibrosis taking an HCI approach to my research. I’m currently a year and a bit in ☺️

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