iiinova — where your digital self keeps evolving

Chronic @chronicaction.bsky.social · 24/09/2026

“There has seldom been a stronger case for a public inquiry” 🙏 @GeorgeMonbiot.bsky.social A chasm beteeen 🌎 leading medicine, making groundbreaking headway with different disciplines & finding answers. The UK and others continue on the same trajectory. It’s a choice. #ME #chronicfatiguesyndrome

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Adam @abrokenbattery.bsky.social · 23/09/2026

Prof Simon Carding on BBC Radio Norfolk yesterday discussing DISCOVER-ME, a €7.6 million international ME/CFS research project. His team in Norfolk, along with more than 20 institutions across Europe and Canada, are investigating the biological mechanisms of the disease.

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Tom Kindlon @tomkindlon.bsky.social · 09/09/2026

10 years today, after a David vs Goliath FOI legal battle that damaged Alem Mathees, White et al were forced to release data from PACETrial (that cost UK taxpayers £5M) showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS. Please remind the world #MEcfs #PwME #CFS

Rethinking the treatment of chronic fatigue syndrome-a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
Carolyn E Wilshire 1 , Tom Kindlon 2 , Robert Courtney 3 , Alem Matthees 4 , David Tuller 5 , Keith Geraghty 6 , Bruce Levin 7
Affiliations Expand

PMID: 29562932 PMCID: PMC5863477 DOI: 10.1186/s40359-018-0218-3

Abstract

Background: The PACE trial was a well-powered randomised trial designed to examine the efficacy of graded exercise therapy (GET) and cognitive behavioural therapy (CBT) for chronic fatigue syndrome. Reports concluded that both treatments were moderately effective, each leading to recovery in over a fifth of patients. However, the reported analyses did not consistently follow the procedures set out in the published protocol, and it is unclear whether the conclusions are fully justified by the evidence.

Methods: Here, we present results based on the original protocol-specified procedures. Data from a recent Freedom of Information request enabled us to closely approximate these procedures. We also evaluate the conclusions from the trial as a whole.

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Chronic @chronicaction.bsky.social · 02/07/2025

The term co-production first came from the book ‘No More Throwaway People’ by human rights lawyer, political speech writer and civil rights activist Edgar Cahn. This seems particularly fitting for the welfare cuts bill. 🙏 @vickyfoxcroft

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Chronic @chronicaction.bsky.social · 01/07/2025

The reasoned amendment will be voted on at 7pm. If it goes through the welfare cuts bill could be dead! If it doesn’t, MPs go on to vote on the disability cuts bill

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Chronic @chronicaction.bsky.social · 01/07/2025

We’re delighted to have contributed a poem to this zine. A copy will be held at the @wellcomecollection from today. It’s timed with the second reading of the UC & PIP Bill Thanks to @disabledpeopleagainstcuts groups working together and arti0xox #cutscutscuts #stopthecuts #disabilitybenefits

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Chronic @chronicaction.bsky.social · 30/06/2025

“The file is held in the UK Government National Archives at Kew (formerly known as the Public Record Office) and was understood to be closed until 2023, but this closed period has been extended until 2071, at the end of which most people currently suffering from ME will be conveniently dead” #ME

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Chronic @chronicaction.bsky.social · 30/06/2025

It is an established fact that the MRC has a secret file on ME that contains records and correspondence since at least 1988, which, co-incidentally, is about the time that Simon Wessely began to deny the existence of ME. www.investinme.org/Article-358%...

investinme.org

Invest in ME - The Medical Research Council’s Secret Files on ME/CFS

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Chronic @chronicaction.bsky.social · 30/06/2025

Fantastic and necessary article by @richardburgon.bsky.social 🙏 Dear PM, thanks for the welfare concessions, but I still won’t vote for your bill. Scrap the whole thing | Richard Burgon www.theguardian.com/commentisfre...

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Chronic @chronicaction.bsky.social · 29/06/2025

Movement, heart rate and post exertional symptom exacerbation /malaise

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Chronic @chronicaction.bsky.social · 23/06/2025

Millions with virus induced chronic illness have experienced this for years, decades, lifetimes. Many without the treatments and further diagnoses mentioned 👇If believed, longCovid would have far more solutions. We must ensure they’re not sidelined again now these issues are coming to light

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Chronic @chronicaction.bsky.social · 23/06/2025

Vital viewing to understand how we are where we are with ME, chronic fatigue syndrome and other chronic illnesses

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Chronic @chronicaction.bsky.social · 19/06/2025

Termed the biggest medical scandal of 21st century, the chasm between world leading services & UK (and by proxy, several countries) has been a political choice & not a medical necessity. In some cases, blocking pathways to diagnoses of underlying causes & lifesaving treatments. #ME #cfs #PACEScandal

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Chronic @chronicaction.bsky.social · 19/06/2025

Microplastics and chronic disease

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Chronic @chronicaction.bsky.social · 19/06/2025

The politics of access to healthcare in chronic illness #ME #CFS

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Chronic @chronicaction.bsky.social · 19/06/2025

The scale of what has been coined the biggest medical scandal of the 21st century is enormous, encompassing numerous conditions. We are long overdue joining the dots #ME #chronicfatiguesyndrome #EDS #connectivetissuedisorders #MCAS #POTS #fibromyalgia #postviralsyndrome including #longcovid

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Chronic @chronicaction.bsky.social · 19/06/2025

The latest in our cuts cuts cuts series ✂️

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Chronic @chronicaction.bsky.social · 13/06/2025

A new platform for antivirals and inflammatory drugs with research

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Peter Stefanovic @peterstefanovic.bsky.social · 09/06/2025

Ministers are exploring ways to soften the blow of billions of pounds of cuts to benefits amid major Labour revolt trib.al/OeBROBv

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Chronic @chronicaction.bsky.social · 08/06/2025

Interesting study on naive CD4+ T cells and impaired IL-2 secretion in celiac disease #immune #autoimmune

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Chronic @chronicaction.bsky.social · 05/06/2025

HIV Long term survivors awareness day

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Chronic @chronicaction.bsky.social · 04/06/2025

This suggests the long held theory by chronic illness patients could be true that viral onset sequelea is playing a key role as it did for many chronic illness patients after previous viruses

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Chronic @chronicaction.bsky.social · 04/06/2025

A much needed 7 part series on post exertional malaise or post exertional symptom exacerbation in chronic illnesses including ME, chronic fatigue syndrome, post viral and viral onset syndromes including longCovid

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Chronic @chronicaction.bsky.social · 03/06/2025

Pete Bennett - artist, musician, writer; climber/coach, founder of Climbing For Wellbeing mental health initiative

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Chronic @chronicaction.bsky.social · 03/06/2025

Latest in our #cutscutscuts series “The UK gov is planning to cut disability payments. Pls follow & support @chronic_action in their campaign to oppose this. Targeting the most vulnerable in our society is not acceptable policy from the gov of a country with the 6th largest GDP”

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Chronic @chronicaction.bsky.social · 29/05/2025

She has kept creating from bed throughout various stages of illness in the last decade, collaborating with patient organisations and fellow disabled artists. We are so lucky to have her on board! 🙏♥️

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Chronic @chronicaction.bsky.social · 29/05/2025

Lisanne Jacobs is a Dutch singer-songwriter & poet whose life imploded mere months after graduating from the Utrecht Conservatory in 2015. Theatre stages were rapidly replaced by doctor’s oﬃces and ambition was replaced by a growing sense of despair.

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Chronic @chronicaction.bsky.social · 29/05/2025

We’re really excited to share this from Cuts Cuts Cuts, our campaign on proposed disability cuts. 👏 written and performed by Lisanne Jacobs ♥️ 🧵

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