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Cholangiocarcinoma Foundation

@cholangiocarcinoma.bsky.social
399 followers 603 following 292 posts

The Cholangiocarcinoma Foundation is a global 501(c)(3) non-profit organization and our mission is to find a cure and improve the quality of life for cholangiocarcinoma patients.

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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 01/09/2026
The Cholangiocarcinoma Foundation offers support groups for people affected by the disease to share personal experiences and learn from others. Participants must register to attend the virtual sessions that may include special guest moderators. Register today at curecca.link/supportgroups.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 26/08/2026
El Simposio de Colangiocarcinoma de Los Ángeles 2026 reunirá en Los Ángeles a destacados expertos, investigadores, profesionales de la salud, pacientes y defensores de la comunidad. Registrese: curecca.org/simposio-regional-de-los-angeles-2026
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 12/08/2026
Syd has touched all of our lives forever. We are grateful to Little Words Project for creating a way to honor her. These bracelets with her signature phrases share her message, and $5 of each purchase is donated to CCF.  Order here: www.littlewordsproject.com/collecti…
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 09/08/2026
📲 CCF’s new CholangioPath app empowers patients to connect with a Patient Advocate, explore treatment information, receive reminders about educational events, and access new resources, making it easier to stay informed and supported throughout your journey. Download today at curecca.org/app
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 07/08/2026
Join our upcoming educational webinar, Targeting HER 2 in Biliary tract cancer with Dr. Shubham Pant, a Professor in the Department of Gastrointestinal (GI) Medical Oncology MD Anderson Cancer Center.  To register, go to curecca.org/webinars today 💚
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 06/08/2026
Sydney Towle, who passed away yesterday, has likely touched your life. This is a difficult loss and, at the same time, are honored to shine a light on her legacy. We invite you to share in the comments how Syd affected your life. We would like to remember her together. 💚
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 05/08/2026
Being diagnosed with cholangiocarcinoma can be overwhelming. Patient Advocates like Kari are here to help. Connecting with a Patient Advocate can help provide you with personalized support, trusted resources, and connections to our community. To connect head to curecca.link/patientadvocate
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 04/08/2026
Hope in research, strength in community. This August, create your will free with FreeWill and help the Cholangiocarcinoma Foundation bring a cure for bile duct cancer closer. Head to curecca.link/make-a-will-26 to get started today. 💚
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 27/07/2026
Cancer can develop in any part of the bile duct. Based on location, cholangiocarcinoma is classified into three types: intrahepatic, perihilar, and distal. Different types of CCA can have possible impacts on symptoms as well as treatment options.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 13/07/2026
Join Triage Cancer for their next webinar, "Managing Health Insurance Transitions," on July 22. These helpful webinars are free and geared to patients and their families. You can register here:  triagecancer.org/webinarreg-health-…
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 04/07/2026
Happy Independence Day! 🇺🇸🎆 Celebrating freedom, unity, and the land of the brave. Wishing you a sparkling 4th of July from all of us at CCF!
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 01/07/2026
Please join us for our Annual Industry Update Webinar. ✨ A special opportunity to learn about the latest advances in cholangiocarcinoma treatment and research directly from pharmaceutical companies. ✨ Register at curecca.link/industrywebinar.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 30/06/2026
"Seven months ago, I was diagnosed with cholangiocarcinoma. Like anyone facing those words for the first time, I was shocked. But my background did help me understand something important right away: hope is possible because of research." -Art. Give to this year’s campaign: curecca.link/c4c26.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 20/06/2026
💚 Grief looks different for everyone. 💚 Thanks to our sponsor, AstraZeneca, we are able to support families grieving by providing practical resources to help grieving children and young adults who have lost someone to cholangiocarcinoma. Request a free kit at curecca.link/griefcarekit.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 19/06/2026
"What once was a field with limited understanding and few treatment options has transformed into one driven by scientific discoveries, targeted therapies, and real hope for patients and families." -Dr. Juan Valle We need your support to accelerate cholangiocarcinoma research. curecca.link/c4c26.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 19/06/2026
Today, we honor Juneteenth, commemorating the end of slavery in the United States and celebrating freedom. At CCF, we recognize that health equity is essential to freedom. We’re committed to listening, learning, and working to ensure all communities have access to information, care, and support.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 16/06/2026
The 2026 Chicago Cholangiocarcinoma Symposium is set to convene in Chicago, drawing together leading experts, researchers, healthcare professionals, patients, and advocates. 🗓️ September 25, 2026 ⏱️ 8:00am – 3:00pm 📍Gordon Center for Integrative Science 🔗 Register today at curecca.link/chicago26.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 14/06/2026
"As a Mentee, this program is so important! And as a Mentor, I can't think of anything I'd rather do than give back to the community." CholangioConnect partners you with a mentor so you can get the support you need from someone experienced with this disease. Request a mentor at curecca.link/cc.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 10/06/2026
The 2026 Los Angeles Cholangiocarcinoma Symposium is set to convene in Los Angeles, drawing together leading experts, researchers, healthcare professionals, patients, and advocates. 🗓️ September 19, 2026 ⏱️ 8:00am – 4:00pm 📍University of Southern California 🔗 curecca.link/la2026
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 09/06/2026
"I’m asking you to support the Cholangiocarcinoma Foundation’s Campaign for the Cure today, so that families, like mine, facing cholangiocarcinoma can have more time together to enjoy the fun stuff." -Keaton Herzer, CCA Survivor. Give today at curecca.link/c4c26.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 06/06/2026
Fatigue is one of the most common symptoms when undergoing cancer treatment. Some simple ways to decrease fatigue and boost energy levels during treatment: prioritizing rest and getting adequate sleep. Register for Ina® for more tips on managing side effects of treatment at curecca.link.ina.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 05/06/2026
The Centers for Medicare & Medicaid Services (CMS) is seeking public comments on how prior authorization affects access to laboratory testing, including biomarker tests. If you’ve experienced delays, denials, repeat testing, or added stress, share your story. 🔗curecca.link/cb. Deadline: June 15.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 04/06/2026
CCF’s new CholangioPath app helps patients connect with a Patient Advocate, access treatment information, get event reminders, and discover valuable resources. Download today at curecca.org/app. Thank you to Jazz Pharmaceuticals, Taiho Oncology, Incyte, and Compass Therapeutics for their support.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 02/06/2026
20 years ago, a cholangiocarcinoma diagnosis often meant few treatment options, little awareness, limited research, and no patient community. Today, thanks to research, advocacy, and supporters like you, there is more hope and progress. Make a gift today to advance breakthroughs: curecca.link/c4c26.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 01/06/2026
Syd Towle inspired pj set on sale June 1-15 with 1/2 the proceeds benefitting CCF. Syd, a patient with cholangiocarcinoma, has raised awareness throughout her journey so far, ensuring others feel supported. Order here: www.sleepysaturday.com/product-page…
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 26/05/2026
The 2026 Cleveland Cholangiocarcinoma Symposium is bringing together leading experts, researchers, and patients for an important day of collaboration, education, and progress in cholangiocarcinoma. 📅 June 26, 2026 📍 Cleveland Clinic  🚗 Parking vouchers provided  🔗 curecca.link/cleveland
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 25/05/2026
Honoring the brave men and women who made the ultimate sacrifice for our freedom. This Memorial Day, we remember and are grateful.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 23/05/2026
20 years of the Cholangiocarcinoma Foundation: advancing research, supporting patients and families, and driving hope. To honor that milestone, we invite you to join us and support Campaign for the Cure and help power the next chapter of progress.  Make a gift today at curecca.link/c4c26.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 18/05/2026
We are excited to share that all 2026 Annual Conference recordings are now available on our YouTube Channel. Please click the link in our bio to watch them. #ccf2c26
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 14/05/2026
On Saturday, May 2, Ben Scherer hosted the Second Annual Sam-a-Palooza 5K Family Fun Run/Walk in St. Louis, Missouri, in memory of his father, Sam. The event brought together more than 90 participants and raised over $15,000 for CCF. Thank you, Ben.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 12/05/2026
Apply to join our team! We are hiring a Research Data Analyst: cholangiocarcinoma.org/wp-content/u… Share with your networks!  #joinourteam #dataanalyses #cancerresearch #nonprofitjobs
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 11/05/2026
What matters most when it comes to your medical care? Join Kate DeBartolo from The Conversation Project for a webinar on starting meaningful conversations about care preferences, values, and wishes with loved ones. Gain practical tips and support.  🗓️ Register today at curecca.link/may14.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 29/04/2026
Safe travels to everyone heading to the conference ✈️💚 We’re so excited to see you soon—whether you’re near or far, we can’t wait to connect, learn, and spend time together. Travel safely and see you there! #ccfac26
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 21/04/2026
Need meal ideas on the go? Overnight oats are an easy grab-and-go option—just mix oats, milk, fruit, and cinnamon the night before for a quick, nutritious breakfast or snack. Register for Ina® for evidence-based nutrition during cancer treatment: curecca.link/INA
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 16/04/2026
Join @TriageCancer.org for a FREE webinar on Apr 22 to simplify Medicare basics. Perfect for those turning 65 or qualifying through SSDI. Learn about enrollment deadlines and how Medicare works with employer, retiree, and COBRA plans. + FREE CE for professionals. Register: TriageCancer.org/Webinars
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 08/04/2026
This Volunteer Appreciation Month, we’re taking a moment to recognize the incredible individuals who give their time, voice, and heart to support this community.  Your willingness to show up, share resources, and help others feel less alone makes a meaningful difference every single day. Thank you!
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 05/04/2026
This Easter, we’re reminded that hope is powerful, renewal is possible, and every act of kindness makes a difference. Happy Easter 💛 Wishing you a day filled with peace and joy.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 24/03/2026
Are you living with cancer and want to know more about how #biomarkertesting can play a role in your treatment decisions? Register now for the webinar “Understanding Biomarker Testing for People with Cancer.” bit.ly/4aNGm4Z
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 20/03/2026
Eid Sa‘id! 🌙💚 Wishing our community joy, peace, and togetherness during this special season.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 18/03/2026
We’re proud to partner with Triage Cancer for the Triage Health Conference. This FREE virtual event covers health insurance options, advocacy, managing finances, and more. Health care professionals can earn free CE. May 15–16 TriageCancer.org/Conferences #TriageTalks #HealthCareRights
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 17/03/2026
Wishing you shamrocks, smiles, and a little extra cheer this St. Patrick’s Day!  From all of us at the Cholangiocarcinoma Foundation. 🍀🌈💚🎩
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 08/03/2026
On #InternationalWomensDay, we recognize the incredible women who help move the cholangiocarcinoma community forward every day: patients, caregivers, researchers, clinicians, volunteers, staff, and board members. Thank you for all that you do. 💚
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 06/03/2026
💚 Need guidance or support after a cholangiocarcinoma diagnosis? Our trained Patient Advocates are here to help. 📅 Book a phone or Zoom appointment to talk through your diagnosis, treatment options, and available resources. curecca.link/patientadvocate
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 06/03/2026
Join @TriageCancer.org for a FREE webinar on March 24 about navigating common health insurance hurdles. The session covers how to navigate barriers that affect access to care. + FREE CE for professionals. Register: TriageCancer.org/Webinars
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 03/03/2026
“Research leads the way for hope.” 💚 – Dave Fleischer Our Hope in Research: Community-Funded Fellowship is now in its second year, empowering our community to directly support promising cholangiocarcinoma research. Even $10 makes a difference. Give today: curecca.link/communityfellowship26
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 01/03/2026
Request Support 💚 Are you a patient with cholangiocarcinoma, a survivor, a caregiver, or a bereaved caregiver? CholangioConnect partners you with a mentor so you can get the support you need from someone experienced with this disease. Request or become a mentor today at curecca.link/cc.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 26/02/2026
Lighting up Canton, OH for Cholangiocarcinoma Awareness Month 💚 In honor of her husband Bobby, Katie Courtney placed this billboard east of Harmont Ave, running every 3–4 minutes all month. Through Bobby’s Ducks, she continues raising funds and awareness to support patients and families.
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 25/02/2026
🏃‍♀️ Run with purpose. Join Team CCF for the 2026 NYC Marathon on Nov 1! 💚 Apply by March 13 (team selected March 27). $5,000 fundraising minimum. Training, gear & team support included. Every mile funds research and patient resources. Apply: curecca.link/NYC26
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 24/02/2026
Thank you, Kathy Virgallito, and Ellen Moog, for working with the Seattle Care Team and Governor Ferguson and Mayor Roberston to get a proclamation from the State of Washington and the City of Shoreline declaring February 19 as World Cholangiocarcinoma Day. 💚 Together we are strong. #cureCCCA
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Cholangiocarcinoma Foundation @cholangiocarcinoma.bsky.social · 24/02/2026
We’re proud to partner with Triage Cancer for the Triage Health Conference. This FREE virtual event covers health insurance options, advocacy, managing finances, and more. Health care professionals can earn free CE. May 15–16 TriageCancer.org/Conferences #TriageTalks #HealthCareRights
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