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EOS Network

@charityeos.bsky.social
36 followers 65 following 89 posts

Our mission is to ensure that every person with an Eosinophilic-Associated Disease receives a prompt, accurate diagnosis, cohesive medical care, and support to live with their condition.

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EOS Network @charityeos.bsky.social · 8m
Register here 👉 www.eosnetwork.org/register-with-us Connect with us and become part of a growing global community of #medicalprofessionals and #researchers working together to improve understanding and support of #eosinophilicdiseases. #EosinophilicCommunity #HealthcareProfessionals
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EOS Network @charityeos.bsky.social · 17h
Meet us at #RareSummit2026 on 7th October! Book your ticket 👉 www.camraredisease.org/raresummit26 Bringing together experts in #RareDiseases, it's a valuable chance to learn more about #EosinophilicDiseases and the challenges holding back care. CamRARE (Cambridge Rare Disease Network)
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EOS Network @charityeos.bsky.social · 30/09/2026
Read how we're making info more accessible to our community 👉 ow.ly/NF5l50ZQsZ2 In 2025, we asked for feedback. You told us the information we provided was improving lives. Now, thanks to Awards for All and National Lottery players, we can deliver more. #NationalLottery #NonprofitSupport
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EOS Network Information Transformation grant awarded by The National Lottery
A funding award from The National Lottery will help power our Transforming Community Engagement and Information Accessibility project. Learn about the project and why it matters.
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EOS Network @charityeos.bsky.social · 29/09/2026
Find expert answers to your FAQs 👉https://www.eosnetwork.org/egids-connective-tissue-disorders-pots#FAQ Curious about the connection between #EosinophilicOesophagitis (EoE), #ConnectiveTissueDisorders, and #dysautonomia? Dr Joshua Wechsler answers common community questions. #Hypermobility #POTS
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EOS Network @charityeos.bsky.social · 27/09/2026
A huge #thankyou to our recent supporter Aldona, who turned her passion into an opportunity to raise awareness and funds for #EOSNetwork. A hobby you love can help make a difference. 💙 Why not make your passion count too? 👉 Find out & get involved: ow.ly/1IEp50ZNe4x
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Fundraise for us
EOS Network is UK based Eosinophilic Diseases charity networking globally. We support patients, their families and professionals, research, education and awareness for EGID's: Eosinophilic: Esophagitis EoE, Gastritis EG, Colitis EC, Gastroenteritis EGE and HES.
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EOS Network @charityeos.bsky.social · 24/09/2026
Discover #EosinophilicGastrointestinalDiseases (EGIDs) knowledge gaps👉 ow.ly/QB2k50ZQyxq A new review highlights critical barriers to our understanding of #EGIDs, despite their apparent rise in prevalence. #Gastroenterology #Allergy #EosinophilicOesophagitis #EoE #ResearchNews
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EOS Network @charityeos.bsky.social · 18/09/2026
Donate today 🙏 www.eosnetwork.org/donate-or-set-up… Your support can help us continue working towards earlier diagnosis, better support and help improve care for the eosinophilic disease community. #Donation#EoE #EosinophilicEsophagitis #EosinophilicDiseases
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EOS Network @charityeos.bsky.social · 16/09/2026
Learn the connection 👉 ow.ly/tqCb50ZLQVa This #NationalEczemaWeek , discover the link between atopic dermatitis and #eosinophilicoesophagitis. They may affect different parts of the body but they can be part of the same atopic journey.
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EOS Network @charityeos.bsky.social · 14/09/2026
Read the 2026 study insights 👉 ow.ly/WSQz50ZIjnt This #WorldAtopicEczemaDay , we’re highlighting new research exploring the connection between #atopicdermatitis and #eosinophilicesophagitis. Discover why this connection matters. #BreakTheInvisibleBurden #SkinAllergy
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EOS Network @charityeos.bsky.social · 11/09/2026
You can raise donations for us in one easy click with the giveasyoulive Donation Reminder. Available in the UK only. 👉 ow.ly/z2eT50ZyUFH 💸 It's free 🛍️ There are over 6,000 stores!
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EOS Network @charityeos.bsky.social · 10/09/2026
We’re exhibiting at United European Gastroenterology conference week! Meet us in the community Hall! #UEGWeek2026 brings together the gastroenterology community who can directly influence the future of #eosinophilicdisease care. More information here👉https://ow.ly/YHcI50ZLcOh
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EOS Network @charityeos.bsky.social · 09/09/2026
Thanks to a grant from Souter Charitable Trust, we were able to review, refresh, and produced updated materials for patients and medical professionals alike. As a small charity, we rely on grants like this to fund our work, and we're incredibly grateful for this support. ow.ly/mrKS50ZLtjj
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EOS Network @charityeos.bsky.social · 06/09/2026
Download resources to display in your clinic👉 www.eosnetwork.org/news/eoe-survey-… and to make participation easy. Share this #survey with your #EoE patients & help shape future #research #advocacy, and improvements in #Eosinophilic Oesophagitis #care. 💜
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EOS Network @charityeos.bsky.social · 04/09/2026
Shop our merch here 👉 ow.ly/o6bh50ZfCv2 Your purchase helps us support better care for people with #eosinophilicconditions through education, awareness, and patient support. Snap a photo, tag @ charityeos and use #EOSNetwork!✨ #Charity #Nonprofit #SupportACause #CharityMerch
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EOS Network @charityeos.bsky.social · 28/08/2026
Pick a challenge 👉 ow.ly/PmpV50Zy34V A fundraising challenge can help create greater awareness and support for the eosinophilic disease community. 💙 We provide a range of ways to get involved from sporting challenges to creating your own fundraising campaign.
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EOS Network @charityeos.bsky.social · 27/08/2026
Read the results 👉https://ow.ly/rpfb50ZG7l5 AstraZeneca has released the results from its phase 3 CROSSING trial, which evaluated Tezepelumab (Tezspire) as a treatment for #EosinophilicOesophagitis (#EoE).
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EOS Network @charityeos.bsky.social · 26/08/2026
A new review explores current treatment options for #EosinophilicGastrointestinalDiseases (EGIDs) and discusses why shared decision-making matters. 👨‍⚕️ Discover the key findings 👉https://www.eosnetwork.org/egids-treatment-and-the-need-for-shared-decision-making-takeaways-from-a-2026-review
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EOS Network @charityeos.bsky.social · 21/08/2026
Play today👉 www.eosnetwork.org/weekly-lottery Help fund education, resources, promote research, and initiatives that improve better outcomes for people living with #eosinophilicdiseases. 💜 #CharityLottery #NonProfit
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EOS Network @charityeos.bsky.social · 19/08/2026
Share it with us👉 ow.ly/77pJ50ZAryU Your recommendation could help mealtimes easier for people living with allergies or eosinophilic diseases. #Eosinophilic #EosinophilicDiseases #AllergyFriendlyRecipes #AllergyAwareness
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EOS Network @charityeos.bsky.social · 18/08/2026
We were recently invited to attend the Grassroots AGM, where we formally received #funding to purchase a laptop for our medical researcher. As a small charity, support like this allows us to better support our community, and we're incredibly thankful.
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EOS Network @charityeos.bsky.social · 14/08/2026
It will soon be term time again in the UK! 📚🎒 Raise #FREEdonations for us when you shop #schoolsupplies and more from any of Give as you Live's 6,000+ top retailers! Available in the UK only. Click here to get started 👉 ow.ly/jBKq50ZnlZy #Fundraise #CharityGiving #NonprofitSupport
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EOS Network @charityeos.bsky.social · 12/08/2026
Dr. Aldona is an #EoE patient. Read her story and sponsor her #cyclingchallenge👉 ow.ly/tHWC50ZyQJW Our #fundraiser Aldona has completed 150 miles to #raiseawareness and vital support for our community. We’re incredibly proud and grateful for her commitment #CyclingUK
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EOS Network @charityeos.bsky.social · 10/08/2026
A phase 2 trial has shown promising results for #dupilumab as a treatment for #EosinophilicGastritis (EoG). Find out what this means for the future of #EoG treatment 👉https://www.eosnetwork.org/news/dupilumab-improves-outcomes-in-people-with-eog-takeaways-from-a-phase-2-trial
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EOS Network @charityeos.bsky.social · 07/08/2026
Be part of a one-time or monthly donation 💜 www.eosnetwork.org/donate-or-set-up… Your #gift can make an immediate difference. It helps us expand support services, developing educational resources, and reaching more people with #eosinophilicdiseases ✨ #NonprofitSupport
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EOS Network @charityeos.bsky.social · 06/08/2026
Download resources to display in your clinic👉 www.eosnetwork.org/news/eoe-survey-… and to make participation easy. Share this #survey with your #EoE patients & help shape future #research #advocacy, and improvements in #Eosinophilic Oesophagitis #care. 💜
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EOS Network @charityeos.bsky.social · 05/08/2026
A patient raising funds to help others with #Eosinophilic Oesophagitis. Sponsor Aldona 👉https://www.eosnetwork.org/Event/c2c-coast-to-coast-4-days-cycling Thank you for your support. Your donation, big or small, makes a real difference to those living with the daily challenges of #EoE. 💜
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Reposted by EOS Network
EOS Network @charityeos.bsky.social · 03/08/2026
We've long known that #EosinophilicOesophagitis (EoE) can look very different between patients. Now, a new study confirms this by identifying a distinct subtype of #EoE. Learn more about this subtype👉https://www.eosnetwork.org/dysautonomia-and-joint-hypermobility-as-a-subtype-of-eoe #Dysautonomia
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EOS Network @charityeos.bsky.social · 03/08/2026
We've long known that #EosinophilicOesophagitis (EoE) can look very different between patients. Now, a new study confirms this by identifying a distinct subtype of #EoE. Learn more about this subtype👉https://www.eosnetwork.org/dysautonomia-and-joint-hypermobility-as-a-subtype-of-eoe #Dysautonomia
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EOS Network @charityeos.bsky.social · 31/07/2026
Shop merch here 👉 ow.ly/o6bh50ZfCv2 Free UK shipping this weekend. Your purchase helps us support better care for people with #eosinophilicconditions through education, awareness, and patient support ✨ #Charity #Nonprofit #SupportACause #CharityMerch
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EOS Network @charityeos.bsky.social · 29/07/2026
💜Learn more at www.eosnetwork.org Dr Marc Rothenberg, Director, Division of Allergy and Immunology at @CincyChildrens, shares his insights. 🙏Like and repost this vide to help support our #advocacy and awareness of these poorly recognised conditions✅ #Eosinophil Cincinnati Children's
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EOS Network @charityeos.bsky.social · 27/07/2026
Researchers have found a connection between gut fungi in infants and allergic diseases such as #AtopicDermatitis and #FoodAllergy. Learn more about what the mycobiome study found 👉 www.eosnetwork.org/gut-fungi-may-in… #GutHealth
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EOS Network @charityeos.bsky.social · 24/07/2026
☀️ Make this #summer one to remember! Every #fundraiser strengthens our collective commitment to improving outcomes for patients living with #EosinophilicDiseases. Join team #EOSNetwork and find an event that inspires you: ow.ly/pmRp50ZgMY9 💜 #SummerChallenge #Fundraising
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EOS Network @charityeos.bsky.social · 20/07/2026
A recent review highlights how the way we treat and manage non-eosinophilic oesophagitis (EoE) eosinophilic gastrointestinal diseases (#EGIDs) is changing. Check out the key takeaways 👉 www.eosnetwork.org/eosinophils-beyo… #EosinophilicDiseases
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EOS Network @charityeos.bsky.social · 17/07/2026
Generate FREE donations for us at no extra cost to you. Book tickets to UK popular events, book shows and more! Sign up today at Give as you Live through this link: ✨ ow.ly/aHJx50ZfAB2 🙏 It's free. There's a handy app. There are over 6,000 stores! 💜 #Donation #CharityGiving #NonprofitSupport
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EOS Network @charityeos.bsky.social · 16/07/2026
Doctors in Wales can now prescribe Jorveza as a maintenance therapy for eosinophilic oesophagitis #EoE! However, this recommendation is only temporary, pending full approval from NICE. Learn how your experiences can help shape NICE's final decision: ow.ly/FmSb50ZjxQ0 #Jorveza #EOSNetwork
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EOS Network @charityeos.bsky.social · 14/07/2026
These laptops donated from Getech LTD will make a huge difference to us improving our capacity and enabling us to support people affected by Eosinophilic Diseases more efficiently. 💜 #Thankyou for your support 🙏 #NonprofitSupport #CorporateGiving #CharityPartnership
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EOS Network @charityeos.bsky.social · 10/07/2026
Every £1 UK lottery ticket helps fund resources, research collaboration, and #bettercare for patients living with #eosinophilicdiseases . It also gives you a chance to win £25,000. 🤩 Join today and #support meaningful change. More info and how to join here👉 www.eosnetwork.org/weekly-lottery
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EOS Network @charityeos.bsky.social · 03/07/2026
Your #support helps people with #EosinophilicDisease access timely diagnosis, coordinated care, and trusted resources with confidence.💜 Help us continue this mission with a one-time or monthly #donation. ✨👉 www.eosnetwork.org/donate-or-set-up… #MakeAnImpact
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EOS Network @charityeos.bsky.social · 01/07/2026
Did you know that access to treatment for #EosinophilicOesophagitis (#EoE) still isn't equal? By taking part in our short survey, you can help us advocate for better treatment access. Share your experience today: www.surveymonkey.com/r/EoE-patients…
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EOS Network @charityeos.bsky.social · 29/06/2026
This year's #ESPGHAN2026 welcomed an incredible 6200 delegates💜100 #medicalprofessionals registered with us 💜140 #EOSNetwork full information packs distributed 💜300 leaflets were shared. A huge thank you to everyone who stopped by✨ #ESPGHANCongress #PediatricGastroenterology
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EOS Network @charityeos.bsky.social · 29/06/2026
Did you know there's no genetic test for Eosinophilic Oesophagitis (EoE)? 🧬 But a new study is helping us to better understand the genetics behind EoE susceptibility. Discover what it means for the future in our latest article: ow.ly/aHiS50Zego2 #EoE #EosinophilicDiseases #gentetics
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EOS Network @charityeos.bsky.social · 26/06/2026
☀️ This #summer, stay cool, #raiseawareness and spark conversations with our new “EE-O-SIN-O-FIL-IK” 🧢 cap! Shop now 👉 ow.ly/RVGM50Z9hVl Our other merch products! ow.ly/2HkW50Z9hVm 💜 Every purchase supports the work of EOS Network 💜 #CharityMerch #ShopForACause #Eosinophilic
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EOS Network @charityeos.bsky.social · 24/06/2026
Is #EosinophilicOesophagitis one of the allergic conditions in the atopic march? A new paper by the @Rothenberg CURED Lab at Cincinnati Children's says yes! Discover what this study means for the future of #EoE: ow.ly/THBv50Zf5Nh #WorldAllergyWeek
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EOS Network @charityeos.bsky.social · 22/06/2026
Allergies and eosinophilic diseases go hand in hand, and the #Allergy & Free From show 2026 was the perfect opportunity to highlight this link. 🤧 Read the highlights: www.eosnetwork.org/highlights-from-… #EosinophilicDiseases #AFFShow2026 #WorldAllergyWeek
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EOS Network @charityeos.bsky.social · 17/06/2026
The #symptoms of #EoE extends beyond day-to-day challenges. If left untreated, it can lead to #oesophageal narrowing, scarring, and long-term complications. 💔 ✨ #Raiseawareness. #Supportpatients #Learnmore:👉 www.eosnetwork.org/eoe-eosinophilic… ausEE Inc.
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EOS Network @charityeos.bsky.social · 15/06/2026
#EOSNetwork is exhibiting ESPGHAN 's 58th Annual Meeting in Lille. 💜 If you have a professional interest in #eosinophilicdiseases , we'd love to meet you! We'll be here to discuss the latest research and guidelines for these conditions. www.eosnetwork.org/Event/espghan-20…
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EOS Network @charityeos.bsky.social · 12/06/2026
Make every UK purchase count. Shop, book, and order as usual. 💜Sign up today at @giveasyoulive and turn your everyday spending into free donations for us at no extra cost to you. 🔗 www.eosnetwork.org/how-to-donate-us… #GiveAsYouLive #SupportCharity
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EOS Network @charityeos.bsky.social · 08/06/2026
Danny's story highlights the indicators of #Eosinophilic Oesophagitis #EoE. Early diagnosis helps patients access effective management strategies & improve quality of life. 👉 symptoms, diagnosis, & treatments: ow.ly/jXNO50Z77bF NICE - National Institute for Health and Care Excellence
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EOS Network @charityeos.bsky.social · 05/06/2026
For #DietitiansWeek, we share Lucy Jackman & Hannah Hunter's video on dietary approaches & clinical management in Eosinophilic Gastrointestinal Diseases #EGID #EOE! 👉 www.eosnetwork.org/egids-diet-manag… United European Gastroenterology #Gastroenterology #DietitiansWeek #DW2026
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EOS Network @charityeos.bsky.social · 03/06/2026
If Eosinophils mean something to you, help us keep this work going through your donation or by setting up a fundraiser. Every gift helps us keep showing up for those who need us. ✨ 🔗https://www.eosnetwork.org/donate-or-set-up-a-regular-gift 🔗https://www.eosnetwork.org/fundraising-setup-guide
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