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AMMF - The Cholangiocarcinoma Charity

@charityammf.bsky.social
99 followers 80 following 320 posts

AMMF is the UK’s only Cholangiocarcinoma (bile duct cancer) charity. Working throughout the UK and Europe, and collaborating globally. www.ammf.org.uk

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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 03/10/2026
💜 🍂Feeling the autumn chill this October? 🍂💜 Help raise awareness of #cholangiocarcinoma wherever you go and order your AMMF hoodie here: ammf.org.uk/product/hoodie #bileductcancer #CCA
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 02/10/2026
💜 Liver Cancer Awareness Month – Clinical Trials 💜 In this webinar, professor John Bridgewater, alongside our patient advocates, cover trial phases and terminology, questions to ask your healthcare team, and the patient perspective on clinical trials - ammf.org.uk/patient-webinars
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 02/10/2026
Make Your Donation Go Further with Gift Aid 💜 For every £1 you donate, #AMMF can claim an extra 25p from the government! 💜Donate and select Gift Aid during the process - ammf.org.uk/donations 💜 Or, complete a Gift Aid Declaration form and send it to fundraising@ammf.org.uk
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 01/10/2026
💜October is Liver Cancer Awareness Month 💜 #Cholangiocarcinoma is a primary liver cancer! Once considered rare, this is no longer the case. It’s time to Reth!nk Liver Cancer. We'll be raising awareness and sharing information about #CCA throughout the month. #AMMF #bileductcancer #livercancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 25/09/2026
Our latest webinar is now available to watch online! Joy, Palliative Care Advanced Clinical Practitioner, explains what palliative care really means and how it can support people living with CCA. Watch on YouTube:https://youtu.be/gUwtqvp1gFY Or on our website:https://ammf.org.uk/patient-webinars/
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 24/09/2026
Today is World Cancer Research Day, a global initiative that underscores the critical role of cancer research. Find out more about our research grants on our website at ammf.org.uk/grants-for-research. We are pushing for a breakthrough that will change CCA patient lives #bileductcancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 23/09/2026
Palliative Care Webinar TODAY! Join AMMF this evening as we dispel the myths and explore the facts about palliative care. 📅 Wednesday 23 September ⏰ 6pm–7:30pm There’s still time to register - us02web.zoom.us/webinar/register/WN… #BileDuctCancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 22/09/2026
💜 Palliative Care Webinar – TOMORROW! 💜 Join AMMF as we dispel the myths and explore the facts about palliative care. 📅 Wednesday 23 September 2026 ⏰ 6pm–7:30pm 🔗 us02web.zoom.us/webinar/register/WN… Raising awareness one webinar at a time. #BileDuctCancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 20/09/2026
Not sure what support is available to you? #AMMF has a host of helpful links available of external resources which are focused on helping anyone affected by #cholangiocarcinoma. Remember, support is always available and AMMF are always here 💜 ammf.org.uk/helpful-links
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 18/09/2026
Where we will be dispelling the myths and understanding the facts. 📅 Wednesday 23 September 2026 ⏰ 6pm – 7:30pm 🔗 us02web.zoom.us/webinar/register/WN… Raising awareness one webinar at a time💜. #BileDuctCancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 17/09/2026
🔬Spotlight on Young Researchers🔬 Head over to #AMMF’s Facebook to hear from Caitlin McCaffrey who is a young researcher in cholangiocarcinoma. As she sheds light on why she chose to research CCA and her hopes for future CCA research. #CCA #BileDuctCancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 16/09/2026
Where we will be dispelling the myths and understanding the facts. 📅 Wednesday 23 September 2026 ⏰ 6pm – 7:30pm 🔗 us02web.zoom.us/webinar/register/WN… Raising awareness one webinar at a time💜. #BileDuctCancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 15/09/2026
🔬AMMF Funded Research🔬 Head over to #AMMF’s Facebook to hear about Ms Rachel Guest's research on ‘The role of IDH mutation in liver cell plasticity and intrahepatic cholangiocarcinoma’. #CCA #BileDuctCancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 14/09/2026
Where we will be dispelling the myths and understanding the facts. 📅 Wednesday 23 September 2026 ⏰ 6pm – 7:30pm 🔗 us02web.zoom.us/webinar/register/WN… Raising awareness one webinar at a time💜. #BileDuctCancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 11/09/2026
Where we will be dispelling the myths and understanding the facts. 📅 Wednesday 23 September 2026 ⏰ 6pm – 7:30pm 🔗 us02web.zoom.us/webinar/register/WN… Raising awareness one webinar at a time💜. #BileDuctCancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 10/09/2026
🔬Spotlight on Young Researchers🔬 Head over to #AMMF’s Facebook to hear from Catarina Simões Padilla who is a young researcher in cholangiocarcinoma and rare cancers. As she sheds light on why she chose to research CCA and her hopes for future CCA research. #CCA #BileDuctCancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 09/09/2026
Danny Beales MP Lizzi Collinge MP @JimShannonMP for 07/09/2026 parliamentary debate on VAT charges resulting in unsustainable costs to access vital early drug treatments that were previously free. ammf.org.uk/2026/09/08/vat-on-compa…
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 09/09/2026
Where we will be dispelling the myths and understanding the facts. 📅 Wednesday 23 September 2026 ⏰ 6pm – 7:30pm 🔗 us02web.zoom.us/webinar/register/WN… Raising awareness one webinar at a time💜. #BileDuctCancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 08/09/2026
#AMMF Palliative Care Webinar Where we will be dispelling the myths and understanding the facts of palliative care. 📅 Wednesday 23 September 2026 ⏰ 6pm – 7:30pm 🔗 us02web.zoom.us/webinar/register/WN… #Cholangiocarcinoma #CCA #BileDuctCancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 08/09/2026
🔬AMMF Funded Research🔬 Head over to #AMMF’s Facebook to hear about Arezoo Ghodsifard’s research on ‘Artificial Intelligence as a Biomarker for Intrahepatic #Cholangiocarcinoma’. #CCA #BileDuctCancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 06/09/2026
Support Groups 💜 Patients only – Ask questions and connect with others who understand. www.facebook.com/groups/12204285854… Patients & carers – For those walking this path together. www.facebook.com/groups/cholangioca…
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 03/09/2026
🔬AMMF Funded Research🔬 Head over to #AMMF’s Facebook to hear about Professor Shijie Cai’s Research on ‘Unleashing the power of normal cholangiocytes to counteract #cholangiocarcinoma’. #CCA #BileDuctCancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 02/09/2026
🔬AMMF Research Grants - Now Open🔬 #AMMF research grant applications are now open. If you would like to apply for an AMMF Research Grant, please visit our website for more details: ammf.org.uk/ammf-research-grants-ap…. Applications close midnight - 30 September 2026. #CCA
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 01/09/2026
🔬Spotlight on Research is Back!🔬 This month #AMMF will be shining a spotlight on some of the amazing researchers whose work is helping advance our understanding of #cholangiocarcinoma. We are pushing for the breakthrough that will change #CCA patient lives 💜
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 31/08/2026
💜Palliative Care Webinar💜 #AMMF are hosting a webinar on Palliative Care, where we will be dispelling the myths and understanding the facts. 📅Wednesday 23 September 2026 ⏰6pm – 7:30pm 🔗 Registration opens this week. #cholangiocarcinoma #CCA #BileDuctCancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 22/08/2026
Add a purple touch to your outfit of the day, to spark a question, open a conversation, and help more people learn about #cholangiocarcinoma. Together, we can make a difference, one conversation at a time. Shop all things #AMMF here - ammf.org.uk/ammf-shop #CCA #bileductcancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 15/08/2026
#AMMF's New Arrival........ We are excited to say that Hope Bear is now back in stock💜🧸. Hope Bear joined Hermione for a little photoshoot 📸I think #HopeBear may have a new career in modelling! Order yours: ammf.org.uk/product/ammf-hope-bear #cholangiocarcinoma #CCA #BileDuctCancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 09/08/2026
#Support and #information when you need it most! We have created a dedicated area on our website filled with helpful information to support you through your #CCA journey - ammf.org.uk/helpful-links #bileductcancer #AMMF #cholangiocarcinoma #HelpfulLinks
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 24/07/2026
Meet Louise one of AMMF's new 'Faces' of #CCA. Louise advocates for: “Recurrence is sadly common with #cholangiocarcinoma, that’s why there needs to be a consistent approach across the #NHS to monitoring of recurrence”. Louise’s story : youtu.be/N0SwU_hN3us #AMMF #bileductcancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 21/07/2026
🎓CPD Accreditation🎓 #AMMF’s 2026 European #CCA Conference was CPD accredited. Attendance for the full 3-day conference worth 19.45 hours CPD. Remember to claim your #CPD certificate. Having trouble accessing your certificate? Contact events@ammf.org.uk #CCA #bileductcancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 07/07/2026
#AMMF's 2026 European CCA Conference - catch-up on demand. 💜Day 1 – Patient, Carers & Family member sessions 🌍Day 2 – Treatment landscape and international updates 🔬Day 3 – Research watch on demand: ammf.org.uk/ammf-conference-2026 or visit YouTube : www.youtube.com/@ammfuk2964
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 01/07/2026
💜Patient Survey💜 #Cancer52 have launched a survey for all those with a rare or less common cancer, including #cholangiocarcinoma and #gallbladder cancer. Complete the survey and share your experience: www.surveymonkey.com/r/c52patientsu… #bileductcancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 30/06/2026
To shape the future of #CCA, #AMMF rely on clinical advances, innovative treatment options and ground breaking #research and the brilliant minds driving them forward. If you would like to hear from inspiring researchers, watch Day 3 of the conference: ammf.org.uk/ammf-conference-2026
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 29/06/2026
Meet Florence, one of AMMF’s new faces of #CCA. Diagnosed with CCA in 2025 after being diagnosed with PSC, she highlights the urgent need for earlier, better diagnostic testing so fewer people are left waiting while cancer grows silently. Florence’s story: www.youtube.com/watch?v=1_K7fBFuSWU
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 25/06/2026
💜Real change starts with real experiences💜 #Cancer52 have launched a survey for all those with a rare or less common cancer, including #cholangiocarcinoma and #gallbladder cancer. Share your feedback on Cancer52 survey: www.surveymonkey.com/r/c52patientsu… #AMMF #bileductcancer #CCA
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 25/06/2026
💜Patient Presenter – Charlie💜 “How I stopped chasing time, in order to live” If you would like to watch Charlie’s presentation you can do so via Day 3 of the conference on #AMMF’s website here: ammf.org.uk/ammf-conference-2026 . #CCA #bileductcancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 23/06/2026
#AMMF’s 2026 Conference Ms Trish Duncan, Consultant #HPB Surgeon and Clinical Lead, University Hospital of Wales highlighted the situation in #Wales for CCA patients. To watch the presentation please our website here: ammf.org.uk/ammf-conference-2026. #bileductcancer #CCA
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 18/06/2026
#Cancer52 have launched a survey for those with a rare or less common cancer, including #CCA and #gallbladder cancer. An opportunity to share honest feedback about your experiences, what worked, what didn’t, where we need change. Cancer52 survey: bit.ly/43pRy33 #AMMF
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 18/06/2026
💜Patient Presenter – Gareth💜 “It’s difficult to sum up what I’ve gone through in a title” Gareth touched so may hearts during the conference as he highlighted the importance of earlier diagnosis for #CCA patients. Watch Gareth’s on our website here: ammf.org.uk/ammf-conference-2026
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 16/06/2026
During #AMMF's 2026 Conference, Professor Jesús Bañales from BioGipuzkoa Institute, Donostia-San Sebastán (Spain) presented ‘Next generation liquid biopsy #biomarkers for #CCA’. Watch Professor Bañales’ presentation on our website here: ammf.org.uk/ammf-conference-2026 #bileductcancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 15/06/2026
💜AMMF RoadMap – Together for Awareness 💜 During the AMMF 2026 European #Cholangiocarcinoma Conference, we were proud to showcase #AMMF’s first #roadmap. As part of this our ‘Together for #Awareness’ section highlighted some of the key collective impacts throughout 2026. #CCA
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 12/06/2026
This week, #AMMF's CEO and founder Dr Helen Morement is attending #ENS-CCA / Precision #BTC Networking Conference in #Rhodes. Today Helen presented on the important topic: “Bringing the voice of the #cholangiocarcinoma patient to the UK #government” #bileductcancer #CCA
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 11/06/2026
💜Patient Presenter – Benjamin💜 “Mastering Mortality” If you would like to watch Benjamin’s presentation you can do so via Day 2 of the conference on our website here: ammf.org.uk/ammf-conference-2026. #CCA #bileductcancer #AMMF #cholangiocarcinoma
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 09/06/2026
Professor Bridgewater is a leading expert in cholangiocarcinoma who treats many patients with #CCA. To watch Professor Bridgewater’s presentation from #AMMF’s 2026 European Cholangiocarcinoma Conference, please visit our website: ammf.org.uk/ammf-conference-2026 #bileductcancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 03/06/2026
#AMMF's Fast Fact booklet provides the most current and evidence based understanding of #CCA, along with treatment and diagnostic options, made for patients specifically. Download your copy at ammf.org.uk/fast-facts or email info@ammf.org.uk for a hard copy. #Bileductcancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 02/06/2026
AMMF Founder and CEO Dr Helen Morement opened AMMF’s 2026 European CCA Conference with a warm welcome to delegates attending our dedicated #patients and carers day at the conference. To watch Dr Helen Morement’s presentation: ammf.org.uk/ammf-conference-2026 #bileductcancer #CCA
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 01/06/2026
💜AMMF RoadMap – Research💜 At AMMF 2026 European #Cholangiocarcinoma Conference, we were proud to showcase AMMF’s first road map highlighting Research. 💜Without awareness, there is no funding 🔬Without funding, there is no research 🟪Without research, there is no cure #bileductcancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 28/05/2026
Take a look at some of the insights shared from world leading experts highlighted during #AMMF's 2026 European #Cholangiocarcinoma #Conference. Raising awareness one 💜 at a time. #bileductcancer #AMMF2026
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 27/05/2026
💜#AMMF 2026 European #Cholangiocarcinoma Conference 💜 Missed a session or want to revisit the discussions? All sessions from AMMF’s 2026 #CCA Conference are now available to watch via AMMF’s website. Visit AMMF’s website: ammf.org.uk/ammf-conference-2026 #bileductcancer
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AMMF - The Cholangiocarcinoma Charity @charityammf.bsky.social · 15/05/2026
The penultimate session at #AMMF’s 2026 European #Cholangiocarcinoma Conference is Fast Science, co-chaired by #CCA experts Professor Tim Kendall and Professor Kevin Gaston. Today’s sessions available tomorrow via the platform, register here: ammf.org.uk/ammf-confere... #AMMF2026
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