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Cystic Fibrosis Ireland

@cfireland.bsky.social
114 followers 85 following 262 posts

Cystic Fibrosis Ireland is the national charity advocating for people with Cystic Fibrosis in Ireland. Registered Charity Number 20011376

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Cystic Fibrosis Ireland @cfireland.bsky.social · 25/09/2026
CF researchers under 40: applications are now open for the 20th European Cystic Fibrosis Young Investigator Meeting (EYIM) in Paris 🇫🇷 (24-26 Feb 2027). ✅ No registration fee ✅ Accommodation & meals covered ✅ Open to researchers under 40 📅 Deadline: 25 Oct 2026 For more info: buff.ly/m4znrjE
cf-europe.eu
Abstract submission for EYIM 2027 now open! - CF Europe
The European Cystic Fibrosis Young Investigator Meeting (EYIM) is a scientific meeting organised by 8 national CF patient organisations, under the umbrella of CF Europe and endorsed by the European…
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Cystic Fibrosis Ireland @cfireland.bsky.social · 23/09/2026
Are you over 18 and have Cystic Fibrosis? Are you a registered member of CFI? As a member you can avail from a range of supports and grants. Register or update your details today! www.cfireland.ie/about-cf/lat...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 10/09/2026
🎄 Calling All Future Toy Show Stars! ⭐ Do you have a child who dreams of being part of the Late Late Toy Show? Children are the stars of this Christmas special and video applications are now open! 🎁🎤🎭 Visit www.rte.ie/tv/programme... for more ⭐🎄
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Cystic Fibrosis Ireland @cfireland.bsky.social · 09/09/2026
Are you over 18 and have Cystic Fibrosis? Are you a registered member of CFI? As a member you can avail from a range of supports and grants. Register or update your details today! www.cfireland.ie/about-cf/lat...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 26/08/2026
Are you over 18 and have Cystic Fibrosis? Are you a registered member of CFI? As a member you can avail from a range of supports and grants. Register or update your details today! www.cfireland.ie/about-cf/lat...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 22/08/2026
The CFI monthly online Parent Connect meeting is back on Wed, 30th September. This is a welcoming group for parents of children with CF to connect, chat and support each other. Find out more here www.cfireland.ie/support-reso...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 21/08/2026
✨ Best of luck to all Leaving Certificate students receiving their results today! ✨ Take a moment to be proud of how far you've come. Whatever the outcome, your future is full of possibilities. 💙 #LeavingCert2026 #ResultsDay #BestOfLuck
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Cystic Fibrosis Ireland @cfireland.bsky.social · 12/08/2026
Are you over 18 and have Cystic Fibrosis? Are you a registered member of CFI? As a member you can avail from a range of supports and grants. Register or update your details today! www.cfireland.ie/about-cf/lat...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 29/07/2026
Are you over 18 and have Cystic Fibrosis? Are you a registered member of CFI? As a member you can avail from a range of supports and grants. Register or update your details today! www.cfireland.ie/about-cf/lat...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 25/07/2026
If you, or someone in your family, is over 18 and have CF, they might not be registered with us as an adult. To ensure access to the range of CFI grants and services, update your details today. Visit www.cfireland.ie/about-cf/lat...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 24/07/2026
EXTRA DATE ADDED!!! We are delighted to announce that the Cost of Breathing exhibition has been extended. It is available to view from the 23rd July until 31st August in the following locations: 23rd - 29th July - Youghal Library 31st July - 31st August - Carrigaline Library.
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Cystic Fibrosis Ireland @cfireland.bsky.social · 17/07/2026
Thank you to the Lord Mayor of Dublin, Cllr Clodagh Ni Muiri, Trevor O'Donoghue and everyone who visited and to the team at #DCU for hosting the Cost of Breathing exhibition recently. It was a pleasure to meet you all.
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Cystic Fibrosis Ireland @cfireland.bsky.social · 12/07/2026
Having qualified as an amateur, our Ambassador, David Howard, will compete at The Open this week. The CF Community is one of resilience, inspiration and determination and we couldn't be prouder of David, not only as he takes to the world stage, but of his journey to get there.
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Cystic Fibrosis Ireland @cfireland.bsky.social · 24/06/2026
A massive thanks to our wonderful Ambassadors for sharing their stories on Nationwide tonight. If you didn't catch it, don't worry, you can play it back on RTE.ie share.google/32WDtjutSw15...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 15/06/2026
Our Parent Connect online support group is back on the 17th June at 7.30pm. If you are a parent of a child with CF and would like to chat with others, please join us by visiting www.cfireland.ie/support-reso...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 09/06/2026
The Cost of Breathing is moving to Cavan! Come to visit this extraordinary exhibition at Virginia Library from the 9th June, and gain an insight into living with Cystic Fibrosis.
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Cystic Fibrosis Ireland @cfireland.bsky.social · 25/05/2026
The Cost of Breathing tour of Ireland is moving on... If you are in the area between 25th May and 5th June, be sure to drop in to visit this powerful exhibition by @Radharc | Life & Perspective at Bundoran Library. #cysticfibrosisawareness #bundoran #ballyshannon
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Cystic Fibrosis Ireland @cfireland.bsky.social · 21/05/2026
#ReWritingTomorrow has a new home!!! With so many thanks to Loverboy, Jacks and the whole team at Síos an Bóthar for being so welcoming and hosting this exhibition for the next 10 days. Thanks to @dublincitycouncil for the opportunity! Don't miss it... drop in and take a look 💜
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Cystic Fibrosis Ireland @cfireland.bsky.social · 21/05/2026
#ReWritingTomorrow has a new home!!! With so many thanks to Loverboy, Jacks and the whole team at Síos an Bóthar for being so welcoming and hosting this exhibition for the next 10 days. Thanks to @dublincitycouncil for the opportunity! Don't miss it... drop in and take a look 💜
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Cystic Fibrosis Ireland @cfireland.bsky.social · 18/05/2026
☕️ Our next PSAG meeting is happening tomorrow, Tuesday 19th May at 8:00 PM. This is an online group for women with Cystic Fibrosis who are on a path to parenthood. Grab a cuppa and join us for a friendly chat by clicking buff.ly/sgfFItj New members welcome!
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Cystic Fibrosis Ireland @cfireland.bsky.social · 17/05/2026
The CFI Online Parent Support Group returns on the 17th May at 7.30pm. This is a safe space for parents of children with CF to connect, learn and chat. To register visit: www.cfireland.ie/support-reso... We'd love to meet you.
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Cystic Fibrosis Ireland @cfireland.bsky.social · 16/05/2026
Thanks to Balbriggan Library for giving us such a warm welcome The Cost of Breathing exhibition is in Blanchardstwon Library all this week and we would love you to drop in and tske a look. @Radharc | Life & Perspective @fingalcountycouncil
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Cystic Fibrosis Ireland @cfireland.bsky.social · 16/05/2026
Thanks to Balbriggan Library for giving us such a warm welcome The Cost of Breathing exhibition is in Blanchardstwon Library all this week and we would love you to drop in and take a look. @Radharc | Life & Perspective @fingalcountycouncil
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Cystic Fibrosis Ireland @cfireland.bsky.social · 16/05/2026
In 2024, 20 women with CF were pregnant. In 2022, Cystic Fibrosis Ireland founded the world’s first Pregnancy Support and Advocacy Group to support women with CF on any stage of a fertility journey in Ireland. To find out more, visit www.cfireland.ie/support-reso...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 11/05/2026
Coming soon to @loverboyireland #clontarf... Drop in to visit #ReWritingTomorrow, a powerful exhibition of letters written by people impacted by CF to their future selves... 21st to 31st May with thanks to @DublinCityCouncil - celebrating 'A Thriving City For All' 💜
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Cystic Fibrosis Ireland @cfireland.bsky.social · 21/04/2026
A huge thanks to Cork City Hall for hosting The Cost of Breathing during 65 Roses Week. The exhibition has moved on and is now on display in Tramore Library,Waterford. You can drop in any time up until the 30th April and take a look. We hope you enjoy it!
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Cystic Fibrosis Ireland @cfireland.bsky.social · 12/04/2026
Can't get in to the ReWriting Tomorrow exhibition today? You can also visit our virtual gallery by visiting our webiste www.cfireland.ie/support-reso...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 12/04/2026
The sun is shining, the wind is blowing and it's a lovely Sunday morning. We are here all day at The Copper House for the #ReWritingTomorrow exhibition and we'd love to welcome you. #65Rosesday2026
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Cystic Fibrosis Ireland @cfireland.bsky.social · 10/04/2026
Our #65Roses exhibition continues throughout the weekend with uodated opwning times. Pop in from 10am - we would love to see you there.
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Cystic Fibrosis Ireland @cfireland.bsky.social · 06/04/2026
Next stop for the Cost of Breathing Exhibition is Cork! The powerful insightful exhibition takes up residence for 65 Roses Week at the Atrium, Cork City Hall. This is the 4th stage in the national tour which aims to raise awareness of the realities for many of living with CF.
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Cystic Fibrosis Ireland @cfireland.bsky.social · 23/03/2026
Next stop for the Cost of Breathing Exhibition is Kildare! From the 23rd March to 4th April you can view this powerful, insightful photography in Celbridge Library, Kildare.
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Cystic Fibrosis Ireland @cfireland.bsky.social · 17/03/2026
Wishing everyone, a very Happy St Patricks Day! Enjoy the day 🍀☘️
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Cystic Fibrosis Ireland @cfireland.bsky.social · 06/03/2026
Our Parents Connect group meet again on the 11th March at 7.30pm. This is a safe, online space for parents of children with CF to connect, chat and learn from each other. If you would like more information, or would like to join the next call, visit www.cfireland.ie/support-reso...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 02/03/2026
In 2025, we were honoured to receive funding from the Toy Show Appeal to support our young people in accessing counselling services and exercise grants. This funding will soon be coming to an end. If you haven't yet availed of this support, contact a member of the Services Team.
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Cystic Fibrosis Ireland @cfireland.bsky.social · 28/02/2026
What an amazing first few weeks of the 'Cost of Breathing' photography exhibition by Trevor O'Donoghue in collaboration with CFI. Here are just some of our visitors comments so far: "𝘗𝘰𝘸𝘦𝘳𝘧𝘶𝘭. 𝘙𝘦𝘢𝘭𝘭𝘺 𝘣𝘳𝘪𝘭𝘭𝘪𝘢𝘯𝘵." "𝘉𝘦𝘢𝘶𝘵𝘪𝘧𝘶𝘭, 𝘰𝘶𝘵𝘴𝘵𝘢𝘯𝘥𝘪𝘯𝘨 𝘪𝘮𝘢𝘨𝘦𝘴. 𝘚𝘰 𝘪𝘯𝘴𝘪𝘨𝘩𝘵𝘧𝘶𝘭 𝘵𝘰 𝘴𝘦𝘦 𝘪𝘯𝘵𝘰 𝘵𝘩𝘦 𝘸𝘰𝘳𝘭𝘥 𝘰𝘧 𝘊𝘍."
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Cystic Fibrosis Ireland @cfireland.bsky.social · 26/02/2026
Pregnancy, Support and Advocacy Group (PSAG) Tuesday dates for your diary! 👉️ 3rd March at 8pm 👉️ 21st April at 8pm 👉️ 19th May at 8pm 👉️ 16th June at 8pm, 👉️ July & August - no meeting July and August, 👉️ 16th September at 8pm Visit buff.ly/rRlfdD2
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Cystic Fibrosis Ireland @cfireland.bsky.social · 26/02/2026
Our Parents Connect group meet again on the 11th March at 7.30pm. This is a safe, online space for parents of children with CF to connect, chat and learn from each other. If you would like more information, or would like to join the next call, visit www.cfireland.ie/support-reso...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 24/02/2026
Many thanks to Kerry Libraries, nd the team at Killarney for launching the Cost of Breathing Exhibition. CFI and Trevor O’Donoghue of Radharc, are now proud to bring this powerful, insightful exhibition to Westside Library Galway from now until the 8th March.
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Cystic Fibrosis Ireland @cfireland.bsky.social · 06/02/2026
𝗧𝗼𝗺𝗼𝗿𝗿𝗼𝘄. 𝐂𝐅𝐈 𝐂𝐨𝐦𝐦𝐮𝐧𝐢𝐭𝐲 𝐂𝐨𝐧𝐟𝐞𝐫𝐞𝐧𝐜𝐞 𝟐𝟎𝟐𝟔. 𝐋𝐢𝐦𝐞𝐫𝐢𝐜𝐤 𝐒𝐭𝐫𝐚𝐧𝐝 𝐇𝐨𝐭𝐞𝐥. We can't wait to see you!!
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Cystic Fibrosis Ireland @cfireland.bsky.social · 31/01/2026
Just one week to go until the CFI Community Conference! If you haven't booked, have no fear! Our online conference is open for registration! Visit www.cfireland.ie/support-reso... for more info!
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Cystic Fibrosis Ireland @cfireland.bsky.social · 28/01/2026
👀 See anyone you know in this photo?? 👀 We can't wait to tune in to @RTEOne tonight at 9.35pm for a look at what #AnyGivenDay can bring at the CF Unit in @cork_university_hospital 📺 www.rte.ie/player/serie...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 27/01/2026
Are you joining us at the CFI Conference 2026? Whether online or in person, we have a choice of workshops for you to attend! Lee Daly will be chatting to our members about having difficult conversations and we would love to see you there. Sign up here buff.ly/lelbsOy
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Cystic Fibrosis Ireland @cfireland.bsky.social · 22/01/2026
Are you coming to the CFI Community Conference 2026? Joining us is Barry Mooney, Certified Financial Planner. Barry will host a dedicated members Lunch & Learn event on Financial Planning. To join us at the conference, register today! www.cfireland.ie/support-resources/cfi-annual-conference
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Cystic Fibrosis Ireland @cfireland.bsky.social · 21/01/2026
Cystic Fibrosis Ireland’s exercise grant funds access to sports, recreational play supports and physio related activities for children with CF in Ireland. Apply today by visiting www.cfireland.ie/support-reso...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 20/01/2026
The CFI Community Conference is just 3 weeks away! If you can’t join in person, join us online by registering at www.cfireland.ie/support-resources/cfi-annual-conference The agenda is available too so take a look and get in touch!
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Cystic Fibrosis Ireland @cfireland.bsky.social · 19/01/2026
The PSAG (Pregnancy Support and Advocacy Group) is back for 2026 - with the first meeting taking place on Thursday 22nd January at 8pm. If you are a women with CF on any stage of your fertility journey, please get in touch to join. Details available at buff.ly/qB7uvoW
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Cystic Fibrosis Ireland @cfireland.bsky.social · 15/01/2026
🌟𝘾𝙖𝙡𝙡𝙞𝙣𝙜 𝙖𝙡𝙡 𝙮𝙤𝙪𝙣𝙜 𝙘𝙧𝙚𝙖𝙩𝙞𝙫𝙚𝙨 🌟 What will you be when you grow up? Let’s find your doodle and draw your dreams! As part of 65 Roses Day 2026 CFI and Bob_Narrow are bringing our younger members a Doodle workshop 28 Jan@4pm Register www.cfireland.ie/support-reso...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 10/01/2026
🌟 𝙒𝙚’𝙧𝙚 𝙡𝙤𝙤𝙠𝙞𝙣𝙜 𝙛𝙤𝙧 𝙖𝙢𝙗𝙖𝙨𝙨𝙖𝙙𝙤𝙧𝙨 𝙬𝙞𝙩𝙝 𝙖 𝙨𝙩𝙤𝙧𝙮 𝙩𝙤 𝙨𝙝𝙖𝙧𝙚 🌟 Your voice has power — real power — and every year CFI work with a community of people who want to use their experiences to spark awareness, connection, and change.
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Cystic Fibrosis Ireland @cfireland.bsky.social · 07/01/2026
The CFI Community Conference is happening in just one month! For an insightful event with workshops, dinner, dancing and community awards, don't miss your chance to go! Book now at www.cfireland.ie/support-reso...
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Cystic Fibrosis Ireland @cfireland.bsky.social · 05/01/2026
‼️𝘊𝘢𝘭𝘭𝘪𝘯𝘨 𝘢𝘭𝘭 𝘊𝘍𝘐 𝘔𝘦𝘮𝘣𝘦𝘳𝘴‼️ The early bird accommodation rate for the CFI Community Conference ends today ‼️ Don't miss out - click this link to book. www.cfireland.ie/support-reso...
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