iiinova — where your digital self keeps evolving

From age 24 onwards I've been more functionally impaired than many people in their 80s!

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Its yet another message that disabled young people don't exist. I already face resistance when asking for accommodations I need - often with the implication that I'm not old enough to apparently need those accommodations. (Home visits from doctors etc)

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I'm also disappointed that the proposed national social care service is apparently only going to be for over 65s!!! I know so many people in their 20s-40s who are getting inadequate social care. Not everybody has family who can or will support them.

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Alem Matthees @alemmatthees.bsky.social · 23/09/2026

The proposed national social care service only available to over 65s. Health element of UC might be removed for under 25s. Labour government decides young disabled people don't exist. Shame on them.

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Reposted by Cat Hulme

For the love of the universe and the sake of millions of people with #MECFS and #LongCOVID can some funding body please fund the rest of #SequenceME / LC already?! WGS is one of the greatest crowning achievements of science and has enormous potential for pointing the compass in the right direction.

actionforme.org.uk

Sequence ME & Long Covid

SequenceME & Long Covid is a major new whole-genome sequencing study to understand ME and Long Covid.

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Cat Hulme @cathulme.bsky.social · 01/10/2026

What's the difference if you need social care at 25 or 65? Not every younger disabled person has family support. I know plenty of working age disabled people who aren't given the care hours they need to live independently and are physically struggling as a result.

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Doctor seemed puzzled why I was in a wheelchair because of ME. 🤦

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It took 4 hours after seeing the doctor just to have cannula removed and be sent home. Crashing the entire time. It felt like physical torture. I needed a bed, they would not give me a bed.

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Very useful work. I recently spent 8 hours upright in a chair in A&E, nurses did not show any response when my mum told them how badly I was crashing. Even after I fainted I got to lay down for 10 minutes then back on a very upright chair. I was worried I'd never recover from the experience.

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Just seen this is Belfast- amending my comment to say in England

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They made this change in the UK about 4 years ago. Its made visits to hospitals so stressful.

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At the UK covid inquiry a couple years ago NHS senior staff still refused to say covid was airborne even when directly questioned on it. And a recent trip to A&E where I was the only person masked shows how successful this cover-up has been.

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Adam @abrokenbattery.bsky.social · 26/09/2026

Its this but also there has been a genuine conspiracy to convince the public at large that covid has gone away or is only a cold now. And people will buy that because its what they want to believe. (Plus its kind of ableist to not care about spreading colds and other viruses too)

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Reposted by Cat Hulme

Full interview (9 mins): youtu.be/H2rRf_f2hJs George’s recent article www.theguardian.com/commentisfre...

youtu.be

LBC | Natasha Devon interview with George Monbiot

YouTube video by Broken Battery

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Reposted by Cat Hulme

George Monbiot @georgemonbiot.bsky.social · 24/09/2026

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

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Cat Hulme @cathulme.bsky.social · 24/09/2026

Angry at the husband. Angry at the lack of funding for biomedical research into ME. And angry at the way The Sun have reported this.

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Cat Hulme @cathulme.bsky.social · 23/09/2026

Why did they find a photo of Badenoch looking so cool tho wtf

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Reposted by Cat Hulme

🇨🇦JOY 🇨🇦 @joycomes.bsky.social · 17/09/2026

Eurasian Eagle-owl 56-75cm Europe Asia N Africa One of the largest owl species in the world Pairs mate for life Lifespan 20+years 60 years in captivity Chicks fly at eight weeks stay with parents for six months They are fully mature at the age of 2-3 years females are larger than males

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Cat Hulme @cathulme.bsky.social · 12/09/2026

People need to stop thinking that disability is worse than death. Its pretty insulting to disabled people.

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Cat Hulme @cathulme.bsky.social · 12/09/2026

The concern is there because in other countries where its been legalised initially for terminally ill they have later extended it to all people suffering from physical ailments.

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Cat Hulme @cathulme.bsky.social · 12/09/2026

Evidence doesn't matter to these people. Its (bad) vibes based politics.

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Reposted by Cat Hulme

Kenny Stewart @kennystew.art · 11/09/2026

I bought an RNLI hat as an expression of my anti-fascism yesterday, which is somehow a sentence that makes sense in 2026.

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Answering your question - ableism!

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As a disabled person I listen to what people who live where it is legal have said about coercion and about being rejected for welfare but approved for assisted dying. I can see that happening in this climate. A large segment of the population just view us as "useless eaters"

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Terrible idea to bring in assisted dying with a potential fascist (Reform) government looming over our future. Better to sort out social care, increase welfare for disabled, and improve palliative care first. I support assisted dying in theory but this is not the time.

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I relate to the photo (and the accompanying text) so so much. Thank you for sharing it.

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Before I became disabled I was very pro-assisted dying. But since becoming disabled I've seen how ableist many medical staff are and I've lost trust completely. Also its been eye-opening as to how inadequately disabled people in the UK are supported to LIVE. People still don't believe me on this.

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But the way disabled people's concerns have been sidelined is inexcusable. I've been shouted down as a religious nutcase (I'm not religious at all) whenever I have expressed concerns about the slippery slope and lack of safeguards.

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