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CareBerry @careberry.bsky.social · 17/02/2025

Caregiving is deeply meaningful but can feel incredibly lonely. Friends drift and exhaustion sets in. If you know a caregiver, reach out—your support matters. No one should walk this path alone. #CaregiverSupport #YouAreNotAlone #dementia #Alzheimers

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The Dementia League @dementialeague.bsky.social · 15/02/2025

Love isn’t just about memories—it’s about presence, patience, & heart. Even when dementia changes life, a bond remains. On this Valentine’s Day, we celebrate the love that endures beyond words & memories—a love that can span decades & adapt to this great loss. #LoveyouMom #LoveyouDad #LoveyouHoney

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CareBerry @careberry.bsky.social · 13/02/2025

Dementia is cruel and does not care about your past, your achievements, or your skin. To beat it we must understand it. To understand it we must study it. To study it we must be patient. To be patient we must have faith. Repost if you agree. #endalz #alzheimers

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The Dementia League @dementialeague.bsky.social · 13/02/2025

A beautiful 🌹 message we should all read and consider. 🙏

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CareBerry @careberry.bsky.social · 08/02/2025

New Product! Introducing our Dementia-Friendly Shower Sign! • Reversible suction cup • Cues hygiene routine • Changing font draws attention to key points • Improve showering accuracy & comfort • Great for a single caregiver or a facility Get yours today! www.ceider.org/product-page...

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CareBerry @careberry.bsky.social · 06/02/2025

Dementia Caregiving Tip: Keep a “Yes, and…” mindset. Instead of correcting a loved one’s confusion, go with their reality and gently guide the conversation. It reduces stress for both of you and keeps the bond strong. #DementiaCare #Caregiving #alzheimers

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CareBerry @careberry.bsky.social · 01/02/2025

👀 wow. Maybe they just wanted to make sure that the diagnosis was accurate? Maybe they were trying to funnel Medicare payments to the neurologist? I know there are virtual support groups out there that only require signing up and logging in to the virtual meet. Maybe try to find a virtual group.

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CareBerry @careberry.bsky.social · 01/02/2025

Caregiver support groups a can be extremely helpful to caregivers. Has anyone found good virtual support groups they would recommend? If so, please add to comments. Thanks!

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CareBerry @careberry.bsky.social · 31/01/2025

💙 Dementia caregiving is tough—but you don’t have to do it alone. Support groups (both in-person & virtual) offer guidance, shared experiences, and emotional strength from those who truly understand. Let us know—what has your experience with support groups been like? #alzheimers #Caregiver

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The Dementia League @dementialeague.bsky.social · 24/01/2025

🌟 Support The Dementia League: 5-Day Donation Campaign! 🌟 We're on a mission to quickly raise $2,780 to expand our impact & bring dementia prevention news to even more lives! 501(c)(3) deductions. 👉 Donate today! Every $1 helps! PayPal Donation Link: buff.ly/4huxodj Repost! 💜

buff.ly

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CareBerry @careberry.bsky.social · 20/01/2025

Lori, FYI, there is an additional 40% OFF coupon for people who sign up on the research participation registry. It’s just signing up to learn more if a study becomes available, it’s not an actual study.

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CareBerry @careberry.bsky.social · 20/01/2025

Airtags are actually fairly thin.

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CareBerry @careberry.bsky.social · 20/01/2025

Good question. The soles are a bit thick and have a hole for the AirTag. You can’t really feel it. I weigh 200+ lbs and if I stand on my heel hard then I can feel it, but just walking is no big deal. My mother has never complained.

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The Dementia League @dementialeague.bsky.social · 20/01/2025

Sailor's Syndrome? Maybe dementia should be called the Sailor's Syndrome because of how it can take a life-long kind person and turn them into a foul-mouth sailor. 🦜 Dementia and Alzheimer's are more than memory. Cognition, insight, and executive functioning all decline. 🧠 #caregivers

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CareBerry @careberry.bsky.social · 19/01/2025

We now sell AirTag-compatible insoles to help monitor your loved one’s location—comfortable and easy to install. I made these available after my mom wandered off several times; now, she has a set for both pairs of shoes. Please repost to spread awareness! 33% OFF #endalz #dementia #alzheimers

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The Dementia League @dementialeague.bsky.social · 18/01/2025

Could CBD/THC help agitation in dementia? 🧠 Studies show low-dose CBD/THC combo (<10 mg THC) reduces agitation in people with dementia. ⚠️ Excessive THC causes discomfort/illness. Not med advice. buff.ly/3PtOqwp buff.ly/4fYcPoq buff.ly/3PxtZ1y #Alzheimers #caregiving

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CareBerry @careberry.bsky.social · 09/01/2025

🚨Let’s get some advice for our caregivers and families. What is the best book(s) you have read about dementia or Alzheimer’s (lowering risk, caregiving, general, etc)? 📚

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CareBerry @careberry.bsky.social · 17/01/2025

Thanks for contributing! We’ll have to check it out!

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CareBerry @careberry.bsky.social · 15/01/2025

Thanks for sharing that information, I suspect a lot of people didn’t know.

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CareBerry @careberry.bsky.social · 15/01/2025

Younger people don’t understand. The average total healthcare spending in the last 5 years of life was $287,038 in patients with dementia. This is about $58,000 per year. This is a tremendous burden on American families. ☹️

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CareBerry @careberry.bsky.social · 15/01/2025

So challenging Lori. Have you checked out virtual support groups?

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CareBerry @careberry.bsky.social · 15/01/2025

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CareBerry @careberry.bsky.social · 14/01/2025

“Endless patience” - yes indeed.

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CareBerry @careberry.bsky.social · 14/01/2025

For the past or current caregivers: What are two things you wish you had that would have made the journey easier for you?

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The Dementia League @dementialeague.bsky.social · 13/01/2025

💙 To All Caregivers: Days can be very hard. Especially showering and dressing in cases of dementia. Even if you don’t feel loving, what you’re doing is love in action. Your care makes a difference, even on the hardest days. 📢 Repost if you know. #Caregiver #caregiving #dementia #alzhiemers

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CareBerry @careberry.bsky.social · 13/01/2025

It is often very difficult for friends to get a complete picture of the magnitude of their suffering.

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CareBerry @careberry.bsky.social · 13/01/2025

So sorry to hear about your brother. Thank you for sharing your story. It is very sad how dementia can rob the ones we love of so much. 🙏

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CareBerry @careberry.bsky.social · 13/01/2025

In what sense? You wouldn’t want someone who cares to call you? If not a phone call then what is something that you would need or appreciate?

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CareBerry @careberry.bsky.social · 13/01/2025

Excellent recommendation Hilary! Taking a moment to share this book will help others!

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CareBerry @careberry.bsky.social · 12/01/2025

Excellent book. Already read it. And reviewed it. What a great resource for caregivers. People don’t realize how much sweat, blood and tears goes into making such a book. ❤️

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The Dementia League @dementialeague.bsky.social · 12/01/2025

The top things people can’t imagine forgetting: 1️⃣ Birth of child 2️⃣ Death of parent 3️⃣ Child’s face 4️⃣ Spouse 🚨 Dementia can erase even these sacred memories. Scary, right? Help us fight back—share & spread our brain health news & research to reduce risk and save lives. 💜 (Our X Poll) #alzheimers

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CareBerry @careberry.bsky.social · 12/01/2025

I bet that you are an awesome person. You were the only one to see past the “Careberry” tile and see a person typing this. You’re one in a Million. God bless you.

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CareBerry @careberry.bsky.social · 12/01/2025

Thanks! Actually totally fine. Did see my mother tonight. She was in good spirits. I just figured that someone out there probably needed a call.

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CareBerry @careberry.bsky.social · 11/01/2025

If you know a caregiver, give them a quick call right now. Close Bluesky right now. And call them. Please.❤️ #dementia #alzhiemers #caregiving #caregiver

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CareBerry @careberry.bsky.social · 11/01/2025

Thank you Faye for sharing this resource!

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CareBerry @careberry.bsky.social · 10/01/2025

My mother was diagnosed 5 years ago. To fight this disease I created 3 companies: A nonprofit (Dementia League) for science, a research-based memory decline protection program (Pronene Memory Plan; her name is “Nene”) and CareBerry (for caregivers). We are on the same team. Labor of Love. 💕

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CareBerry @careberry.bsky.social · 10/01/2025

We just purchased your book. Look forward to reading it. It takes a community to support a community.

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CareBerry @careberry.bsky.social · 10/01/2025

(2) All of the adults with dementia essentially flock to wherever they are told to go. No ones goes to the “garage” or the “library” or the “bar.” It’s a massive multimillion dollar facility and everyone stays in the cafeteria or the movie room. Worth it? I don’t know.

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CareBerry @careberry.bsky.social · 10/01/2025

(1)Yes, it is a very nice multimillion dollar facility and families appreciate having their loved ones there. …

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CareBerry @careberry.bsky.social · 10/01/2025

My mother is currently in one of those facilities for a day program. Here is what I have noticed and what the staff told me…

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CareBerry @careberry.bsky.social · 09/01/2025

🚨Let’s get some advice for our caregivers and families. What is the best book(s) you have read about dementia or Alzheimer’s (lowering risk, caregiving, general, etc)? 📚

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CareBerry @careberry.bsky.social · 08/01/2025

Thank you for sharing these personal challenges. We hope that others will read that and know they are not alone.

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CareBerry @careberry.bsky.social · 08/01/2025

Did you know people with dementia often struggle with sleep disorders, leading to restless nights? For caregivers who work the next day, this can be exhausting and overwhelming. Let’s support caregivers & raise awareness about the challenges they face. 💜 #caregiving #alzheimers #CaregiverSupport

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The Dementia League @dementialeague.bsky.social · 18/11/2024

#Caregiving is hard—physically exhausting, emotionally draining, and often isolating. It’s okay to feel tired, sad, or overwhelmed, and it’s okay to ask for help. #Caregivers, you’re not alone. Take a moment for yourself today. You matter too. #dementia #alzheimers #lewybody #parkinsons

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