iiinova — where your digital self keeps evolving

Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 25/07/2025

Need another reason to join us? You’ll make Mateo’s day! Thank you so much to all of you who have already decided to, we can’t wait to see how you do your marathon your way! Sign up here: Sign up here: form.typeform.com/to/KajKdqms

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 25/07/2025

Just cover 26 miles in the 31 days of August your way whilst raising money for research into the palliative care of young people with less survivable cancers. What’s more - for every £50 you raise you’ll be in with two very special prizes!

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 25/07/2025

Mateo thought you might need some reassurance that you don’t need to run for our Marathon Your Way In A Month challenge coming up in August! Why not get fit whilst having fun with family and friends? Whether you want to walk, roll, jump or skateboard it’s totally your choice.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 23/07/2025

- just another chance to make magical memories with those you love whilst helping us find the research that will help young people with less survivable cancers do exactly that. Together we will make a difference.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 23/07/2025

Cover 26 miles over the 31 days in August in any way that works for you. What's more for every £50 in sponsorship you raise you'll go into a draw to win a 2 night stay for 4 @southwellholidaycottage and a 1 night stay for 2 at the @thebiltmoremayfair

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 23/07/2025

For those of you who haven't quite hit the sign up button yet -there is still time to sign up! Perhaps you are wondering how much difference you can make? The truth is one person can always make a difference. No one is ever too small. So why not join us: https:// form.typeform.com/to/KajKdqms

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 23/07/2025

A massive thank you to all of those incredible people who have signed up for Marathon Your Way In A Month ready for August. We are so excited to see your adventures! Whether you plan to walk, cycle, run, scoot, hop, jump or dance we can't wait to see how you choose to cover your miles.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 26/06/2025

It just goes to show that no matter how small you are, with enough love you can always make a difference.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 26/06/2025

This weekend he even stayed awake to complete a 24 hour Splash and Stitch challenge. This massive honour has not only helped Mateo to see the huge difference he is making, but will also hugely help us in spreading the word about Capture!

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 26/06/2025

He has been instrumental in helping Capture raise every single penny of the £130,000 that has so far been raised. He has sold raffle tickets, baked cakes, served drinks and washed up. He has spoken to quite literally anyone who will listen about DSRCT and made videos for those further afield.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 26/06/2025

Yesterday Mateo; Capture’s biggest supporter, found out he has been shortlisted and will be a finalist in the Young Hero section of the BBC Make A Difference Awards. Since day one Mateo has channeled his love for his big sister Liz into making a difference to others diagnosed with DSRCT.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 21/06/2025

16.5 hours in and these guys are still going STRONG. Alternating between stitching and swimming they have rocked Splash and Stitch. It’s not too late to sponsor them and help us fund essential research into palliative care: www.justgiving.com/crowdfunding...

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 17/06/2025

We have lots of media interest in the event and the more people taking part from all over the world, the bigger the splash we can make. If you know a knitter, crocheter or swimmer who can spare half an hour on the 20th or 21st of June, please share with them.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 17/06/2025

Preparations for our 24 hour Splash and Stitch are well underway, but we need your help to make a huge splash! Whilst people can attend the event in person we are also looking for people to take part remotely.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 14/06/2025

Thinking about joining in with Splash and Stitch? Mateo would love it if you did! Either in person in Harrogate or remotely from wherever you live in the world. Sign up here: www.signupgenius.com/go/10C054EA8... Discover our why here: www.justgiving.com/crowdfunding...

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 13/06/2025

Together we can make a difference in ensuring everyone diagnosed with Desmoplastic Small Round Cell Tumour lives the best life they can for as long as possible. Will you help us give Living a chance?

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 13/06/2025

Why not follow their lead and join us for Stitch and Splash next weekend! We’ll give you a nice warm pool to swim in and have lots of lovely yarn. To take part either in person in Harrogate or remotely wherever you are in the world, just pick a slot and sign up: www.signupgenius.com/go/10C054EA8...

signupgenius.com

Splash and Stitch

We need your help to make Capture's first official fundraing event a success! We will be a completing a 24 hour sponsored swim and stitch near Harrogate from the 20th - 21st June 2025. You can volunte...

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 13/06/2025

Our incredible Lake Windermere fundraising swimmers smashed their outdoor swimming challenge today, but not before they squeezed in some knitting! They truly are incredible and we are beyond grateful to them.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 11/06/2025

We are so very grateful to Belinda and her intrepid friends for taking on a 1 mile swim across Lake Windermere on Friday 13th June. People taking on challenges like this make a huge difference to our fundraising and help us to fund vital research for the DSRCT Community.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 05/06/2025

But more than anything we would love it if you would show your appreciation for her incredible achievement and her kindness in raising funds for Capture. If you have a personal challenge planned, why not get in touch. Together we can make a difference.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 05/06/2025

Capture is so thankful to Helen Frankish King, who last weekend completed the Ironman Hamburg Triathalon. Helen swam 3.8km, cycled 180km and completed a marathon (42.195km) whilst raising funds for research into DSRCT.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 04/06/2025

But we are also grateful to every one of you. If you've liked our posts or shared them, if you have turned up to a Capture event or helped us to fundraise please know how much we appreciate you! We couldn't do it without every single one of you!

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 04/06/2025

We're so grateful to those who stood up and offered to be trustees, their expertise is what has allowed us to create Capture. Special thanks also go to @drbobphillips.bsky.social who has given us his time and expertise when we haven't known the answers.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 04/06/2025

This week is national volunteer's week! Unlike large charities, Capture is run entirely by volunteers. It means that every penny we raise can go directly to making a difference.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 02/06/2025

The incredible Helen did an Ironman triathalon in Hamburg Yesterday in support of Capture’s next research project. We are so grateful to her for her support. Please do donate and/ or give her some congratulations for her incredible accomplishment if you can: www.gofundme.com/f/in-memory-...

gofundme.com

Donate to Ironman in memory of Liz and support research into DSRCT, organised by Helen Frankish-king

This year I will be attempting to complete my first Ironman T… Helen Frankish-king needs your support for Ironman in memory of Liz and support research into DSRCT

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 29/05/2025

Wherever you are in the world you can sign up to join him remotely. He’d love to know that others care as much as he does about making a difference. If you are local to Harrogate we’d love you to come along and join in person. Never knitted before? Don’t worry we’ll teach you.

signupgenius.com

Splash and Stitch

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 29/05/2025

He knows together we can change things for future families. Capture’s sponsored 24 hour ‘Splash and Stitch’ event on the 20th and 21st of June was inspired by his two favourite hobbies - swimming and knitting.

signupgenius.com

Splash and Stitch

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 29/05/2025

Before Capture Mateo felt sad whenever he saw a charity shop. He hated that people cared about other things but that no-one cared enough to try to help save his sister. Through Capture Mateo feels as though he can make a difference. He feels less sad because he knows others care.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 27/05/2025

If you want to be part of one of these very special groups please comment below or drop us a message and we will get the details to you. Together we will support each other because together we are stronger.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 27/05/2025

Our community WhatsApp groups are launching at the end of this week. Whether you have DSRCT, have a loved one who does or have lost someone to this disease this is a chance to connect with others who understand.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 14/05/2025

If you would like to take part or would like more details please do get in touch, either by commenting on this post or sending us a message. We really would love to hear from you.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 14/05/2025

Our WhatsApp support groups will be starting in the next few weeks. People will be grouped into small communities with those at a similar stage to them. A confidential space to chat about worries and successes, with those who truly understand. A place to make new friends and to receive support.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 14/05/2025

If you have Desmoplastic Small Round Cell Tumour or you love someone who has/ has had then we want to work for you - we want to provide you with a community to share your thoughts and ideas. We want this to become your charity not just ours!

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 14/05/2025

One of the reasons we chose the name Capture for the charity is that we are passionate about capturing the essence of our community. This road can be lonely one and we know many people travel this journey without ever meeting someone else in a similar situation.

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 12/05/2025

What if I told you there was a way you could support life changing research without it costing you any money? The good news is that there is! Download the Easy Fundraising App and choose Capture or click on this link: www.easyfundraising.org.uk/cause/captur...

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Capture Desmoplastic Small Round Cell Tumour Charity @capturedsrctc.bsky.social · 11/05/2025

As the first international charity dedicated to the support of those diagnosed with Desmoplastic Small Round Cell Tumour and their loved ones we aim to bring together both those needing support and those campaigning for change under one umbrella. Together we can make a difference.

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