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CAPRIN1 Foundation

@caprin1-foundation.bsky.social
11 followers 26 following 25 posts

Supporting families affected by CAPRIN1-related disorders through research, education and community connection. Connect with us: linktr.ee/Caprin1

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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 23/12/2025
As we get closer to the festive season, consider gifting a donation which will give hope to people with #CAPRIN1 variants. Your donation powers cutting-edge research, bringing us closer to understanding the gene & developing life changing support. Every gift matters 🙏 caprin1foundation.org/donate/
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 22/12/2025
🧬 Genetic testing can unlock answers about CAPRIN1 If you or a loved one has a suspected CAPRIN1 variant, consider genetic testing which will help researchers move closer to treatments for people worldwide. Learn more: caprin1foundation.org/participate-... #GeneticTesting #RareDiseaseResearch
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 18/12/2025
CAPRIN1 helps brain cells communicate and develop. When this gene doesn’t work as expected, it can impact language, learning, movement, behavior, and sensory processing. The more we understand #CAPRIN1, the better we can support those affected. 💙 Learn more or get involved at caprin1foundation.org
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 16/12/2025
Can you help us raise vital funds for #CAPRIN1 research? Our research team needs specialty equipment to continue their work to better understand CAPRIN1 variants & possible treatment. 🌟 Every donation counts: caprin1foundation.org/donate/ #CAPRIN1Awareness #RareDiseaseFunding #Donate
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 14/12/2025
Possible signs of a #CAPRIN1 variant may include: 🗣️ Developmental/speech delays ⚡ Unexplained seizures 🧩 Autism-like traits 🧬 Family history of neurological conditions These signs can have many causes, but learning about CAPRIN1 can help families find clarity. 💙 Learn more at caprin1foundation.org
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 11/12/2025
Parents. Adults. Caregivers. Clinicians. Researchers. No matter your connection to #CAPRIN1, you belong here. Join the CAPRIN1 Community today: caprin1foundation.org/join-our-com... #InclusiveCommunity #RareDiseaseSupport #CAPRIN1Foundation
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 10/12/2025
Your involvement today fuels tomorrow’s breakthroughs. We're passionate about building hope for people with #CAPRIN1 variants and we need you to help us further our efforts! Sign up, donate, or participate — together we can create change. #HopeForRare #CAPRIN1Foundation #RareDiseaseSupport
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 08/12/2025
CAPRIN1 variants are rare — with only 24 reported cases. In order to get vital funding for research we're trying to get as many people possible tested to reflect true prevalence. 🌍 Do you have a confirmed variant? Get in touch: caprin1foundation.org/participate-... #RareDisease #SupportRare
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 05/12/2025
CAPRIN1 plays a key role in brain development. Variants in this gene can impact speech, motor skills, behavior, hearing, and more. Find out more about CAPRIN1 and variants on our website: caprin1foundation.org #Genetics #Neurodevelopment #CAPRIN1Education
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 03/12/2025
CAPRIN1 Foundation was founded by parents who wanted answers, support & connection. If you or someone you love is affected by a CAPRIN1 variant, we're here for you! Join our supportive community: caprin1foundation.org/join-our-com... #FamilySupport #CAPRIN1Foundation #RareDisease
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 01/12/2025
Sharing your journey helps researchers understand how CAPRIN1 affects development, communication and everyday life. 💙 Join the research community and sign up to participate in a study today: caprin1foundation.org/participate-... #PatientVoices #ResearchImpact #CAPRIN1Community
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 28/11/2025
CAPRIN1 plays a key role in brain development. Variants in this gene can impact speech, motor skills, behavior, hearing, and more. Find out more about #CAPRIN1 and variants on our website: caprin1foundation.org #Genetics #Neurodevelopment #CAPRIN1Education
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 26/11/2025
Stay up to date on CAPRIN1 research, family stories and new opportunities to get involve by signing up to join our community. 📬 Sign up on our website: caprin1foundation.org/join-our-com... #Newsletter #CAPRIN1Updates #StayConnected
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 24/11/2025
Your donation funds #CAPRIN1 research and awareness efforts worldwide! 💛 Help us accelerate discoveries and bring hope to families by donating today. 👉 Donate at caprin1foundation.org/donate/ #DonateForGood #CAPRIN1Foundation #RareDiseaseAwareness
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 21/11/2025
Every research participant brings us closer to answers families have waited for. If you or your child has a CAPRIN1 variant, we’d love to hear from you. 🔬 Sign up to participate in research today: caprin1foundation.org/participate-... #RareDiseaseResearch #CAPRIN1 #ScienceForGood #GeneticResearch
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 19/11/2025
You are not alone. Join a global network of families, advocates and researchers working to understand CAPRIN1-related conditions. 💙 Connect, learn and grow with us. 👉 Sign up at caprin1foundation.org/join-our-com... #CAPRIN1 #RareDiseaseCommunity #Genetics #SupportFamilies #JoinUs
Image of a man placing his hand in a supportive way on another man's shoulder. The text reads "We're here for you!"
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 26/07/2025
If your child has been diagnosed with autism, speech delay, or developmental challenges, there could be an underlying genetic reason, like a rare CAPRIN1 mutation. Learn the signs, why it matters, and how genetic testing could give you answers.
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 05/07/2025
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 07/06/2025
When CAPRIN1 doesn’t work properly, the brain and nervous system might not develop or function normally. You can think of this gene like an instruction manual. If there’s a mutation (a change or “typo” in the instructions), the body might not make the protein correctly, or at all.
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 07/06/2025
CAPRIN1 is the name of a gene that helps make a protein important for brain function and communication between brain cells. We’re still learning, hence your voice matters. Share, support, and connect—because awareness is powerful. #CAPRIN1 #RareDiseaseAwareness #GeneticSupport #Neurodevelopment
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 30/03/2025
Our Goals Spread Awareness And Education Encourage Genetic Testing Support Research Build Community How You Can Help Follow & Share: Spread the word Join Our Foundation: caprin1foundation.org Engage & Discuss: Participate & share experiences Consider Genetic Testing: To provide valuable insights
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CAPRIN1 Foundation @caprin1-foundation.bsky.social · 30/03/2025
Welcome to Our CAPRIN1 Awareness Page! CAPRIN1 is a crucial protein that plays a significant role in cellular function and neurological health. Our mission is to raise awareness, share research and build a supportive community for those affected by CAPRIN1-related conditions.
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