iiinova — where your digital self keeps evolving

canchild.bsky.social @canchild.bsky.social · 14/10/2026

Caregiver experiences of caring for a child with lifelong care needs reveal health, social & financial inequities. This study asked what the care-related responsibilities, challenges & support needs are for caregivers of children/young adults with lifelong care needs? ➡️ ow.ly/ABI850ZVtXg

000 0

canchild.bsky.social @canchild.bsky.social · 12/10/2026

This study explored the association between participation involvement and well-being (as seen through affect) among transition-aged youth with physical disabilities. 🔗 Read the publication here: ow.ly/PBoB50ZVtGF

000 0

canchild.bsky.social @canchild.bsky.social · 08/10/2026

This study explored service providers’ (SPs’) knowledge, confidence, experiences, and perceptions of using the F-words for Child Development when supporting children and youth with disabilities or developmental concerns. 🔗 Read the publication here: ow.ly/RNjy50ZVtgG

000 0

canchild.bsky.social @canchild.bsky.social · 14/09/2026

Registration is now open for CP-NET Science and Family Day 2026! 🌟 On Monday, October 5th, 2026, join us virtually for a day of learning, connection, and knowledge-sharing centred around this year's theme of Independence & Interdependence. 🔗 Register now: ow.ly/HPyE50ZNmL1

021 0

canchild.bsky.social @canchild.bsky.social · 10/09/2026

👉 This study explored the perceptions of parents and physiotherapists regarding movement skills in young children (aged 5 years and under) with juvenile idiopathic arthritis (JIA). 🔗 Read more: ow.ly/XBuw50ZLUSI

000 0

canchild.bsky.social @canchild.bsky.social · 08/09/2026

This publication describes a qualitative secondary data analysis of perspectives from two studies that examined how trust is built and maintained when teachers and SLTs work together to implement an interactive Universal Tier 1 reading program. 🔗 Read more: ow.ly/MSzM50ZKJwk

000 0

canchild.bsky.social @canchild.bsky.social · 05/09/2026

👉 Our team of family partners and researchers explored how learners in the FER Leadership Academy felt about the course and how they were using the knowledge and skills gained in the course through interviews with 10 learners. 🔗 Read more: ow.ly/ONz850ZHMuk

010 0

canchild.bsky.social @canchild.bsky.social · 03/09/2026

Back to school, together! 📚🌟 As a new school year begins, we’re excited to highlight two new resources developed through the Partnering for Change (P4C) project! 🔗 Explore the resources! For Educators: ow.ly/EkhG50ZHJ6m For Families: ow.ly/w7Rw50ZHJ6n

001 0

canchild.bsky.social @canchild.bsky.social · 02/09/2026

This open access publication describes an evaluation of a 12-week knowledge translation (KT) initiative designed to strengthen collaboration between occupational therapists and teachers supporting students with special needs in inclusive schools. 🔗 Read more: ow.ly/JofK50ZHLwJ

000 0

canchild.bsky.social @canchild.bsky.social · 01/09/2026

Congratulations to CanChild Associate Member, Dr. Darcy Fehlings, who has been elected a 2026 Fellow of the Canadian Academy of Health Sciences! 🌟 Read more here! 🔗 ow.ly/OlLU50ZHGLK

000 0

canchild.bsky.social @canchild.bsky.social · 31/08/2026

This case report explored how CanChild’s F-words for Child Development and F-words Lens Tool can help healthcare professionals and families think about the many areas of development together when planning support. 🔗 Read more: ow.ly/6jZA50ZHorm

000 0

canchild.bsky.social @canchild.bsky.social · 26/08/2026

How is "vulnerability" defined and used in speech-language pathology (SLP) research — and does it matter? A new critical interpretive synthesis digs into this important question. 🔗 Read the publication here: ow.ly/aMZr50ZCLWv

000 0

canchild.bsky.social @canchild.bsky.social · 24/08/2026

This study aimed to evaluate the feasibility of a multicenter randomized-controlled trial implementing a virtual transition coach intervention (TCI) for youth transitioning from pediatric to adult rheumatology care. 🔗 Read more: ow.ly/5VvJ50ZCLUX

000 0

canchild.bsky.social @canchild.bsky.social · 20/08/2026

This paper describes the development of a new programme: Community Opportunities For Family Engagement and Empowerment, and Play and Learning Accessible for Youth (COFFEE and PLAY). 🔗 Read more: ow.ly/OiKj50ZBYzP

000 0

canchild.bsky.social @canchild.bsky.social · 18/08/2026

This scoping review examined how well social communication interventions for autistic children align with strength-based and family-centred approaches in speech-language pathology (SLP). 🔗 Read more: ow.ly/vahU50ZAHwA

000 0

canchild.bsky.social @canchild.bsky.social · 13/08/2026

This study aimed to identify the perspectives of providers and parents in the NICU/follow-up clinic and early intervention on the supports preterm infants and their families need during the transition to home after the NICU hospital stay. 🔗 Read more: ow.ly/C8Gu50ZyB1R

000 0

canchild.bsky.social @canchild.bsky.social · 11/08/2026

This nationwide study included 456 Brazilian children and adolescents with cerebral palsy (CP) across all Gross Motor Function Classification System (GMFCS) levels, providing one of the largest datasets on physical activity in this population. 🔗 Read more: ow.ly/mnsw50ZyAuo

000 0

canchild.bsky.social @canchild.bsky.social · 07/08/2026

This study translated and validated the About My Child (AMC) questionnaire, a family-centred instrument that assesses caregiver concerns and their perceived impact on daily activities for children and adolescents, into Brazilian Portuguese. 🔗 Read more: ow.ly/k8Lb50Zxenu

000 0

canchild.bsky.social @canchild.bsky.social · 05/08/2026

🌟 CanChild’s co-founder, Peter Rosenbaum, has spent more than four decades helping transform the way the world thinks about childhood-onset disability—and at 82, he's still teaching, researching, and inspiring meaningful change. 🔗 Read the Hamilton Spectator feature: ow.ly/bAjC50ZwBCu

010 0

canchild.bsky.social @canchild.bsky.social · 04/08/2026

This study examined strategies used to support youth and young adults (ages 12–25) with physical disabilities in participating in 127 chosen activities. More than 500 documented intervention strategies were analyzed. Read more: ow.ly/h0Kz50ZwcGl Learn about PREP: ow.ly/nk6w50ZwcGp

001 0

canchild.bsky.social @canchild.bsky.social · 31/07/2026

This nationwide study will investigate participation in recreational and community activities among 500 Brazilian children and adolescents with Autism Spectrum Disorder (ASD) across all five regions of Brazil. 🔗 Read more: ow.ly/537y50ZuunO

000 0

canchild.bsky.social @canchild.bsky.social · 29/07/2026

In this study, parents and service providers participated in the ENVISAGE-Integrated program and shared their experiences. The findings suggest that bringing them together as co-learners may strengthen collaboration and supportive partnerships for children and families. 🔗 ow.ly/nv2l50Zu20q

000 0

canchild.bsky.social @canchild.bsky.social · 28/07/2026

This study describes how families are currently engaged at two childhood-onset disability research organizations, CanChild and Kids Brain Health Network, and the strengths, weaknesses, opportunities, and threats (SWOT) to organizational-level family engagement 🔗 Read more: ow.ly/oms850ZtSJA

002 0

canchild.bsky.social @canchild.bsky.social · 21/07/2026

This review maps how Prechtl's General Movements Assessment and the Motor Optimality Score–Revised have been used in infants with developmental central hypotonia across 12 diagnoses including Down syndrome, hypotonic cerebral palsy, and Prader-Willi syndrome. 🔗 Read more: ow.ly/bHvL50ZlFee

000 0

canchild.bsky.social @canchild.bsky.social · 20/07/2026

This article examines transition-related health systems, policies, and provider roles in the context of Duchenne muscular dystrophy (DMD), utilizing integrated care and continuity of care frameworks. 🔗 Read more: ow.ly/mMIj50ZlEIB

000 0

canchild.bsky.social @canchild.bsky.social · 17/07/2026

In this chapter, Peter Rosenbaum reflects on the evolution of family-centred service in childhood disability and its emergence as a cornerstone of best practice in child and family health care. 🔗 Read the full chapter here: ow.ly/xQ3V50ZloBJ

011 0

canchild.bsky.social @canchild.bsky.social · 15/07/2026

Congratulations to Ummeed Child Development Center on an incredible milestone—25 years of making a difference! 🎉 We are proud to celebrate this achievement with our colleagues and especially with Dr. Roopa Srinivasan, a valued CanChild Associate Member. Congratulations on 25 remarkable years! 🌟

000 0

canchild.bsky.social @canchild.bsky.social · 14/07/2026

The F-words promote a holistic, strengths-based and family-centred approach to child health and development. This study explored family caregivers’ knowledge, attitudes and uses of the F-words as well as their perceived barriers and facilitators to using them. 🔗 Read more: ow.ly/ivWt50ZloAL

000 0

canchild.bsky.social @canchild.bsky.social · 13/07/2026

From the perspective of the International Classification of Functioning, Disability and Health (ICF), this study investigated how different factors influence activity performance and participation in everyday life. 🔗 Read more: ow.ly/jFZF50ZloxL

000 0

canchild.bsky.social @canchild.bsky.social · 10/07/2026

This open-access publication describes a secondary data analysis of service logs and questionnaires completed by 13 school-based occupational therapists (OTs) and 10 occupational therapy assistants (OTAs) providing tiered Partnering for Change services. 🔗 Read more: ow.ly/WXIl50Zlows

000 0

canchild.bsky.social @canchild.bsky.social · 09/07/2026

A newly released feature article shines a spotlight on Donna Thomson, CanChild Associate Member, Family Engagement in Research (FER) Co-Director and Co-Instructor, author, educator, and caregiver advocate. Congratulations, Donna! 🌟 Read the full feature article: ow.ly/iVsK50ZlhCP

000 0

canchild.bsky.social @canchild.bsky.social · 08/07/2026

During the 2026 EACD Conference, six CanChild members were featured on the Research Works Podcast to share their expertise on childhood-onset disability research, family engagement, participation, mobility, and evidence-informed practice! 🎧 Listen here: ow.ly/FcrU50Zlou6!

000 0

canchild.bsky.social @canchild.bsky.social · 06/07/2026

This book, Neurodevelopmental Disorders: Assessment and Intervention in Multiple Contexts, offers a comprehensive look at motor and sensory assessment and intervention for children and adolescents with neurodevelopmental disorders. 🔗 Read more: ow.ly/hI9i50ZkHMS

000 0

canchild.bsky.social @canchild.bsky.social · 01/07/2026

CanChild turns 37 today! 🎉 As we celebrate our 37th anniversary, we reflect on the incredible journey that has brought us here and the many people who have been part of it. Thank you to everyone who has been part of our story. Here's to continuing to learn, innovate, and make a difference—together!

000 0

canchild.bsky.social @canchild.bsky.social · 01/07/2026

Happy Canada Day! 🇨🇦 Today, we celebrate the people, communities, and partnerships that make Canada so special. Together, we're creating meaningful change—here in Canada and around the world.

000 0

canchild.bsky.social @canchild.bsky.social · 30/06/2026

This study tested the MyREADY Transition™ BBD App, a digital tool designed to help youth aged 15–17 with brain-based disabilities (autism, cerebral palsy, epilepsy, fetal alcohol spectrum disorder, and spina bifida) prepare for transition to adult healthcare. 🔗 Read more: ow.ly/6xJ050ZiJs9

000 0

canchild.bsky.social @canchild.bsky.social · 25/06/2026

🎉 Start your engagement journey with the Family Engagement in Research Program (FER) Course! ✨ Learn more: canva.link/fer2026-2027 🔗 Apply: redcap.link/FER26-27 Spots are limited—don’t miss your chance to be part of this incredible learning community!

000 0

canchild.bsky.social @canchild.bsky.social · 24/06/2026

A new study using data from the Brazilian Cerebral Palsy Register (BrCPR) identified key factors associated with school attendance in children, adolescents, and young adults with cerebral palsy (CP). 🔗 Read more: ow.ly/kHUa50ZgkcC

000 0

canchild.bsky.social @canchild.bsky.social · 23/06/2026

This project examined the feasibility of using a knowledge broker (KB) strategy to support clinicians in one large preschool communicative healthcare system in learning about a new clinical tool. 🔗 Read more: ow.ly/aMcM50Ze3ee

000 0

canchild.bsky.social @canchild.bsky.social · 22/06/2026

Our 2025 Annual Report is here! 📖⭐ Thank you for being part of our community and helping us generate knowledge and transform lives! 🌟 Explore the full report here: canchild.ca/wp-content/uploads/2026…

000 0

canchild.bsky.social @canchild.bsky.social · 16/06/2026

Fatigue and sleep problems affect daily life in adults with cerebral palsy (CP). This study assessed the feasibility and preliminary efficacy of two self-guided neurocognitive rehabilitation modules targeting fatigue and sleep in adults with CP. 🔗 Read more: ow.ly/GBbF50ZclVK

000 0

canchild.bsky.social @canchild.bsky.social · 11/06/2026

This study investigated the association between socioeconomic status and cerebral palsy motor function in children, adjusting for known clinical and candidate environmental risk factors, that is, air pollution and distance to a children’s treatment centers. 🔗 Read more: ow.ly/Ngw450ZayNM

000 0

canchild.bsky.social @canchild.bsky.social · 09/06/2026

This study evaluated the effectiveness of a Web-based Early intervention for Children using multimodAl REhabilitation (WECARE) in improving the performance of children (aged 3–8 years) with motor difficulties. 🔗 Read more: ow.ly/NaJ450Z9sIu

000 0

canchild.bsky.social @canchild.bsky.social · 05/06/2026

Parents caring for children with neurodevelopmental disorders face unique and ongoing challenges that impact family well-being. This study explored parents’ perceptions of peer support, focusing on uptake, impact and conditions influencing its effectiveness. 🔗 Read more: ow.ly/5thL50Z85Z1

001 0

canchild.bsky.social @canchild.bsky.social · 04/06/2026

This integrative review proposes the FADS protocol, a standardized biopsychosocial assessment tool for children and adolescents with Down syndrome aged 6 to 17 years, grounded in the International Classification of Functioning, Disability and Health (ICF). 🔗 Read more: ow.ly/x7oF50Z7AhI

010 0

canchild.bsky.social @canchild.bsky.social · 27/05/2026

This study aimed to understand how equity-based co-creation (EqCC) is enacted in health and social services and what outcomes are produced using a multiple case study methodology to explore four sites conducting EqCC projects. 🔗 Read more: ow.ly/qH2l50Z4Keb

010 0

canchild.bsky.social @canchild.bsky.social · 25/05/2026

This paper reports the 30-year history of engagement between CanChild Centre for Childhood-Onset Disability Research and families of children with neurodisabilities. 🔗 Read the publication here: ow.ly/rVcb50Z1NfU

001 0

canchild.bsky.social @canchild.bsky.social · 22/05/2026

This study aimed to examine parents’ experiences with healthcare services for their children with disabilities using the newly updated MPOC 2.0 questionnaire. 🔗 Read more ow.ly/3hjr50Z1MOV 👉 Learn more about MPOC 2.0: ow.ly/bau950Z1MOU

000 0

canchild.bsky.social @canchild.bsky.social · 21/05/2026

COVID-19 profoundly altered daily life and key milestones during the transition to adulthood for Canadian youth with special healthcare needs. The study highlights the need for flexible health, education and community services that accommodate diverse needs. 🔗 Read more: ow.ly/wHHy50Z1LFi

000 0

canchild.bsky.social @canchild.bsky.social · 19/05/2026

This study used the About My Child tool to describe and compare areas of concern reported by caregivers of children and adolescents with Down syndrome across different developmental stages. 🔗 Read more: ow.ly/LePX50Z1IV7 👉 Learn about the About My Child tool: ow.ly/pZ2X50Z1IV8

001 0