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British Polio Fellowship

@britishpolio.bsky.social
36 followers 8 following 247 posts

Our vision is a society where people living with effects of Polio and Post-Polio Syndrome (PPS) have the resources they need to lead full and integrated lives.

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British Polio Fellowship @britishpolio.bsky.social · 17h
By the end of September we’d welcomed 162 new members to the British Polio Fellowship🎉 We’re delighted to have you all as part of our polio community, with access to fellowship, advice, financial support & more. Keep on coming #Polio #PostPolio britishpolio.org.uk/membership/memb…
britishpolio.org.uk
Member Benefits - British Polio Fellowship
Membership Benefits Becoming a member of the British Polio Fellowship connects you with a national community dedicated to supporting people living with the late effects of polio. As a member, you gain access to personalised support, exclusive resources, and the chance to shape and strengthen the Fellowship itself. Below is a full list of benefits […]
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British Polio Fellowship @britishpolio.bsky.social · 07/10/2026
Sleep Apnoea Patient Event on Sat 17 Oct - DoubleTree Hotel Hull HU2 8NH 10am - 4pm *Meet leading CPAP manufacturers *Hear from top sleep experts *Discover alternatives to CPAP *Q&As A great line up of expert speakers. More info: hope2sleep.org/10th-anniversary-pat…
hope2sleep.org
Patient Day - Sleep Apnoea & Sleep Disordered Breathing
To mark Hope2Sleep's 10-year Anniversary Celebration as a registered charity, we’re organising a dedicated Patient Day designed with patients at its heart and…
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British Polio Fellowship @britishpolio.bsky.social · 05/10/2026
Join us on Thursday 22 October at 11:00am ahead of World Polio Day to mark the significance of the day & remember everyone affected by polio To register: britishpolio.org.uk/support-for-you… #Polio #PostPolioSyndrome #EndPolio
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British Polio Fellowship @britishpolio.bsky.social · 02/10/2026
Over 8,600 people have signed an open letter calling for a national plan for neurology & Modern Service Framework. With 40+ organisations endorsing our report (inc BPF), the response has been fantastic. Thank you You can still sign before 11.59pm, 13 October 2026. www.neural.org.uk/neuromsf
neural.org.uk
Neurological Conditions: the case for a Modern Service Framework – The Neurological Alliance
We're calling for a Modern Service Framework for neurological conditions to deliver real change for millions of people. Read our case for change.
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British Polio Fellowship @britishpolio.bsky.social · 01/10/2026
'This is how walking used to feel': AI-powered 'exo-suits' surge into the mainstream There's no reason post #polio shouldn't be on the list! One to watch www.itv.com/news/2026-09-29/ai-powe… Martin Stew ITV News
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British Polio Fellowship @britishpolio.bsky.social · 30/09/2026
We're celebrating two particular #volunteers - George Allan & Dr Robin Luff. They have received this years' BPF Barbara Wood Citizens Awards for their outstanding dedication & contribution to the #polio community🎈✨ britishpolio.org.uk/celebrating-our…
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British Polio Fellowship @britishpolio.bsky.social · 29/09/2026
👏Congrats to the winners of the 2026 Richard Flint awards: #PHOTOGRAPHY - Violet Roe, Louis Ricafort, Hansa Varsani #POETRY - Fiona Clark, George Allan, Lottie Brookfroth #ART - Diane Hayes, Franco Marinelli, Moz Copestake britishpolio.org.uk/announcing-the-…
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British Polio Fellowship @britishpolio.bsky.social · 28/09/2026
Stories like this are a powerful reminder of what’s at stake in the fight against #polio. Complacency and declining confidence in vaccination could give this devastating disease an opportunity to return #poliosurvivors #EndPolio www.bbc.co.uk/news/articles/c9lykpd…
bbc.co.uk
'I was born while my mother was in an iron lung'
Susan's mother, Elizabeth, was five months pregnant when she contracted polio in the 1950s.
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British Polio Fellowship @britishpolio.bsky.social · 25/09/2026
Next month - on Saturday 24 October, it will be World Polio Day when we'll remember the impact #polio has had, and continues to have, on lives across the UK and around the world. Let us know what you will be doing on 24 October. #WorldPolioDay #BritishPolioFellowship #PostPolioSyndrome #EndPolio
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British Polio Fellowship @britishpolio.bsky.social · 23/09/2026
Do you have a copy of our Optimal Clinical Pathway for Polio Survivors to give to your GP, consultant or other healthcare provider? If you need a copy contact us by calling 0800 043 1935 or email info@britishpolio.org.uk #Polio #PostPolioSyndrome #PPS #ClinicalPathway #BritishPolioFellowship
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British Polio Fellowship @britishpolio.bsky.social · 21/09/2026
Good sleep is an important part of looking after your health & wellbeing. If you’re living with the late effects of polio or Post-Polio Syndrome (PPS) our Sleep Guide offers helpful information & practical advice: britishpolio.org.uk/survivors-guide… #Polio #SleepSupport
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British Polio Fellowship @britishpolio.bsky.social · 18/09/2026
Need financial help to buy new aids or equipment to improve your mobility? If you are a #polio survivor & UK resident the British Polio Fellowship may be able to help. Call us on 0800 043 1935, Monday–Friday, 10am–3pm, to find out more. #PostPolioSyndrome #Mobility #BritishPolioFellowship
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British Polio Fellowship @britishpolio.bsky.social · 15/09/2026
We're having our Annual General Meeting (AGM) this year online (Zoom) on Thursday 17 September at 11:00am. All members are warmly welcome to join us, look back on the highlights of the past year, and have your say. #polio Register here: us06web.zoom.us/meeting/register/Ow…
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British Polio Fellowship @britishpolio.bsky.social · 13/09/2026
It's Positive Thinking Day" Look for the silver lining, celebrate the tiny wins. A positive mindset won’t fix everything… but it makes the journey a lot less dramatic. Stay positive (or positive-ish)😉 britishpolio.org.uk/celebrating-nat… #PositiveThinkingDay #polio
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British Polio Fellowship @britishpolio.bsky.social · 10/09/2026
Moving permanently to Scotland? Your disability or carer benefit may not automatically continue! Tell DWP/NI Department for Communities about your move & apply for Scottish equivalent benefits, e.g. Adult Disability Payment, Pension Age Disability Payment, Scottish Adult DLA, Carer Support Payment
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British Polio Fellowship @britishpolio.bsky.social · 08/09/2026
British Polio Fellowship backs call for neurology reform in Northern Ireland britishpolio.org.uk/british-polio-f…
britishpolio.org.uk
British Polio Fellowship backs call for neurology reform in Northern Ireland - British Polio Fellowship
The British Polio Fellowship (BPF) is throwing its full support behind a new report calling for urgent reform of neurology services in Northern Ireland, warning that polio survivors living with the late effects of polio and post-polio syndrome are among those being failed by a system stretched far beyond its limits. The report, “Left Behind: […]
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British Polio Fellowship @britishpolio.bsky.social · 07/09/2026
Today, BPF joined our Northern Ireland (NI) partners in niNCA, members of the neurological community & local MLAs, calling for urgent investment in neurology services. 🧠 👉 Read the full report: ow.ly/MiQq50ZKpPZ #FightForNeuro #NeurologyReformNI #niNCA #NorthernIreland #polio
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British Polio Fellowship @britishpolio.bsky.social · 07/09/2026
Our 20 August Zoom Café featured Rachel Freeman from Age UK who provided a helpful overview of NHS Continuing Healthcare (CHC). Watch a recording of the presentation here: britishpolio.org.uk/support-for-you…
britishpolio.org.uk
Zoom Café Past Recordings - British Polio Fellowship
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British Polio Fellowship @britishpolio.bsky.social · 04/09/2026
Meet Neddy! This rare, historic rocking horse has been beautifully restored & gifted for auction in aid of the British Polio Fellowship. With a century more rocking in him, Neddy's ready for his next home #polio #auction www.crowdfunder.co.uk/p/british-pol…
crowdfunder.co.uk
British Polio Fellowship Win a Rocking Horse
Win an antique rocking horse and support the British Polio Fellowship
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British Polio Fellowship @britishpolio.bsky.social · 03/09/2026
Neurological conditions cost Northern Ireland £2.72bn every year Investing just £13m a year in neurology reform could save nearly £870m annually through reduced healthcare costs, increased productivity and support for unpaid carers. Read the report: shorturl.at/YnZ5v #FightForNeuro
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British Polio Fellowship @britishpolio.bsky.social · 02/09/2026
Millions are at risk of Post-Polio Syndrome, and health systems aren’t ready www.bloomberg.com/news/articles/202…
bloomberg.com
Millions Are at Risk of Post-Polio Syndrome, and Health Systems Aren’t Ready
The UK health system hasn’t figured out how to care for its roughly 50,000 polio survivors, a problem soon to be replicated around the globe.
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British Polio Fellowship @britishpolio.bsky.social · 01/09/2026
Siobhan Sargeant has raised an amazing £1,629 for the British Polio Fellowship by completing the gruelling Yorkshire Three Peaks Challenge in memory of her parents, Reg and Sheila, who both lived with the effects of polio www.justgiving.com/page/siobhan-sar…
justgiving.com
Siobhan's fundraiser for British Polio Fellowship
Help Siobhan Sargeant raise money to support British Polio Fellowship
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British Polio Fellowship @britishpolio.bsky.social · 31/08/2026
Have you been affected by polio? Join our Lived Experience Group to review and provide feedback on guides and resources before they’re shared with the wider #polio survivor community. If you’d like to get involved, contact us at info@britishpolio.org.uk or call us on 0800 043 1935.
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British Polio Fellowship @britishpolio.bsky.social · 28/08/2026
QUESTION: Experiencing muscle or joint pain and weakness? QUESTION: Had #polio in the past? ANSWER: It could be post-polio syndrome #PPS. ACTION: Call us on 0800 043 1935, email info@britishpolio.org.uk or check our website www.britishpolio.org.uk
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British Polio Fellowship @britishpolio.bsky.social · 26/08/2026
Carers shouldn’t have to battle a broken system to get the care people with complex health needs are entitled to. NHS Continuing Healthcare (CHC) needs urgent reform. Add your voice and call on the UK Government to fix CHC: action.dementiauk.org/fix-nhs-conti…
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British Polio Fellowship @britishpolio.bsky.social · 25/08/2026
Join us for this year’s Annual General Meeting (AGM)! It's on Thursday 17 September at 11:00am. It'll all take place online via Zoom, so no travelling required, except perhaps to make a cup of tea before we start! ☕️ Register here: us06web.zoom.us/meeting/register/Ow…
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British Polio Fellowship @britishpolio.bsky.social · 21/08/2026
Dear polio survivors - We need your poems! Got a poem you're proud of? Enter the Richard Flint Awards for Poetry for your chance to win one of 3 prizes! The deadline (by email or post) is 31 August. Don’t miss your chance to be celebrated. #polio #RichardFlintAwards
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British Polio Fellowship @britishpolio.bsky.social · 19/08/2026
Don't forget to join us tomorrow at 11am it could save you thousands of £s in care costs. NHS Continuing Healthcare (CHC) provides 100% NHS-funded care for people with significant health needs. Learn more: britishpolio.org.uk/support-for-you…
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British Polio Fellowship @britishpolio.bsky.social · 18/08/2026
Calling #polio survivors - an opportunity to help design changes to PIP Workshops are taking place late September/early October, online or in person Find out more or apply by Fri 21 August 5pm www.gov.uk/government/news/disabled…
gov.uk
Disabled people invited to shape recommendations of review into PIP
The Timms Review launched last October with the aim of making sure PIP is fair and fit for the future. Its Interim Report, published in July 2026, found that PIP is no longer fit for purpose.
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British Polio Fellowship @britishpolio.bsky.social · 17/08/2026
The BPF write to Sarah Champion, Labour chair of the International Development Committee, to offer support for restoring UK funding to the GPEI #polio www.express.co.uk/news/politics/223…
express.co.uk
Polio 'could return' after vaccination funding cut
Experts issue warning after polio funding was cut
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British Polio Fellowship @britishpolio.bsky.social · 17/08/2026
UNESCO has commemorated the 100th anniversary of the Chinese scientist Dr. Gu Fangzhou whose pioneering "sugar pill" polio vaccine which helped protect millions of children. #UNESCO #PublicHealth #Vaccines #Polio #GuFangzhou #GlobalHealth www.econtransition.com/en/news/1kj0…
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British Polio Fellowship @britishpolio.bsky.social · 14/08/2026
Do you know someone who's gone the extra mile for the British Polio Fellowship? We're inviting nominations for both #polio members and non-polio supporters who have shown outstanding dedication to the Fellowship. Deadline: 31 August To nominate someone, email info@britishpolio.org.uk
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British Polio Fellowship @britishpolio.bsky.social · 12/08/2026
Daughter of #polio survivor Mary Guild, Pauline Guild Pearce will be lacing up her boots & straightening her tartan for the #DundeeKiltwalk on 16 August - raising funds for the BPF To support Pauline donate here: www.justgiving.com/.../paulinepearc… #Kiltwalk #Fundraising
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British Polio Fellowship @britishpolio.bsky.social · 11/08/2026
Are you creative? Whether you write poetry, create artwork, or capture stunning photographs, why not enter the Richard Flint Award? Submit your original work in art, poetry &/or photograph for a chance to win! Entries close: 31 August. For entry details, email info@britishpolio.org.uk
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British Polio Fellowship @britishpolio.bsky.social · 09/08/2026
Join us for our next Zoom Café on Thursday 20 August at 11:00am to learn about NHS Continuing Healthcare (CHC). It could save families thousands of pounds in care costs. Register here: britishpolio.org.uk/support-for-you…
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British Polio Fellowship @britishpolio.bsky.social · 08/08/2026
Naidex Roadshow South is coming to Farnborough International on 9 September 9:30am–4:30pm. Talks & exhibition stands focused on disability, accessibility & independent living. Free tickets: forms.reg.buzz/naidex-roadshow-sout… More info: www.naidex.co.uk/naidex
naidex.co.uk
Naidex
Running for over 50 years, Naidex is the most established platform for the disability community. It brings together a powerful community of innovators, care pro
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British Polio Fellowship @britishpolio.bsky.social · 06/08/2026
Musician & writer Moz Copestake joins Louisa at Radio Dacorum to share a story that's deeply personal, along with the wisdom & experiences he's gathered throughout his life as a writer: www.mixcloud.com/radiodacorum/your-…
mixcloud.com
Your Words - Episode 5: Moz Copestake talks to author and poet Louisa Guise by RadioDacorum
Musician and Writer Moz Copestake, also known as Moz the Hippy, shares a piece close to his heart with Louisa, as well as a wealth of knowledge and experience from his life as a writer. Find out more about Moz via Facebook: https://www.facebook.com/moz.copestake Tringu3a, Moz's writer's group, also have a website: https://www.tringu3a.org.uk/
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British Polio Fellowship @britishpolio.bsky.social · 05/08/2026
What should you look for when choosing a care home? At our July Zoom Café, Sanjay Dhrona reflected on 10 yrs running a care home, sharing insights on leadership, resident choice & care costs. Watch the recording: britishpolio.org.uk/recording/care-… #SocialCare #CareHomes
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British Polio Fellowship @britishpolio.bsky.social · 04/08/2026
Polio is preventable, but only if we keep vaccination rates high. Protect your child from a disease that can cause lifelong paralysis. Keeping up with recommended #polio vaccinations helps protect your family & community #VaccinesWork #PolioPrevention www.bbc.co.uk/news/articles/c0qvlw2…
bbc.co.uk
The real reason child vaccination rates are falling
As child immunisation rates fall across the UK, one clinic in west Yorkshire is taking aggressive steps to boost immunisations
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British Polio Fellowship @britishpolio.bsky.social · 03/08/2026
BPF supporter Moz Copestake joins Radio Dacorum how Your Words hosted by author & poet Louisa Guise. Moz shares his personal experience of #polio & Post-Polio Syndrome (PPS) & discusses his own Polio in Music book series Listen on Wednesday 5 August at 8.00pm online: www.radiodacorum.org.uk
radiodacorum.org.uk
Home - Radio Dacorum
Radio Dacorum Community Radio Welcome to Radio Dacorum, your independent community-based radio...
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British Polio Fellowship @britishpolio.bsky.social · 01/08/2026
Congratulations to #polio survivor Peter Cusack who captained Team England’s 3×3 wheelchair basketball squad at this years' Commonwealth Games in Glasgow britishpolio.org.uk/captain-cusack-…
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British Polio Fellowship @britishpolio.bsky.social · 31/07/2026
Do you rely on eleci or water for medical equipment, have a disability, or are of pensionable age? The Priority Services Register provides free support, including during interruptions to your eleci/gas/water supply britishpolio.org.uk/have-you-regist…
britishpolio.org.uk
Have you registered with the Priority Services Register? - British Polio Fellowship
As the UK experiences another heatwave of the summer, with amber heat-health alerts in place across London, the South East, the East of England and the East Midlands, energy and water companies are seeing an increase in people signing up for extra support through the Priority Services Register (PSR). The PSR is a free scheme […]
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British Polio Fellowship @britishpolio.bsky.social · 30/07/2026
Registrations are now OPEN for our National Indoor Games 19–21 March 2027 Join #polio survivors from across the UK for a weekend of friendly competition, fun and friendship. Events include Scrabble, Cribbage, Dominoes, Darts & more. Register directly with us – no need to apply through your Branch.
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British Polio Fellowship @britishpolio.bsky.social · 28/07/2026
The National Innovation Centre for Ageing (NICA) & Voice at Newcastle University are looking for people across UK to share their experiences of accessibility, safety, independence in the bathroom. Complete an online survey by 5 August. Take part here: uknica.typeform.com/to/RyOMyrHK
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British Polio Fellowship @britishpolio.bsky.social · 26/07/2026
Polio conference highlights ongoing need for awareness and support britishpolio.org.uk/polio-conferenc…
britishpolio.org.uk
Polio conference highlights ongoing need for awareness and support - British Polio Fellowship
A conference focusing on the late effects of polio and post-polio syndrome revealed that many of those affected by the condition still feel under-supported. The British Polio Fellowship’s Health and Wellbeing Conference, held on 4 July at the Hilton Doubletree Hotel in Elstree, brought together around 86 attendees, including several speakers who shared personal experiences […]
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British Polio Fellowship @britishpolio.bsky.social · 24/07/2026
One complication of Post-Polio Syndrome (PPS) is increased risk of falls. As muscle weakness & fatigue increase maintaining your balance becomes more difficult, affecting mobility & independence. Physiotherapy can help improve strength & balance to reduce the risk of future falls. Talk to your GP
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British Polio Fellowship @britishpolio.bsky.social · 22/07/2026
Great news for polio survivors in Wales Our Optimal Clinical Pathway for Polio Survivors has been integrated into the All Wales Community HealthPathways Programme. Healthcare professionals from all seven Welsh health boards can now access it. A major step forward britishpolio.org.uk/2679-2
britishpolio.org.uk
Wales adopts national clinical pathway to improve care for polio survivors - British Polio Fellowship
Wales runs a program called the All Wales Community HealthPathways Programme, a shared clinical guidance system that helps GPs, nurses, and other healthcare professionals follow the same best-practice care advice. The programme is used by all seven Welsh health boards: Aneurin Bevan, Betsi Cadwaladr, Cardiff and Vale, Cwm Taf Morgannwg, Hywel Dda, Swansea Bay, and […]
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British Polio Fellowship @britishpolio.bsky.social · 19/07/2026
Up to 80% of people who survived #polio eventually experience Post-Polio Syndrome (PPS). Those who had more severe cases of polio or regained significant muscle function after recovery may face a higher risk. Learn more: britishpolio.org.uk/about-polio/aft…
britishpolio.org.uk
Symptoms - British Polio Fellowship
People who had polio can develop Late Effects of Polio (LEoP) at any time, even years after their initial illness. But not everyone who had polio will experience these late effects. Those who were more severely affected by polio, especially those individuals who suffered significant paralysis, will tend to be at a higher risk of […]
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British Polio Fellowship @britishpolio.bsky.social · 16/07/2026
Neurological conditions cost the UK £96 billion a year, driven by people being forced out of work because the right treatment, care and support is not there. We can’t afford not to act. Pls sign this open letter. Thank you. campaigns.mssociety.org.uk/page/194…
campaigns.mssociety.org.uk
Sign the open letter
I've signed the petition to Fix PIP. People with MS shouldn't have to fight to access the support they're entitled to. Join me and sign today
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British Polio Fellowship @britishpolio.bsky.social · 14/07/2026
In Northern Ireland its over a year since the Regional Review of Neurological Service consultation closed. Nothings been actioned! Join us Mon 7 Sept 10:15am the steps of Stormont for a photo + call for neuro services to be prioritised & funded Sign up tinyurl.com/4d6uatf2 #FightforNeuro
tinyurl.com
7 September - #FightForNeuro Photo Call
Please fill out this form to register for our upcoming #FightForNeuro photo call: Date: Monday 7 September Time: Photo at 10.15 Venue: Stormont, Parliament Buildings Please complete a separate registration form for each person attending to give us an accurate idea of numbers. Location: The photo call is taking place on the flat area at the bottom of the Stormont steps to ensure it is as accessible as possible. Accessible Parking: Please note that accessible parking is available at Stormont, but spaces are limited and will be allocated on a first-come, first-served basis. By sharing...
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