iiinova — where your digital self keeps evolving

Betsy Pilon @betsypilon.bsky.social · 07/05/2026

It’s a great day in the Great Lakes (and inland lakes) when the neighborhood dock and lifts go in! 🚤 🎉

Betsy Pilon @betsypilon.bsky.social · 04/05/2026

On my way to the ONE Conference…and do you ever look at something so beautiful you just can’t believe you are so lucky to witness it? Today that was the Rockies from 30k feet.

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Betsy Pilon @betsypilon.bsky.social · 28/11/2025

SELECT ITEMS FROM HOPE FOR HIE'S CAFEPRESS STORE ARE 50% OFF TODAY! Grab some swag! www.cafepress.com/profile/Hope... @hopeforhie.org

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Betsy Pilon @betsypilon.bsky.social · 10/10/2025

With some of my favorite 🧠 peeps. #CNSAM

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Betsy Pilon @betsypilon.bsky.social · 01/10/2025

Soaking up every moment of bonus summer. The water is holding at 74/75.

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Betsy Pilon @betsypilon.bsky.social · 15/07/2025

When the little one gets the whole wakeboarding thing like a champ. Perfect end to a manic Monday.

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Betsy Pilon @betsypilon.bsky.social · 14/07/2025

10 years ago was really the start of my advocacy journey and finding a taste of success. The article below was published in July 2015 on the #NICHD website, elevating HIE awareness to a bigger audience. Read it below: go.usa.gov/3fp3M

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Betsy Pilon @betsypilon.bsky.social · 12/07/2025

Abandoned truck and trailer at our neighborhood boat ramp. 😆

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Betsy Pilon @betsypilon.bsky.social · 19/06/2025

Discovery of the VapoRub inventor whilst in Greensboro, NC.

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Betsy Pilon @betsypilon.bsky.social · 15/06/2025

Happy Father’s Day to this absolutely stellar human.

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Betsy Pilon @betsypilon.bsky.social · 24/04/2025

How it started. How it’s going. Happy 13th to the coolest kid I’ve ever known. And I get to spend time at #PAS2025 with some of the pioneers in cooling who are a part of why he’s here today and living his best life. #NeoSky #NeuroSky

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Betsy Pilon @betsypilon.bsky.social · 20/04/2025

Morning sunrise in paradise. 🌅

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Betsy Pilon @betsypilon.bsky.social · 16/04/2025

New swag for #PAS2025 — catch @hopeforhie.org in the advocacy area Friday night! 🧠☀️🎉 #NeoSky #NeuroSky #NewbornBrains #NICU

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Betsy Pilon @betsypilon.bsky.social · 10/04/2025

We are at the “it feels like the eternal winter in the Lion, Witch and the Wardrobe” phase of Michigan spring. 🥶🥶🥶🥶🥶 Working under the heated blanket today.

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Betsy Pilon @betsypilon.bsky.social · 03/04/2025

Well over 100 people protesting our local Tesla dealership. ✊

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Betsy Pilon @betsypilon.bsky.social · 02/04/2025

#HIEawarenessmonth is in its TENTH YEAR -- how??? Why??? Because there was NO awareness, advocacy, or support for HIE families before families and leader in @hopeforhie.org stepped up for a community that historically had been excluded from #NICU advocacy, QI, representation, research and more.

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Betsy Pilon @betsypilon.bsky.social · 24/03/2025

I’ve been coming to this place since I was an infant with snowbird grandparents. I have such a love/loathe for FL. Enjoy a picture looking out past the Pink Palace into the Gulf of Mexico.

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Betsy Pilon @betsypilon.bsky.social · 18/03/2025

When the school therapy dog forces her head in your lap during the IEP… Daisy Mae just gets me. 😂🐾 The IEP went very well, but it always brings extra anxiety.

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Betsy Pilon @betsypilon.bsky.social · 15/03/2025

Over on the other app, there’s some discussion of lumping death with severity as an outcome measure. We know #NDI needs an overhaul. Lumping moderate #HIE, or even severe, with death is diabolical. Moderate HIE attached: #NeoSky #NeuroSky #NICU

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Betsy Pilon @betsypilon.bsky.social · 13/03/2025

For anyone in or around #NYC on June 26th, please consider attending and supporting this incredible piece by fellow @hopeforhie.org parent, Laura Sanchez. "Welcome to Holland?" is in reference to a popular poem about raising a child with disabilities. www.eventbrite.com/e/welcome-to...

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Betsy Pilon @betsypilon.bsky.social · 12/03/2025

Never did I ever think I’d be watching an extreme stunt pogo stick team. Thanks @detroitpistons.bsky.social 😂.

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Betsy Pilon @betsypilon.bsky.social · 09/03/2025

A perfect mug for a walk down to the lake during #CerebralPalsyAwarenessMonth. 🧠💚☕️ @cprn-org.bsky.social

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Betsy Pilon @betsypilon.bsky.social · 06/03/2025

All that work today to build #ScientificLiteracy and Zach hops into the chat…

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Betsy Pilon @betsypilon.bsky.social · 01/03/2025

I hope everyone can do something ridiculous to make them happy this weekend like Mike did ordering a 24” pizza to feed the neighbors last night.

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Betsy Pilon @betsypilon.bsky.social · 23/02/2025

Nothing, and I mean nothing, prepared me for the amount of six year olds with spray tans, twerking and inappropriate costuming at Em’s first dance competition yesterday… …I remain ballet forever. 😆🩰

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Betsy Pilon @betsypilon.bsky.social · 21/02/2025

Waved at our lake (Apple Island very prominent) as we loop to land! Can’t wait to see the fam bam.

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Betsy Pilon @betsypilon.bsky.social · 21/02/2025

Oof. My heart. Flying in and out of San Diego is a new favorite. Back to the frozen Mitten. Until next time! ☀️🩵🌴

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Betsy Pilon @betsypilon.bsky.social · 21/02/2025

Some of my favorite people on the planet. ☀️🩵🧠

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Betsy Pilon @betsypilon.bsky.social · 20/02/2025

Every Monday at 3 pm this amazing group meets to move forward the @hopeforhie.org registry and we got to see each other off of Zoom today! @cprn-org.bsky.social @espeeples.bsky.social #NeoSky #NeuroSky #HopeforHIE

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Betsy Pilon @betsypilon.bsky.social · 07/02/2025

We have regular deer but I’ve never seen a whole herd making their way down the middle of the street during the day. #OhDeer #PureMichigan

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Betsy Pilon @betsypilon.bsky.social · 04/02/2025

“Eff you, you effing c&$t” (in front of my kids, teachers, other kids) — Dude who I asked to not block the ♿️accessible♿️ ramps (both) with his massive truck so I could safely drop my kid off at school today, and others could drop their kids off, too. Keep it classy, Bloomfield Hills.

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Betsy Pilon @betsypilon.bsky.social · 29/01/2025

Despite this administration trying to erase DEIA and promote xenophobia, I’m proud to raise my kids to learn about my work with global colleagues. She loved learning where all of the Newborn Brain Society board is from. #NeoSky #NewbornBrains

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Betsy Pilon @betsypilon.bsky.social · 27/01/2025

Beautiful #PureMichigan day to ground myself with family and friends.

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