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Barrett's Support

@barrettssupport.bsky.social
77 followers 50 following 336 posts

Concerned with Acid Reflux, Barrett's Oesophagus, associated conditions, treatments and management. Website: Barretts.org.uk and DownWithAcid.org.uk

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Barrett's Support @barrettssupport.bsky.social · 16h
Does Trump's Bible contain Revelation 13 vs 3-8? "And the beast was given a mouth uttering haughty and blasphemous words, and it was allowed to exercise authority for forty-two months." How much longer still to run? www.bible.com/bible/1/REV....
bible.com
Bible - Bible App
Encouraging and challenging you to seek intimacy with God every day.
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Barrett's Support @barrettssupport.bsky.social · 01/10/2026
THIS IS NONSENSE! Ridiculous advert which I didn't open, suggests LPR somehow avoids the oesophagus! 48% of women, 22% of men with Barrett's don't get heartburn (2023 survey of 200). LPR is described here: sites.google.com/view/down-wi...
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Barrett's Support @barrettssupport.bsky.social · 26/09/2026
Unusual symptoms (that could be reflux): That pain behind the eyes can be sinusitis from aspirated refluxate. You don't need expensive sinus rinses. Snorting clean drinking water can help. See sites.google.com/view/down-wi...
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Barrett's Support @barrettssupport.bsky.social · 25/09/2026
Unusual symptoms. Ringing, drumming or buzzing sounds in your ear? Tinnitus can be caused by reflux. See sites.google.com/view/down-wi...
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Barrett's Support @barrettssupport.bsky.social · 24/09/2026
Unusual symptoms. Dry and gritty eyes can be a symptom of extra-oesophageal reflux. "Studies showed a correlation between GERD/LPR and ocular discomfort," sites.google.com/view/down-wi...
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Barrett's Support @barrettssupport.bsky.social · 23/09/2026
Unusual symptoms. Smell burnt toast but it's only your imagination? Phantosmia can be a symptom of extra-oesophageal reflux. sites.google.com/view/down-wi...
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Barrett's Support @barrettssupport.bsky.social · 14/09/2026
Things people get wrong (even some doctors)! 10. Barrett's isn't that rare. According to research, probably 1 person in every 20 actually has it, though only 1 in 20 of them know. drive.google.com/file/d/1-1fF...
drive.google.com
X How common is Barrett's.odt
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Barrett's Support @barrettssupport.bsky.social · 13/09/2026
Things people get wrong (even some doctors)! 9. PPIs do not cause osteoporosis. During child-bearing years, oestrogen protects women's bones and protects against acid refux. As they lose oestrogen, they may start PPIs for acid reflux. See sites.google.com/view/down-wi...
sites.google.com
Down With Acid - Oestrogen
Oestrogen helps protect the oesophagus against acid erosion. The purpose of this is probably protection during pregnancy when acid reflux is more likely to occur as the growing foetus pushes the stoma...
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Barrett's Support @barrettssupport.bsky.social · 12/09/2026
Things people get wrong (even some doctors)! 8. Various studies notice a correlation between PPI use and dementia. However, when studies look for a connection, they find none. Dementia is found in older people; they are more likely to use PPIs. It's an umbrella conundrum.
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Barrett's Support @barrettssupport.bsky.social · 11/09/2026
Things people get wrong (even some doctors)! 7. It used to be thought PPI induced hypochlorhydria meant malabsorption of essential minerals but they are absorbed in the duodenum, not the stomach. PPIs don't cause anaemia. See sites.google.com/view/down-wi...
sites.google.com
Down With Acid - PPI safety
Proton Pump Inhibitors are amongst the most prescribed drugs in the world but how safe are they? Controversy over long term medication
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Barrett's Support @barrettssupport.bsky.social · 10/09/2026
Things people get wrong (even some doctors)! 6. If you have Barrett's, you still need PPIs once oesophagitis has healed. They can reduce cancer risk by inducing apoptosis in mutating cells. See sites.google.com/view/down-wi...
sites.google.com
Down With Acid - Reducing Cancer risk
Oesophageal AdenoCarcinoma is invariably a mutation of cells of Barrett's Oesophagus.
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Barrett's Support @barrettssupport.bsky.social · 09/09/2026
Things people get wrong (even some doctors)! 5. Anti-reflux surgery does not reduce risk of cancer. Barrett's cells remain and can still mutate. sites.google.com/view/down-wi...
sites.google.com
Down With Acid - Surgery & Cancer risk
This is updated from a page originally provided by Barrett's Wessex charity.
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Barrett's Support @barrettssupport.bsky.social · 08/09/2026
Things people get wrong (even some doctors)! 4. Barrett's doesn't change into cancer over time. Its cells can mutate like any other cell but PPIs help reduce the risk. sites.google.com/view/down-wi...
sites.google.com
Down With Acid - Reducing Cancer risk
Oesophageal AdenoCarcinoma is invariably a mutation of cells of Barrett's Oesophagus.
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Barrett's Support @barrettssupport.bsky.social · 07/09/2026
Things people get wrong (even some doctors)! 3. Barrett's Oesophagus is not a disease. There is nothing to cure. It is the permanent addition of acid resistant cells to the lower oesophagus to protect against erosion. sites.google.com/view/down-wi...
sites.google.com
Down With Acid - Barrett's Oesophagus
A perceived possible progression Acid Reflux -> Oesophagitis -> Barrett's Oesophagus -> Oesophageal cancer Acid refluxing into the oesophagus may wash aside the mucous lining and attack the squamous c...
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Barrett's Support @barrettssupport.bsky.social · 06/09/2026
Things people get wrong (even some doctors)! 2. Acid suppressant medicines (e.g. PPIs) do not stop reflux. They only stop acid. Reflux must be controlled by lifestyle modifictions as described here: sites.google.com/view/down-wi...
sites.google.com
Down With Acid - Reflux remedies
To prevent reflux naturally. Think of the stomach as a balloon full of liquid. The Lower Oesophageal Sphincter should hold the neck tight shut. However, for some people it doesn't work as well as it s...
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Barrett's Support @barrettssupport.bsky.social · 05/09/2026
Things people get wrong (eve some doctors)! 1. Trigger foods don't cause reflux. (Some may cause heartburn in some people.) Learn about reflux here: sites.google.com/view/down-wi...
sites.google.com
Down With Acid - Reflux explained
Reflux is the backflow of anything through a sphincter, which acts like a valve in the human body. There are around 60 sphincters in the human body, six of which are part of the digestive tract but th...
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Barrett's Support @barrettssupport.bsky.social · 02/09/2026
Since stopping my statins, my swallowing has improved and my chest pain (stitch type that becomes angina if I ignore it) is absent. Might my micro-vascular dysfunction have been from aspirated microparticulates that resolving my cricopharyngeal dysfunction has solved?
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Barrett's Support @barrettssupport.bsky.social · 01/09/2026
I stopped taking statins a few weeks ago and now my cricopharyngeal dysfunction appears to ave improved. I can swallow again. And I found this study; pmc.ncbi.nlm.nih.gov/articles/PMC... (12/60 members on statins in the FB group also notice reduced motility.)
pmc.ncbi.nlm.nih.gov
A tough pill to swallow: Two cases of statin-induced necrotizing autoimmune myopathy manifesting as dysphagia and transaminitis
Although 3-hydroxy-3-methyl-glutaryl-coenzyme A (HMG-CoA) reductase inhibitors are well tolerated, a small subset of patients may develop autoimmune myopathy, classified as immune-mediated necrotizing...
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Barrett's Support @barrettssupport.bsky.social · 31/08/2026
A member of our Facebook group is running in next year's London Marathon to raise funds for @OPA charity. He is looking for sponsors here: 2027tcslondonmarathon.enthuse.com/pf/phil-miller
2027tcslondonmarathon.enthuse.com
Phil’s Road from Recovery to 26.2
Running the London Marathon for OPA Cancer Charity ❤️ In 2027, I’ll be taking on the London Marathon to raise money for OPA Cancer Charity, with a fundraising target of £2,000 — although I’m hoping to
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Barrett's Support @barrettssupport.bsky.social · 31/08/2026
Did you know reflux can affect your eyes? See sites.google.com/view/down-wi...
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Barrett's Support @barrettssupport.bsky.social · 30/08/2026
It's not just heartburn! From surveys conducted in 2023 with 200 refluxers who had developed the potentially pre-cancerous condition, Barrett's Oesophagus, 48% of women and 22% of men did not experience heartburn, whence it may be called "Silent Reflux". www.academia.edu/105279189/Id...
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Barrett's Support @barrettssupport.bsky.social · 29/08/2026
It's not just heartburn! "Even once he’d developed an unexplained cough and had lost interest in food, doctors continued saying the cough was nothing to worry about." "Dan died six weeks after the diagnosis" www.gbnews.com/health/cance...
gbnews.com
Widow shares warning signs of cancer that killed husband, 42, six weeks after diagnosis
The Briton was dismissed by doctors for months despite taking daily antacids and suffering from a persistent cough
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Barrett's Support @barrettssupport.bsky.social · 27/08/2026
In last week, many new members realising tinnitus, dizziness, hearing problems, earache etc due to their reflux. It also affects throat, mouth, nose. See sites.google.com/view/down-wi...
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Barrett's Support @barrettssupport.bsky.social · 14/08/2026
Taking a statin break because: 1. Restless legs worse 2. LDL never high in summer 3. No heart problem (confirmed by cardio) 4. Only "stroke" was minor lacunar infarq caused by angiogram Should I tell my doctor? Also this: www.thelancet.com/journals/lan...
thelancet.com
Statin discontinuation in older adults: changing the conversation, not the default
Few questions in preventive cardiology are more common, or more difficult to address, than deciding when preventive therapy should be stopped. For adults who reach their late seventies after years of ...
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Barrett's Support @barrettssupport.bsky.social · 07/08/2026
The power of charities together. In 2020, Wales got RFA (to remove Barrett's mutating to cancer) thanks to Barrett's Wales charity. Now, an easier way to detect Barrett's and cancer thanks to HCUK charity. nation.cymru/news/pill-on...
nation.cymru
‘Pill-on-a-thread’ cancer screening trial rolled out to Welsh communities
Mark Mansfield People who suffer from long-term heartburn, indigestion or acid reflux are being invited to take part in a cancer screening trial using a pioneering “pill-on-a-thread” test. The BEST4 S...
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Barrett's Support @barrettssupport.bsky.social · 06/08/2026
"I am happy to be in this group could already get a lot of information for me Information that I would not get from the doctor" www.facebook.com/groups/barre...
facebook.com
Facebook
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Barrett's Support @barrettssupport.bsky.social · 05/08/2026
"When I was diagnosed last January, I immediately went to a dark place. What good fortune to find this group ... Always calming us and there with nothing but helpful info." www.facebook.com/groups/barre...
facebook.com
Facebook
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Barrett's Support @barrettssupport.bsky.social · 04/08/2026
"I am most grateful for this group. You get more help and suggestions here than from the medical profession. You have helped me understand my barratts [sic] a lot more" www.facebook.com/groups/barre...
facebook.com
Facebook
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Barrett's Support @barrettssupport.bsky.social · 03/08/2026
Is there anywhere in the Northern Hemisphere below the arctic circlel that isn't experiencing excess temperatures and wildfires?
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Barrett's Support @barrettssupport.bsky.social · 03/08/2026
This is a very informative group. Keep up the great work you all do. Thanks [x] for all the information you have passed on to me since I was diagnosed with Barrett’s in 2019. www.facebook.com/groups/barre...
facebook.com
Facebook
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Barrett's Support @barrettssupport.bsky.social · 02/08/2026
"I don’t know what I would do if I hadn’t found this group I was at such a low point when I was diagnosed last year I was terrified." www.facebook.com/groups/barre...
facebook.com
Facebook
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Barrett's Support @barrettssupport.bsky.social · 01/08/2026
i am so thanksful for this group because it is easy to feel so isolated in time of need so thank you. www.facebook.com/groups/barre...
facebook.com
Facebook
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Barrett's Support @barrettssupport.bsky.social · 31/07/2026
"This group and the knowledge you have shared with us has lessened the amount of stress that I was experiencing from my diagnosis of Barrette's. I'm very thankful I found this group." www.facebook.com/groups/barre...
facebook.com
Facebook
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Barrett's Support @barrettssupport.bsky.social · 30/07/2026
"I appreciate ALL the research and Info you share. All of the moderators have helped me to understand and how to enjoy my life." www.facebook.com/groups/barre...
facebook.com
Facebook
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Barrett's Support @barrettssupport.bsky.social · 28/07/2026
It is rare to find such a group where there is such strong moderation and yet such an abundance of useful and coherent information ... especially for the newly diagnosed who are understandably often stressed and even scared when they first join. www.facebook.com/groups/barre...
facebook.com
Facebook
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Barrett's Support @barrettssupport.bsky.social · 26/07/2026
Hundreds of thousands being evacuated in France and Spain. Man made climate change is real !
Dunald Trump directing oil from a US oil well onto Europe engulfed in flames.
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Barrett's Support @barrettssupport.bsky.social · 26/07/2026
This group has been one of the best uses of social media I can think of in my 20 years of using platforms. Clear and concise information, helping me calm down and see the big picture. www.facebook.com/groups/barre...
facebook.com
Facebook
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Barrett's Support @barrettssupport.bsky.social · 20/07/2026
Not all FB groups are the same. "I don’t know what I would do if I hadn’t found this group I was at such a low point when I was diagnosed last year I was terrified." www.facebook.com/groups/barre... 16,500 members and rising daily.
facebook.com
Facebook
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Barrett's Support @barrettssupport.bsky.social · 19/07/2026
Looking for recipients of TIF, MUSE etc to take a very short anonymous survey for the ongoing CERT (Comparative Efficacy of Reflux Treatments) study. If you know anyone, please direct them to www.surveymonkey.com/r/RZH83XD
surveymonkey.com
Efficacy of Endoluminal Gastroplication (e.g. TIF)
Take this survey powered by surveymonkey.com. Create your own surveys for free.
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Barrett's Support @barrettssupport.bsky.social · 15/07/2026
My doctor keeps telling me I have CVD even though the cardiologist insisted I "categorically don't have hert disease!" But he wants an excuse to keep me on statins and get a bonus for doing so. I probably have Roemheld's Syndrome - but he'snever heard of that. sites.google.com/view/down-wi...
sites.google.com
Down With Acid - Heart
If you have any heart symptoms do get them checked out!
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Barrett's Support @barrettssupport.bsky.social · 15/07/2026
Has anyone any data to show foods cause acid reflux? We have a seriously undernourished young woman (BMI 13) who has been told to avoid so many foods because they caused her oesophagitis, gastritis and Barrett's. Diet isn't the answer!
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Barrett's Support @barrettssupport.bsky.social · 15/07/2026
Remember that AI video of Trump flying over crowds dumping excrement on them? Cyclosporiasis?
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Barrett's Support @barrettssupport.bsky.social · 09/07/2026
Comparative Efficacy of Reflux Treatments I had been thinking of writing a paper on this but drew ire from worshippers of RefluxStop who think it would answer all their problems. The chart summarises my findings drafted here: sites.google.com/site/robichr...
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Barrett's Support @barrettssupport.bsky.social · 30/06/2026
Down With Acid lite giveaway I still have some of these. I'd kept a box back to leave in the waiting room of the endoscopy department but they had a fire earlier this year so that's not presently a feasibility. I'll send you a free copy if you ask - but would appreciate postage reimbursement.
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Barrett's Support @barrettssupport.bsky.social · 29/06/2026
Burn Baby, burn! (Image ChatGPT)
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Barrett's Support @barrettssupport.bsky.social · 27/06/2026
Burn Baby, Burn!
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Barrett's Support @barrettssupport.bsky.social · 24/06/2026
Looking for comments. This essay is my simple attempt at explaining the basics of how Barrett's forms and can mutate to cancer. It's a bit crude but trying to put it in simple terms. sites.google.com/view/down-wi...
sites.google.com
Down With Acid - Building blocks
Note. Whereas this encyclopaedia normally only contains information from scientific reports but in layman's terms, this article is a simplification of the author's personal understanding. It is provid...
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Barrett's Support @barrettssupport.bsky.social · 06/06/2026
Looking for a new curator. Down With Acid is a unique encyclopaedia about acid reflux and Barrett's in layman's terms. The project started in 2012 but is now too large and updated too frequently to be printed New curators required or it may all be lost. www.DownWithAcid.org.uk
downwithacid.org.uk
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Barrett's Support @barrettssupport.bsky.social · 16/05/2026
Find Barrett's; stop cancer!
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Barrett's Support @barrettssupport.bsky.social · 16/05/2026
#worldbarrettsday 1. Oesophageal AdenoCarcnoma (OAC) cancer starts as Barrett's. 2. Those who know they have Barrett's won't die of OAC. Find Barrett's; stop deaths fom OAC. We need access to more. easier and better testing like cytosponge. sites.google.com/view/down-wi...
sites.google.com
Down With Acid - New diagnostic tools
Cytosponge Diagnosis of Barrett's Oesophagus currently requires an endoscopist pushing an endoscope down your throat and taking biopsies from suspect areas to be examined by a histopathologist in the ...
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