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Autoinflammatory Alliance

@autoinflammatory.bsky.social
108 followers 8 following 5 posts

The Autoinflammatory Alliance is a 501c3 nonprofit org helping to improve awareness, care and treatment for rare autoinflammatory and immunedysregulatory diseases. We are here to help patients, caregivers, and support research.

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Autoinflammatory Alliance @autoinflammatory.bsky.social · 27/02/2026
Rare Disease Day is Sat.2/28th! We're Showing our Stripes to raise awareness for rare #autoinflammatory and immunedysregulatory diseases w/ advocacy efforts this week. Share, download or print this show your support, &share your story to raise awareness. #RareDiseaseDay
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Autoinflammatory Alliance @autoinflammatory.bsky.social · 27/02/2026
Come to the FREE April 16-17, 2026 TARN-NIH 3rd #Autoinflammatory Symposium, and get your abstracts submitted by March 2nd if you want to share a poster! Register here: tarnnetwork.org/events/celebra… #RheumX #Immunology #rheumatology #SAIDresearch #hope4SAID
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Reposted by Autoinflammatory Alliance
Scott Canna @cannalab.bsky.social · 05/11/2025
Hey #IEI and #autoinflammation enthusiasts! "Celebrating Autoinflammation: On the Shoulders of a Giant" Registration is free tarnnetwork.org/events/celeb... But pls consider supporting: givebutter.com/c/autoinflam... - via @autoinflammatory.bsky.social
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Reposted by Autoinflammatory Alliance
EveryLife Foundation for Rare Diseases @everylifeorg.bsky.social · 25/02/2025
📣 Calling all rare disease community members. #RareDC2025 Sign this petition urging Congress to continue their support of steady and robust federal agency leadership, federal biomedical research funding, and public health agency resources. Take action: everylifefoundation.quorum.us/campaign/111...
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Autoinflammatory Alliance @autoinflammatory.bsky.social · 13/12/2024
This is a great paper showcasing eye involvement in #autoinflammatory diseases from earlier this year. This week, we heard from a patient that their #Rheum was not aware of SAID #ophthalmology findings, so I am sharing this here to spread some awareness. pmc.ncbi.nlm.nih.gov/articles/PMC...
pmc.ncbi.nlm.nih.gov
Update on ocular manifestations of the main monogenic and polygenic autoinflammatory diseases
Autoinflammatory diseases include disorders with a genetic cause and also complex syndromes associated to polygenic or multifactorial factors. Eye involvement is present in many of them, with differen...
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Autoinflammatory Alliance @autoinflammatory.bsky.social · 17/11/2024
Hello! The Autoinflammatory Alliance has joined Blue sky. #autoinglammatory #immunedysregulation #cytokines #inflammasomes #rheumatology #immunology
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