iiinova — where your digital self keeps evolving

Ashley Ball-Gamble @ashleyballgamble.bsky.social · 02/02/2026

It’s been a privilege to be part of the Children and Young People’s Cancer Taskforce, helping to shape the recommendations that will improve experience and outcomes for young cancer patients and their families. More to come on Wednesday…

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 02/02/2026

The inclusion of a specific children and young people’s section is a huge milestone, with long-awaited recognition that cancer in children and young people is different and needs a different strategy and approach.

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 02/02/2026

Great evening celebrating the upcoming launch of the National Cancer Plan with colleagues from across the cancer sector. Looking forward to the publication of the Plan on World Cancer Day this Wednesday.

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 11/01/2026

Birthday breakfast. Of course the birthday boy gets the face!

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 24/12/2025

Merry Christmas all, from a cold but sunny Brugge

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 23/12/2025

Rotterdam. (Or anywhere. Liverpool or Rome.)

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 26/11/2025

Fantastic inaugural @cclguk.bsky.social Early Career Researcher Network day in Birmingham today. Great projects presented by ECRs as well as career talks from established leaders. Huge thanks to everyone who has supported this work, inc the peer-led ECR network committee

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 26/11/2025

Registration now open for *the* key event of the year for children and young people’s cancer professionals - looking forward to seeing you all in Manchester in the Spring!

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 26/11/2025

…by working more closely, aligning strategies, and thinking about deeper relationships than ad-hoc co-funding (which is great, but is just the start).

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 26/11/2025

Delighted to be asked to speak this earlier this week at #ChildrenWithCancerUK Research Conference and share my (somewhat single minded and bossy) thoughts on collaboration and how much of a bigger impact we could achieve as funders…

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 10/11/2025

Great to be in Glasgow chairing a panel discussion on children & young people’s cancer at #ScotCanConf with with @younglivesvscancer.bsky.social @cclguk.bsky.social & the CYPC MSN for Scotland - lots of engagement from the audience and positive that CYP cancer is a focus at this event

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 30/10/2025

We were proud to attend the International Society of Paediatric Oncology Congress 🎗️ Our CEO @ashleyballgamble.bsky.social presented our State of the System research alongside Rosanna Thomasoo and shared a first look at the North Star Cancer Collaborative. Together, we can achieve more!

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 22/10/2025

Sharing some of our collaborative work at #SIOPCongress @worldsiop.bsky.social looking at unmet health information needs

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 20/10/2025

Last week, our CEO @ashleyballgamble.bsky.social and Chair Dr Sara Stoneham spoke at the first All-Island Paediatric Oncology Conference, sharing how CCLG can support this vital step toward creating a joined-up system of care for children and young people with cancer across the island of Ireland 🎗️

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 21/10/2025

Great to present our State of the System research on behalf of our partners and our North Star Cancer Collaborative plans on behalf of those partners at #SIOPCongress @worldsiop.bsky.social with @rthomasoo.bsky.social today as part of a great psychosocial care session @cclguk.bsky.social

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 20/10/2025

Greetings from rainy Amsterdam and #SIOPCongress. Some great talks already today and looking forward to four days of networking, developments in treatment and care, and a global perspective on children and young people’s cancer

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 16/10/2025

Half way between Belfast and Dublin and an excellent first day at the inaugural All-Island Paediatric Oncology Conference, exploring how closer collaboration and an all-island network could improve care for children and young people with cancer (and talking how @cclguk.bsky.social can help!)

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 19/09/2025

Non-commercial clinical research (which includes charity-funded research) - as well as addressing patient priorities and developing new treatments and cures - has a huge benefit to the UK economy.

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 01/09/2025

Around 1 in 500 children in the UK will be diagnosed with cancer by age 14. This #CCAM, we’re highlighting #ChildCancerSmart, sharing information about how diagnoses are made and what support is available for families 🎗️ Find out more and get involved at bit.ly/45JBdsi

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 05/09/2025

💡 Have an idea to improve cancer outcomes for children and young people? @littleprincesses.bsky.social Project Grants are available for #research into kinder treatments, better care, and improved diagnosis. Find out more and apply by 8 October at bit.ly/47vDWa5 #CCAM #CYPCancerResearch

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 10/09/2025

🚨 Attention, early career researchers working in childhood and young people's cancer: Share your work 🗣️ Submit a poster, presentation, or power pitch for our Early Career Research Day. Deadline: 5 pm, Friday, 19 September. More info and submit at bit.ly/42qh9c6

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 19/08/2025

3 persistent symptoms, 3 GP visits or 3 weeks of unexplained symptoms? We want #HealthcareProfessionals to consider: 'Could it be cancer?' #ChildCancerSmart Dissemination Lead, @drbobphillips.bsky.social, explains more about our evidence-based approach. 🔗 bit.ly/4lno0Kh

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 27/08/2025

We're joining #OneCancerVoice, a coalition of over 60 charities, to urge the UK Government to deliver a bold and fully funded #NationalCancerPlan for England. This plan aims to save and improve the lives of more people, including children and young people 🎗️📣

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 16/08/2025

Finally got round to creating my kitchen gallery with pride of place given to my fave Christmas present, “The Mona Lisa Scott-Lee” by @joelycett.bsky.social

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 08/08/2025

We want #HealthcareProfessionals to consider the question: 'Could it be cancer?' If a child has 3 persistent symptoms, 3 GP visits, or 3 weeks of unexplained symptoms, it might be time to call your local on-call paediatrician 📞 cclg.org.uk/childcancers... #ChildCancerSmart

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 07/08/2025

Huge thanks to everyone involved, not least CCLG Early Diagnosis Fellow @headsmartfellow.bsky.social, all of the team involved in this, the children, young people and families who have contributed, and @dramirkhangp.bsky.social for helping to spread the word!

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 07/08/2025

It follows several years of research, including a population-based observational study and a lot of systematic reviews, to ensure we have, for the first time, a sound evidence base and a good understanding of the signs and symptoms of childhood cancer and the pathways to diagnosis.

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 07/08/2025

Pleased to launch #ChildCancerSmart today, aiming to speed up diagnosis of cancer in children and young people through raising awareness with the public and equipping professionals with tools and resources to help them with diagnosis

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 27/07/2025

Greetings from a scorching Washington DC

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 22/07/2025

#Bahamas day spent feeding fish from a catamaran followed by a quick dip in the sea

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 20/07/2025

View from the treadmill slightly more motivating than usual #Bermuda

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 03/07/2025

Today's 10-Year Health Plan is a welcome step forward, but for children & young people with cancer, the forthcoming Cancer Plan must use this as stepping stone to go further. Full response from the CYP Cancer Coalition on our new LinkedIn page (follow us!) www.linkedin.com/pulse/patien...

linkedin.com

Patient power, choice and voice is a welcome stepping stone to change – we must go further for children and young people with cancer

The Children and Young People’s Cancer Coalition (CYP Cancer Coalition) welcomes today’s publication of the government’s 10-Year Health Plan, particularly its ambition to put patient power, choice, an...

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Rod Mitchell @rodtmitchell.bsky.social · 23/06/2025

Very much looking forward to this public webinar with my fantastic colleague Mark Brougham and @cclguk.bsky.social to talk about how #Fertility is affected by #ChildhoodCancer treatment. We plan to leave lots of time at the end so if you have a burning 🔥 question…here’s your chance 😊

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 25/06/2025

This is exciting news! We're so proud to be working with you to create a brighter future for children and young people with Ewing sarcoma! 💛🎗️

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 12/06/2025

We're working to put lived experience at the heart of our work, and to support researchers to ensure this is a core part of their work too. More information - and opportunities - coming soon, watch this space!

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CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 10/06/2025

#Trustees wanted! 🌟 We're looking for committed and dedicated volunteer trustees to join our governing board. Your time, skills and experience will help us create a brighter future for children and young people with cancer. #CYPCancer Interested? Apply now at bit.ly/3HyaGo2

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 02/06/2025

There's an information pack that should answer most questions you might have on the quoted post above - but if you'd like a chat to help you make up your mind about getting involved, feel free to reach out to me!

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 02/06/2025

We're currently looking to appoint several new Trustees, and if you have professional skills and experience relevant to our work, or to governance and strategy, or lived experience of children and young people's cancer, we'd love to hear from you.

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 02/06/2025

#Trustees wanted! Like all charities, our governing board is made up of committed, dedicated volunteer Trustees who give their time, skills and experience to help ensure we achieve our mission - creating brighter futures for children and young people with cancer. #VolunteersWeek

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Sharna @headsmartfellow.bsky.social · 28/05/2025

Delighted to see the @nihr funded CCD study published today in @lancetrh-europe.bsky.social Lots to celebrate: sex, ethnicity and IMD does not impact time to diagnosis for CYP w cancer. But also lots to improve: young people and certain diagnostic groups need urgent attention. #earlydiagnosis

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 28/05/2025

... developing tools to support healthcare professionals in making a diagnosis and raising awareness of the signs and symptoms of cancer in children and young people. (7/7)

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 28/05/2025

It's timely, as we contribute to the development of the upcoming National Cancer Plan, and at the same time start to deliver our wider Child Cancer Smart project: (6/7)

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 28/05/2025

So what's next? The data from this study is critical to benchmark progress, identify inequalities and develop professional and public health strategies in order to improve cancer detection and treatment outcomes in childhood. (5/7)

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Ashley Ball-Gamble @ashleyballgamble.bsky.social · 28/05/2025

Results show no difference in access to diagnosis based on sex, ethnicity, geography or deprivation, but that there are differences depending on the type of cancer, and on age - with bone tumours, lymphoma, and brain tumours, and teenagers experiencing the longest intervals. (4/7)

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