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ArrestALSNow

@arrestalsnow.bsky.social
232 followers 220 following 1.2K posts

In the fight for the long haul until #EndALS. Fighting ALS injustice including Healthcare. Seek equality & quality ALS patient services & care. #NeverStopFighting #DontQuit

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ArrestALSNow @arrestalsnow.bsky.social · 15h
emerginghorizons.com/destinations...
emerginghorizons.com
Destinations/Lodging - Emerging Horizons
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Mark Hamill @markhamillofficial.bsky.social · 03/10/2026
ONE MONTH FROM TODAY:
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Marc Elias @marcelias.bsky.social · 04/10/2026
CNN and CBS News are now under the control of the Ellison family. We need independent, pro-democracy media to grow. If you agree, please subscribe to Democracy Docket now. demdock.com/4w6emld
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ArrestALSNow @arrestalsnow.bsky.social · 15h
emerginghorizons.com/new-air-cana...
emerginghorizons.com
New Air Canada Wheelchair Policy - Emerging Horizons
The new Air Canada wheelchair policy allows free transport of up to three mobility devices, including adaptive sports equipment and patient lifts.
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ArrestALSNow @arrestalsnow.bsky.social · 03/10/2026
A day in the life of a generic drug for dry eye & asking pharmacy to use a discount card vs Medicare drug Part D. 30 day vs 90 day and real time price fluctuations. Definitely need to verify real time price at time of pick up in case it has dropped.
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ArrestALSNow @arrestalsnow.bsky.social · 02/10/2026
floridianpress.com/2026/10/miam...
floridianpress.com
Miami Herald Endorses David Jolly For Governor
The Miami Herald Editorial Board officially end
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ArrestALSNow @arrestalsnow.bsky.social · 30/09/2026
Certainly desperate for votes. Another attempt to influence votes by using money …. Timing is grossly suspicious!!
wdsu.com
Who qualifies for $500 ACA refund check? Payments start going out
The Trump administration started sending $500 refunds to some Affordable Care Act enrollees on Wednesday who the White House said were overcharged for healthcare by the Biden administration.
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ArrestALSNow @arrestalsnow.bsky.social · 21/09/2026
medicareadvocacy.org/new-resource...
medicareadvocacy.org
New Resource | Oral Health Fact Sheet - Center for Medicare Advocacy
While Routine Dental (and oral health) benefits are not a part of the Traditional Medicare program, Medicare rules do permit payment to be made for dental/oral health services that are “inextricably l...
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ArrestALSNow @arrestalsnow.bsky.social · 16/09/2026
www.biospace.com/press-releas...
biospace.com
Coya Therapeutics Announces Enrollment of 100th Participant in Phase 2/3 ALSTARS Trial of COYA 302 for the Treatment of ALS
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ArrestALSNow @arrestalsnow.bsky.social · 16/09/2026
www.fiercebiotech.com/biotech/axol...
fiercebiotech.com
Axoltis misses the mark in phase 2 ALS study, but will persevere with the synthetic peptide
Axoltis Pharma's phase 2 trial for amyotrophic lateral sclerosis (ALS) may have missed its primary endpoint, but the French biotech has pointed to secondary endpoints to justify persevering with th | ...
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ArrestALSNow @arrestalsnow.bsky.social · 16/09/2026
fox59.com/news/dont-fa...
fox59.com
Don’t fall for fake MyChart phishing emails
WXIN/WTTV — According to MyChart, roughly 190 million patients around the world use the online portal for communication with their healthcare providers. That’s a big pool of potential scam vi…
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ArrestALSNow @arrestalsnow.bsky.social · 14/09/2026
nytimes.com
How Trump Is Wielding Power to Stifle Speech (Gift Article)
President Trump has harnessed agencies across the government to curtail press freedoms, a sweeping campaign that free speech advocates say will have lasting effects.
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Chris Murphy @chrismurphyct.bsky.social · 04/09/2026
56 miles in! Onto the final ten-mile stretch.
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HuffPost @huffpost.com · 03/09/2026
In rare first-person accounts, judges describe a surge in disturbing threats, “swatting” and “pizza doxxing” since Trump took office in 2025.
huffpost.com
Dozens Of Federal Judges Go On Record About The Rising Threats They Face
In rare first-person accounts, judges describe a surge in disturbing threats, “swatting” and “pizza doxxing” since Trump took office in 2025.
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HuffPost @huffpost.com · 03/09/2026
“Steinem passed away peacefully at her home in New York City, surrounded by some of the many who loved her,” her foundation said in a statement.
huffpost.com
Feminist Icon Gloria Steinem Dead At 92
Feminist Icon Gloria Steinem Dead At 92
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HuffPost @huffpost.com · 03/09/2026
Rep. Jamie Raskin (D-Md.) has been diligently campaigning for Democrats — and preparing for a possible third impeachment of Donald Trump.
huffpost.com
‘Resistance’ Democrats From Trump’s First Term Are Fading — Except This One
Rep. Jamie Raskin (D-Md.) has been diligently campaigning for Democrats — and preparing for a possible third impeachment of Donald Trump.
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ALS Advocacy @alsadvocacy.bsky.social · 03/09/2026
A study of German data www.medscape.com/viewarticle/...
medscape.com
12% of Patients With ALS Survive At Least 10 Years
A German population-based registry study identifies survival patterns and predictors of longer survival in patients with amyotrophic lateral sclerosis.
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ArrestALSNow @arrestalsnow.bsky.social · 01/09/2026
From CMA: “It’s Two Truths and a Lie Tuesday: Medicare Edition! 👀 ⠀ We've got a tricky one this week: If you’re staying in a hospital, you’re an inpatient patient…right? Well, not necessarily.” medicareadvocacy.org/observation-...
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ArrestALSNow @arrestalsnow.bsky.social · 31/08/2026
www.cga.ct.gov/2024/act/Pa/...
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ArrestALSNow @arrestalsnow.bsky.social · 29/08/2026
www.wbaltv.com/article/high...
wbaltv.com
With the snip of a gene, scientists hope to erase high cholesterol for life
Scientists are testing a one-time gene-editing treatment that could lower dangerous cholesterol for years -- potentially replacing a lifetime of daily pills and injections.
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ArrestALSNow @arrestalsnow.bsky.social · 29/08/2026
“I think the main issue is that people don’t understand what the benefit is, what it covers, and what impact it has on their end of life,” said Wey-Wey Kwok, a senior attorney with the Center for Medicare Advocacy.
wfsb.com
Understanding hospice care: What patients and families need to know
Hospice care usually happens later in life, but here's what you need to know now about preparing for it
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ArrestALSNow @arrestalsnow.bsky.social · 27/08/2026
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ArrestALSNow @arrestalsnow.bsky.social · 27/08/2026
usatoday.com
Story from UCB: A Texas man shares his journey with a rare disease
It was a journey to Albert’s diagnosis, but he was determined to find a path forward.
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ArrestALSNow @arrestalsnow.bsky.social · 22/08/2026
extension.psu.edu/spotted-lant...
extension.psu.edu
Spotted Lanternfly Management Guide Supplement
Supplement for green industry professionals and natural resource managers on the spotted lanternfly and effective management strategies.
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ArrestALSNow @arrestalsnow.bsky.social · 21/08/2026
Three years after her partner, Bryan Randall, died amid his years-long battle with ALS, Sandra Bullock opens up about life following the “traumatic loss.”
suggest.com
Sandra Bullock Opens up About the ‘Traumatic Loss’ of Partner Bryan Randall
Three years after her partner, Bryan Randall, died amid his years-long battle with ALS, Sandra Bullock opens up about life following the “traumatic
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ArrestALSNow @arrestalsnow.bsky.social · 21/08/2026
medicareadvocacy.org/outpatient-t...
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ArrestALSNow @arrestalsnow.bsky.social · 20/08/2026
kffhealthnews.org/health-indus...
kffhealthnews.org
How Much of a Cancer Drug Is Too Much? Patients, Researchers Challenge FDA-Approved Dosages - KFF Health News
Patients and researchers point to evidence that many cancer drug dosages are excessive, and that reducing the amount and frequency could save billions of dollars and prevent some of the worst side eff...
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ArrestALSNow @arrestalsnow.bsky.social · 20/08/2026
@ssa.gov No - this is not helpful I do not give permission to stop mailing my SSA or any other govt info. You should be asking not dictating how I receive my SSA & other govt mailings @blumenthal.senate.gov @booker.senate.gov @sanders.senate.gov @chrismurphyct.bsky.social @ocasio-cortez.house.gov
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ArrestALSNow @arrestalsnow.bsky.social · 19/08/2026
😳
qz.com
Costco launching Medicare Advantage plans with SCAN Group
The warehouse retailer and the nonprofit insurer plan to begin selling jointly branded plans in two states, pending regulatory approval
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ArrestALSNow @arrestalsnow.bsky.social · 19/08/2026
kffhealthnews.org
Medicare’s Paying Less for Cataract Surgery. Eye Doctors Are Turning to Lucrative Lasers. - KFF Health News
More cataract patients, wanting not only restored but improved vision, are paying extra for their doctors to use a laser when a scalpel would do.
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HuffPost @huffpost.com · 18/08/2026
The newspaper’s conservative editorial board warned of the dangerous message the president was sending with his latest military move.
huffpost.com
Wall Street Journal Warns Donald Trump’s ‘Appeasement’ Sends Ominous Signal About America
The newspaper’s conservative editorial board warned of the dangerous message the president was sending with his latest military move.
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ArrestALSNow @arrestalsnow.bsky.social · 18/08/2026
www.nfl.com/news/o-j-bri...
nfl.com
O.J. Brigance, Super Bowl winner with Ravens, dies at 56 after battling ALS
O.J. Brigance, who won a Super Bowl with the Baltimore Ravens before waging an unyielding battle against amyotrophic lateral sclerosis, has died. He was 56.
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ArrestALSNow @arrestalsnow.bsky.social · 16/08/2026
www.wistv.com/2026/08/13/u...
wistv.com
Unbridled joy: Lugoff woman with ALS races to ride a horse in all 50 states
Tricia Jackson has competed in endurance races, appeared on 'Survivor' and is now chasing a lifelong dream.
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ArrestALSNow @arrestalsnow.bsky.social · 15/08/2026
kffhealthnews.org/aging/hospic...
kffhealthnews.org
My Husband Was Kicked Out of Hospice for Dying Too Slowly - KFF Health News
Some seriously ill patients improve on hospice. About 1 in 16 patients enrolled in hospice care lose eligibility as a result. Here’s how to get appropriate care after receiving a terminal diagnosis.
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ArrestALSNow @arrestalsnow.bsky.social · 12/08/2026
www.cbsnews.com/news/social-...
cbsnews.com
Social Security adds 14 health conditions to fast-track disability list. See what they are.
The Social Security Administration is expanding its list of diseases and other health conditions that may qualify for accelerated approval of disability benefits.
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ArrestALSNow @arrestalsnow.bsky.social · 19/07/2026
Congrats to Spain!!!
politico.com
The ‘hopeless, bad people’ just won Donald Trump's World Cup
The U.S. president has relentlessly targeted Spain. Its soccer stars just had the last laugh.
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ArrestALSNow @arrestalsnow.bsky.social · 07/07/2026
kffhealthnews.org/health-care-...
kffhealthnews.org
Copay Assistance Is Meant To Defray Patient Drug Costs. Some Insurers Keep It Instead. - KFF Health News
Drugmakers provide financial assistance to help patients afford increasingly expensive medications. But some insurers do not count those payments toward a plan’s deductible or out-of-pocket maximum an...
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ArrestALSNow @arrestalsnow.bsky.social · 05/07/2026
Tech, Creativity Offer ‘Limitless’ Future at ALS Concert
japannews.yomiuri.co.jp
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ArrestALSNow @arrestalsnow.bsky.social · 30/06/2026
@cnn.com I was impressed this morning to hear Brad Smith (anchor for CNN Headline Express) report the health news of Chris Johnson describing it as "...Chris Johnson LIVING with ALS". What a difference on the tone of reporting as "Living with" versus "diagnosed with...". Brad really gets it!!
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ArrestALSNow @arrestalsnow.bsky.social · 29/06/2026
www.neurologylive.com/view/former-...
neurologylive.com
Former NFL Running Back Chris Johnson Diagnosed With ALS at 40 | NeurologyLive - Clinical Neurology News and Neurology Expert Insights
Johnson, who set the single-season NFL rushing record in 2009, went public with his diagnosis on Good Morning America, saying he hopes his story accelerates research and awareness of the disease.
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ArrestALSNow @arrestalsnow.bsky.social · 27/06/2026
news.un.org/en/story/202...
news.un.org
Deaths in US immigration custody must be investigated: UN rights chief
UN High Commissioner for Human Rights Volker Türk on Friday called for stronger independent oversight of the United States immigration detention system and investigations into all deaths in US Immigra...
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ArrestALSNow @arrestalsnow.bsky.social · 25/06/2026
⚠️ **SSA Assistance Is Going National—Here’s What Beneficiaries Should Know** ⠀
medicareadvocacy.org
SSA Assistance Goes National – Beneficiaries Beware - Center for Medicare Advocacy
SSA's national assistance will change beneficiary contact habits.
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ArrestALSNow @arrestalsnow.bsky.social · 25/06/2026
Early reviews from Oklahoma & other pilot states — Arizona, New Jersey, Ohio, Texas, & Washington — suggest WISeR's rollout has not been smooth. Patients, doctors, & other healthcare professionals who spoke with KFF Health News say the effort has created confusion, errors, long wait times, & stress.
cbsnews.com
Medicare's AI push snarls patients and doctors in errors and delays
Medicare is testing the use of artificial intelligence to preapprove several healthcare services.
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ArrestALSNow @arrestalsnow.bsky.social · 21/06/2026
youtube.com/watch?v=p6Am...
youtube.com
David Muir shares how son helped dad on retirement flight after ALS cut career short
YouTube video by ABC News
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ArrestALSNow @arrestalsnow.bsky.social · 13/06/2026
www.statnews.com/2026/06/11/m...
statnews.com
Private Medicare plans erect barriers to rehab care in pursuit of profit, federal investigators find
Federal investigation finds Medicare Advantage insurers block rehab care for older adults, only to reverse denials on appeal.
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ArrestALSNow @arrestalsnow.bsky.social · 02/06/2026
www.huffpost.com/entry/bill-o...
huffpost.com
Scott Pelley Can ‘Smell A Fraud From A Mile Away,’ Says Former ‘60 Minutes’ Producer
The veteran journalist “can smell a fraud from a mile away,” Bill Owens said of Pelley while criticizing the network’s hiring of Nick Bilton and Bari Weiss.
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ArrestALSNow @arrestalsnow.bsky.social · 02/06/2026
www.cnn.com/2025/04/28/m...
cnn.com
‘60 Minutes’ criticizes Paramount on air after its longtime producer quits | CNN Business
CBS News’ ‘“60 Minutes” addressed the surprise exit of its longtime executive producer Bill Owens on Sunday’s program, with anchor Scott Pelley saying that “no one is happy” about his departure.
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ArrestALSNow @arrestalsnow.bsky.social · 02/06/2026
deadline.com/2026/06/60-m...
deadline.com
Former '60 Minutes' Executive Producer Bill Owens Praises Scott Pelley
Owens praised the correspondent for speaking out about the changes at the show.
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ALS Advocacy @alsadvocacy.bsky.social · 29/05/2026
The best recruiters for a clinical trial should be the people already participating in it.
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ArrestALSNow @arrestalsnow.bsky.social · 29/05/2026
survivorsisters.org
survivorsisters.org
Survivor Sisters
Survivor Sisters of Epstein & Maxwell
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