iiinova — where your digital self keeps evolving

apfed.bsky.social @apfed.bsky.social · 23h

Do you have a Donor Advised Fund (DAF)? You can easily recommend a grant to APFED to support those living with eosinophilic diseases. Contact your fund manager or visit apfed.org/waystogive/ and use our DAF Direct widget to get started today. #DAFDay #APFED #25for25

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apfed.bsky.social @apfed.bsky.social · 24/09/2026

The NIH invites those with hypereosinophilia to learn more about an investigational research study to test if dupilumab as an add-on treatment can help improve symptoms of hypereosinophilic syndrome. #HES

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apfed.bsky.social @apfed.bsky.social · 24/09/2026

Registration is now open for our next webinar: Daily Decisions That Shape EoE Control October 15 at 1:00 PM ET apfed.org/events/eos-s...

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apfed.bsky.social @apfed.bsky.social · 23/09/2026

Every breakthrough starts with a question. Curiosity fuels progress. What would you like to ask a researcher? Drop your question in the comments. #APFED25 #Inspire25

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apfed.bsky.social @apfed.bsky.social · 21/09/2026

Behind every awareness event is someone who said, 'I want to do something.' Thank you to everyone who shows up for our community. You make a difference. 💙 Want to plan an awareness event in your community? Reach out to us at mail@apfed.org to learn how we can support you.

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apfed.bsky.social @apfed.bsky.social · 15/09/2026

Eosinophilic disease awareness is taking the ice! 🏒 Join APFED on Jan. 18 at 3 p.m. for Islanders vs. Predators. A portion of ticket sales supports eosinophilic disease research—and selling all 60 tickets unlocks a High Five Line opportunity! 🎟️ apfed.org/gameon27

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apfed.bsky.social @apfed.bsky.social · 07/09/2026

For 25 years, APFED has worked to connect clinicians and researchers around the shared goal of advancing eosinophilic disease understanding, and the progress speaks for itself. Help us keep the momentum going! Support continued research by donating at apfed.org/donate.

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apfed.bsky.social @apfed.bsky.social · 02/09/2026

Registration is now open for APFED's next webinar about eosinophilic gastritis research. Dr. Sara Anvari will join us on September 22 to share information about understanding EoG and new research findings. Register now at apfed.org/webinars.

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apfed.bsky.social @apfed.bsky.social · 06/08/2026

APFED is back with the NY Islanders for 2026–27! Catch them vs. the Predators on January 18th. 60 tickets sold = we score a group photo with the team! Let's go, Team APFED! Visit apfed.org/gameon27 to purchase your tickets today! #APFED #NYIslanders #EosinophilicDisease #GameOn27

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apfed.bsky.social @apfed.bsky.social · 23/07/2026

A heartfelt thank you to the incredible speakers who made EOS Connection 2026 so meaningful. Your expertise, passion, and commitment to the eosinophilic disease community made this year's conference truly unforgettable. #Thank25 #APFED25

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apfed.bsky.social @apfed.bsky.social · 15/07/2026

Caring for a child with #EoE? Check out our free webinar on July 29 at 12 PM ET. Clinicians + a patient advocate sharing real guidance for families at every stage. Supported by @PeerView and Boston University Chobanian & Avedisian School of Medicine CCE. Don't miss it! Register at apfed.org/webinars

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apfed.bsky.social @apfed.bsky.social · 13/07/2026

Empower someone today. 💙 Share APFED's free webinar library — real education from trusted experts, designed for the eosinophilic disease community. Visit apfed.org/webinars. #Inspire25 #25for25 #APFED25

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apfed.bsky.social @apfed.bsky.social · 01/07/2026

‼️ Encouraging news for the EG community! A new study from the Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) found dupilumab improved outcomes for eosinophilic gastritis, an important step toward better treatments. Read more: ow.ly/UgfZ50ZiVVF

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Dupilumab Improves Outcomes for Individuals with Eosinophilic Gastritis

A new study from the Consortium of Eosinophilic Gastrointestinal Disease Researchers shows that dupilumab improves outcomes in eosinophilic gastritis.

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apfed.bsky.social @apfed.bsky.social · 17/06/2026

Every diagnosis given today stands on the shoulders of scientists who spent years asking the right questions. We honor the researchers and pioneers whose work first defined eosinophil-associated diseases and whose dedication made it possible for patients to finally have answers.

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apfed.bsky.social @apfed.bsky.social · 27/05/2026

1 in 700 people have EoE. Most wait 4 to 6 years for a diagnosis. That has to change, and it starts with advocates like you. Download APFED's EoE Advocacy Toolkit and take action today. apfed.org/wp-content/u...

apfed.org

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apfed.bsky.social @apfed.bsky.social · 16/05/2026

We’re encouraged to see the FDA approval of Fasenra® (benralizumab) for adults and children ages 12+ living with hypereosinophilic syndrome (HES) when the condition is not caused by another underlying non-blood-related condition. Read the announcement from AstraZeneca: bit.ly/493wLpr #HES

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apfed.bsky.social @apfed.bsky.social · 13/05/2026

New tools to predict EGPA flares, FDA Fast Track for an eosinophilic asthma treatment, and promising EoE injection trial results — catch up in APFED's Research Round-Up apfed.org/blog/research-roundup-april-2026/

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apfed.bsky.social @apfed.bsky.social · 01/05/2026

Two weeks remain to submit abstracts for the APFED 2026 Virtual Poster Hall. Researchers conducting work in eosinophil-associated diseases are encouraged to submit posters for consideration. Encore works are accepted. Submission form: apfed.org/events/annual-conference/research-posters/

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apfed.bsky.social @apfed.bsky.social · 27/04/2026

Our Medical Advisory Board brings world-class expertise to everything from patient education to research priorities, ensuring that the resources we provide are accurate, current, and truly life-changing. We are deeply honored by their commitment to this community. #APFED25 #Thank25 #25for25

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apfed.bsky.social @apfed.bsky.social · 22/04/2026

Every clinician who deepens their understanding of EOS conditions is a lifeline for a patient still searching for answers. 💙 Visit our CME page at: apfed.org/resources/for-healthcare-…

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apfed.bsky.social @apfed.bsky.social · 17/04/2026

Share Your Research with the APFED Community. Abstract submissions are open for the APFED 2026 Virtual Poster Hall. Abstract deadline: May 15, 2026 Submission form: apfed.org/events/annual-conference/research-posters/

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apfed.bsky.social @apfed.bsky.social · 15/04/2026

APFED's Annual Patient Conference will be held in Denver July 9–12, 2026 Registration options: → Virtual: FREE → In-person: $75 per person Learn more and register at apfed.org/conference.

apfed.org

EOS CONNECTION PATIENT EDUCATION CONFERENCE ON EOSINOPHIL-ASSOCIATED DISEASES

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apfed.bsky.social @apfed.bsky.social · 25/03/2026

Abstract submissions are now open for researchers for the Eos Connection 2026 Virtual Poster Hall. Share your research with a national audience focused on eosinophilic disorders. Submit your abstract by May 15 Full details: apfed.org/events/annual-conference/research-posters/

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apfed.bsky.social @apfed.bsky.social · 11/03/2026

For people with EoE, eating is complicated. Elimination diets, symptom fear & swallowing discomfort can overlap with Avoidant/Restrictive Food Intake Disorder (ARFID). Know what to look for. apfed.org/blog

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apfed.bsky.social @apfed.bsky.social · 06/03/2026

APFED is now accepting abstracts for the Virtual Poster Hall at its 2026 patient education conference. Abstract deadline: May 15, 2026 apfed.org/events/annual-conference/research-posters/

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apfed.bsky.social @apfed.bsky.social · 24/02/2026

The bipartisan Medical Foods & Formulas Access Act (S.3304 / H.R.5684) would require Medicaid, CHIP, Medicare, and FEHBP to cover medically necessary formulas for digestive and metabolic disorders, including EGIDs. Urge Congress to co-sponsor. Take action: nutritionequity.org

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apfed.bsky.social @apfed.bsky.social · 29/01/2026

Register for our next webinar on "EGPA and Neurological Impacts" w/ Dr. Rula Hajj-Ali. Join us Feb. 10 @ 12PM ET to explore how #EGPA can affect the nervous system and why symptoms such as numbness, pain, and neuropathy occur. ow.ly/MUoj50Y5I9F

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apfed.bsky.social @apfed.bsky.social · 28/01/2026

Registration is now open! Tuesday, February 10, 2026 at 12:00 PM ET A 60-minute webinar with Rula Haji-Ali, MD, a rheumatologist at the Cleveland Clinic, who will discuss the neurological impacts of eosinophilic granulomatosis with polyangiitis (EGPA). To register, visit: apfed.org/events/eos-s...

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apfed.bsky.social @apfed.bsky.social · 23/01/2026

📣New podcast episode on navigating your medical bills: apfed.org/podcast! Our latest episode "Tips for Understanding Your Medical Bills" features Beth Morgan, a medical billing advocate and consultant. 🎙️Catch prior episodes + subscribe to our podcast through Amazon Music, Apple, Spotify, and more!

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apfed.bsky.social @apfed.bsky.social · 23/12/2025

Register now for APFED's next webinar “Living with EGIDs: A Pediatric GI’s Perspective” with Narendra Vadlamudi, MD, DCH, MRCPCH, on Wednesday, January 21, 2026 at 12:00 PM ET: us02web.zoom.us/webinar/register/54…. #EGIDS #APFEDWebinar

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apfed.bsky.social @apfed.bsky.social · 22/12/2025

Check out APFED's new podcast episode, "HOPE on the Horizon" with featured guest Fei Li Kuang, MD, PhD. Kuang, an allergist and immunologist at Northwestern Medicine, talks about receiving two APFED HOPE on the Horizon Grants and the research these grants support. apfed.org/podcast. #APFED #EosAware

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apfed.bsky.social @apfed.bsky.social · 18/12/2025

APFED is excited to release our latest podcast episode, "HOPE on the Horizon" w/ featured guest Fei Li Kuang, MD, PhD: apfed.org/podcast. Kuang, an allergist and immunologist at Northwestern Medicine, talks about receiving two APFED HOPE on the Horizon Grants and the research these grants support.

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apfed.bsky.social @apfed.bsky.social · 08/12/2025

🔬 Major advances in eosinophilic disease treatment and understanding! From a promising Phase 3 trial showing benralizumab reducing HES flares by 65% to new insights on environmental factors and treatment adherence in EoE. apfed.org/blog/researc... #EosinophilicResearch #APFED

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apfed.bsky.social @apfed.bsky.social · 25/11/2025

Registration is open for our upcoming webinar on “Preparing Your Child for Healthcare Independence” with Dr. Nick CaJacob and Dr. James Callaway on Tuesday, December 9 at 1:00 PM ET. Register now: ow.ly/bO2y50Xxi0P

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apfed.bsky.social @apfed.bsky.social · 20/11/2025

This Global EoE Position Paper calls for more supportive policy for those living with EoE—one that improves outcomes and reduces the burden of disease for patients and families. Learn more at: apfed.org/wp-content/u...

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apfed.bsky.social @apfed.bsky.social · 20/11/2025

APFED is thrilled to launch our 50th podcast episode! Tune into “Predictors of Not Using Medication for EoE” featuring Evan S. Dellon, MD, MPH, and Elizabeth T. Jensen, MPH, PhD: apfed.org/podcast. Subscribe to our podcast at Amazon Music, Apple, Audible, and Spotify. #EoE #APFEDPodcast #EosAware

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apfed.bsky.social @apfed.bsky.social · 14/11/2025

Don't miss our latest podcast episode on "TSLP and EoE: Exploring the Science Behind a Potential Treatment Target" with featured guest Andrew Lee, MD. Listen now at apfed.org/podcast and subscribe to our podcast at Amazon Music, Apple, Audible, and Spotify. #EoE #APFEDPodcast #EosAware

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apfed.bsky.social @apfed.bsky.social · 11/11/2025

Why do EoE patients see an average of 4+ doctors before diagnosis? What are the biggest barriers to effective treatment? AAFA and APFED's Life with EoE report answers these questions. Read the full findings: aafa.org/asthma-allergy-research/our-research/life-with-eosinophilic-esophagitis-eoe/

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apfed.bsky.social @apfed.bsky.social · 05/11/2025

Register for our webinar on “Hypereosinophilic Syndromes and Your Heart” w/ Dr. Zimmerman: us02web.zoom.us/webinar/register/54…. Join us 11/18 @ 12:30PM ET to learn how eosinophils can affect the heart + why this matters for understanding/managing HES.

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apfed.bsky.social @apfed.bsky.social · 04/11/2025

🔬Check out APFED's Research Roundup: • EoE & the Atopic March • Dexpramipexole & Eosinophilic Asthma • COPD (Eosinophilic Phenotype) • Benralizumab Rare Eos Disorders 🔗 Read: apfed.org/blog/researc... #APFED #EosAware #EoE #Asthma #COPD #ResearchRoundup

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apfed.bsky.social @apfed.bsky.social · 30/10/2025

Check out this FREE educational opportunity the American Broncho-Esophagological Association is putting on. It is a half-day, online, multi-disciplinary symposium on Eosinophilic Esophagitis. abea.net/eoe-symposium/

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apfed.bsky.social @apfed.bsky.social · 29/10/2025

APFED is excited to release our latest podcast episode on "TSLP and EoE: Exploring the Science Behind a Potential Treatment Target" w/ featured guest Andrew Lee, MD. Listen now at apfed.org/podcast and subscribe to our podcast at Amazon Music, Apple, Audible, + Spotify. #EoE #APFEDPodcast #EosAware

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apfed.bsky.social @apfed.bsky.social · 21/10/2025

A new JACI Global study highlights the significant daily burden patients face with hypereosinophilic syndromes (HES), including impacts on health and quality of life. To learn more, go to: www.jaci-global.org/article/S277...

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apfed.bsky.social @apfed.bsky.social · 17/10/2025

There’s still time to register for our next webinar on “Understanding Eosinophilic Fasciitis.” Join us this Tuesday at 12PM ET to learn about this rare and often misunderstood condition. 👉 Register now: us02web.zoom.us/webinar/register/60…

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apfed.bsky.social @apfed.bsky.social · 08/10/2025

🎙️Don't miss our latest podcast episode! Meet high school students who turned their science fair project into an opportunity to spotlight less invasive diagnostic options for #EoE. Listen now at apfed.org/podcast + subscribe at Amazon Music, Apple, Audible, and Spotify.

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apfed.bsky.social @apfed.bsky.social · 16/09/2025

Your story could be the lifeline that helps someone else recognize symptoms or find the right specialist. What part of your EGPA journey needs to be shared? Share your story at apfed.org/share #EGPA #ShareYourStory #APFED #RareDisease

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apfed.bsky.social @apfed.bsky.social · 09/09/2025

Interested in learning more about eosinophilic disease? Check out the recordings from our June EOS Connection Patient Conference. You will need to register as a participant, and registration is free. Recordings will be available until the end of the year. Register at apfed.org/events/annua...

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