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ALS United Rocky Mountain

@alsunitedrm.bsky.social
23 followers 10 following 267 posts

Our mission is to unite and empower the ALS community through a collaborative approach of providing comprehensive care and support to individuals and families affected by ALS, advancing national and state advocacy, and fostering bold research

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ALS United Rocky Mountain @alsunitedrm.bsky.social · 25/09/2026
Your next trip can do more than create great memories it can help support families facing ALS. When you book through Apogee Travel and select ALS United Rocky Mountain, a portion of your stay gives back to our mission. apogee.link/alsrockymountain Travel. Stay. Give back.
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 24/09/2026
Through the Subaru Share the Love® Event, Nate Wade Subaru generously donated $15,000 to ALS United Rocky Mountain—support that helps us continue providing care, resources, equipment, and connection for families impacted by ALS. #ALSUnited #NateWadeSubaru #ALS
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 14/09/2026
UTAH! Our Walk is NEXT WEEK! Now is the time to start a team, raise funds for your goals, and spread the word!  Register and donate today at walkalsutah.org.  #ALS #WalkALS #ALSUnited #TogetherWeEndALS®
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 13/09/2026
For more than 15 years, Cory Portnuff has given his time to ALS United Rocky Mountain, from delivering supplies to newly diagnosed families to supporting our Walks, Galas, and so much more. Cory is a wonderful example of the difference one dedicated volunteer can make. #ALS #ALSUnited #Volunteering
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 01/09/2026
ALS United Rocky Mountain hosts multiple Educational Events throughout the year. These events cover a range of topics to better help those living with ALS, caregivers, and their families.  Check out our previous Educational Events at alsrockymountain.org/navigating-als….
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 27/08/2026
ALS: What's true, and what isn't. Misinformation about this disease is common. Swipe through to see what's myth and what's fact. #ALSAwareness #ALSUnited #ALS
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 26/08/2026
When someone includes ALS United Rocky Mountain in their will, their impact helps ensure future families facing ALS have access to the care, guidance, and support they need. Planned giving is more than a gift. It’s a way to carry your values forward and create a lasting legacy of hope.
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 20/08/2026
We're dedicated to advancing our mission to discover effective treatments and ultimately eradicate ALS. This underscores the critical importance of funding exceptional ALS research.  Discover more here: alsrockymountain.org/research/our-a… #ALS #ALSUnited #Research
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 18/08/2026
12 years of the Ice Bucket Challenge. 12 years of expanded care. Because of this community, we've grown into an organization providing support groups, Quality of Life grants, and clinic partnerships across Colorado, Utah, and Wyoming — reaching 600+ families a year. #ALS #IceBucketChallenge
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 17/08/2026
Behind every service we provide —support groups, equipment loans, care coordination — is a team and a community that believes no one should face ALS alone. This #NationalNonprofitDay, we're grateful for everyone who helps make that possible. Find out more at alsrockymountain.org. #ALSUnited #ALS
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 15/08/2026
🏈 Make your football season matter. Support ALS United Rocky Mountain by purchasing Bo Nix's exclusive "Bolieve." and "Don't Stop Bolievin'" T-shirts. Every purchase helps fund vital care services, support programs, and resources for families living with ALS. 🛍️ Shop today at shopbonix.com
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 07/08/2026
The St. George Marathon is less than 2 months away! We only have 9 slots left!  Email events@alsrockymountain.org to register today!  #ALS #StGeorgeMarathon #ALSUnited #RunALS
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 06/08/2026
Rally your team, raise your voice, and show your support for the ALS community! Register for a Walk ALS near you at alsrockymountain.org/get-involved/w… #ALS #WalkALS #ALSUnited #TogetherWeEndALS
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 05/08/2026
Check out our partner Road Runner Sports. A running specialty store that carries running and outdoor gear. Road Runner offers our ALS community 10% off, plus a 10% donation back to us on any purchases this year!    Shop today at www.roadrunnersports.com #ALS #RunALS #ALSUnited
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 04/08/2026
Did you know? ALS United Rocky Mountain offers direct support, including financial assistance for in-home caregiving, emotional support and advice on practical issues, and access to community resources. Learn more at alsrockymountain.org/navigating-als… #ALS #Support
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 01/08/2026
This is why we do what we do. 💙 For the last 30 years, ALS United Rocky Mountain has stood beside families across Colorado, Utah, and Wyoming — offering care, community, and hope when it's needed most. We won't stop until ALS is a disease of the past. #ALSUnited #ALS #TogetherWeEndALS
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 29/07/2026
For over 30 years, ALS United Rocky Mountain has walked beside families facing ALS, and we could not do this work without partners like Ghent Chevrolet Cadillac.  Thank you for helping us provide compassionate care, meaningful support, and hope to our ALS community. Together, we end ALS®.
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 27/07/2026
Have you had a chance to download our brand new Walk ALS Fundraising App? Check out our video to find out how it can help you raise funds for your Walk!  Video: youtu.be/KYyQknGjWaA #ALS #WalkALS #TogetherWeEndALS #ALSUnited
youtu.be
Walk ALS Fundraising App
Video explaining how to download and use the new Walk ALS fundraisi...
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 20/07/2026
ALS United Rocky Mountain is proud to partner with Road Runner Sports.Road Runner has given our ALS community a 10% off, plus a 10% donation from them back to us for any purchases this year! Link: www.roadrunnersports.com
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 19/07/2026
Some people volunteer because they have extra time. Others volunteer because they want to make a difference. Terri Seim volunteers because she understands, firsthand, what an ALS diagnosis means. Read her story at alsrockymountain.org/turning-loss-i….
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 17/07/2026
Facilitated by ALS professionals, Support Groups provide opportunities for group members to share their personal experiences and to learn more about living with ALS. Learn more at alsrockymountain.org/navigating-als….
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 15/07/2026
By including ALS United Rocky Mountain in your estate plans, you help ensure future generations have access to care, support, advocacy, and hope. Your values. Their future. Together, we can build a legacy of care that lasts for years to come.
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 12/07/2026
Join ALS United Rocky Mountain for the 2026 Walk ALS season! Rally your friends and family and be part of a powerful day of community and determination in the fight to end ALS. Together, We End ALS. Register here alsrockymountain.org/get-involved/w…
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 11/07/2026
Because of partners like Nate Wade Subaru, families facing ALS don't have to navigate this journey alone. Through the Subaru Share the Love® Event, their $15,000 contribution helps us continue delivering critical support, equipment, education, and care services across our region. #ALS #Subaru
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 10/07/2026
Today is National Nonprofit Day! Take a moment to learn more about ALS United Rocky Mountain and how we serve the Rocky Mountain ALS community.  For more information, go to alsrockymountain.org #ALS #NationalNonprofitDay #ALSUnited #ALSAwareness
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 09/07/2026
Join ALS United Rocky Mountain at the Annual Rosé Soirée Garden Party. In honor of DWM owner, Sally Stewart, a portion of event fees will be donated to ALS United Rocky Mountain.  Get your tickets at www.birchroad.com/rose-soiree.  #ALS #DenverWineMerchant #ALSUnited #ALSAwareness
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 09/07/2026
Through our partnership with Apogee Travel, you can book hotels and travel accommodations while supporting ALS United Rocky Mountain at no additional cost. A portion of every stay is donated back to the charity of your choice. apogee.link/alsrockymountain #ALS #Apogee #ALSUnited #Travel
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 08/07/2026
#WyoGivesDay is NEXT WEEK! Schedule your donation to support those living with ALS in Wyoming today at www.wyogives.org/organizations/alsr…. #ALS #ALSUnited #ALSAwareness #WyomingGives #WyoGives
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 07/07/2026
Why choose to serve on our Board of Directors? For Larry, it began with a diagnosis. Living with ALS for more than a decade, he brings the perspective of someone living with the disease and a deep commitment to ensuring others receive the same guidance, resources, and hope that helped him.
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 06/07/2026
Access trusted webinars from ALS professionals and experts to help you better understand ALS, navigate daily challenges, and find support. Learn more:https://alsrockymountain.org/navigating-als/our-care-services/ #ALS #ALSUnited #ALSAwareness
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 05/07/2026
Our new Youth & Family Resources were created to provide support, guidance, and practical tools for young adults navigating the ALS journey. Explore the resources today: alsrockymountain.org/navigating-als/youth-resources
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 04/07/2026
This Independence Day, fight for independence for people with ALS. ACT for ALS expires this September — urge Congress to reauthorize it now: app.oneclickpolitics.com/campaign-p…  #ACTforALS #ALSAdvocacy #ALSUnited
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 03/07/2026
Join ALS United Rocky Mountain at the Annual Rosé Soirée Garden Party at Birch Road, Denver, on Saturday, July 18th, presented by Denver Wine Merchant!  Grab your tickets at www.birchroad.com/rose-soiree.  #ALS #ALSUnited #FundraiseYourWay #ALSAwareness
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 03/07/2026
Living with ALS comes with unique challenges. ALS United Rocky Mountain provides personalized support through consultations, medical equipment, support groups, educational webinars, and Quality of Life Grants. Learn more: alsrockymountain.org/navigating-als… #ALS
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 02/07/2026
Why do you Walk for ALS? Share a photo 📸 and tell us in the comments. Whether you walk in honor, memory, support, or hope — your story helps raise awareness and supports ALS families. Together, We End ALS. Learn more about our Fall Walks: alsrockymountain.org/get-involved/w…
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 01/07/2026
Here is a quiz! Myth or Fact: ALS is extremely rare. It hardly affects anyone.  #ALS #MythorFact #ALSUnited #ALSAwareness
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 30/06/2026
Thank you to everyone who joined us and made these gatherings so special! Your support, connection, and community mean so much. We can't wait to see you at the next one! 💙  #TogetherWeEndALS #ALSUnited #ALS
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 29/06/2026
Colorado Springs Walk ALS is just 2 months away! Join us on Saturday, August 29, at Memorial Park's Swing High Playground from 9:00–11:30 AM. Register today at walkalscoloradosprings.org and download the new Walk ALS App to make fundraising easier. #ALS #WalkALS #ALSUnited
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 27/06/2026
June is Men's Health Awareness Month. While the prognosis of ALS in men is no different than women, there are a few statistics that differ between men and women.  Learn more at alsrockymountain.org. #ALS #MenHealthAwareness #ALSUnited
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 25/06/2026
Wyoming Gives Day is coming up quick! Here are a few ways you can raise funds for those living with ALS in Wyoming.  Schedule your donation today at www.wyogives.org/organizations/alsr….  #ALS #WyoGivesDay #ALSUnited #Wyoming
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 24/06/2026
Big news: The House 2027 Defense bill proposes $80M for ALS research—a major increase! It's not final yet. Keep the momentum going—urge Congress to fund ALS research & veterans' care: app.oneclickpolitics.com/campaign-p… #ALSAdvocacy #ALS #TogetherWeEndALS
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 24/06/2026
The impact of your generosity can last for generations.  A planned gift to ALS United Rocky Mountain helps continue care and support for families facing ALS, today and into the future. Your legacy can help bring hope, comfort, and connection to those who need it most. #TogetherWeEndALS®#ALSUnited
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 23/06/2026
Check out our Care Services section on our website for a wealth of information.  alsrockymountain.org/navigating-als…. We're here for you. Because no one should face ALS alone.  #ALS #ALSUnited #TogetherWeEndALS
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 21/06/2026
On Global ALS/MND Awareness Day, we stand united. Urge Congress to fund ALS research, expand access, and support veterans with ALS. Take action: app.oneclickpolitics.com/campaign-p… #GlobalALSMNDAwarenessDay #ALS #ALSUNited
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 20/06/2026
Thank you, Sen. John Hickenlooper, for joining your colleagues on the Senate HELP Committee in advancing the ACT for ALS Reauthorization Act. This action moves us closer to continuing programs that support ALS research, expand access to therapies, and advance promising treatments. #ALS #ActforALS
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 19/06/2026
FAQ Friday! ALS is a horrible disease that many know little about. Help us spread awareness by sharing this post with your family and friends.  Learn more about ALS at alsrockymountain.org #FAQ #ALS #ALSUnited #ALSAwareness
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 19/06/2026
Today we honor Juneteenth, a celebration of freedom, resilience, and the long road toward justice. At ALS United Rocky Mountain, we're committed to fighting for a world where everyone has equal access to care, support, and a future free from ALS. Freedom means nothing left unfinished. 🕊️
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 18/06/2026
Introducing the brand new Walk app! Download the "ALS Fundraising" app to manage your Walk pages! Once you register, type in "RMWALK" to connect to your walk iOS: apps.apple.com/us/app/als-fundraisi… Android: play.google.com/store/apps/details?…
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 18/06/2026
🚨 The Senate HELP Committee approved the ACT for ALS Reauthorization Act! Congress must act before the law expires in September. Urge your Members to support it: app.oneclickpolitics.com/campaign-p… #ALS #ACTforALS
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ALS United Rocky Mountain @alsunitedrm.bsky.social · 12/06/2026
For over 30 years, ALS United Rocky Mountain has walked beside families facing ALS, and we could not do this work without partners like Ghent Chevrolet Cadillac.  Thank you for helping us provide compassionate care, meaningful support, and hope to our ALS community. Together, we end ALS®. #ALS
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