iiinova — where your digital self keeps evolving

ALS Therapy Development Institute @alstdi.bsky.social · 28/09/2026

Meet the people behind the research. Our scientists explaining their projects at last year's Summit poster session. They're back October 9 with new work. One week left to register in person. Summit: als.net/alssummit/ WCA: als.net/wca/

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ALS Therapy Development Institute @alstdi.bsky.social · 28/09/2026

What happens when ALS research gets mapped? Where clinics are, who lives hours from one, and where ARC participants have lived across their whole lives. If you've filled out an ARC survey, this is where your data goes. Thank you. Watch the Town Hall: youtube.com/watch?v=0PvM...

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ALS Therapy Development Institute @alstdi.bsky.social · 21/09/2026

At the ALS TDI Summit, hear from ALS TDI scientists and guest experts about promising new approaches across the field—and learn how ALS TDI's expansion will increase our capacity to pursue more of these opportunities. Read our blog to learn more: www.als.net/news/attend-...

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ALS Therapy Development Institute @alstdi.bsky.social · 14/09/2026

Meet the 2026 ALS TDI Leadership Award winners! Nine stories of advocacy, invention, and love, from an 8-year-old teaching his classmates about ALS to a golf challenge that's raised $2M+ for research. als.net/news/2026-al...

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ALS Therapy Development Institute @alstdi.bsky.social · 31/08/2026

Meet Dr. Danielle Boyce, ALS TDI's Principal Investigator, Real World Evidence! She's kicking off our new series, Behind the Data, exploring how ARC Study data helps uncover ALS discoveries. Learn more: als.net/arc/

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ALS Therapy Development Institute @alstdi.bsky.social · 24/08/2026

⏰ Only a few days left to register! We'll see you Sunday for the ALS Walk for Research. Sign up now and join us in supporting groundbreaking ALS research: alswalkforresearch.als.net

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ALS Therapy Development Institute @alstdi.bsky.social · 10/08/2026

Join our next ALS TDI Town Hall Aug 25 at 2 PM ET! Experts from ALS TDI and Esri explain how GIS mapping is helping researchers explore residential histories and environmental exposures tied to ALS risk, including work on the CDC ALS Registry. Register: www.als.net/als-town-hall/

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ALS Therapy Development Institute @alstdi.bsky.social · 04/08/2026

See what the ALS TDI community is up to this August! From car shows to triathlons to a marathon in Sydney, this community shows up in every way imaginable to fund ALS research. Learn more: www.als.net/als-events/u...

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ALS Therapy Development Institute @alstdi.bsky.social · 03/08/2026

ONE MONTH until the 2026 ALS Walk for Research! Don't miss out on this year's exclusive walk shirt. Preorder by selecting your size during registration, sizes are limited! Register here: fundraise.als.net/register/2/a...

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ALS Therapy Development Institute @alstdi.bsky.social · 03/08/2026

Join Team ALS TDI at a Spartan Race! As an Official Charity Partner for 2026, we're offering 20 fundraising spots. Raise $350 by year end and get free race registration. First-come, first-served, reach out to join the team!

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ALS Therapy Development Institute @alstdi.bsky.social · 27/07/2026

Join us in Boston, Oct. 8–10 for Leadership Weekend 2026! 🔬 Tour our research lab 🧪 Hear the latest ALS research updates 🤍 Celebrate the ALS community at the White Coat Affair We'd love to see you there. Learn more: als.net/leadershipwe...

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ALS Therapy Development Institute @alstdi.bsky.social · 20/07/2026

Military veterans have an increased risk of developing ALS, and researchers have also observed higher rates among elite athletes and first responders. But why? The Champion Insights study aims to help answer that question. Learn more: bit.ly/44wzmpk

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ALS Therapy Development Institute @alstdi.bsky.social · 14/07/2026

The work to end ALS takes all of us. 💙 Thank you to our researchers, staff, & Board members who rode, volunteered, cheered, & worked behind the scenes to make this year's Tri-State Trek possible. Special congratulations to our Chairwoman, Lynn Nieto, on completing her 1st Trek!

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ALS Therapy Development Institute @alstdi.bsky.social · 09/07/2026

Join us July 23 at 11 AM ET for our next ALS Town Hall: Introducing PRISM ALS. Learn how this global collaboration is expanding access to diverse patient-derived cell models to help accelerate better treatments for ALS. Register today: als.net/als-town-hal...

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ALS Therapy Development Institute @alstdi.bsky.social · 22/06/2026

"I just wish there was something to cure it. But one day there will be." This Father's Day, meet Logan and Skyler—two young advocates turning love for their dads into action for the ALS community. Read their story: als.net/news/two-you...

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ALS Therapy Development Institute @alstdi.bsky.social · 17/06/2026

Ever wondered what it looks like inside ALS research? A custom GoPro ride through CorD2, our automated screening platform named after Corey Reich, offers a rare look at the technology helping ALS TDI researchers evaluate potential therapies every day.

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ALS Therapy Development Institute @alstdi.bsky.social · 08/06/2026

Join us June 18 at 3 PM ET for an ALS TDI Town Hall featuring David Meissner of Your ALS Guide. Get a first look at the new ALS Research Guide, designed to help people with ALS and families better understand research and participation opportunities. 🔗 als.net/als-town-hall/

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ALS Therapy Development Institute @alstdi.bsky.social · 01/06/2026

Why do certain populations face a higher risk of ALS? Champion Insights is studying elite athletes, veterans, and first responders to better understand how genetics, environment, and lifestyle may influence ALS risk and progression. Watch more: youtube.com/watch?v=crtI...

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ALS Therapy Development Institute @alstdi.bsky.social · 27/05/2026

On Monday, Stuart Chapin began a 3,000+ mile ride across the country in honor of his father, who passed away from ALS. Now through August, he’ll ride from NYC to San Francisco to raise funds for ALS research at ALS TDI. Read his story: als.net/news/going-t...

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ALS Therapy Development Institute @alstdi.bsky.social · 19/05/2026

Step up to the plate for Lou Gehrig Day ⚾ Our limited-edition ALS TDI baseball shirt is available now for $30. Order soon to receive yours before June 2! 🛒 alstdi.88blue.com

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ALS Therapy Development Institute @alstdi.bsky.social · 11/05/2026

ALS research has reached a turning point. ALS TDI is expanding our scientific team and building a new 33,000 sq. ft. lab to test more ideas, move faster, and help advance more potential treatments toward clinical trials. Follow along for updates on this landmark expansion.

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ALS Therapy Development Institute @alstdi.bsky.social · 07/05/2026

Honored to announce Team ALS TDI / Google Co-Scientist received a #LongitudePrizeOnALS Discovery Award! We'll use advanced AI to find new drug targets and move closer to real treatments. @mndassoc.bsky.social @challengeworks.bsky.social Learn more: als.longitudeprize.org

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ALS Therapy Development Institute @alstdi.bsky.social · 30/04/2026

Our Fight ALS Film Fest returns for year 5—kicking off ALS Awareness Month. 5 powerful films + special guests from each story. Sunny of Sunnystrong and Her ALS Story returns as emcee. Learn more & register: als.net/als-film-fest/

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ALS Therapy Development Institute @alstdi.bsky.social · 27/04/2026

ALS research has reached a turning point. More ideas than ever—but too few places can turn them into treatments. To meet this moment, ALS TDI is expanding: doubling our research team and building a new 33,000 sq. ft. lab. youtu.be/-Ey4WlCqhX4?... (1/2)

youtu.be

A Landmark Expansion to Accelerate ALS Treatments

YouTube video by ALS Therapy Development Institute

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ALS Therapy Development Institute @alstdi.bsky.social · 21/04/2026

Read a letter from Zach Zangl, diagnosed with ALS in 2024 and now on the board of the ALS 100, a golf event raising funds for ALS research at ALS TDI: als.net/news/l-i-v-i... Alongside our scientists, team members like Carol are here to help you get involved in the mission.

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ALS Therapy Development Institute @alstdi.bsky.social · 21/04/2026

Join us May 15 (3–4 PM ET) for an ALS Town Hall on Champions Insights. Learn how studying higher-risk groups like athletes, veterans, & first responders could help advance ALS research for everyone. Hosted by ALS TDI, Answer ALS & Augie's Quest. Register: als.net/als-town-hall/

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ALS Therapy Development Institute @alstdi.bsky.social · 13/04/2026

We answer only to the ALS community. That means following the science, being transparent about what we find—and what we don’t—and staying accountable to those who need answers most. Thank you for pushing this work forward.

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ALS Therapy Development Institute @alstdi.bsky.social · 06/04/2026

mRNA therapies could target multiple drivers of ALS—but delivery into the brain remains a major hurdle. ALS TDI is collaborating with Dr. Michael Mitchell (UPenn) to develop lipid nanoparticles (LNPs) to deliver these therapies: als.net/news/mrna-lnp-therapies-for-als/

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ALS Therapy Development Institute @alstdi.bsky.social · 30/03/2026

Behind every experiment is a decision: Will this bring us closer to a treatment for ALS? At ALS TDI, we use four key questions to guide every project we take on—so we can focus on what matters most: real impact for people living with ALS. (1/2)

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ALS Therapy Development Institute @alstdi.bsky.social · 23/03/2026

Every data point tells a story. Every participant moves research forward. Keith is part of the ARC Study—where participants are helping ALS TDI researchers uncover critical insights that could lead to new treatments. Be part of it: als.net/arc

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ALS Therapy Development Institute @alstdi.bsky.social · 16/03/2026

Celebrating 20 years of Shawn Sullivan at ALS TDI. From our drug discovery pipeline to the ARC portal, ARC Data Commons, and many internal systems, Shawn’s work supports nearly every part of the Institute. We’re incredibly grateful for his dedication.

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ALS Therapy Development Institute @alstdi.bsky.social · 16/03/2026

Thank you to our 14 incredible NYC Half Marathon runners who braved the cloudy race day yesterday and ran 13.1 miles for ALS research at ALS TDI, raising $68K+. It’s not too late to support their efforts: fundraise.als.net/donate/nychalf

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ALS Therapy Development Institute @alstdi.bsky.social · 09/03/2026

Pictured here is Val caring for our zebrafish in the lab. Zebrafish models help our scientists study ALS and test new ideas that could lead to treatments. We take great care of every animal in our labs, and Val is the zebrafish’s most dedicated caretaker.

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ALS Therapy Development Institute @alstdi.bsky.social · 03/03/2026

Join our ALS TDI Town Hall to explore The Les Turner ALS Foundation’s My ALS Decision Tool™ and ALS TDI’s ALS Trial Navigator — empowering informed decisions about clinical trials. 🗓 March 12, 3–4 PM EST Register: als.net/als-town-hall/

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ALS Therapy Development Institute @alstdi.bsky.social · 25/02/2026

Finding ALS trials shouldn’t be overwhelming. The updated ALS Trial Navigator now features: ✔ Simplified experience ✔ Provider Quick Start ✔ NEALS-affiliated filter Learn more: als.net/news/the-als...

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ALS Therapy Development Institute @alstdi.bsky.social · 20/02/2026

Today is National Caregivers Day. To the extraordinary caregivers in the ALS community, thank you. Your strength and resilience fuel our urgency and push our research forward. We see you. We honor you.

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ALS Therapy Development Institute @alstdi.bsky.social · 09/02/2026

Champion Insights is open. The enrollment portal is live at championinsights.org. At-home ALS research for high-risk/high-performance populations (endurance athletes, military, and first responders). If you know someone who is eligible, please share. #ALS #endALS

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ALS Therapy Development Institute @alstdi.bsky.social · 02/02/2026

We’re excited to share that NEALS is partnering with ALS TDI on the ALS Trial Navigator. People searching for clinical trials through NEALS can now use the ALS Trial Navigator on the ALS TDI website. More updates coming in February!

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ALS Therapy Development Institute @alstdi.bsky.social · 02/02/2026

Science can be powerful—and breathtaking. Congrats to Swetha Gurumurthy, Associate Scientist II, named runner-up in the Royal Society Publishing Photography Competition for her image of iPSC-derived motor neurons studying ALS. Read more here: als.net/news/als-tdi...

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ALS Therapy Development Institute @alstdi.bsky.social · 26/01/2026

🏀 Game on for a cause! This February, Hoops 4 ALS is bringing the heat with 4 Games you won’t want to miss. Tune in or join us in person to cheer on the teams and help support ALS research. Let’s make every point count!

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ALS Therapy Development Institute @alstdi.bsky.social · 26/01/2026

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ALS Therapy Development Institute @alstdi.bsky.social · 21/01/2026

You rode. You ran. You danced. You sold. You played. You hosted. You even raised a glass! And together, events hosted by YOU raised $3.5 million for ALS research at ALS TDI in 2025. We are endlessly grateful—and can’t wait to see where 2026 takes us. 💜

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ALS Therapy Development Institute @alstdi.bsky.social · 12/01/2026

Beat the cold in style ❄️ Our new 'END ALS' winter beanies are here! Be sure to grab one while they last and help fuel ALS research. Get yours today: alstdi.88blue.com

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ALS Therapy Development Institute @alstdi.bsky.social · 12/01/2026

What started as a family love of running became a mission to #EndALS. Connor McCullum ran the 2025 NYC Marathon for his dad after an ALS diagnosis—raising nearly $17K for research along the way. Read the full story: als.net/news/connor-...

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ALS Therapy Development Institute @alstdi.bsky.social · 06/01/2026

As we enter a new year, it’s time to take stock—not celebrate. Progress in ALS research happens quietly, over time, because people invest before certainty. In 2026, ALS TDI is focused on growth, acceleration, and urgency with rigor. Read more → als.net/news/on-prog...

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ALS Therapy Development Institute @alstdi.bsky.social · 29/12/2025

AP-101 just advanced toward Phase 3 trials—and ALS TDI helped make it possible. Years ago, donor support funded the unglamorous preclinical work behind this moment. That’s the power of flexible research funding. Read more: www.als.net/news/a-story...

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ALS Therapy Development Institute @alstdi.bsky.social · 22/12/2025

What does it mean to be a nonprofit biotech? At ALS TDI, it means inventing and advancing new medicines in our own lab—accountable only to the ALS community. Every dollar goes back into urgent, open ALS research. Your support fuels the science. Donate: als.net/endals2025/?...

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ALS Therapy Development Institute @alstdi.bsky.social · 22/12/2025

Happy holidays from all of us at ALS TDI. We’re deeply grateful for our community of supporters, scientists, and advocates who make our work possible. Wishing you a season filled with comfort, connection, and time with those you love.

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ALS Therapy Development Institute @alstdi.bsky.social · 15/12/2025

LIMITED BIBS LEFT! Run for ALS research in: 🇫🇷 Hoka Semi de Paris 🇫🇷 Schneider Electric Marathon de Paris 🇦🇺 TCS Sydney Marathon Apply NOW to join Team ALS TDI and make every mile count! als.net/news/2026-ma...

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ALS Therapy Development Institute @alstdi.bsky.social · 08/12/2025

Emily is feeling inspired after an energizing four days at the 2025 Alliance Meeting & Allied Professionals Forum in San Diego, CA!

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