ALS News Today @alsnewstoday.bsky.social · 2hHow you process things may change from day to day, and that’s completely normal. #ALS 000
ALS News Today @alsnewstoday.bsky.social · 3hExplore the details: bit.ly/4rTWR6v Common viral infections such as influenza and COVID-19 may accelerate the onset and progression of ALS, a new mouse study suggests. #ALS #ALSNewsToday #Bionews #ALSCommunitybit.lyCommon viral infections may lead to faster ALS progression: StudyCommon viral infections such as influenza and COVID-19 may accelerate the onset and progression of ALS, a new mouse study suggests. 000
ALS News Today @alsnewstoday.bsky.social · 23hThe way you handle today is enough, whatever that looks like. #ALS 000
ALS News Today @alsnewstoday.bsky.social · 05/10/2026The ALS community is mourning the loss of advocate Brooke Eby, who passed away Oct. 1 at age 37. Read more about Brooke’s life and legacy: bit.ly/4AKA0OV #BrookeEby #ALS #ALSAdvocacy #ALSCommunity #ALSNewsToday 011
ALS News Today @alsnewstoday.bsky.social · 05/10/2026You’re allowed to acknowledge what today looks like without downplaying it. #ALS 000
ALS News Today @alsnewstoday.bsky.social · 04/10/2026Your experience is part of a wider story that deserves recognition. #ALS 000
ALS News Today @alsnewstoday.bsky.social · 04/10/2026I don’t want to be inspirational. I want to be understood. #ChronicallyIll 000
ALS News Today @alsnewstoday.bsky.social · 03/10/2026You bring something unique to the world that ALS cannot erase. #RareDiseaseCommunity 001
ALS News Today @alsnewstoday.bsky.social · 03/10/2026Your worth isn’t measured in tasks, energy, or output. #ALS 000
ALS News Today @alsnewstoday.bsky.social · 02/10/2026Strength can exist without movement, effort, or action. #ALScommunity 000
ALS News Today @alsnewstoday.bsky.social · 02/10/2026Discover more: bit.ly/4xXL4oW For people with neuromuscular diseases at MDA Engage: Chicago, the biggest takeaway was realizing they are not alone. #ALS #ALSNewsToday #Bionews #ALSCommunitybit.lyMDA Engage: Chicago event sparks new connections, insightsFor people with neuromuscular diseases at MDA Engage: Chicago, the biggest takeaway was realizing they are not alone. 000
ALS News Today @alsnewstoday.bsky.social · 02/10/2026Explore the details: bit.ly/46T1T9J Guest writer Cristy Hardin shares how defining friendship took on new meaning when she became a caregiver for a close friend. #ALS #ALSNewsToday #Bionews #ALSCommunitybit.lyGuest Voice: Redefining friendship when ALS entered our livesGuest writer Cristy Hardin shares how defining friendship took on new meaning when she became a caregiver for a close friend. 000
ALS News Today @alsnewstoday.bsky.social · 02/10/2026There is value in every way you show up #ALSsupport 000
ALS News Today @alsnewstoday.bsky.social · 02/10/2026Explore the details: bit.ly/3VsRE9x Medicinova completed the last patient visit in the placebo-controlled portion of a trial testing MN-166, its experimental treatment for ALS. #ALS #ALSNewsToday #Bionews #ALSCommunitybit.lyTrial testing experimental ALS treatment completes first partMedicinova completed the last patient visit in the placebo-controlled portion of a trial testing MN-166, its experimental treatment for ALS. 000
ALS News Today @alsnewstoday.bsky.social · 01/10/2026Today holds space for you exactly as you are. #ALSCommunity 000
ALS News Today @alsnewstoday.bsky.social · 01/10/2026Discover more: bit.ly/4jtayXO Advocates are cheering as legislation to renew the ACT for ALS headed to President Trump's desk days before the program is set to expire. #ALS #ALSNewsToday #Bionews #ALSCommunitybit.lyACT for ALS reauthorization bill awaits president's signatureAdvocates are cheering as legislation to renew the ACT for ALS headed to President Trump's desk days before the program is set to expire. 000
ALS News Today @alsnewstoday.bsky.social · 01/10/2026How you show up today is shaped by things most people never see. #RareDiseaseCommunity 000
ALS News Today @alsnewstoday.bsky.social · 01/10/2026Kiersten, who lives with Friedreich’s ataxia (FA), speaks to that unseen exhaustion and why understanding from others can matter. Join the ALS News Today Forums to connect with others affected by ALS: bit.ly/47daX9H #ALS #ChronicIllness #ALSCommunity #ALSNewsToday #Bionews 000
ALS News Today @alsnewstoday.bsky.social · 01/10/2026Explore the details: bit.ly/4hTaM9r A walk past fruit trees reminds columnist Kristin Neva of her father, and she thinks about what will remind her children of their dad. #ALS #ALSNewsToday #Bionews #ALSCommunitybit.lyLove, legacy, and a harvest of memories that fathers leave behindA walk past fruit trees reminds columnist Kristin Neva of her father, and she thinks about what will remind her children of their dad. 000
ALS News Today @alsnewstoday.bsky.social · 30/09/2026You’re moving through something complex, and it’s okay if your emotions are, too. #ALS 000
ALS News Today @alsnewstoday.bsky.social · 30/09/2026Some moments carry a kind of meaning that only you can define. #ALS 000
ALS News Today @alsnewstoday.bsky.social · 30/09/2026Get the scoop: bit.ly/4AH1QLQ Early rehabilitation and a care team that works together are crucial for helping people with neuromuscular disease stay active and safe. #ALS #ALSNewsToday #Bionews #ALSCommunitybit.lyMDA Engage: Early rehabilitation key for neuromuscular diseaseEarly rehabilitation and a care team that works together are crucial for helping people with neuromuscular disease stay active and safe. 000
ALS News Today @alsnewstoday.bsky.social · 29/09/2026The way you process today belongs entirely to you. #LivingWithALS 001
ALS News Today @alsnewstoday.bsky.social · 29/09/2026The everyday, challenging moments, such as repositioning in bed, bathing, and waiting for help with the restroom, can be some of the hardest parts of this disease. Your experiences during these times are recognized within this community. #ALS 000
ALS News Today @alsnewstoday.bsky.social · 29/09/2026A computer-based analysis of whole-blood samples identified 10 genes with altered activity that researchers say may have potential as biomarkers for diagnosing and tracking ALS. 🔗 Read more: bit.ly/4hD5DRF #ALS #ALSResearch #ALSNewsToday #Bionews 000
ALS News Today @alsnewstoday.bsky.social · 29/09/2026Explore the details: bit.ly/4iVGUdG Voice Back, an AI app, helps people with ALS and other causes of speech loss communicate using a voice that sounds like their own. #ALS #ALSNewsToday #Bionews #ALSCommunitybit.lyNew AI app helps people with ALS keep their own voicesVoice Back, an AI app, helps people with ALS and other causes of speech loss communicate using a voice that sounds like their own. 000
ALS News Today @alsnewstoday.bsky.social · 28/09/2026Caregivers do a thousand invisible things every day. We see you and send a virtual hug your way 🫂 #ALSCaregiver 000
ALS News Today @alsnewstoday.bsky.social · 28/09/2026For parents with ALS: the love you show your kids, even if it comes across differently, still reaches them. #ALS 000
ALS News Today @alsnewstoday.bsky.social · 28/09/2026Over 16 years of living with ALS, Dagmar Munn says she has changed the way she responds when her body does not move the way she expects: bit.ly/4e39UN4 #ALS #LivingWithALS #ChronicIllness #ALSNewsToday #Bionews 010
ALS News Today @alsnewstoday.bsky.social · 28/09/2026Explore the details: bit.ly/4hAsKMH A progressive decline in lung function is unavoidable in ALS, but there are steps that patients can take to improve breathing issues. #ALS #ALSNewsToday #Bionews #ALSCommunitybit.lyMDA Engage: Patients can take steps to improve breathing issuesA progressive decline in lung function is unavoidable in ALS, but there are steps that patients can take to improve breathing issues. 000
ALS News Today @alsnewstoday.bsky.social · 27/09/2026Families living with ALS learn to manage fear, love, and responsibility all at once. It takes a community’s support, along with immense love and strength. #ALS 000
ALS News Today @alsnewstoday.bsky.social · 27/09/2026Your body is carrying something far heavier than most people understand. This community acknowledges every hurdle you're going through. #ChronicIllness 031
ALS News Today @alsnewstoday.bsky.social · 26/09/2026Your effort counts, even when the outcome looks different than before. #RareDisease 000
ALS News Today @alsnewstoday.bsky.social · 26/09/2026Joy may look different now, but it still matters. #ChronicLife 000
ALS News Today @alsnewstoday.bsky.social · 25/09/2026Families adjusting to ALS build new routines constantly. It’s not easy work, and it’s okay if it feels messy or imperfect. #ALS 000
ALS News Today @alsnewstoday.bsky.social · 25/09/2026Discover more: bit.ly/3TT7da2 Low muscle mass in the arms and legs and sarcopenia were linked to poorer survival in people with ALS in a small prospective study. #ALS #ALSNewsToday #Bionews #ALSCommunitybit.lyLow muscle mass may help predict survival in people with ALSLow muscle mass in the arms and legs and sarcopenia were linked to poorer survival in people with ALS in a small prospective study. 000
ALS News Today @alsnewstoday.bsky.social · 25/09/2026A targeted treatment for a rare genetic form of ALS has met its main goal in a Phase 3 trial. Read more: bit.ly/3TpqLCD #ALS #ALSTreatment #ALSResearch #ALSNewsToday #Bionews 000
ALS News Today @alsnewstoday.bsky.social · 25/09/2026You deserve moments of ease wherever they can be found. Wishing you some gentleness today. #ALS 000
ALS News Today @alsnewstoday.bsky.social · 24/09/2026It’s understandable if your thoughts move in directions you didn’t expect. #ALS 000
ALS News Today @alsnewstoday.bsky.social · 24/09/2026Take a closer look: bit.ly/46Ie6Os Columnist Kristin Neva takes note of the changing seasons with an initial sense of dread, then refocuses on the good things that also come. #ALS #ALSNewsToday #Bionews #ALSCommunitybit.ly 000
ALS News Today @alsnewstoday.bsky.social · 24/09/2026Your way of navigating today doesn’t have to look like anyone else’s. #ALS 000
ALS News Today @alsnewstoday.bsky.social · 24/09/2026Discover more: bit.ly/4d3W4tt Phase 3 FUSION results suggest a targeted therapy may slow disease progression in FUS-ALS, with benefits seen versus placebo. #ALS #ALSNewsToday #Bionews #ALSCommunitybit.lyTherapy may slow disease progression in people with FUS-ALSPhase 3 FUSION results suggest a targeted therapy may slow disease progression in FUS-ALS, with benefits seen versus placebo. 000
ALS News Today @alsnewstoday.bsky.social · 24/09/2026“While scrolling through social media the other day, I came across a question that stopped me in my tracks: How has having ALS impacted your life for the better?” -Dagmar Munn Continue with this reading: bit.ly/47evVoo #ALS #LifeWithALS #ALSDiagnosis #ALSNewsToday #Bionews 000
ALS News Today @alsnewstoday.bsky.social · 23/09/2026The impact you’ve had on people is woven into their lives in lasting ways. #ALSCommunity 001
ALS News Today @alsnewstoday.bsky.social · 23/09/2026Get the scoop: bit.ly/4xNkXRH ALS disrupted her relationship with her body, so columnist Dagmar Munn developed small, intentional habits to restore her confidence. #ALS #ALSNewsToday #Bionews #ALSCommunitybit.lyBuilding small habits through exercise to stay strong with ALSALS disrupted her relationship with her body, so columnist Dagmar Munn developed small, intentional habits to restore her confidence. 000
ALS News Today @alsnewstoday.bsky.social · 23/09/2026A legacy isn’t built from accomplishments, it’s built from how you make people feel. #SpoonieSupport 000
ALS News Today @alsnewstoday.bsky.social · 23/09/2026Take a closer look: bit.ly/3VMK4qj Mouse model study finds molecular changes in inflammation, RNA, and protein processing before ALS symptoms appear. #ALS #ALSNewsToday #Bionews #ALSCommunitybit.lyMolecular changes appear before ALS symptoms in mouse modelMouse model study finds molecular changes in inflammation, RNA, and protein processing before ALS symptoms appear. 000
ALS News Today @alsnewstoday.bsky.social · 22/09/2026Post-rest can still feel exhausting when your body doesn’t recover the way it used to. #ChronicFatigue 000
ALS News Today @alsnewstoday.bsky.social · 22/09/2026Explore the details: bit.ly/4cXwy9l ALS may change what marriage looks like for guest columnist Nancy Muirhead and her husband, but it cannot change their love. #ALS #ALSNewsToday #Bionews #ALSCommunitybit.lyGuest Voice: Love protects our marriage in the ‘Suffering Wars’ of ALSALS may change what marriage looks like for guest columnist Nancy Muirhead and her husband, but it cannot change their love. 000
ALS News Today @alsnewstoday.bsky.social · 22/09/2026Some connections leave a mark that time can’t undo. #RareDisease 000