iiinova — where your digital self keeps evolving

Reposted by AlexPS [he/they]

cee @cee.wtf · 04/09/2026

throng.cee.wtf i've invented a new way to browse bluesky

35582231914

AlexPS [he/they] @alexpostscript.bsky.social · 08/07/2026

One of our hard drives was acting weird over the past couple days, but one of our programs must have mysteriously fixed it? It isn't randomly disconnecting or reconnecting anymore, which is good.

000

Reposted by AlexPS [he/they]

Spicymochi @spicymochi.bsky.social · 02/07/2026

Choose a cartoon puppy to adopt!

Illustration of kk slider and isabelle from animal crossing, clifford the big red dog, snoopy from peanuts, bluey and bingo from bluey, blue and magenta from blue's clues, courage the cowardly dog, kipper the dog, gir from invader zim, jake the dog from adventure time, gromit from wallace and gromit, pochacco, pompompurin, and cinnamoroll from sanrio.

8141871482

AlexPS [he/they] @alexpostscript.bsky.social · 03/07/2026

it's so weird, not getting our infusion on friday, but oh well, that means we can just relax :3

000

AlexPS [he/they] @alexpostscript.bsky.social · 27/06/2026

We completely crashed on Thursday because low energy, we'll be alright but Saturday and Sunday will be more resting and ND nesting than usual

000

Reposted by AlexPS [he/they]

auntyr.bsky.social @auntyr.bsky.social · 15/06/2026

A world-class education is now completely free — MIT has opened its entire vault of more than 2,500 courses to the public online. source: Massachusetts Institute of Technology. (2026). About Us: MIT OpenCourseWare. MIT Open Learning. 😊

277130374443

AlexPS [he/they] @alexpostscript.bsky.social · 13/06/2026

This week has been a bit hectic but we are surrounded by wonderful people so it's not really as bad :3

000

AlexPS [he/they] @alexpostscript.bsky.social · 03/06/2026

our hEDS symptoms are way worse right now, possibly due to the CSF Leak, hopefully once that's patched up we'll be doing a lot better, if they don't find a leak it's probably because the leak patched itself (which it tends to do) but we'll need to make sure to stay on top of it. hEDS/MCAS fatigue...

000

AlexPS [he/they] @alexpostscript.bsky.social · 03/06/2026

We may feel little or no shame about our health, our life, and how we are surviving, after we found out about our hEDS. It will take some time to heal emotionally, psychologically and mentally from the DECADES of shame about our life, but we're hopeful we'll be better mentally for it.

000

AlexPS [he/they] @alexpostscript.bsky.social · 03/06/2026

After finding out that hEDS is most likely the case, a lot of the shame dissapeared, because we felt like there was no reason why we were like this, but now there is one, and it makes a lot of sense. Now we're slowly just processing and unpacking all of our shame to separate it out.

000

AlexPS [he/they] @alexpostscript.bsky.social · 03/06/2026

So we talked to our Immunologist today, will get a blood test tomorrow to see if we need a higher dose of Hizentra or not, we haven't skipped a week of infusions so we think it should be at least relatively good.

000

Reposted by AlexPS [he/they]

George Takei @georgetakei.bsky.social · 01/06/2026

This right here.

A witty exchange where someone asked "Why don't immigrants start their own countries?" and Smith replied "They did, it was called America."

674780987

AlexPS [he/they] @alexpostscript.bsky.social · 01/06/2026

Not everyone has multiple immunodificiencies and a debilitating connective tissue disorder, the Mast Cell Activation Syndrome causes extreme lethargy, hopefully the infusions work well enough, but it might also be the hEDS, and maybe the possible CSF leak that could be making wit worse.

000

AlexPS [he/they] @alexpostscript.bsky.social · 01/06/2026

Being told 'other people have it worse' to invalidate us, and then finding out that we have it worse than a lot of people, weirdly enough feels relieving, because we feel like that kind of invalidation can be used against us anymore, since we're chronically ill in multiple ways.

000

AlexPS [he/they] @alexpostscript.bsky.social · 01/06/2026

Being able to keep moving despite literally everything being so difficult is perseverence, we believe not a lot of other people could have made it through what we did, and we're grateful that we're still here.

000

AlexPS [he/they] @alexpostscript.bsky.social · 01/06/2026

Things are actually starting to make sense now, and we no longer feel like we just have to give up on ourselves. Yes, we had, at least partially, given up on ourselves, for the longest time, yet we still tried and persisted, even though we felt like there was NO relief or actual goal.

000

AlexPS [he/they] @alexpostscript.bsky.social · 01/06/2026

It's felt like years since we had actual hope, and felt like things were going to get better, and like things were going to go well for us. Even with all these other struggles, we feel weirdly hopeful about this personal experience. It feels like it wasn't all for nothing anymore, there's reason now

000

AlexPS [he/they] @alexpostscript.bsky.social · 01/06/2026

We didn't mean to be born in, and also, to form, in such a complicated manner, that's just kinda how life is, fortunately and unfortunately. We'll be alright because we have an answer, and are working towards solutions. When we didn't have an answer, nor a solution, we were... really depressed.

000

AlexPS [he/they] @alexpostscript.bsky.social · 01/06/2026

weirdly enough, the extreme possibility of hEDS is giving us a kind of hope that our life can improve at least somewhat, we were feeling very hopeless before, it was like the MCAS and DID and Gender Dypshoria dx-s, it was like a puzzle piece clicking into place, everything made sense.

000

AlexPS [he/they] @alexpostscript.bsky.social · 01/06/2026

hEDS dx journey is on its first legs, got the ball rolling, will be self-dx until then but we were self-dx with DID and MCAS until we got the dx so it's not like we're not trying to get the dx, getting the dx means treatment, treatment we need, of course

000

Reposted by AlexPS [he/they]

Indivisible ❌👑 @indivisible.org · 30/05/2026

Immigrants held in detention at Delaney Hall and their families are in critical need of basic necessities, groceries, transportation, and funds to call families and lawyers. Donate to the Commissary and Communication Fund for hunger strikers.

givebutter.com

Commissary and Communication Fund

Help someone detained afford basic food and necessities they are being denied

7225131

Reposted by AlexPS [he/they]

ProPublica @propublica.org · 31/05/2026

When insurance coverage for her husband’s lifesaving care was denied, Teressa didn’t stand down. She fought back and won. She found the secret to winning buried deep in her insurance coverage booklet. Listen to her story on "Paper Trail": www.propublica.org/podcast/heal...

"If you're ever in a similar fight with your health insurance company [over denied coverage], you might need to know this too." -Jessica Lussenhop, ProPublica reporter and "Paper Trail" host. Listen at propublica dot org slash podcast.

10485182

AlexPS [he/they] @alexpostscript.bsky.social · 29/05/2026

Sooo apparently hEDS can cause hypoglycemia... that explains a lot

000

AlexPS [he/they] @alexpostscript.bsky.social · 27/05/2026

hEDS is not just hypermobility, it's also dry, flaky skin on parts of the body (hands, ankles, knees, elbows), comorbidities like MCAS, IBS, GERD, and chronic fatigue. There's more to that but yeah...

000

AlexPS [he/they] @alexpostscript.bsky.social · 27/05/2026

so our hEDS diagnosis journey is already kinda started, we have multiple referrals but haven't heard back yet from anybody. The Neurologist is supposed to be the one who can figure out where the hell the CSF Leak is, and then refer us to probably surgery because it's been a decade since it happened.

000

AlexPS [he/they] @alexpostscript.bsky.social · 27/05/2026

We're just relieved and also very happy that we have people in our lives who care about and support us.

000

AlexPS [he/they] @alexpostscript.bsky.social · 27/05/2026

We don't think politics fatigue is the only thing that was making us depressed, we believe that it's been resolved now though, the other thing. We're just happy things have basically resolved.

010

AlexPS [he/they] @alexpostscript.bsky.social · 27/05/2026

Talked to the caregiving agency about today and tomorrow, not going to say which agency, but ye, we should be fine. We have a ride, we'll be ok, we did also get the most needed groceries yesterday, right before everything kinda blew up.

000

AlexPS [he/they] @alexpostscript.bsky.social · 27/05/2026

There's a saying, 'never interrupt your enemy when they are making a mistake', if someone is starting to be a toxic shithead to us, we let them talk their bs, usually they leave and expect us to chase, but their behavior showed that they aren't worth chasing. Their content of character was shit.

000

AlexPS [he/they] @alexpostscript.bsky.social · 27/05/2026

Being able to notice when someone is becoming toxic or trying to put us through a humiliation ritual saved us from a lot of grief, it's better to not reintegrate, and to just leave the awful people alone.

000

AlexPS [he/they] @alexpostscript.bsky.social · 27/05/2026

We're just trying to calm down right now, after the whole ordeal and the fallout, of which was the almost cancelled dentist appointment (which we do not want to cancel because we would like our teeth to be in working order again). We also didn't know it doesn't have to be a shared ride, that's good

000

AlexPS [he/they] @alexpostscript.bsky.social · 27/05/2026

Okay, crisis averted! Thank goodness Community in Motion had our back, holy moly

000

AlexPS [he/they] @alexpostscript.bsky.social · 27/05/2026

We thought things were going to be okay, and then suddenly they aren't, and it's a struggle, we've been through a lot worse but, we're pretty tired of struggling. We know this is only a temporary issue, but it's just... Not a fun experience.

000

AlexPS [he/they] @alexpostscript.bsky.social · 27/05/2026

After what happened yesterday, we may not be able to get to our dentist appointment, really don't want to talk about what happened, we may have to reschedule said appointment, feeling really sad and exhausted.

000

AlexPS [he/they] @alexpostscript.bsky.social · 24/05/2026

I think the judgemental bit happened before the MCAS/CVID dx but yea, still sucks, there isn't 'nothing wrong' with us, we have to get infusions once a week for the rest of our lives, people don't get stuff like that and have 'nothing wrong' with them

000

AlexPS [he/they] @alexpostscript.bsky.social · 24/05/2026

well, we're going to get diagnosed for another chronic illness, might see about a POTS one as well, so that's MCAS and CVID for the dx'd part, hEDS is being worked on, possible POTS, if not POTS then ok, just probably need to make sure we DON'T have it

000

AlexPS [he/they] @alexpostscript.bsky.social · 24/05/2026

Hopefully now that we're diacnosed with a chronic illness, our extended family won't feel the need to be angry that our dad comes over every few days and helps us with a few things. If it was every day, and not things we couldn't really take care of ourselves, understandable, but that ain't the case

000

Reposted by AlexPS [he/they]

Lexi "Pro-Democracy" 💙 @lexi6toes.bsky.social · 22/05/2026

How a Cyanide Bomb works. 👇🤬🤬 Cruel Inhumane Unacceptable for ANY ANIMAL and environment Call your reps and tell them THIS IS A HORRIBLE DECISION! Let's keep on this and Say HELL NO to the states who have enabled this dystopian weapon. #VoteBlue to save animals! #NoCyanideBombs

147

AlexPS [he/they] @alexpostscript.bsky.social · 21/05/2026

Growing up, we were told we were lazy, unmotivated, and crazy. Now? Everybody's REAAAAL silent because of all the dx that has been going around. Also cutting off half our family really helped, but tbh they abandoned us in 2021 sooo :L wasn't too hard, yk

000

AlexPS [he/they] @alexpostscript.bsky.social · 21/05/2026

we're doing better, just trying to get the last dx we need for everything, hEDS is what has been kicking our asses a lot. We ALSO might... kinda... have a CFS leak... which can cause fatigue and pulse in ears, and a few more of the symptoms we have right now, so, probably back to a neurologist? wdk

000

AlexPS [he/they] @alexpostscript.bsky.social · 21/05/2026

Destiny 2 is no longer being shat on, so... Can I wear my Braytech Werewolf long sleeve shirt now? ;>w> I did everything in the event and bought the shirt, and it's comfy (of course I'm going to wear it when autumn happens, it's hot rn in burgerland)

010

AlexPS [he/they] @alexpostscript.bsky.social · 21/05/2026

we're getting politics fatigue so we're not watching much political stuff for a bit because we're legitimately getting depressed over it and we haven't upped our Lexapro enough for this rn.

000

AlexPS [he/they] @alexpostscript.bsky.social · 21/05/2026

sooo we are very sure we have hEDS (hypermobile ehlers danlos syndrome) and apparently, the thing that holds your teeth in your gums is... connective tissue, and EDS is... a connective tissue disorder... :L that's why our teeth move around when we sleep huh

000

AlexPS [he/they] @alexpostscript.bsky.social · 07/05/2026

Clover Pit having ways to add to the amount of lucky charms you get is great until you still buy too many and have to start using the drawers again :c

000

AlexPS [he/they] @alexpostscript.bsky.social · 07/05/2026

We'll try to be more active here but we don't have that many followers

000