Alex @alex-wears-crocs.bsky.social · 28/09/2026I still have so much life left to live, if only I could live it. #millionsmissing #severeME 040
Alex @alex-wears-crocs.bsky.social · 19/09/2026Apparently sitting up for a minute to stare forlornly at my TV is a luxury I can't afford. #severeME #lowspoons #millionsmissing #imtiredofthis #chronicillness 130
Alex @alex-wears-crocs.bsky.social · 18/08/2026eyesight is overrated #photophobia #photosensitivity #disabled 000
Alex @alex-wears-crocs.bsky.social · 05/08/2026Resistance is a property of an object and an inevitability of a stubborn personality. 000
Alex @alex-wears-crocs.bsky.social · 06/07/2026saying that I have the memory of a goldfish right now is actually an insult to goldfishes 000
Alex @alex-wears-crocs.bsky.social · 05/07/2026it feels like my brain is on fire and I have the wrong type of fire extinguisher 000
Alex @alex-wears-crocs.bsky.social · 30/06/2026'Gender-critical' is just another word for #transphobic. Gender-critical 'beliefs' are protected in the #UK by the #EqualityAct. #Homophobia isn't protected by the #Equality Act. Nor are sexism, racism or ableism. In fact, the Act exists to #prevent them. So why is #transphobia any #different? 000
Alex @alex-wears-crocs.bsky.social · 20/06/2026Eating cheesestrings is like eating hair, but in a good way. #yum 000
Alex @alex-wears-crocs.bsky.social · 30/05/2026"FOR THE CALORIES!!!" is my mantra whenever I eat something now. Eating is hard. #malnutrition #severeME 020
Alex @alex-wears-crocs.bsky.social · 23/05/2026I want to take my nervous system out of my body, give it a good thorough scrubbing, rinse it off, and then leave it in a dark room for 24-72 hours before putting it back in my body. #autistic #overwhelmed #overstimulated 010
Alex @alex-wears-crocs.bsky.social · 21/05/2026People are like trees. They are both solid and unchanging, and in a constant state of change and flux, unable to move but always trying to grow towards the sunlight. #thought #comparison #people #trees #nature #change #growth 010
Alex @alex-wears-crocs.bsky.social · 12/05/2026I have an #illness more #common than type 1 diabetes and more #devastating to my quality of life than cancer, yet no one has ever heard of #MyalgicEncephalomyeliti. #MEAwarenessDay #MillionsMissing #MECFS #chronicillness #spoonie #severeME 2123
Alex @alex-wears-crocs.bsky.social · 10/05/2026I wish I could walk so that I could feel the weight of my body through my legs. It's a sensation that I really miss. #proprioception #wheelchairuser #severeME 030
Alex @alex-wears-crocs.bsky.social · 09/04/2026UK portion sizes are ridiculously small. I always double them, and even then I don't eat enough. 000
Alex @alex-wears-crocs.bsky.social · 05/04/2026Just because you *can* swallow pills without water, doesn't mean you *should* swallow pills without water. 000
Alex @alex-wears-crocs.bsky.social · 17/03/2026#StarTrek needs more #disabled #Vulcans. Infinite Diversity in Infinite Combinations. 🖖 021
Alex @alex-wears-crocs.bsky.social · 12/03/2026#MyalgicEncephalomyelitis punishes me for being #human. I was curious and stubborn and intelligent and caring, but I'm not allowed to be that person anymore. I have to choose not to think too hard, or this #illness will choose that for me. #severeME #millionsmissing #spoonie 031
Alex @alex-wears-crocs.bsky.social · 12/03/2026#MyalgicEncephalomyelitis might not kill you (in most cases), but it doesn't make you stronger. It just takes everything away from you, little by little, until there is nothing left but you and the void. It's scary in here. 🕳️ #severeME #MECFS #chronicillness #spoonie 020
Alex @alex-wears-crocs.bsky.social · 06/03/2026My circadian rhythm is a party animal #circadianrhythm #N24 #severeME 010
Alex @alex-wears-crocs.bsky.social · 22/02/2026I like not having to worry about if I'm going to trip over my own feet anymore #wheelchairuser 000
Alex @alex-wears-crocs.bsky.social · 20/02/2026It never went away. I just got some coping strategies and learned to hide it better. #mentalhealth #mentalillness 010
Alex @alex-wears-crocs.bsky.social · 17/02/2026An extra #cost of being #disabled that no one talks about is the cost of #replacing things that #carers lose or misplace. I'm replacing my butter today. I have no idea where it is. 020
Alex @alex-wears-crocs.bsky.social · 15/02/2026I have a brain, but it really doesn't work very well. 000
Alex @alex-wears-crocs.bsky.social · 05/02/2026Having a #powerchair makes it much easier to avoid overdoing it by doing bADLs, but also much easier to do other, non-essential, activities of daily living that I really shouldn't be doing. #severeME #spoonie #nospoons 030
Alex @alex-wears-crocs.bsky.social · 05/02/2026Don't run before you can walk... and don't walk before you can stand, don't stand before you can sit, and don't sit before you can be propped up in bed with your legs up without crashing from it. #babysteps #severeME #POTS #orthostaticintolerance #chronicillness #spoonie #wheelchairuser #disabled 040
Alex @alex-wears-crocs.bsky.social · 27/01/2026I'm not #stupid, I'm #disabled. I need #help to figure things out, not to be redirected to information I already have #access to and expected to figure it out myself. #brainfog #cognitivedysfunction #cognitivedisability #severeME 141
Alex @alex-wears-crocs.bsky.social · 25/01/2026The thing about doing something perfectly every time is you never learn to correct your mistakes and try new approaches. #perfectionism 000
Alex @alex-wears-crocs.bsky.social · 23/01/2026Testing what happens if I add posts and Post All 1/3 100
Alex @alex-wears-crocs.bsky.social · 22/01/2026Unpopular opinion: games don't need bosses. I'm perfectly content playing the same type of level over and over again. 000
Alex @alex-wears-crocs.bsky.social · 17/01/2026The great thing about having #POTS is that I never have to bother with putting my fan away in winter. I use it all year round. #heatintolerance #potsie #spoonie #chronicillness 010
Alex @alex-wears-crocs.bsky.social · 07/01/2026#ME is not #FND. I have both conditions, and my #health deteriorated because it was assumed that my severely disabling #chronicfatigue was just another FND #symptom. #spoonie #chronicillness #severeME #disabled #disability #medicalgaslighting #medicalneglect 030
Alex @alex-wears-crocs.bsky.social · 07/01/2026It is both horrible to be unable to do anything and freeing to just do nothing. #severeME 010
Alex @alex-wears-crocs.bsky.social · 07/01/2026SOS doesn't stand for anything. It's just a recognisable pattern in Morse code. . . . / _ _ _ / . . . That being said... Save Our Spoons please! #chronicillness #spoonie #disabled #chronicfatigue #fatigue 141
Alex @alex-wears-crocs.bsky.social · 06/01/2026The more I learn about ME, the more I realise just how poorly I was managing my illness in the two years before my diagnosis. I wish I had a time machine, but I don't, so I'm embodying Sisko from In The Pale Moonlight instead. #MyalgicEncephalomyelitis #StarTrek #DS9 #chronicillness #spoonie 030
Alex @alex-wears-crocs.bsky.social · 05/01/2026Having very severe ME is like having insomnia, but experiencing those hours you spend trying and failing to fall asleep all day every day. No stimulation, no getting out of bed, until you get so frustrated that you have to take a break. And then you try again. Over and over. #severeME 000
Alex @alex-wears-crocs.bsky.social · 02/01/2026Standing up with very severe ME is like going rock climbing without a rope. Sure, maybe some people can do it, but it's incredibly dangerous and risky, no matter how much you plan, and really not worth it except in exceptional circumstances. #severeME #chronicillness #spoonie 070
Alex @alex-wears-crocs.bsky.social · 31/12/2025So apparently it's a bad idea to push the speed to max on your powerchair and zoom across your rather small bedroom... but I did it anyway because I was bored. I crashed into my shoe cabinet. It looks like it didn't take any additional damage... 000
Alex @alex-wears-crocs.bsky.social · 29/12/2025Society is always trying to get people to be better and do more. Why aren't we just enough as we are? 000
Alex @alex-wears-crocs.bsky.social · 29/12/2025Hello! If you're seeing this, you're probably a friend. I'm sorry I've had to send you this. I have very severe ME. Please look it up; I don't have the energy to explain. I'm sorry I haven't replied to your messages. I probably won't be able to get back to 1:1 texting for a while. I miss you. 🥲🫂 000
Alex @alex-wears-crocs.bsky.social · 29/12/2025Some days I'm okay with having very severe ME, and then some days I'm just trying not to breathe too hard or chew too hard and it's not very fun. 000
Alex @alex-wears-crocs.bsky.social · 22/12/2025I'm annoyed that my #powerchair assumes I'm more #ambulatory than I am. What do you mean I'm supposed to charge it for a full 6 hours but avoid charging it overnight? It's my legs! #disabled 010
Alex @alex-wears-crocs.bsky.social · 21/12/2025I wish every #spoonie got to try a #powerchair. It would have been so good for me to know that getting one really is worth it. I didn't expect to get as much benefit from it as I have, and I didn't realise how much i was struggling before. #wheelchairuser 000
Alex @alex-wears-crocs.bsky.social · 17/12/2025I want to give my #chronicillness to the next person who makes an insensitive comment about it. #spoonie #ableism 031
Alex @alex-wears-crocs.bsky.social · 14/12/2025I finally became a wheelchair user and it wasn't even a big adjustment. The only difference now is I go to the bathroom on wheels instead of on legs I can't trust to keep me up long enough to get back to bed. I like feeling safe. #powerchair #severeME 051
Alex @alex-wears-crocs.bsky.social · 12/11/2025I want to run away, but I can't run away from my own body. I don't get to start again. #spoonie #chronicillness #grief #disabled 040
Alex @alex-wears-crocs.bsky.social · 22/10/2025Freebies are a genius marketing strategy. Of course I'll pay for the item if it turns out I like it enough to want to buy it again! 💸 000
