Addison's Disease Self-Help Group

We stock varied products to help you manage your Addison's disease or adrenal insufficiency. We also have branded merchandise and gifts which help us raise money for the charity, so we can inform you,...

Say No to Flu! People with Addison's disease and other types of adrenal insufficiency are entitled to the free NHS flu jab. We explain why the flu jab helps keep you safe and reduces your risk of an adrenal crisis.

Help someone with adrenal insufficiency, including Addison's disease, be aware, be prepared and be understood. Donate £33 to sponsor a year's membership, providing trusted information, practical support and a community that truly understands.

The Sick Day Rules page on the ADSHG website is consistently our most visited page, so we are delighted to launch our most recent leaflet on Sick Day Rules and better understanding steroid medication.

YouTube video by Addison's Disease Self-Help Group

After two life-threatening adrenal crises, including one during a dream family holiday to Disneyland Paris, eleven-year-old Sophie is sharing her story to help other families get answers sooner. Here she talks about her diagnosis, life with Addison's, and being interviewed for the BBC to spread awareness.

Travelling with Addison's & adrenal insufficiency means there are a few more things to think about before you set off: language, access to medication and health support, travelling with injection kits, temperature differences etc. Read on for more information on things to consider when you go on holiday!

On World Patient Safety Day, we must ask ourselves the simple question: where are patients being exposed to risks that we already know how to reduce? For

Since the discontinuation of liquid hydrocortisone in the UK, the ADSHG has begun a campaign to highlight the risks associated with the current adrenal crisis emergency injection process. This relies on mixing hydrocortisone powder with water prior to intramuscular injection: an intricate and fiddly process with over 10 steps. All theoretically to be done whilst experiencing a life-threatening adrenal crisis. Here we share our campaign steps to date.

What is Act-O-Vial® & can it be prescribed in the UK? Here we explain more about this emergency injectable hydrocortisone medication, what unlicensed medicine means and if suitable for you, steps to follow with your healthcare team.

Join us on Saturday 26 September - injection training, expert speakers, breakout groups & time with the community. Find out more and how to get your tickets!

Join Sally at their local meet-up in Dursley, Gloucestershire on Wednesday 14 October 2026.

Help the ADSHG to better understand where things are going wrong for patients with adrenal insufficiency in UK healthcare settings, by completing our anonymous Patient Safety Healthcare Form. We don't have the resource to support people with individual incidents, but we can understand better where to focus our awareness projects through quarterly reviewing submitted forms.

A Zoom session focusing on adrenal crisis and the emergency management of steroid dependency for patients with Addison's disease and adrenal insufficiency.

A Zoom session focusing on adrenal crisis and the emergency management of steroid dependency for patients with Addison's disease and adrenal insufficiency.

Following multiple life-threatening adrenal crises as a new Mum, Jenn was determined to find a way forward. Jenn's research led her to Medical Detection Dogs and now Joy is her cortisol alert dog. Here Jenn shares her journey, the impact Joy has had on her life and her work as the co-founder of Maternal

We explore how immunotherapy, which is used to treat many types of cancers and can be highly effective, can also affect the body, including the adrenal glands, in unexpected ways.

Join our Injection Training and Sick Day Rules Refresher on Thursday 17 September, run in conjunction with Kings College Hospital NHS Foundation Trust. Find out more and how to get your tickets!

U-RHYTHM is a wearable device that tracks hormones like cortisol over 24 hours in daily life. The ADSHG has awarded Dynamic Therapeutics £20,000 to help fund UKCA certification, moving the device from research to clinical use. Professor Stafford Lightman explains why cortisol dosing isn't one-size-fits-all and what's next for the device.