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ACC Support UK

@accsupportuk.bsky.social
43 followers 46 following 6 posts

Providing information resources, support services, and advocacy for the UK adrenocortical cancer (ACC) community at www.accsupport.org.uk. Follow our sister accounts @amenduk.bsky.social and @phaeoparasupportuk.bsky.social. #endosky

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Reposted by ACC Support UK
AMEND UK @amenduk.bsky.social · 10/07/2026
Phase II clinical trial for ACC now open in 3 UK centres. #ACC #adrenocorticalcancer #adrenalcancer @accsupportuk.bsky.social @cancerresearchuk.org 📲 accsupport.org.uk/new-phase-ii...
accsupport.org.uk
New Phase II Clinical Trial in ACC - ACC Support UK
Cancer Research UK launches a new Phase 2 clinical trial for people with advanced adrenocortical carcinoma, a rare and aggressive cancer. The study will test the effectiveness and safety of Cytovation...
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ACC Support UK @accsupportuk.bsky.social · 16/04/2026
📣 World Hormone Day is approaching on 24 April! We will share: ℹ️ what hormones are and what they do ℹ️ what symptoms occur when things go wrong, and ℹ️ how to keep 'hormone healthy' Get involved at 📲 shorturl.at/sjtpz #BecauseHormonesMatter #worldhormoneday @esendocrinology.bsky.social
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ACC Support UK @accsupportuk.bsky.social · 21/01/2025
Our ACC Support UK account will be deleted shortly as we centralise our social media accounts under the AMEND account. ACC-related posts will be found on the AMEND account along with those related to MEN and PPGL syndromes. Follow AMEND!
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Reposted by ACC Support UK
AMEND UK @amenduk.bsky.social · 20/12/2024
Wishing everyone a very merry Christmas and a happy new year. AMEND is now closed until Thursday 2nd January 2025
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ACC Support UK @accsupportuk.bsky.social · 18/12/2024
What's it like to live with adrenocortical cancer? Who better to explain than patients themselves. Listen to what they have to say in our video 'Living with ACC'. youtu.be/Me83Z_j59k4 #ACC #adrenocorticalcancer #adrenalcancer
youtu.be
Talking about ACC: Living with ACC
YouTube video by ACC Support UK
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Reposted by ACC Support UK
Cristina L Ronchi @cronchi.bsky.social · 08/12/2024
Registrations open for the #SIMBA #Adrenal educational event 2025! Endorsed by @esendocrinology.bsky.social @socendocrinology.bsky.social with global experts & patient associations @accsupportuk.bsky.social @amenduk.bsky.social #AddisonUK sites.google.com/view/simbasimu… #EndoSky #MedSky
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Reposted by ACC Support UK
Vin Tangpricha, MD, PhD @vtangpricha.bsky.social · 08/12/2024
A physician’s personal story of his battle vs Adrenal Cancer published in #EndocrinePractice via Adrenocortical Carcinoma and the Mitotane Morass: A Physician/Patient Perspective #endosky www.endocrinepractice.org/article/S153...
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Reposted by ACC Support UK
Jérôme Bertherat @jeromebertherat.bsky.social · 04/12/2024
Vu leur rareté on parle rarement des cancers de la surrénale dans les média. Une actrice courageuse fait état de sa maladie, le message clé comme pour toute maladie rare est d'avoir une prise en charge guidée par des centres experts. www.20minutes.fr/sante/412660...
20minutes.fr
Qu’est-ce que lecorticosurrénalome, le cancer dont souffre Emilie Dequenne ?
L’actrice belge Émilie Dequenne a expliqué dimanche se battre contre la récidive de son cancer, un corticosurrénalome
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ACC Support UK @accsupportuk.bsky.social · 25/11/2024
Helps us too!
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Reposted by ACC Support UK
Cristina L Ronchi @cronchi.bsky.social · 24/11/2024
Honoured to have presented our work on #liquidbiopsy #ccfDNA for prognostication and monitoring of #adrenal #cancer at the amazing @a5-adrenal.bsky.social @mdanderson.bsky.social Int’l Adrenal Cancer Symposium @amenduk.bsky.social @accsupportuk.bsky.social #adrenalcancer #adrenocorticalcarcinoma
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Reposted by ACC Support UK
Cristina L Ronchi @cronchi.bsky.social · 21/11/2024
My first post here! 🚨 Excited to present at the upcoming International Adrenal Cancer Symposium at MD Anderson Cancer Center in Houston, Texas. I will talk about the role of #liquidbiopsy #ccfDNA in #adrenalcancer #ACC. Stay tuned for updates! #EndoSky #MedSky
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Reposted by ACC Support UK
AMEND UK @amenduk.bsky.social · 19/11/2024
Seasonal sustainable clothing on side of AMEND available to buy now including two new skiwear designs! amend.teemill.com #charityshop #charitystore
Ho bloody ho T-shirt Piste again hoodie
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Reposted by ACC Support UK
AMEND UK @amenduk.bsky.social · 20/11/2024
Dual Aldosterone- and Cortisol-Secreting Adrenal Cortical Carcinoma: Pre- and Perioperative Evaluation and Management academic.oup.com/jcemcr/artic... #ACC #adrenocortical cancer @accsupportuk.bsky.social
academic.oup.com
Dual Aldosterone- and Cortisol-Secreting Adrenal Cortical Carcinoma: Pre- and Perioperative Evaluation and Management
Abstract. Adrenal cortical carcinoma (ACC) is a rare cancer (1-2/million) that presents with hormone overproduction in 60% of cases. Presentation of ACC wi
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Reposted by ACC Support UK
AMEND UK @amenduk.bsky.social · 19/11/2024
AMEND is a UK charity (reg 1153890) providing information resources and support services to the multiple endocrine neoplasia communities. Visit our website for comprehensive information on diagnosis, treatment, and life with an #MENSyndrome www.amend.org.uk #MEN1 #MEN2 #MEN3 #MEN2A #MEN2B
Join AMEND for free including a welcome pack, event, news and a counselling service
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ACC Support UK @accsupportuk.bsky.social · 19/11/2024
ACC Support UK is part of the patient group charity, @amenduk.bsky.social (reg 1153890). Visit our website for more information on diagnosis, treatment and life with #ACC, and how we help to support patients and their loved ones www.accsupport.org.uk - - #adrenocorticalcancer #adrenalcancer
Join ACC Support UK for free resources and support for adrenocortical cancer including free member pack, events, new and a counselling service
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