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Ella B. (we/she/her)

@a2gemma.bsky.social
102 followers 77 following 707 posts

My body hurts and I’m mad at the government. #spoonie #chronicpain #chronicillness

PostsRepliesMedia
Ella B. (we/she/her) @a2gemma.bsky.social · 16/07/2026
This might help.
An illustration of a torso with varying necklace lengths identified by name, such as choker. It includes many different lengths.
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Ella B. (we/she/her) @a2gemma.bsky.social · 02/05/2026
If you don’t ask, you’ll never know. #spoonie #chronicpain #chronicillness #spoons #carnivaltickets
kasey
 @SMASEY
 So if the pharmacist says "anything
 else today?" apparently "I don't
 know, you got anything good back
 there?" is not the right answer
010
Ella B. (we/she/her) @a2gemma.bsky.social · 26/04/2026
Carnival tickets. I like it. #spoonie #chronicpain #chronicillness
luminouspica
 So to me, there are spoons (general energy cost) and carnival tickets
 (specific energy cost).
 Spoons can be used pretty much anywhere.
 Carnival tickets are only good for the carnival, and it's only in town for a
 limited amount of time.
 So like, if I get "kitchen cleaning" carnival tickets, I can't use that to
 clean my bedroom, that's not where the carnival is.
 lingonberry24 ®
 phrase added to permanent vocabulary
000
Ella B. (we/she/her) @a2gemma.bsky.social · 21/04/2026
Man, this toy was the best. I wish I still had it.
Plastic action figure of Skeletor (from 1981) with a yellow skull face under a dark blue hood, muscular blue body, and purple armor, holding a blue sword. A small red dragon-like creature’s open mouth appears over the figure’s shoulder, chained to the chest.
010
Ella B. (we/she/her) @a2gemma.bsky.social · 05/04/2026
Anyone else have a childhood photo with a terrifying Easter Bunny? Show ‘em if ya got ‘em!
Vintage color photo of a young child sitting on the lap of a person in a large, white, terrifying Easter Bunny costume, surrounded by hanging balloons and bright patterned decorations; the child looks slightly uneasy, to put it mildly.
010
Ella B. (we/she/her) @a2gemma.bsky.social · 30/03/2026
I correct people on this all the time. Also, my disorder is not your punchline. #worldbipolarday
Teal graphic showing a silhouette of a human head filled with interlocking gears, symbolizing the brain. White text reads, “Bipolar is a condition, not an adjective. World Bipolar Day, March 30.”
031
Ella B. (we/she/her) @a2gemma.bsky.social · 27/02/2026
True.
Drawing of a female stick figure wearing a blue shirt. The text says,
I AM MORE THAN
 A CHRONIC CONDITION
 I AM ALSO
 REALLY WEIRD.
 @twisteddoodles
000
Ella B. (we/she/her) @a2gemma.bsky.social · 18/02/2026
Where can I get a complaint form? #spoonie #chronicpain #chronicillness
existennialmemes 'S O
 Feb 1, 2025
 ...
 Bears get to hibernate. Butterflies get a
 chrysalis. What do I get? Joint pain and fascism.
 I would like to file a Formal Complaint.
020
Ella B. (we/she/her) @a2gemma.bsky.social · 14/02/2026
HVD! #catsofbluesky #orangecats #tabbycats #mrsugarpaws #everydayisCaturday #MyDarlingMyDearMyPreciousMySweet
Graphic with a red gradient background. Along the right edge is a close-up of an orange-and-white cat, showing soft tabby fur, a pink nose, long white whiskers, and alert eyes facing the viewer. The cat appears calm and curious. There is text reading “Happy Valentine’s Day!” and two red heart-shaped jewel icons in the lower right corner.
030
Ella B. (we/she/her) @a2gemma.bsky.social · 11/02/2026
Agreed. I *definitely* have some things I’d like to say on the record about my new PCP.
Adriel Rose
 @adriel_rose
 I think MyChart should have a section where the
 patient gets to put notes in about every
 appointment they have with a provider too.
120
Ella B. (we/she/her) @a2gemma.bsky.social · 31/01/2026
How’s this for purple? It’s from Serge Lutens. 😁
A woman (Erin Parsons) with white hair and a pale face wearing extremely vibrant purple lipstick from Serge Lutens. She is holding several other makeup items in her hands.
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Ella B. (we/she/her) @a2gemma.bsky.social · 23/01/2026
I don’t wear makeup, except for lipstick. Lipstick makes me feel powerful. This is my current favorite shade, Bésame VICTORY RED 1941. Red lipstick is also a sign of being a member of the Resistance. Fuck fascism. 💋
A woman is seated indoors against a bright orange wall with a window to the right, showing tree branches outside. She is wearing dark clothing with a hint of a red patterned shirt underneath. She’s smiling and wearing bold, red lipstick. Text at the bottom of the image is the name of the lipstick shade, “Bésame VICTORY RED 1941.”
020
Ella B. (we/she/her) @a2gemma.bsky.social · 22/01/2026
Mr. Sugar Paws, chillin’ on the new litter-robot.
Orange and white tabby cat stretched out on a very large cardboard box. The box is labelled “Litter-Robot,” and the cat is looking at the camera.
010
Ella B. (we/she/her) @a2gemma.bsky.social · 21/01/2026
#spoonie #chronicpain #chronicillness #spooniehumor
You think that you have tried
 everything to get your doctor
 to pay attention to your
 medical issues, but have you
 ever tried wrapping your
 medical records in a piece
 of cheese?
072
Ella B. (we/she/her) @a2gemma.bsky.social · 12/01/2026
Still struggling to accept that I’m disabled and am likely to stay this way. My world is growing so small. #spoonie #chronicpain #chronicillness
A beige rectangular card with blue text is centered on a background of a serene beach scene with soft waves and a pastel sky. The card reads:
“CHRONIC ILLNESS CONFESSIONS
I’M AFRAID TO ADMIT I’M DISABLED BECAUSE I STILL WANT TO BELIEVE I CAN GET BETTER.
–ANONYMOUS”
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Ella B. (we/she/her) @a2gemma.bsky.social · 10/01/2026
I bet there are some really good items on it, like Paracetamol ice cream!
dk
 @portdrift.bsky.social
 asking the pharmacy if they have a
 secret menu
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Ella B. (we/she/her) @a2gemma.bsky.social · 10/01/2026
KT has kept me moving many times in the past. #spoonie #chronicpain #chronicillness
body-of-ouches
 Source: body-of-ouches on Tubmir
 Don't get me wrong, I love KT tape, but it's
 basically going "Oh no, I dislocated my arm!
 Fuck it I'll just duct tape it back together"
120
Ella B. (we/she/her) @a2gemma.bsky.social · 06/01/2026
Best. Gift. Ever. I’m such a sucker for old Romance Comics, and this collection is GORGEOUS. The color restoration is amazing. It’s a good way to unplug before bed.
Vintage comic book cover titled “Modern Love” with bold yellow letters on a blue background. A red side banner reads “True Love.” Below the title, “The EC Archives” is displayed. Illustration shows a man in a blue suit embracing a woman in a red dress in a living room with a green-striped couch and lamp. Dialogue: she asks if he told her sister the engagement is off; he says he hasn’t. Another woman stands in a doorway, partially hidden by a curtain. Text highlights “REAL LOVE STORIES!” and “In this issue: Stolen Romance.”
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Ella B. (we/she/her) @a2gemma.bsky.social · 06/01/2026
Everyone returned to work today. This is exactly how I felt.
A chicken sitting in a cluttered control room full of old electronics and monitors, with text above saying, “This is what the inside of my brain looks like btw.”
000
Ella B. (we/she/her) @a2gemma.bsky.social · 01/01/2026
No cheating, reskeet with the most recent photo of your pet.
Handsome orange and white tabby cat curled up on a black office chair. His expression says, “I’ve had enough of your shit” and his eyes are narrowed, looking at the camera.
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Ella B. (we/she/her) @a2gemma.bsky.social · 27/12/2025
I wanted these tights in the worst way, but can’t bend my hips enough to get them on. 😭😭😭
A rd headed woman is seated in a wheelchair. She is wearing a black dress with black & white striped tights. She’s totally hot.
010
Ella B. (we/she/her) @a2gemma.bsky.social · 25/12/2025
Merry Xmas, from me and Adam. 🎄 #catsofbluesky #orangecats #tabbycats #mrsugarpaws #MyDarlingMyDearMyPreciousMySweet
A close-up of an orange and white cat surrounded by a festive border of green holly leaves and red berries. At the top right corner, there is a red speech bubble with white text that reads “MERRY CHRISTMAS!”
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Ella B. (we/she/her) @a2gemma.bsky.social · 19/12/2025
Chart titled “Waiting Mode Gap” shows ADHD brain stuck in paralysis from 10 AM until a 3 PM meeting, then urgency spikes sharply. Logical expectation is steady work.
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Ella B. (we/she/her) @a2gemma.bsky.social · 16/12/2025
Okay. This feels like it can’t be real except it is? A litter-robot that you can buy with FSA/HSA funds if you can get a Letter of Medical Necessity (LMN) from your doctor? Anyone out there actually try doing that?!? #spoonie #chronicpain #chronicillness
Litter-Robot (by Whisker) is now FSA/HSA eligible for certain models (like LR5, LR5 Pro, EVO) if you get a Letter of Medical Necessity (LMN) for conditions like back pain, pregnancy, allergies, or limited mobility, allowing you to use pre-tax funds for automatic cat care, which significantly reduces bending and exposure to dust/waste. Whisker partners with Sika Health, a service that helps process these LMNs at no extra cost to make it seamless.Screen capture from the Litter-Robot website indicating that you can use FSA/HSA funds to pay or their robotic litterbox.
130
Ella B. (we/she/her) @a2gemma.bsky.social · 16/12/2025
Anyone out there pimp out their mobility aids for the holidays? I low key want to put antlers on my Rollator for Friday’s enforced work merriment event. #spoonie #chronicpain #chronicillness #spooniehumor
An illustration on a white background with a red border. On the left, there is a single red-and-white striped candy cane labeled “Candy Cane.” On the right, there is a walker made entirely of candy canes, labeled “Candy Walker.” The candy walker has four legs and two horizontal bars, mimicking the structure of a real mobility walker.
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Ella B. (we/she/her) @a2gemma.bsky.social · 10/12/2025
#spoonie #chronicpain #chronicillness #spooniehumor
margo, undiagnosed
 @sic bitch
 patient: hello, i am in a lot of pain all the time.
 doctor: hmm. are you just saying that to get
 attention?
 patient: yes. medical attention
0105
Ella B. (we/she/her) @a2gemma.bsky.social · 10/12/2025
Apparently, I was supposed to get a brace something like this instead of what I got. This looks much more manageable! #spoonie #chronicpain #chronicillness
Picture of a standard AFO made of lightweight plastic with a velcro strap.
020
Ella B. (we/she/her) @a2gemma.bsky.social · 07/12/2025
Happy holidays! #spoonie #chronicpain #chronicillness #spooniehumor
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Ella B. (we/she/her) @a2gemma.bsky.social · 07/12/2025
#spoonie #chronicpain #chronicillness #spooniehumor #anxiety #depression #seasonalaffectivedisorder
A meme featuring Commander Data in a yellow and black Starfleet uniform from Star Trek: The Next Generation, standing on a spaceship bridge. The top text reads: “When your doctor asks you if you’re still suffering from anxiety and depression.” The bottom text, attributed to the character, says: “My condition does not alter with the passage of time, Commander.”
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Ella B. (we/she/her) @a2gemma.bsky.social · 06/12/2025
I don’t know if I could be that cruel to another human being. I’d prefer that they be afflicted and have to appeal to their peers for help/answers so they could really understand how dehumanizing it is to be chronically ill or in endless pain. #spoonie #chronicpain #chronicillness
вий Chronic Illness Humor
 CUP
 @chronicillness.bsky.social
 The Purge but instead of killing people
 for 24 hours we get to talk to doctors
 the way they talk to us
 MyBodylsTryingToKillMe.com
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Ella B. (we/she/her) @a2gemma.bsky.social · 06/12/2025
We laugh so we don’t cry! #spoonie #chronicpain #chronicillness #spooniehumor
Could you imagine if MyChart
 did an end-of-year wrapped
 list like:
 -cried 65 times in appointments
 -picked up 11 new diagnoses
 -confused doctor 123 times
 -made 345 jokes about her illness
 -caused 3 doctors to quit
 -refused to try yoga 15 times
 MyBodylsTryingToKillMe.com
0206
Ella B. (we/she/her) @a2gemma.bsky.social · 06/12/2025
The new leg brace they want me to wear due to my achilles tendon avulsion. I don’t think it’s gonna happen. The sensation of wearing it makes me want to claw my way out of my body. The ortho said he intended something simpler. 🤷🏻‍♀️ #spoonie #chronicpain #chronicillness
Pink orthopedic leg brace with four Velcro straps, held by a hand wearing a gray wrist support.
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Ella B. (we/she/her) @a2gemma.bsky.social · 04/12/2025
I’ve heard this before, that the “normal” amount of pain is ZERO. My brain just can’t grok that. I can’t recall a single day of my life without pain. 🙁 I hope in my next life I get to be on the side of the zeroes. #spoonie #chronicpain #chronicillness
cuntess-carmilla Follow
 This deserves its own post:
 The normal level of daily pain for an able-
 bodied person is ZERO, without needing
 to take pain medication, not even off-the-
 counter meds.
 Not a little, definitely not enough to be "distracting but tolerable" with
 or without Tylenol. ZERO. (I'm shocked too every time I remember
 that the norm is to live pain free unless something happened to you, I
 know.)
 If your baseline of unmedicated daily pain is above zero, you're
 dealing with chronic pain and you need to come to terms with that
 reality.
 cuntess-carmilla Follow
 Babes, chronic pain is defined as pain that lasts over 3 months.
 That's it. Including pain that goes away but then inevitably returns. It
 doesn't have to be 100% persistent.
 Stop scrutinizing and minimizing your own pain so much. It's not
 gonna help you OR the "actually" disabled/ill people you seem to
 think you'll offend by acknowledging your own suffering.
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Ella B. (we/she/her) @a2gemma.bsky.social · 26/11/2025
And this is why I will spend Thanksgiving alone, giving thanks that I am alone rather than tolerating the toxic slop I grew up in.
IT'S OKAY
 TO CUT OFF
 TOXIC FAMILY
 FOR YOUR QUIN
 WELL BEING
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Ella B. (we/she/her) @a2gemma.bsky.social · 26/11/2025
Thanks, Body.
existennialmemes =
 Feb 18, 2024
 Me: Hey, can we get some stuff done today?
 My Body: Can't. We need that energy for Pain.
 Me: Ok, but what if, Instead, we did Tasks?
 My Body: Let's compromise and do More Pain.
 Me: That is not a —
 My Body: More Pain it is! Good talk.
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Ella B. (we/she/her) @a2gemma.bsky.social · 26/11/2025
So demure. So modest.
Close-up of an orange tabby cat with white fur on the chest and around the mouth. The cat has green eyes and is looking slightly downward and to the side. Its ears are upright, and fine whiskers are visible.
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Ella B. (we/she/her) @a2gemma.bsky.social · 23/11/2025
#spoonie #chronicpain #chronicillness #spooniehumor
"I can't treat you, or give you
 any pain medication
 because that's not my
 field. But, I'm going to
 refer you to five other Doctors
 Who won't help you either"
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Ella B. (we/she/her) @a2gemma.bsky.social · 22/11/2025
Started PT (again) for my hip and t’s legit destroying me. 😭 I’m not suicidal, I just don’t know how much longer I can do this. I have an appointment with a surgeon in a different health system on December 5th. I’m **really** hoping he’ll do the surgery. 🤞🏻 #spoonie #chronicpain #chronicillness
THE REALITY OF
 CHRONIC ILLNESS IS NOT
 KNOWING IF I WILL
 WAKE UP IN
 DEBILITATING PAIN OR IF
 I WILL BE FUNCTIONAL
 THAT DAY.
 EVERY DAY FOR THE REST
 OF MY LIFE
 eitsachronicthing-
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Ella B. (we/she/her) @a2gemma.bsky.social · 13/11/2025
Tee hee! 🏳️‍⚧️🏳️‍⚧️🏳️‍⚧️
Social media post reads: “Tomfoolery transitioned and now only does shenanigans.” Hashtag: #har har.
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Ella B. (we/she/her) @a2gemma.bsky.social · 06/11/2025
Word. #spoonie #chronicpain #chronicillness
tavalen
 Follow
 disability advocacy went wrong when it became
 about inspiration porn and "differently abled" and
 savants. its incredible that that guy with no legs
 did a triathlon but your sister with no legs will not
 and she doesnt need prosthetics or five hour
 training days to deserve respect and compassion
 and accommodations. its incredible that that
 autistic guy can look at a city from a helicopter for
 an hour and then draw the entire detailed skyline
 from memory when he lands but your autistic
 friend cannot and they dont need to have a
 special Autism Power to deserve respect and
 compassion and accommodations.
 activism framed around "we are just as
 CAPABLE" means that when people genuinely
 are less capable they are left behind. activism
 framed around "we are just as WORTHY" is
 fundamental to radical compassion.
031
Ella B. (we/she/her) @a2gemma.bsky.social · 01/11/2025
The opioid crisis is definitely real, but that doesn’t mean opioids and other pain control medications don’t have a legitimate role to play in patient care. Without my pain meds my quality of life is ZERO. Even with pain meds I have days where it feels like I can’t go on. #spoonie #chronicpain
Carlsberg.
 @Carlynotcarley
 Follow
 This is going to be a controversial
 one but I want to start a discussion
 about just how many chronically
 ill and disabled people are refused
 pain relief on the grounds of
 'addiction.
 I've had receptionist say to me "oh
 you're just a drug addict".
 15:25 • 15 Oct 25 • 6,996 Views
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Ella B. (we/she/her) @a2gemma.bsky.social · 30/10/2025
In 2024, I went from making $170K/year to needing SNAP and Medicare in a mind-bogglingly short amount of time. Trust me, it can happen to you, too. #StartWithFood #SNAP #SNAPbenefits #SNAPSOS #FeedTheHungry #FoodIsABasicHumanRight #healthcareisahumanright #universalhealthcareforall
Cartoon of the a character resembling McDonald’s Hamburgler wearing a black mask, black hat, and black-and-white striped shirt, holding a tray of burgers. The character is making a shushing gesture with one finger over the lips. Text on the image says: 'REMEMBER, IF YOU SEE SOMEONE STEALING FOOD... NO YOU DIDN'T.'
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Ella B. (we/she/her) @a2gemma.bsky.social · 25/10/2025
Picture of a meme showing Ralph — a Simpson’s character — riding on a bus. There is a caption that reads, “*chuckles* I’m in danger.”
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Ella B. (we/she/her) @a2gemma.bsky.social · 24/10/2025
A week in the life of a spoonie, amirite? #spoonie #chronicpain #chronicillness
A screen capture showing Monday through Friday. There is a doctor’s appointment booked on four of the five days shown.
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Ella B. (we/she/her) @a2gemma.bsky.social · 24/10/2025
More gyms like this, please. #transrights #transrightsarehumanrights #translivesmatter #protecttransyouth #lgbtqia+
A person with a mustache is wearing a black T-shirt with colorful text that reads, *"MY GYM IS FOR Fem boys doing step-ups in kitschy socks & Butch girls deadlifting their one-rep max & Trans and non-binary folk bench-pressing & Bi moms squatting while breastfeeding & Happily fat fit peeps planking & Older allies monster walking & Queers of colour rocking really high box jumps & EVERYONE."* Below the text is the logo for Motus Training Studio.
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Ella B. (we/she/her) @a2gemma.bsky.social · 22/10/2025
Found n image online that shows what’s going on in my hip in addition to the OA. No wonder it fucking hurts! #spoonie #chronicpain #GTPS #GreaterTrochantericPainSyndrome
An anatomical illustration of the hip area showing labeled parts including the hip, trochanter, bursa, femur, and muscle. A red swollen area near the trochanter indicates inflammation due to trochanteric bursitis. A smaller inset on the right provides a zoomed-out view of the hip with a red circle marking the inflamed region. The top of the image contains the text: 'The inflammation that causes all the agony.'
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Ella B. (we/she/her) @a2gemma.bsky.social · 21/10/2025
Dinner, because today was a shitty, shitty day and it’s all I can manage. I feel like I’m symbolically eating off my last Spoon. #spoonie #chronicpain #chronicillness
An open jar of JIF peanut butter. There is a spoon sticking out of the top, full of peanut butter.
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Ella B. (we/she/her) @a2gemma.bsky.social · 18/10/2025
#spoonie #chronicpain #chronicillness #NoKingsDay #RESIST #trumpregime #fascism #AmericanFascism #oligarchy #authoritarianism #GangsterRegime #Kakistocracy #AmericanFascistParty #MAGA #ResistFascism #AbolishICE
Ro Salarian
 @rosalarian.bsky.social
 Follow
 There are gonna be disabled folks who
 can't contribute anything to The Cause.
 They have no money, no energy, no
 physical ability, no time. They will need to
 receive and will never be able to give
 back. You gotta save them, too.
 Especially them.

 Ro Salarian @rosalarian.bsky.social • 1d
 Please don't leave disabled people behind in
 your revolution. Please do not see us as
 sacrifices for the greater good, or dead weight.
 Please see our lives as worth saving, too.
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Ella B. (we/she/her) @a2gemma.bsky.social · 15/10/2025
#spoonie #chronicpain #chronicillness #spooniehumor
A black and white illustration shows a historical scene with a doctor seated beside a patient lying in bed. The doctor, dressed in 18th-century attire with white hair, knee-high socks, and buckled shoes, holds the patient's hand. The patient wears a gown and appears to be resting. Overlaid dialogue reads:
Doctor: "You've got a very rare disease."
Patient: "How rare?"
Doctor: "You pick the name."
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Ella B. (we/she/her) @a2gemma.bsky.social · 13/10/2025
Welcome to our world. We have to fight for everything we ever get. That’s what happens when you have an under-insured populace and for-profit insurance companies. #spoonie #chronicpain #chronicillness
Just a girl with...
 @agirlopinions
 Follow
 I'll admit. I had no idea what
 happened to disabled people.
 I assumed they get proper care
 when they can't work. That's what
 we do in societies.
 We support those who can't
 themselves. then I needed a
 wheelchair. I was incapable of
 walking safely anymore and
 insurance laughed.
 2:49 • 08 Oct 25 • 1,300 Views
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