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A Chronic Voice

@achronicvoice.com
3.3K followers 2.7K following 12K posts

I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people. achronicvoice.com

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A Chronic Voice @achronicvoice.com · 16h
"The #website is now hosted on #GhostPro, which is perfect for a small #blog like mine. The migration process was a lot more work than I had anticipated, as the import function in Ghost is pretty barebones.": buff.ly/nluk8Lp #WebMigration #WebDevelopment #BloggingCommunity #spoonie
Celebrating 10 years of Blogging, Advocacy, and Friendships Made on A Chronic Voice .com!
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A Chronic Voice @achronicvoice.com · 23h
"People hurry by each other [in modern #society ]. An approaching #stranger stirs immediate apprehension. 'What do you want from me?" "What snake oil are you trying to sell?" "No, I have no spare change."": buff.ly/L774LYC #human #InvisibleIllness #KindnessMatters #ChronicIllness #AskForHelp
Asking for Help (and Why Everyone Needs to Learn This Important Life Skill). Read the post on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 08/10/2026
"I continued with the #prednisone until one morning shortly after the dose pack ended, I started to feel my body seize up and spasm. I remember calling my wife and telling her that I didn’t feel so good.": buff.ly/g1SOyrv #ChronicPain #medication #RheumatoidArthritis #RA #ChronicIllness #MensHealth
Rheumatoid Arthritis — the Biggest Street Fight of My Life. Guest Post by: Ray Bouchard on A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 08/10/2026
"As the decline [into Haemolytic #Anemia ] had been gradual, the impact did not seem too harsh. The everyday #nausea, lack of appetite and general #malaise had become my norm without me even realising it.": buff.ly/U8i0CVz #ChronicIllness #ChronicFatigue #NEisVoid #ChronicPain #lupus #Sjogrens
How Many Times Can You Hit Rock Bottom with Chronic Illness?
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A Chronic Voice @achronicvoice.com · 07/10/2026
"Yet the current version of us — in this time, in this place & in this #circumstance — is bound to need an upgrade. The world is ever changing..We have yet to reach the full #potential of who we can become.": buff.ly/KAqDjl9 #PersonalDevelopment #disabled #spoonie #ChronicIllness #LifeJourney
Every Next Level of Your Life Will Demand a Different You. Read on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 07/10/2026
"Extreme pain & #exams have made me cancel a few meetups with #friends, but I try to reschedule them when I feel better. It’s important to maintain some level of social #connection for your mental #wellbeing as a #human being.": buff.ly/NWAC4SD #ChronicPain #MentalHealth
The Importance of Self-Care as a Student with Chronic Illness or Disability [Background: Collage of young girl with illustrated sun and plants in the back.]
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A Chronic Voice @achronicvoice.com · 07/10/2026
"Watching my ex-partner jump out of bed, prep & head off to #work under 30 minutes is like watching an action movie right before my eyes. I have no idea how he does it, as my #body requires 2 hours to warm up to a decent speed.": buff.ly/ZQbWkHD #ChronicIllness #ChronicPain #disabled #spoonie
The Superpowers of the Average Human Being — Check it out on A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 06/10/2026
"I remember thinking, “Well, if I can never have chocolate again, drink coffee again, have any of the foods I love, then I’m not me.” It sounds ridiculous, but I was having a major #IdentityCrisis over chocolate.": buff.ly/5ZxDF6o #ChronicIllness #disability #identity #ChronicallyIll #spoonie
Finding Your Self Behind the Illness (Your Story Isn't Over Yet). Guest Post by: Callie Dixon of “River & Quill”.
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A Chronic Voice @achronicvoice.com · 06/10/2026
"If you view the world around you through #empathetic & observant eyes, you will notice how many stories there are waiting to be told, both happy and sad..A little more #kindness, #thoughtfulness & willingness can go a long way.": buff.ly/3edF31G #InvisibleIllness #humanity #ChronicPain #BeKind
Is Pain Ever Truly Invisible? - Sometimes you don’t need to use your eyes, but your ears to hear the agony. More often it’s about what you don’t hear. I tend to withdraw into silence when I’m in pain.
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A Chronic Voice @achronicvoice.com · 06/10/2026
"Some things I find #beautiful in my everyday life (or am #grateful for), despite #ChronicPain include.. #Flowers. Did I say I love flowers? To me, they represent life so perfectly — fragile, short-lived, but so, so beautiful.": buff.ly/TtDYJne #MondayBlogs #nature #spoonie #ChronicallyIll #life
#ProjChronicWisdom: Things I Find Beautiful In My Everyday Life Despite The Pain
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A Chronic Voice @achronicvoice.com · 05/10/2026
"You are 90 trillion cells weaving new tapestry. Each one testifies to the mystery That even on the worst day Even at your worst You are still your best You are #miracle You are miracle." — by #ThuliZuma buff.ly/Mn1dzyT #MondayBlogs #ChronicPain #DisabledPeople #hope #ChronicIllness
An Inspirational Poem on Miracles, by Thuli Zuma
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A Chronic Voice @achronicvoice.com · 05/10/2026
[New] "To ' #approach ' is to 'come..nearer to something or someone in space, time, quality, or amount' — so that opens up plenty of areas to talk about (u could even cover a few diff dimensions if you like) 🙂": buff.ly/vFghpyK #MondayBlogs #ChronicIllness #WritingPrompts #ChronicPain #disability
October/November Writing Prompts for people with chronic illness & disabilities: Approaching, Dreading, Naming, Depending, and Regaining. Join us at: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 05/10/2026
" #MECFS has taken enough pieces of my old life; [my #optimistic self] was one piece I refused to give up. In fact, I think that I needed to continue to be that person now more than ever.": buff.ly/1a3Rrxu by lisaalioto #SelfIdentity #MondayBlogs #ChronicIllness #disability #pwME #ChronicFatigue
How to Use the Tetris Effect to Invite Positivity Back into Your Life, Despite Chronic Illness
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A Chronic Voice @achronicvoice.com · 04/10/2026
'“I must have been pretty #badass in my previous life to accrue this much bad #karma.' — Sheryl Chan” — Sometimes I think to myself, I must have been some mafia boss in my previous life to end up this ill in this one 🤣 buff.ly/e9RBgjX #MondayBlogs #ChronicIllness #humor #ChronicPain #spoonie
“I must have been pretty badass in my previous life to accrue this much bad karma.” — Sheryl Chan (A Chronic Voice)
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A Chronic Voice @achronicvoice.com · 04/10/2026
CW: #mortality . "Dear #death, I used to be afraid of you. You have no mercy, but I’d beg regardless. I would tell you that I was too young to die with tears in my eyes, but you do not discriminate.": buff.ly/LwUp8eU #YoungAdult #NEisVoid #ChronicPain #disability #InvisibleIllness #human #spoonie
An Open Letter to Death, and One Simple Plea
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A Chronic Voice @achronicvoice.com · 03/10/2026
"we can glean #inspiration ..from many things in #life, even if they may seem irrelevant or unrelated. I do believe that #knowledge gained is never wasted. It expands our capacity for #understanding & often helps with #ProblemSolving in other areas.": buff.ly/a6nXlzd by lisaalioto #ChronicIllness
Find Your Way Back To Happiness With A Chronic Illness. Guest Post By: Lisa M. Alioto.
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A Chronic Voice @achronicvoice.com · 03/10/2026
"Many times we ignore the effects of chronic #stress, because it isn’t an acceptable excuse, or there isn’t a #choice. This can be esp true if others are reliant on u to live in some form; perhaps you are a #parent, #employer or #caregiver yourself.": buff.ly/CrTwmpy #ChronicPain #MentalHealth
Chronic Stress, the Silent Assassin
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A Chronic Voice @achronicvoice.com · 02/10/2026
"“Don’t beat yourself up, just give your body what it needs right now. Rest, love and nourishment.” — Invisible_Hypo.": buff.ly/f8IrrcI #ChronicPain #healing #SelfCare #ChronicIllness #resting #pacing #acceptance
40 People with Chronic Illness Share Their Best Pain Management Tips (What to Do if an Unforeseen Pain Flare Hits)
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A Chronic Voice @achronicvoice.com · 02/10/2026
"Who is somebody you look up to? What qualities do you #admire about them? They can be famous or someone you know." — Get all the #October #journaling prompts for #SelfImprovement & #MentalHealth in the post 👉 buff.ly/ctewKTa #ChronicIllness #WritingCommunity #disabled
October mindfulness journaling prompts for people with chronic illness, mental health issues, or disabilities. Theme: Dark and Light. View them on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 02/10/2026
"With the death of every #language comes the death of #perspective, a way of #thinking, a way of solving problems. As a result, our worldviews shrink, and our approach to #ProblemSolving slides into rigidity.": buff.ly/PHrH1EU #BucketList #ChronicIllness #education #disability #humanity #culture
The Barriers That Throw Rocks into My Bucket List with Chronic Illness. Read on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 01/10/2026
"'It would be great to repeat some activities..Long #RoadTrips in Malaysia, staying at all kinds of lodgings.' (I do remember staying at #motels that cost $1 a night, which my #dad seemed to consider a 'victorious find'. They were gross 😉)": buff.ly/4vwpvbj #ChronicIllness #father #parenting
What’s it Like to be the Father of a Child with Chronic Illness? (Precious Insights from My Own Dad!)
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A Chronic Voice @achronicvoice.com · 01/10/2026
"Despite [her #ChronicIllnesses ], Cheyanne writes with such eloquence, fairness and joy. Her #blog posts are #authentic and filled with #wisdom & I love how she’s always willing to consider #perspectives different than her own.": buff.ly/FDEWOvB #MCAS #ChronicallyIll #ChronicLife #ChronicIllness
Cheyanne Perry — Living a Full Life with Deadly Allergies. “It’s in My Blood” is a series that feature people with chronic illnesses, and also their passions and talents.
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A Chronic Voice @achronicvoice.com · 01/10/2026
"I’m not a good sleeper & sometimes have #nights on end where I’m literally half-awake & #LucidDreaming. #Medications that are meant to help can sometimes make the #dreams more vivid instead.": buff.ly/IU6E89o #painsomnia #NEisVoid #ChronicPain #ChronicIllness #insomnia #anxiety
What's it like? A Day in My Life with Chronic Illnesses. Read on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 30/09/2026
"Many people with #ChronicPain suffer from ‘ #painsomnia ’..Many of us have poor quality #sleep in general, too. A good #SleepMask can be a helpful #sleeping tool, especially for those who are light sleepers.": buff.ly/O7mUAeR #ChronicPain #GiftGuide #accessibility #ChronicIllness #disability
Chronic Illness Gift Guide — Here’s What’s Probably on Their Wish List. Whether it’s Christmas, their birthday, a housewarming or some other occasion — this guide has you covered!
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A Chronic Voice @achronicvoice.com · 30/09/2026
"Your paths in life may overlap, esp if you are in a #relationship ..but no 2 person's end point is a complete match..To follow someone else's shadow isn't just a waste of time, but also a waste of energy & resources.": buff.ly/HQ9iu0v #ChronicIllness #LifeJourney #spoonie #comparison #empowerment
Don’t Compare, Your Life Destination is Your Own Special Mission
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A Chronic Voice @achronicvoice.com · 29/09/2026
"Many of us don’t really open up about such things [like #ChronicIllness ] as well, especially if there’s a #mental aspect to it, which still holds quite a bit of #stigma in most #Asian #societies.": buff.ly/f6ITgUV #singapore #MentalHealthAwareness #culture #InvisibleIllness #inclusive #humanity
Invisible in Singapore — What's It Like to Live Here with Chronic Illness? Read on A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 29/09/2026
" #Home is where the… #medications are." — Yes, I feel 'safest' at home because I can reach out for any medication as needed. For more #ChronicIllness #memes & #humor: buff.ly/Evdi3QH #ChronicLife #ChronicPain #disability #spoonie #ChronicallyIll #awareness #meme
Home is... where the medications are.
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A Chronic Voice @achronicvoice.com · 29/09/2026
"I worked so hard to get into my #career field and to have my career cut short at age 27 was so painful. With time I’ve adjusted, but it will always feel like a part of me is missing. — whatapain_blog.": buff.ly/bXjb0vh #NEisVoid #ChronicIllness #ChronicPain #RA #MondayBlogs #career #society
Sometimes, Physical Pain Isn’t the Worst Part About Chronic Illness. Read the post on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 28/09/2026
"What is the most toxic thing your #InnerCritic tells you all the time? How can you #empower yourself instead?" — Check out the #mindfulness #JournalingPrompts for October. The theme for the month is "Dark & Light" 👉 buff.ly/ctewKTa #MondayBlogs #MentalHealth #SelfLove
October Journaling Prompts (Theme: Dark and Light). “What is the most toxic thing your inner critic tells you all the time? How can you empower yourself instead?” Get all the prompts on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 28/09/2026
"I think the small but big diff I have been trying to highlight is the #meaning of #happiness versus #contentment ..[the version I like:] “‘chokkshay’ is a ‘spiritual word’ that means ‘the knowledge of #enough ’.” — Join us in the Sep #linkup! buff.ly/CzI7Wcl #MondayBlogs #ChronicIllness #wisdom
How to Seek Out Contentment in Everyday Life with Chronic Illness. Read on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 28/09/2026
"I also felt a visceral sense of #ImposterSyndrome ..I had always been able to cope with whatever life threw at me. I was young, otherwise #healthy, & wanted so desperately to just push through this period of ill #health.": buff.ly/zBisDqd by Stephen White #ChronicIllness #YoungAdults #MondayBlogs
Young, in Pain, but Undiagnosed. Stephen White's Story, read on A Chronic Voice .com.
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A Chronic Voice @achronicvoice.com · 27/09/2026
"This is who I am, but I had covered it all up like many others have. I had forgotten how much power I actually possessed as a #HumanBeing, whilst trying to rack up points with people who don’t matter to me.": buff.ly/ChvnSlQ #MondayBlogs #ChronicIllness #disabled #SelfWorth #SelfAcceptance
Self-acceptance — How I Rebuilt My Identity with Chronic Illness. Read the post on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 27/09/2026
"I don’t deal with #emotional pain well. At that point of time [after my 1st #breakup ], I actually thought it hurt more than even my worst #FlareUp. Or rather, I would actually choose physical pain over emotional pain.": buff.ly/QKYsIbF #ChronicPain #spoonie #perspectives #LifeLessons #emotions
Keeping Up with the World: Why it’s Important Despite Pain. Read the post on: A Chronic Voice .com.
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A Chronic Voice @achronicvoice.com · 26/09/2026
"In single-loop learning, we modify the method to get the result we want. Whereas in double loop #learning, the object itself needs to change to achieve the desired result. Thus, we can #change our mental models by being #SelfAware.": buff.ly/ARrOa9A #mindfulness #ChronicIllness #resilient #spoonie
How to Stay Resilient with Chronic Pain (An A – Z Guide by Angela)
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A Chronic Voice @achronicvoice.com · 26/09/2026
"Call me #ignorant for not knowing about [the #IceFallDoctors ] earlier..but I was appalled by how these men’s lives are literally used to pave the way, before the ‘#heroes’ & ‘conquerors’ even get on the trail [of #MountEverest ].": buff.ly/8Xbomd2 #MountainClimbing #humility #advocacy #inclusion
Humility and Advocacy — Read why humility is the best tool for advocacy. If we want to be of real use, then we need to put our petty prides aside, and celebrate both our individual and collective humanity instead. Read more on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 26/09/2026
"It reminds me of all the people who truly matter in my life, the ones who deserve what little energy I have on bad days..I have learned that I #love them even more now..I do not have to #fear my #relationships, nor will they ruin me.": buff.ly/0LcZfaC #humanity #LifeLessons #ChronicIllness
A Quarterly Reflection: 12 Important Life Lessons I’ve Learned (A girl half sits on a table with a notebook in hand, scribbling something in it.)
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A Chronic Voice @achronicvoice.com · 25/09/2026
"4. #Communication & #Collaboration are Key in #DoctorPatient Relationships — also doc-to-doc relationships. #ChronicIllnesses r never an isolated problem. #Patients often have to keep up with an assortment of doctors from diff dpts..covering head to toe.": buff.ly/eWbBMs1 #Autoimmune #MedSky
Is My Doctor Right for Me?
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A Chronic Voice @achronicvoice.com · 25/09/2026
"The #CAMHS & a specialist team from Great Ormond Street #Hospital created a #progress chart that would help motivate me to achieve my #dreams. I would get a point..whenever I moved an arm or finger.": buff.ly/epCpeIW #ChronicIllness #FND #ProgressiveDisease #disability #NeurologicalDisorder
Liam’s FND Story — Read about Liam’s diagnosis and recovery process, and how me achieved his dream of visiting London.
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A Chronic Voice @achronicvoice.com · 25/09/2026
"U could be working towards #reclaiming a certain aspect of your sense of self or #identity ..Or a state of #health & #wellbeing. Y could also be reclaiming a physical possession, certain #boundaries, etc" — There's still time to join us 😊 buff.ly/FXLXYLZ #ChronicIllness #ChronicPain #disability
September Writing Prompts for the Chronically Ill and Disabled: Asking, Overthinking, Humbling, Valuing, and Reclaiming. Visit: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 24/09/2026
"I think that #healthy people don’t #appreciate just how much "#boring" is actually a #BlessingInDisguise. In addition, when the #GoodDays do finally come around — as they always do — the taste is just that much sweeter.": buff.ly/CzI7Wcl #ChronicPain #spoonie #gratitude #disabled #SelfAwareness
How to Live with Chronic Illness? Read on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 24/09/2026
"The remnant surgical abrasions from the #KneeSurgery will also look bloody and disgusting. But not to worry; once you’re up and taking showers again, your skin will look better soon after.": buff.ly/OWqQjQB #ChronicIllness #lupus #surgery #PatellaTendonRupture #KneeInjury #disabled
Resources and Therapies for Pain After Major Knee Surgery
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A Chronic Voice @achronicvoice.com · 23/09/2026
"Often in large #social settings, I get #anxious & feel out of place..I struggle to verbalize how I truly feel bcos I get embarrassed. Help me find a place to sit & have a conversation one-on-one with me.": buff.ly/24NRhHw #friendship #ChronicPain #MentalIllness #MentalHealthAwareness #support
7 Ways to Be a Better Friend to Someone with a Chronic Illness (and 3 Things You Should Never Do)
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A Chronic Voice @achronicvoice.com · 23/09/2026
“'The only way to make sense out of change is to plunge into it, move with it, and join the dance.' ― Alan Wilson Watts” — I suppose #change is the only constant in #life. Here's to being in the flow this week! buff.ly/gZ9vb6S #LifeLessons #mindfulness #InspirationalQuote #wisdom #MentalHealth
“The only way to make sense out of change is to plunge into it, move with it, and join the dance.” ― Alan Wilson Watts
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A Chronic Voice @achronicvoice.com · 23/09/2026
"I’m..fortunate to have a great #doctor who thinks with me & is always up for listening to my suggestions. #Medication & care is very affordable [in #Belgium ], although getting #disability benefits as a young woman has proved..challenging.": buff.ly/NWNNEbt Featuring: sarahfrisonhc #ChronicIllness
“It’s in my Blood”: Sarah Frison. A pastry chef with dysautonomia, gastroparesis, gluten intolerance and allergies. Read the series about people with chronic illness, their passions, and talents. Read the blog.
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A Chronic Voice @achronicvoice.com · 22/09/2026
"The problem w #tendons, unlike #bones, is that they do not regrow. The best we can do is to try & repair the tendons with an #allograft or #autograft, which will never be as strong as they were in their original state. I might even be #disabled for life.": buff.ly/JLDAcfR #KneeSurgery #KneeInjury
Broken Knees — Read about my rare medical incident — spontaneous bilateral patellar tendon rupture (approximately only 50 reported cases in the medical literature), which was a result of my Lupus and steroid therapy. (A Chronic Voice .com)
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A Chronic Voice @achronicvoice.com · 22/09/2026
"I had to be confined to a #wheelchair ..& my #mother became my hands & legs. What this means is that there is zero #privacy ..I needed her assistance to move around, fetch things, take a shower, get dressed & even..[had t o be] spoonfed.": buff.ly/9U2DM1A #ChronicPain #disability #NEisVoid #carer
The Art of Supporting: Sometimes That Means Letting Go
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A Chronic Voice @achronicvoice.com · 22/09/2026
“After living with myriad #ChronicIllnesses over 20 years, you learn how to lead in regards to your own #healthcare. A #decision always has to be made. Even waiting something out is an action that could affect u in drastic ways.”: buff.ly/XyH2aWY #MondayBlogs #ChronicPain #AntiphospholipidSyndrome
Antiphospholipid Syndrome Emergency - Ovarian Cyst Ruptures
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A Chronic Voice @achronicvoice.com · 21/09/2026
"Whatever your need, reaching out to someone who has the capacity to give & is #happy to do so, is what being #human is all about. We’re all in this thing called #life together, so we might as well make the most out of it.": buff.ly/EXb9vig #LifeLessons #MondayBlogs #community #compassion #humanity
Asking for Help (and Why Everyone Needs to Learn This Important Life Skill). Read the post on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 21/09/2026
"I never saw my #surgeon at all..I will be changing #doctors after this, as I find this #invalidating & an unacceptable level of #PatientCare. I hv many questions to ask, I am in horrible pain, & I need some level of accountability on their end.": buff.ly/fWwH70D #MondayBlogs #surgery #ChronicPain
Treatment for AIN 3 — Imiquimod and Anal Excision. Read about my experience with the topical, Imiquimod, and invasive anal excision surgery, for AIN 3, on: A Chronic Voice .com.
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A Chronic Voice @achronicvoice.com · 21/09/2026
"We can work on sharing the #reality of our #experiences, and #SpeakUp for those who can’t or aren’t ready to do so yet. We can remind others of what it means to be #human, and how to behave like a decent one.": buff.ly/XSLRoJr #MondayBlogs #advocates #disability #ChronicIllness #SickGirl #spoonies
Call Me Sick Girl (Or How to Make Your Weakness Your Strength)
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