Jeannie Baumann @jeannieb.bsky.social · 12/05/2025RARE DISEASES folks: medicaid work requirements were obviously the big news from last night release of the E&C reconciliation bill. But there’s also a pretty big win for rare disease drug makers and groups like @nordrare.bsky.social 120
Jeannie Baumann @jeannieb.bsky.social · 12/05/2025Read more about last night’s bill text from @bgov.com’s @erincdurkin.bsky.social news.bloomberglaw.com/pharma-and-l...news.bloomberglaw.comHealth Coverage for Millions of Americans at Risk Under GOP PlanProposed work requirements for certain Medicaid beneficiaries between the ages of 19 and 64 would threaten health coverage for millions of Americans, according to independent analysis. 301
Jeannie Baumann @jeannieb.bsky.social · 12/05/2025I wrote about this a while back. Can’t believe it’s actually been almost two years. news.bloomberglaw.com/pharma-and-l...news.bloomberglaw.comMedicare Drug Price Guidance Leaves Murky Future for Rare DrugsRare disease patient advocates said Medicare’s final drug price implementation plan threatens to undo incentives to develop drugs for their patients, and they plan to increase pressure on Capitol Hill... 000
Jeannie Baumann @jeannieb.bsky.social · 12/05/2025But back to the orphan drug provision in the E&C reconciliation text. Some background: The Inflation Reduction Act exempts drugs with an FDA orphan drug designation from Medicare drug price negotiations. But if there is more than one Orphan Drug designation, that exemption no longer applies. 100
