ME/CFS Science @mecfsscience.org · 14/09/20264) They argue that objective tests could be useful in ME/CFS but that they should be used in a cautious and targeted way, for example if the diagnosis is unclear, for treatment personalization, or for disability/social benefits documentation. 2102
ME/CFS Science @mecfsscience.org · 14/09/20265) I think the document make some sensible recommendations but I also have strong doubts about some of the threshold they use. For actigraphy they use a cutoff of <2300 steps/day which is quite low. Many patients with mild-moderate ME/CFS will have more steps than this. 2142
Steve Fifield @stevefifield.bsky.social · 14/09/2026Indeed, achieving enough steps to make breakfast and get you to and from the toilet as often as needed each day isn’t a good determination that you are reasonably physically active. What’s more useful is counting what you can do beyond pure maintenance functionality. 020
ME/CFS Science @mecfsscience.org · 14/09/20266) Same issue with the 2-day CPET procedure where they require a VT workload reduction of 20% or more and an abnormal lactate response (many patients with PEM won't have either). For fatigue they recommend the Chalder Fatigue Scale (not a good choice!). 190
