iiinova — where your digital self keeps evolving

Replies

ME/CFS Science @mecfsscience.org · 04/08/2026

8) The results are shown below: there was basically no improvement in PEM scores. Secondary outcomes (mental health, severity of problems in usual activities, anxiety and depression, fatigue, and breathlessness) did improve but equally in both groups.

160

ME/CFS Science @mecfsscience.org · 04/08/2026

9) The authors note that "the substantial recovery rates previously reported in LC, coupled with our wide inclusion criteria, may have masked intervention effects." This is not the first study, though, that couldn't find a clinically significant effect of pacing.

2110

ME/CFS Science @mecfsscience.org · 04/08/2026

10) Link to the paper: Sanal-Hayes et al. 2026. A digital platform with activity tracking for energy management support in long COVID a randomised controlled trial.

nature.com

A digital platform with activity tracking for energy management support in long COVID: a randomised controlled trial

Nature Communications - Long COVID is associated with challenges in energy management, with limited interventions available. In this study, a just-in-time app-based energy management intervention...

190

Michiel @murtoz.bsky.social · 04/08/2026

Didn't I see you argue elsewhere that dsq-pem isn't an outcome measure but rather a screening tool? And they were using step count for their pacing algorithm, but didn't include it in outcome measures? Would have loved to see % step count change over time.

040