ME/CFS Science @mecfsscience.org · 30/06/20265) Similar results were seen on other outcomes. Handgrip strength slightly decreased. Step count remained the same around 4500 steps per day. Scores on the Bell Disability Scale decreased in 45% and increased in only 14% patients. 1191
ME/CFS Science @mecfsscience.org · 30/06/20266) So what happened? The authors write that patients found the management strategies helpful but that most "reported a temporary worsening either due to the travel to the rehabilitation facility or due to participation in the rehabilitation program itself." 2250
valebodi.bsky.social @valebodi.bsky.social · 30/06/2026Summary: patients in the interventions group went over their threshold having to over exert themselves, PEM ensued, their baseline fell and their ME worsened & progressed. Enough of these harmful studies! Also the SF-36?! How about using the FUNCAP and more blunt Bell for a start. 010
ME/CFS Science @mecfsscience.org · 30/06/20267) The paper concludes that: "Given the risk of PEM which may be triggered already by travel to the rehabilitation clinic and the general exertion involved, the value of rehabilitation for patients with ME/CFS should be critically re-evaluated." 1256
