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ME/CFS Science @mecfsscience.org · 27/06/2026

1) 🇬🇧 The ME Association published results of their new TIMES survey among 1028 adult ME/CFS patients. Women had a greater symptom burden than men. DecodeME previously reported something similar, namely that women have more symptoms and comorbidities than men.

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ME/CFS Science @mecfsscience.org · 27/06/2026

2) The TIMES survey asks how troublesome 58 symptoms were over the previous month on a 4- point Likert scale (0 = I do not have this symptom, 1 = mild-moderate, 2 = severe, 3 = very severe).

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ME/CFS Science @mecfsscience.org · 27/06/2026

3) Most (41.6%) of participants were moderately affected, a third (34.2%) were mildly affected, while a quarter (24.3%) were severely or very severely affected. The TIMES questionnaires had a moderate relationship with these ME/CFS severity categories (r=0.5).

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