ME/CFS Science @mecfsscience.org · 06/06/20264) It also mentions that severely ill patients, pacing increasingly becomes a task for the nursing team. They need to balance tasks so to not cause overexertion and worsening. In this case, the goal of pacing is not activation, but stabilization. 290
ME/CFS Science @mecfsscience.org · 06/06/20265) The guide gives a lot of practical tips on personal hygiene, clothing, communication, feeding, pressure ulcers, skin protection, washing hair in bed (e.g. with a wash cap or inflatable tub), etc. 1100
ME/CFS Science @mecfsscience.org · 06/06/20266) The guide was co-developed by carers and healthcare professionals. The goal was to combine evidence-based and experience-based knowledge and make it accessible to caregivers of people with severe ME/CFS. 1131
